[Nfbnet-members-list] Fwd: Digital Mental Health Tracking Services: Perspectives of Blind Users

[David Andrews]

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>Digital Mental Health Tracking Services: Perspectives of Blind Users
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>Name of Institution
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>University of Illinois Urbana-Champaign
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>Purpose of the Study
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>The purpose of this study is to explore the use of digital mental 
>health (DMH) tracking services, such as Headspace and Daylio, among 
>the blind community. We aim to gain insights into the usage patterns 
>and preferences of these services within the blind community so that 
>we can create informed design recommendations for more inclusive and 
>useful digital mental health tracking experiences, potentially 
>benefiting other underrepresented communities. Participation 
>involves completing an online survey (uncompensated) and an optional 
>follow-up interview, which will be compensated with a $20 Amazon 
>e-gift card. This study seeks to contribute valuable knowledge on 
>the impact of DMH tracking services from the blind community's 
>perspective, which has been historically lacking and needed in the 
>development of digital mental health tracking services that are 
>beneficial and usable to all.
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>Proposed Alignment with NFB Research Mission
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>Our research aligns with the National Federation of the Blind's 
>mission by promoting innovative research concerning blindness and 
>enhancing the independence, self-respect, and self-determination of 
>blind individuals in managing their mental health. By exploring the 
>use of digital mental health tracking services and information 
>retrieval practices among the blind community, this study addresses 
>quality of life issues within digital mental health tracking 
>services and investigates how these existing platforms can be more 
>inclusive for the blind. The findings will contribute to better 
>understanding and improving usage patterns within digital mental 
>health tracking services, and nonvisual accessibility in mental 
>health services, ultimately supporting the NFB's goals of fostering 
>greater independence and inclusion for blind individuals.
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>Inclusion Criteria
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>Participants are required to; 1) Be physically located in the United 
>States of America; 2) Be at least 18 years of age; and 3) Identify 
>as being legally blind.
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>Role of the Participants and Anticipated Length of the Study
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>Participants will compete in an online survey hosted on the 
>Qualtrics platform. This survey will take approximately 10 to 20 
>minutes to complete. At the end of the survey, participants can 
>indicate their interest in being contacted for an optional, paid 
>follow-up interview that will last approximately 30 to 45 minutes 
>and be scheduled one week after they have completed the survey. 
>Completion of the entire interview will result in the participant 
>receiving a $20 Amazon e-gift card as a token of our appreciation.
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>Proposed Participant Compensation
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>Yes, Completion of the entire interview will result in the 
>participant receiving a $20 Amazon e-gift card.
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>Institutional Review Board (IRB) or other Ethics Group Approval
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>Yes, the study has been approved by an IRB at my university.
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>Link or Instructions for Participants to Enter the Study
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>How Are Digital Mental Health (DMH) Tracking Services Used by Blind 
>Users? We Want to Hear from You!
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>We are a team of researchers, and we want to learn more about how 
>individuals who are blind are using digital mental health (DMH) 
>tracking services. If you identify as blind, we would like to hear 
>about your perspectives on these tools! Your participation will 
>contribute valuable knowledge in understanding the impact of DMH 
>services on the blind community and help improve these tools for 
>better accessibility and effectiveness.
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>To be eligible to participate, you must:
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>- Be 18 years of age or older.
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>- Identify as legally blind
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>- Be currently physically located in the U.S.
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>Participation involves completing an online survey (which you can 
>find at https://illinois.qualtrics.com/jfe/form/SV_dhBNENtI6AKhJqe) 
>asking about your perspectives on and experiences with DMH tracking 
>services and your thoughts on accessibility and mental health 
>support. The survey should take between 10 and 20 minutes to 
>complete. At the end of the survey, you will be asked if you would 
>like to complete an optional, paid follow-up interview to further 
>discuss your experiences with DMH tracking services. This interview 
>will last between 30 to 45 minutes, and completion of the entire 
>interview will result in the participant receiving a $20 Amazon 
>e-gift card as a token of our appreciation.
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>If you have any questions, please feel free to reach out to 
>mkhan259 at illinois.edu or jseo1005 at illinois.edu.
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>Thank you for your time and interest!
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>IRB Number: IRB24-1062
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>IRB Approval Date: 08/05/2024
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>Researcher Contact Information
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>Omar Khan
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>(224) 423-8717
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>mkhan259 at illinois.edu
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>Principal Investigator (PI) or Study Leader Contact Information
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>JooYoung Seo
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>(217) 333-2671
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>jseo1005 at illinois.edu
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>Who Should Participants Contact?
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>Omar Khan
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>(224) 423-8717
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><mailto:mkhan259 at illinois.edu>mkhan259 at illinois.edu
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>Jenivieve White
>Program Specialist
>National Federation of the Blind
>200 East Wells Street, Baltimore, MD 21230
>410-659-9314, extension 2236 | <mailto:jwhite at nfb.org>jwhite at nfb.org
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><https://nfb.org/>
>National Federation of the Blind
>
>
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>
>The National Federation of the Blind is a community of members and 
>friends who believe in the hopes and dreams of the nation's blind. 
>Every day we work together to help blind people live the lives they want.
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