[Nfbnet-members-list] Invitation to participate in research study on precision medicine

[Blake, Lou Ann]

Dear Fellow Federationists,

The below research participant solicitation is 
being provided for informational purposes only. 
The National Federation of the Blind has no 
involvement in this research, but we believe that 
it may contribute to our research mission.

Invitation letter

Spanish: to read this invitation letter in 
Spanish, go to 
<https://drive.google.com/file/d/1zUOEzo4Q5CCAuw9oZwHJR7tRczJslB2z/view?usp=sharing>this 
link

We are a team of researchers from Columbia 
University Medical Center in New York. We are 
conducting an online survey. The topic of the 
survey is precision medicine research. Precision 
medicine research looks at a person’s genetics 
(what they inherit from their families), their 
environment, and lifestyle. This type of research 
can help in preventing and diagnosing diseases and developing new treatments.

It is important that we learn what people with 
disabilities think about precision medicine 
research. We are NOT asking you to volunteer for 
precision medicine research. We are asking you to 
take our online Survey because you may have one of the following:

·       Blindness or low vision
·       Deafness or hard of hearing
·       Physical disability
·       Autism
·       Intellectual or developmental disability
·       Learning disability
·       Mental health or psychosocial disability

The Survey asks what you think about precision 
medicine research, and for some information about 
you. Your answers are valuable to us and will 
help researchers design the proposed precision 
medicine study. You will receive a $25 gift card if you complete the Survey.

The Survey is in English, Spanish and American 
Sign Language (ASL). It can be completed with 
accessibility programs like screen readers.

If you decide to take the Survey, please go to 
[<https://www.surveymonkey.com/r/TY5MJGL>Survey 
Monkey’s link] and choose English, Spanish or ASL.
You can also ask another person to help you.
It may take up to 25 minutes to finish the 
Survey. You can also stop at any time.

Your answers will not be linked to your name, and 
the researchers will not know your identity. If 
you have questions about the survey, please contact:

Maya Sabatello, LLB, PhD, at ms4075 at columbia.edu; 646-774- 8616
Paul Appelbaum, MD, at psa21 at cumc.columbia.edu; 646-774-8630.

Thank you very much for considering our request.

Sincerely,
Maya Sabatello, LLB, PhD and Paul S. Appelbaum, MD, Columbia University


Lou Ann Blake, J.D.
Deputy Executive Director, Jernigan Institute
200 East Wells Street, Baltimore, MD 21230
(410) 659-9314, extension 2221| <mailto:lblake at nfb.org>lblake at nfb.org


<https://nfb.org/>
National Federation of the Blind


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The National Federation of the Blind is a 
community of members and friends who believe in 
the hopes and dreams of the nation’s blind. Every 
day we work together to help blind people live the lives they want.




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