[nfb-talk] discounts for Dallas
cheryl echevarria
cherylandmaxx at hotmail.com
Sat Mar 8 12:17:18 CST 2008
Is there going to be an airline that is going to be the conventions airline, like last year it was Airtran. Does anyone know what texas is doing.
Cheryl Echevarria
----- Original Message -----
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Sent: Saturday, March 08, 2008 1:00 PM
Subject: nfb-talk Digest, Vol 22, Issue 11
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Today's Topics:
1. Re: interested in retinoblastoma (Cindy Handel)
2. National Convention (Beverly)
3. Music Lessons (Michael Bullis)
4. Good Idea or Bad Idea: Motivational Speakers at Chapter
Meetings (Tina Hansen)
5. Re: interested in retinoblastoma (Randi Rabiner)
6. Re: interested in retinoblastoma (T. Joseph Carter)
7. Re: Good Idea or Bad Idea: Motivational Speakers at Chapter
Meetings (T. Joseph Carter)
8. Re: A change of e-mail. (David Andrews)
9. Re: interested in retinoblastoma (Steve Jacobson)
----------------------------------------------------------------------
Message: 1
Date: Fri, 07 Mar 2008 14:45:08 -0500
From: "Cindy Handel" <cindy425 at verizon.net<mailto:cindy425 at verizon.net>>
Subject: Re: [nfb-talk] interested in retinoblastoma
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <00be01c8808b$c043d6e0$6501a8c0 at Handel<mailto:00be01c8808b$c043d6e0$6501a8c0 at Handel>>
Content-Type: text/plain; charset=iso-8859-1
It's a cancer of the eye.
Cindy
----- Original Message -----
From: "don nepple" <dnepple at hotmail.com<mailto:dnepple at hotmail.com>>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Sent: Friday, March 07, 2008 12:04 PM
Subject: Re: [nfb-talk] interested in retinoblastoma
what is this .don frum idaho.> From: alicia716 at msn.com<mailto:alicia716 at msn.com>> To:
nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>> Date: Thu, 6 Mar 2008 16:58:23 -0700> Subject: Re:
[nfb-talk] interested in retinoblastoma> > Hi, all. Steve, once again you
make very valid points, and in a positive > manner. You essentially listed
the reasons that I was told a group for RB > survivors could not be started,
though you did it in a much more > constructive way. Your points make sense.
Thanks. I believe I will write > to Dave and see what happens.> > Alicia > >
_______________________________________________> nfb-talk mailing list>
nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>> http://www.nfbnet.org/mailman/listinfo/nfb-talk<http://www.nfbnet.org/mailman/listinfo/nfb-talk>
_________________________________________________________________
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------------------------------
Message: 2
Date: Fri, 7 Mar 2008 15:09:09 -0500
From: "Beverly" <shilohsmom at bellsouth.net<mailto:shilohsmom at bellsouth.net>>
Subject: [nfb-talk] National Convention
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <000401c8808f$1b8c7e50$0201a8c0 at BEVERLY<mailto:000401c8808f$1b8c7e50$0201a8c0 at BEVERLY>>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Hi all, anyone who is going to the National Convention in Dallas and needs
to make travel arrangements, give us a call at 888-384-5552. We are a
travel agency and are working on getting everyone to Dallas who wants to go.
ShilohsTravel.
http://www.shilohstravel.com<http://www.shilohstravel.com/>
Reservations at shilohstravel.com<mailto:Reservations at shilohstravel.com>
888-384-5552
------------------------------
Message: 3
Date: Fri, 7 Mar 2008 20:19:24 -0500
From: "Michael Bullis" <mabullis at hotmail.com<mailto:mabullis at hotmail.com>>
Subject: [nfb-talk] Music Lessons
To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <BAY126-DAV7F4600BCEDE81D7876038CE0C0 at phx.gbl<mailto:BAY126-DAV7F4600BCEDE81D7876038CE0C0 at phx.gbl>>
Content-Type: text/plain; charset="us-ascii"
I know this isn't the music list but thought those of you who occasionally
think about learning to play an instrument might find this site of value.
It's called Musicfortheblind.com and is operated by Bill Brown. His lessons
are very clear and require no prior background in music. My experience with
most lessons is that they inevitably refer you to pictures for fingering or
spend inordinate amounts of time explaining print music staffs and so forth.
So, if you've considered playing the guitar, piano, or even the harmonica go
and check it out. The lessons are reasonably priced and a heck of a lot of
fun.
Mike Bullis
-------------- next part --------------
I know this isn't the music list but thought those of you who occasionally think about learning to play an instrument might find this site of value.
It's called Musicfortheblind.com and is operated by Bill Brown. His lessons are very clear and require no prior background in music. My experience with most lessons is that they inevitably refer you to pictures for fingering or spend inordinate amounts of time explaining print music staffs and so forth.
So, if you've considered playing the guitar, piano, or even the harmonica go and check it out. The lessons are reasonably priced and a heck of a lot of fun.
Mike Bullis
------------------------------
Message: 4
Date: Fri, 7 Mar 2008 18:39:19 -0800
From: "Tina Hansen" <tinah at peak.org<mailto:tinah at peak.org>>
Subject: [nfb-talk] Good Idea or Bad Idea: Motivational Speakers at
Chapter Meetings
To: <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <000501c880c5$9ca48740$0208a8c0 at ocb<mailto:000501c880c5$9ca48740$0208a8c0 at ocb>>
Content-Type: text/plain; charset="iso-8859-1"
I appreciate all of you sharing your thoughts on locations for chapter
meetings. I want to take this to the next level and ask for opinions on
another question that's been on my mind for some time: the use of
motivational speakers at chapter meetings. I know one state affiliate
brought one in to give a seminar at its state convention.
I also want to hear people's thoughts about using outside facilitators to
lead workshops on such topics as goal setting. I'm not talking about someone
telling the chapter what to do, but guiding the chapter and showing them how
to set goals, for instance.
Can anyone point out pros and cons to using outside speakers and/or
facilitators at chapter meetings? If your chapter has used these people,
what experience have you had, good or bad? If you've used outside speakers
and/or facilitators, where have you found them, and how effective was their
sessions? Did they help or hurt the growth of your chapter?
Any thoughts on this topic would be highly appreciated. Thanks.
------------------------------
Message: 5
Date: Sat, 8 Mar 2008 03:31:43 -0500
From: "Randi Rabiner" <rrabiner5 at bellsouth.net<mailto:rrabiner5 at bellsouth.net>>
Subject: Re: [nfb-talk] interested in retinoblastoma
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <004401c880f6$d7de2830$6401a8c0 at randia718443ec<mailto:004401c880f6$d7de2830$6401a8c0 at randia718443ec>>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
i am also a 54 year old survivor who lost my sight at the age of 42 and only
in recent years have others with the same disease but would to hear from
others. my e mail is rrabiner5 at bellsouth.net<mailto:rrabiner5 at bellsouth.net> Randi Rabiner
----- Original Message -----
From: "Mark Feliz" <felizfamily5 at msn.com<mailto:felizfamily5 at msn.com>>
To: <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Sent: Wednesday, March 05, 2008 9:54 PM
Subject: [nfb-talk] interested in retinoblastoma
Greeting fellow federationists:
I am a retinoblastoma surviver of 46 years of age. It seems of late that I
have heard of several deaths involving the history of retinoblastoma. I am
interested in finding a talking with people who are retinoblastoma
survivers. Is there already a group of sort within NFB.?
Curious
Mark Feliz
Mark Feliz
National Federation of the Blind of Arizona
East Valley Chapter President
1038 W. Hillview St
Mesa, AZ 85201
480-890-8943
--------------------------------------------------------------------------------
> _______________________________________________
> nfb-talk mailing list
> nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>
> http://www.nfbnet.org/mailman/listinfo/nfb-talk<http://www.nfbnet.org/mailman/listinfo/nfb-talk>
>
------------------------------
Message: 6
Date: Sat, 8 Mar 2008 01:05:30 -0800
From: "T. Joseph Carter" <tjosephcarter at gmail.com<mailto:tjosephcarter at gmail.com>>
Subject: Re: [nfb-talk] interested in retinoblastoma
To: NFB Talk Mailing List <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <20080308090530.GA577 at bluecherry.net<mailto:20080308090530.GA577 at bluecherry.net>>
Content-Type: text/plain; charset=utf-8
Steve,
I don't think it necessarily warrants a whole division--I understand it is
not hugely common. But survivors of any serious life-threatening event
should be able to find support from other survivors. That does not
require a division, but it may require a place for survivors to find one
another.
Joseph
On Thu, Mar 06, 2008 at 09:45:38AM -0600, Steve Jacobson wrote:
> Joe and Alicia,
>
> There are those of us who might question some of the divisions we have already set up. <smile> In some cases, though, the sheer numbers of people that share
> something like diabetes probably justifies a division. Having said that, I personally do recognize the problems of dealing with RB. If I were to guess, I would
> speculate that there is a hesitancy to start organizing by causes of blindness because of the number of causes and so much of what we need to do is centered on
> the resulting blindness and not the causes. Still, there are certainly some circumstances that arise from RB that make communicating and sharing information helpful
> and valuable. I would write to Dave and explore setting up a list within the NFBNET framework and see what happens.
------------------------------
Message: 7
Date: Sat, 8 Mar 2008 01:43:54 -0800
From: "T. Joseph Carter" <tjosephcarter at gmail.com<mailto:tjosephcarter at gmail.com>>
Subject: Re: [nfb-talk] Good Idea or Bad Idea: Motivational Speakers
at Chapter Meetings
To: NFB Talk Mailing List <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <20080308094354.GB577 at bluecherry.net<mailto:20080308094354.GB577 at bluecherry.net>>
Content-Type: text/plain; charset=utf-8
Tina,
It might be hard to do and potentially expensive, but provided those
issues are resolved, I cannot find fault with it. There are all sorts of
relevant things that come to mind and would have a wider appeal than to
just the current Salem chapter (which is unfortunately not large) and
might serve as recruiting and fund raising opportunities.
I wouldn't suggest trying to make them into fund raisers (that thinking
leads to spending money in the hopes of making money, and this is the
absolute wrong economic climate to be taking risks like that), but still,
if we can make a few bucks toward taking our speaker to lunch as a token
of our appreciation, so much the better.
Topics of personal interest include goal setting, time management (in
particular the development and efficient use of Getting Things Done (GTD)
systems), most anything on blindness skills, and any motivational/positive
thinking person who focuses on how to actually solve problems rather than
just imagining yourself with the solution. The latter tends not to be
necessary in my experience if you have the tools to do the former, and no
amount of the latter is going to help if don't have those tools.
Joseph
On Fri, Mar 07, 2008 at 06:39:19PM -0800, Tina Hansen wrote:
> I appreciate all of you sharing your thoughts on locations for chapter
> meetings. I want to take this to the next level and ask for opinions on
> another question that's been on my mind for some time: the use of
> motivational speakers at chapter meetings. I know one state affiliate
> brought one in to give a seminar at its state convention.
>
> I also want to hear people's thoughts about using outside facilitators to
> lead workshops on such topics as goal setting. I'm not talking about someone
> telling the chapter what to do, but guiding the chapter and showing them how
> to set goals, for instance.
>
> Can anyone point out pros and cons to using outside speakers and/or
> facilitators at chapter meetings? If your chapter has used these people,
> what experience have you had, good or bad? If you've used outside speakers
> and/or facilitators, where have you found them, and how effective was their
> sessions? Did they help or hurt the growth of your chapter?
>
> Any thoughts on this topic would be highly appreciated. Thanks.
>
> _______________________________________________
> nfb-talk mailing list
> nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>
> http://www.nfbnet.org/mailman/listinfo/nfb-talk<http://www.nfbnet.org/mailman/listinfo/nfb-talk>
------------------------------
Message: 8
Date: Sat, 08 Mar 2008 09:35:16 -0600
From: David Andrews <dandrews at visi.com<mailto:dandrews at visi.com>>
Subject: Re: [nfb-talk] A change of e-mail.
To: NFB Talk Mailing List <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>, "NFB Talk Mailing
List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <auto-000041010992 at mailfront1.g2host.com<mailto:auto-000041010992 at mailfront1.g2host.com>>
Content-Type: text/plain; charset="us-ascii"; format=flowed
Write to me at dandrews at visi.com<mailto:dandrews at visi.com>
and I will help you.
Dave
At 10:53 PM 3/3/2008, bright-sunshine wrote:
>Greeting to you all!
>
>I would like to change my e-mail for this list. I do not have a
>password and I would like to know where I would go or need to do to
>change my e-mail? Thanks
>
>Jung, Soo Keea
>
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk
>
>No virus found in this incoming message.
>Checked by AVG Free Edition.
>Version: 7.5.516 / Virus Database: 269.21.4/1313 - Release Date:
>3/5/2008 9:50 AM
------------------------------
Message: 9
Date: Sat, 08 Mar 2008 09:39:33 -0600
From: "Steve Jacobson" <steve.jacobson at visi.com<mailto:steve.jacobson at visi.com>>
Subject: Re: [nfb-talk] interested in retinoblastoma
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org<mailto:nfb-talk at nfbnet.org>>
Message-ID: <auto-000041022349 at mailfront1.g2host.com<mailto:auto-000041022349 at mailfront1.g2host.com>>
Content-Type: text/plain; charset="iso-8859-1"
Joe,
I really don't think we disagree.
On Sat, 8 Mar 2008 01:05:30 -0800, T. Joseph Carter wrote:
>Steve,
>I don't think it necessarily warrants a whole division--I understand it is
>not hugely common. But survivors of any serious life-threatening event
>should be able to find support from other survivors. That does not
>require a division, but it may require a place for survivors to find one
>another.
>Joseph
>On Thu, Mar 06, 2008 at 09:45:38AM -0600, Steve Jacobson wrote:
>> Joe and Alicia,
>>
>> There are those of us who might question some of the divisions we have already set up. <smile> In some cases,
though, the sheer numbers of people that share
>> something like diabetes probably justifies a division. Having said that, I personally do recognize the problems of
dealing with RB. If I were to guess, I would
>> speculate that there is a hesitancy to start organizing by causes of blindness because of the number of causes and
so much of what we need to do is centered on
>> the resulting blindness and not the causes. Still, there are certainly some circumstances that arise from RB that make
communicating and sharing information helpful
>> and valuable. I would write to Dave and explore setting up a list within the NFBNET framework and see what
happens.
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk
------------------------------
_______________________________________________
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http://www.nfbnet.org/mailman/listinfo/nfb-talk<http://www.nfbnet.org/mailman/listinfo/nfb-talk>
End of nfb-talk Digest, Vol 22, Issue 11
****************************************
-------------- next part --------------
Is there going to be an airline that is going to be the conventions airline, like last year it was Airtran. Does anyone know what texas is doing.
Cheryl Echevarria
----- Original Message -----
From:
mailto:nfb-talk-request at nfbnet.org nfb-talk-request at nfbnet.org
To:
mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
Sent:
Saturday, March 08, 2008 1:00 PM
Subject:
nfb-talk Digest, Vol 22, Issue 11
Send nfb-talk mailing list submissions to
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To subscribe or unsubscribe via the World Wide Web, visit
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When replying, please edit your Subject line so it is more specific
than "Re: Contents of nfb-talk digest..."
Today's Topics:
1. Re: interested in retinoblastoma (Cindy Handel)
2. National Convention (Beverly)
3. Music Lessons (Michael Bullis)
4. Good Idea or Bad Idea: Motivational Speakers at Chapter
Meetings (Tina Hansen)
5. Re: interested in retinoblastoma (Randi Rabiner)
6. Re: interested in retinoblastoma (T. Joseph Carter)
7. Re: Good Idea or Bad Idea: Motivational Speakers at Chapter
Meetings (T. Joseph Carter)
8. Re: A change of e-mail. (David Andrews)
9. Re: interested in retinoblastoma (Steve Jacobson)
----------------------------------------------------------------------
Message: 1
Date: Fri, 07 Mar 2008 14:45:08 -0500
From: "Cindy Handel" < mailto:cindy425 at verizon.net cindy425 at verizon.net
>
Subject: Re: [nfb-talk] interested in retinoblastoma
To: "NFB Talk Mailing List" < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Message-ID: < mailto:00be01c8808b$c043d6e0$6501a8c0 at Handel 00be01c8808b$c043d6e0$6501a8c0 at Handel
>
Content-Type: text/plain; charset=iso-8859-1
It's a cancer of the eye.
Cindy
----- Original Message -----
From: "don nepple" < mailto:dnepple at hotmail.com dnepple at hotmail.com
>
To: "NFB Talk Mailing List" < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Sent: Friday, March 07, 2008 12:04 PM
Subject: Re: [nfb-talk] interested in retinoblastoma
what is this .don frum idaho.> From: mailto:alicia716 at msn.com alicia716 at msn.com
> To:
mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
> Date: Thu, 6 Mar 2008 16:58:23 -0700> Subject: Re:
[nfb-talk] interested in retinoblastoma> > Hi, all. Steve, once again you
make very valid points, and in a positive > manner. You essentially listed
the reasons that I was told a group for RB > survivors could not be started,
though you did it in a much more > constructive way. Your points make sense.
Thanks. I believe I will write > to Dave and see what happens.> > Alicia > >
_______________________________________________> nfb-talk mailing list>
mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/nfb-talk http://www.nfbnet.org/mailman/listinfo/nfb-talk
_________________________________________________________________
Climb to the top of the charts! Play the word scramble challenge with star
power.
http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan http://club.live.com/star_shuffle.aspx?icid=starshuffle_wlmailtextlink_jan
--------------------------------------------------------------------------------
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mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
http://www.nfbnet.org/mailman/listinfo/nfb-talk http://www.nfbnet.org/mailman/listinfo/nfb-talk
------------------------------
Message: 2
Date: Fri, 7 Mar 2008 15:09:09 -0500
From: "Beverly" < mailto:shilohsmom at bellsouth.net shilohsmom at bellsouth.net
>
Subject: [nfb-talk] National Convention
To: "NFB Talk Mailing List" < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Message-ID: < mailto:000401c8808f$1b8c7e50$0201a8c0 at BEVERLY 000401c8808f$1b8c7e50$0201a8c0 at BEVERLY
>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Hi all, anyone who is going to the National Convention in Dallas and needs
to make travel arrangements, give us a call at 888-384-5552. We are a
travel agency and are working on getting everyone to Dallas who wants to go.
ShilohsTravel.
http://www.shilohstravel.com http://www.shilohstravel.com
mailto:Reservations at shilohstravel.com Reservations at shilohstravelcom
888-384-5552
------------------------------
Message: 3
Date: Fri, 7 Mar 2008 20:19:24 -0500
From: "Michael Bullis" < mailto:mabullis at hotmail.com mabullis at hotmail.com
>
Subject: [nfb-talk] Music Lessons
To: "'NFB Talk Mailing List'" < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Message-ID: < mailto:BAY126-DAV7F4600BCEDE81D7876038CE0C0 at phx.gbl BAY126-DAV7F4600BCEDE81D7876038CE0C0 at phx.gbl
>
Content-Type: text/plain; charset="us-ascii"
I know this isn't the music list but thought those of you who occasionally
think about learning to play an instrument might find this site of value.
It's called Musicfortheblind.com and is operated by Bill Brown. His lessons
are very clear and require no prior background in music. My experience with
most lessons is that they inevitably refer you to pictures for fingering or
spend inordinate amounts of time explaining print music staffs and so forth.
So, if you've considered playing the guitar, piano, or even the harmonica go
and check it out. The lessons are reasonably priced and a heck of a lot of
fun.
Mike Bullis
-------------- next part --------------
I know this isn't the music list but thought those of you who occasionally think about learning to play an instrument might find this site of value.
It's called Musicfortheblind.com and is operated by Bill Brown. His lessons are very clear and require no prior background in music. My experience with most lessons is that they inevitably refer you to pictures for fingering or spend inordinate amounts of time explaining print music staffs and so forth.
So, if you've considered playing the guitar, piano, or even the harmonica go and check it out. The lessons are reasonably priced and a heck of a lot of fun.
Mike Bullis
------------------------------
Message: 4
Date: Fri, 7 Mar 2008 18:39:19 -0800
From: "Tina Hansen" < mailto:tinah at peak.org tinah at peak.org
>
Subject: [nfb-talk] Good Idea or Bad Idea: Motivational Speakers at
Chapter Meetings
To: < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Message-ID: < mailto:000501c880c5$9ca48740$0208a8c0 at ocb 000501c880c5$9ca48740$0208a8c0 at ocb
>
Content-Type: text/plain; charset="iso-8859-1"
I appreciate all of you sharing your thoughts on locations for chapter
meetings. I want to take this to the next level and ask for opinions on
another question that's been on my mind for some time: the use of
motivational speakers at chapter meetings. I know one state affiliate
brought one in to give a seminar at its state convention.
I also want to hear people's thoughts about using outside facilitators to
lead workshops on such topics as goal setting. I'm not talking about someone
telling the chapter what to do, but guiding the chapter and showing them how
to set goals, for instance.
Can anyone point out pros and cons to using outside speakers and/or
facilitators at chapter meetings? If your chapter has used these people,
what experience have you had, good or bad? If you've used outside speakers
and/or facilitators, where have you found them, and how effective was their
sessions? Did they help or hurt the growth of your chapter?
Any thoughts on this topic would be highly appreciated. Thanks.
------------------------------
Message: 5
Date: Sat, 8 Mar 2008 03:31:43 -0500
From: "Randi Rabiner" < mailto:rrabiner5 at bellsouth.net rrabiner5 at bellsouth.net
>
Subject: Re: [nfb-talk] interested in retinoblastoma
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i am also a 54 year old survivor who lost my sight at the age of 42 and only
in recent years have others with the same disease but would to hear from
others. my e mail is mailto:rrabiner5 at bellsouth.net rrabiner5 at bellsouth.net
Randi Rabiner
----- Original Message -----
From: "Mark Feliz" < mailto:felizfamily5 at msn.com felizfamily5 at msn.com
>
To: < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
>
Sent: Wednesday, March 05, 2008 9:54 PM
Subject: [nfb-talk] interested in retinoblastoma
Greeting fellow federationists:
I am a retinoblastoma surviver of 46 years of age. It seems of late that I
have heard of several deaths involving the history of retinoblastoma. I am
interested in finding a talking with people who are retinoblastoma
survivers. Is there already a group of sort within NFB.?
Curious
Mark Feliz
Mark Feliz
National Federation of the Blind of Arizona
East Valley Chapter President
1038 W. Hillview St
Mesa, AZ 85201
480-890-8943
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------------------------------
Message: 6
Date: Sat, 8 Mar 2008 01:05:30 -0800
From: "T. Joseph Carter" < mailto:tjosephcarter at gmail.com tjosephcarter at gmail.com
>
Subject: Re: [nfb-talk] interested in retinoblastoma
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Steve,
I don't think it necessarily warrants a whole division--I understand it is
not hugely common. But survivors of any serious life-threatening event
should be able to find support from other survivors. That does not
require a division, but it may require a place for survivors to find one
another.
Joseph
On Thu, Mar 06, 2008 at 09:45:38AM -0600, Steve Jacobson wrote:
> Joe and Alicia,
>
> There are those of us who might question some of the divisions we have already set up. <smile> In some cases, though, the sheer numbers of people that share
> something like diabetes probably justifies a division. Having said that, I personally do recognize the problems of dealing with RB. If I were to guess, I would
> speculate that there is a hesitancy to start organizing by causes of blindness because of the number of causes and so much of what we need to do is centered on
> the resulting blindness and not the causes. Still, there are certainly some circumstances that arise from RB that make communicating and sharing information helpful
> and valuable. I would write to Dave and explore setting up a list within the NFBNET framework and see what happens.
------------------------------
Message: 7
Date: Sat, 8 Mar 2008 01:43:54 -0800
From: "T. Joseph Carter" < mailto:tjosephcarter at gmail.com tjosephcarter at gmail.com
>
Subject: Re: [nfb-talk] Good Idea or Bad Idea: Motivational Speakers
at Chapter Meetings
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>
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Tina,
It might be hard to do and potentially expensive, but provided those
issues are resolved, I cannot find fault with it. There are all sorts of
relevant things that come to mind and would have a wider appeal than to
just the current Salem chapter (which is unfortunately not large) and
might serve as recruiting and fund raising opportunities.
I wouldn't suggest trying to make them into fund raisers (that thinking
leads to spending money in the hopes of making money, and this is the
absolute wrong economic climate to be taking risks like that), but still,
if we can make a few bucks toward taking our speaker to lunch as a token
of our appreciation, so much the better.
Topics of personal interest include goal setting, time management (in
particular the development and efficient use of Getting Things Done (GTD)
systems), most anything on blindness skills, and any motivational/positive
thinking person who focuses on how to actually solve problems rather than
just imagining yourself with the solution. The latter tends not to be
necessary in my experience if you have the tools to do the former, and no
amount of the latter is going to help if don't have those tools.
Joseph
On Fri, Mar 07, 2008 at 06:39:19PM -0800, Tina Hansen wrote:
> I appreciate all of you sharing your thoughts on locations for chapter
> meetings. I want to take this to the next level and ask for opinions on
> another question that's been on my mind for some time: the use of
> motivational speakers at chapter meetings. I know one state affiliate
> brought one in to give a seminar at its state convention.
>
> I also want to hear people's thoughts about using outside facilitators to
> lead workshops on such topics as goal setting. I'm not talking about someone
> telling the chapter what to do, but guiding the chapter and showing them how
> to set goals, for instance.
>
> Can anyone point out pros and cons to using outside speakers and/or
> facilitators at chapter meetings? If your chapter has used these people,
> what experience have you had, good or bad? If you've used outside speakers
> and/or facilitators, where have you found them, and how effective was their
> sessions? Did they help or hurt the growth of your chapter?
>
> Any thoughts on this topic would be highly appreciated. Thanks.
>
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------------------------------
Message: 8
Date: Sat, 08 Mar 2008 09:35:16 -0600
From: David Andrews < mailto:dandrews at visi.com dandrews at visi.com
>
Subject: Re: [nfb-talk] A change of e-mail.
To: NFB Talk Mailing List < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
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List" < mailto:nfb-talk at nfbnet.org nfb-talk at nfbnet.org
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Write to me at mailto:dandrews at visi.com dandrews at visi.com
and I will help you.
Dave
At 10:53 PM 3/3/2008, bright-sunshine wrote:
>Greeting to you all!
>
>I would like to change my e-mail for this list. I do not have a
>password and I would like to know where I would go or need to do to
>change my e-mail? Thanks
>
>Jung, Soo Keea
>
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------------------------------
Message: 9
Date: Sat, 08 Mar 2008 09:39:33 -0600
From: "Steve Jacobson" < mailto:steve.jacobson at visi.com steve.jacobson at visi.com
>
Subject: Re: [nfb-talk] interested in retinoblastoma
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Joe,
I really don't think we disagree.
On Sat, 8 Mar 2008 01:05:30 -0800, T. Joseph Carter wrote:
>Steve,
>I don't think it necessarily warrants a whole division--I understand it is
>not hugely common. But survivors of any serious life-threatening event
>should be able to find support from other survivors. That does not
>require a division, but it may require a place for survivors to find one
>another.
>Joseph
>On Thu, Mar 06, 2008 at 09:45:38AM -0600, Steve Jacobson wrote:
>> Joe and Alicia,
>>
>> There are those of us who might question some of the divisions we have already set up. <smile> In some cases,
though, the sheer numbers of people that share
>> something like diabetes probably justifies a division. Having said that, I personally do recognize the problems of
dealing with RB. If I were to guess, I would
>> speculate that there is a hesitancy to start organizing by causes of blindness because of the number of causes and
so much of what we need to do is centered on
>> the resulting blindness and not the causes. Still, there are certainly some circumstances that arise from RB that make
communicating and sharing information helpful
>> and valuable. I would write to Dave and explore setting up a list within the NFBNET framework and see what
happens.
>_______________________________________________
>nfb-talk mailing list
>nfb-talk at nfbnet.org
>http://www.nfbnet.org/mailman/listinfo/nfb-talk
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