[nfb-talk] FW: Help dealing with my dad.

[Powers, Terry (NIH/OD/DEAS) [E]]

-----Original Message-----
From: Powers, Terry (NIH/OD/DEAS) [E] 
Sent: Thursday, May 29, 2008 7:55 AM
To: 'NFB Talk Mailing List'
Subject: RE: [nfb-talk] Help dealing with my dad.

Helene;
Sounds like we both have a lot in common.  We both have a sight problem,
sensativity to light and epelepsi and much more.  My husband knows I
have a sight problem, but continuously points to things, in the store,
with his cane.  He expects me to find the cane and follow it to the item
on the shelf.  Most of the time I do not even know he is even pointing.
I have a lot more to shair, but have a busy morning.  I might not be
able to get back until Monday.  Friday is my day off. 

Terry Powers
powerst at mail.nih.gov


-----Original Message-----
From: helene ryles [mailto:helene.ryles at talk21.com]
Sent: Wednesday, May 28, 2008 6:24 PM
To: nfb-talk at nfbnet.org
Subject: [nfb-talk] Help dealing with my dad.

I need some advice here. I'm having problems with my dad not ajusting to
my blindness. This is an example of some of the things that he has come
up with:

"The most I have ever seen blind people attempting in this area is walks
around the Brampton - and even then they were blind people with some
vestigial sight. I must say that I strongly believe that now you are
completely blind you will have to do less adventurous walks. This
grieves me to say, but total blindness alters everything as far as I am
concerned. I bet most of the blind people you read about online, have at
least some dim sight. If you want a complete break I am willing to
organize a seaside holiday".

It's been like this for a few months now. It's as if he thinks my
blindness has also made me go a little gaga too.
Later in the year I am going camping. I've already organised my rat
sitter. The people at this group know that I have lost some of my
residual vision, and with my light sensitivity problem I need to wear a
blindfold which is what all this fuss is about.

As it happens, I'm not totally blind except when I need to cover my eyes
due to severe light sensitivity. Which means as well as blocking light,
this also blocks my residual vision too. I'm aso profoundly deaf.

I made him some spagetti a few weeks ago with my blindfold. I couldn't
cook without it because the light was too bright at the time.
Unfortunately I dropped one of the pans so the spagetti spilt onto the
working surface but it was still edable. Concidering I've not had any
rehabilitation for cooking as yet and it's an area where I've relied on
my residual vision in the past I don't think I did too badly. He told me
that blind people didn't cook and my dropping things (which is probably
due to petit mal epilepsy rather then blindness and has been going on
for years) means I'm no longer safe in the kitchen.

So please could someone email me with advice on how to deal with my dad
before I end up disowning him, because if someone who was not family
related came up with such nonsense that's what I'd do.

Helene Ryles.

       
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