[nfb-talk] interested in retinoblastoma

[T. Joseph Carter]

Steve,

I don't think it necessarily warrants a whole division--I understand it is
not hugely common.  But survivors of any serious life-threatening event
should be able to find support from other survivors.  That does not
require a division, but it may require a place for survivors to find one
another.

Joseph

On Thu, Mar 06, 2008 at 09:45:38AM -0600, Steve Jacobson wrote:
> Joe and Alicia,
> 
> There are those of us who might question some of the divisions we have already set up.  <smile>  In some cases, though, the sheer numbers of people that share 
> something like diabetes probably justifies a division.  Having said that, I personally do recognize the problems of dealing with RB.  If I were to guess, I would 
> speculate that there is a hesitancy to start organizing by causes of blindness because of the number of causes and so much of what we need to do is centered on 
> the resulting blindness and not the causes.  Still, there are certainly some circumstances that arise from RB that make communicating and sharing information helpful 
> and valuable.  I would write to Dave and explore setting up a list within the NFBNET framework and see what happens.