From hwmhein at gmail.com  Sun Nov  1 14:36:40 2020
From: hwmhein at gmail.com (Hope Hein)
Date: Sun, 1 Nov 2020 09:36:40 -0500
Subject: [Diabetes-Talk] Libre Link
Message-ID: <4D58FF56-784D-4163-9AD6-97E6B417D498@gmail.com>

hello, my name is Hope Hein. I am using the libre link sensor with my iPhone X S. I have updated it to the 14 version which does not say sensor icon when I test my sugar. I am also having trouble writing in the comments section of the libre link voiceover does not work well with it please advise if anyone is able to do these things how I can succeed with this thank you. hello, my name is Hope. I am using the libre link sensor with my iPhone XS. I updated the iPhone software yesterday to the new 14 version. The libre link sensor does not identify itself it just says button when you tap on it also I am having difficulty writing notes in the comments sections and filling out the food sections. Voiceover does not always read everything that I tell Hello, my name is Hope, I am using the libre link sensor. I am having difficulty writing in the notes section and also accessing some of the features with voiceover I received the new iPhone 14 update yesterday I have an iPhone X S and the libre link now just says button and does not say sensor icon like it used to say when I will beLibre Link

Hope Hein

> On Nov 1, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. Freestyle Libre question. (Alan Wheeler)
>   2. Re: Freestyle Libre question. (Jeanette Kutash)
>   3. Re: Freestyle Libre question. (Alan Wheeler)
>   4. Re: Freestyle Libre question. (Patricia Maddix)
>   5. Re: Freestyle Libre question. (Veronica Elsea)
>   6. Re: Freestyle Libre question. (Alan Wheeler)
>   7. Re: Freestyle Libre question. (Mike Capelle)
>   8. Re: Freestyle Libre question. (Veronica Elsea)
>   9. Re: Freestyle Libre question. (Alan Wheeler)
>  10. Re: Freestyle Libre question. (Jeanette Kutash)
>  11. Re: Freestyle Libre question. (gary-melconian)
>  12. Re: Freestyle Libre question. (gary-melconian)
>  13. Re: Freestyle Libre question. (gary-melconian)
>  14. Re: Freestyle Libre question. (gary-melconian)
>  15. Re: Freestyle Libre question. (gary-melconian)
>  16. Re: Freestyle Libre question. (gary-melconian)
>  17. Re: Freestyle Libre question. (Jeanette Kutash)
>  18. Re: Freestyle Libre question. (Jeanette Kutash)
>  19. Re: Freestyle Libre question. (Mark Feliz)
>  20. Re: Freestyle Libre question. (Jeanette Kutash)
>  21. Re: Freestyle Libre question. (gary-melconian)
>  22. Re: Freestyle Libre question. (gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Sat, 31 Oct 2020 07:31:07 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: diabetes-talk at nfbnet.org
> Subject: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <786C0D2F-9E04-4A45-B958-9D5B2F45FC92 at gmail.com>
> Content-Type: text/plain; charset=us-ascii
> 
> Hello everyone,
> I decided to ask my doctor about getting a Freestyle Libre. While I am waiting to hear back, I decided to go to the web site to do research. I went to the mobile compatibility guide and immediately got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14. Is the Libre compatible?
> 
> Alan
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Sat, 31 Oct 2020 11:23:43 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000001d6af99$d2390e60$76ab2b20$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> I havfe iphone 10 and IOS14. The app is compatible. You just will have a
> less costly phone, but you will be fine with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 10:31 AM
> To: diabetes-talk at nfbnet.org
> Cc: Alan Wheeler
> Subject: [Diabetes-Talk] Freestyle Libre question.
> 
> Hello everyone,
> I decided to ask my doctor about getting a Freestyle Libre. While I am
> waiting to hear back, I decided to go to the web site to do research. I went
> to the mobile compatibility guide and immediately got confused. So, my
> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
> Is the Libre compatible?
> 
> Alan
> 
> "If you want to practice anything, practice knowing you can do whatever you
> set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Sat, 31 Oct 2020 08:33:32 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <EEFF44FF-944A-40A1-90EA-C7BD596C47EC at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> I have the phone, I just need to update the IOS. 
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 4
> Date: Sat, 31 Oct 2020 11:26:34 -0700
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <2D053FBF-57B0-4E07-B15B-E081303DADC2 at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 5
> Date: Sat, 31 Oct 2020 12:59:59 -0700
> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000601d6afc0$6a0dcfc0$3e296f40$@laurelcreekmusic.com>
> Content-Type: text/plain;    charset="UTF-8"
> 
> As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 6
> Date: Sat, 31 Oct 2020 13:17:24 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <5280C7F2-986F-4AEE-B13B-D1E3F4C64C13 at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>> less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>> Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>> waiting to hear back, I decided to go to the web site to do research. I went
>>> to the mobile compatibility guide and immediately got confused. So, my
>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you
>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 7
> Date: Sat, 31 Oct 2020 15:20:06 -0500
> From: "Mike Capelle" <mcap at fastmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <002901d6afc3$393d4ad0$abb7e070$@fastmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>> less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>> Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>> waiting to hear back, I decided to go to the web site to do research. I went
>>> to the mobile compatibility guide and immediately got confused. So, my
>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you
>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 8
> Date: Sat, 31 Oct 2020 13:21:03 -0700
> From: Veronica Elsea <veronica at laurelcreekmusic.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID:
>    <77DAC205-1473-4E68-A17B-A250BA50D7AC at laurelcreekmusic.com>
> Content-Type: text/plain; charset=utf-8
> 
> The app does not work well with voiceover. So we do not have access to the alarms and such.
> 
> 
> Veronica Elsea, owner, Laurel Creek Music Designs
> 
>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?What do you mean it doesn't work for us? Just curious.
>> 
>> 
>> 
>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> 
>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 11:27 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>>> less costly phone, but you will be fine with the app.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>>> Alan Wheeler via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Alan Wheeler
>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> Hello everyone,
>>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>>> waiting to hear back, I decided to go to the web site to do research. I went
>>>> to the mobile compatibility guide and immediately got confused. So, my
>>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>> Is the Libre compatible?
>>>> 
>>>> Alan
>>>> 
>>>> "If you want to practice anything, practice knowing you can do whatever you
>>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>>> 
>>>> My blog: http://doingitdeeper.blogspot.com/
>>>> 
>>>> Sent from my iPad
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>>> st.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 9
> Date: Sat, 31 Oct 2020 13:24:09 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <5D4EEA0C-1A0F-46D8-9E6A-93BED4DA6D7E at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> So, then, is it worth the effort to even get one?
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:22 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?The app does not work well with voiceover. So we do not have access to the alarms and such.
>> 
>> 
>> Veronica Elsea, owner, Laurel Creek Music Designs
>> 
>>>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?What do you mean it doesn't work for us? Just curious.
>>> 
>>> 
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> 
>>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>>> Veronica
>>>> 
>>>> 
>>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>>> To learn more, visit:
>>>> http://www.laurelcreekmusic.com
>>>>             Veronica Elsea, Owner
>>>> Laurel Creek Music Designs
>>>> Santa Cruz, California
>>>> Phone: 831-429-6407
>>>> 
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 11:27 AM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> 
>>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>>>> less costly phone, but you will be fine with the app.
>>>>> 
>>>>> Jeanette
>>>>> 
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>>>> Alan Wheeler via Diabetes-Talk
>>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>>> To: diabetes-talk at nfbnet.org
>>>>> Cc: Alan Wheeler
>>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>>> 
>>>>> Hello everyone,
>>>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>>>> waiting to hear back, I decided to go to the web site to do research. I went
>>>>> to the mobile compatibility guide and immediately got confused. So, my
>>>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>>> Is the Libre compatible?
>>>>> 
>>>>> Alan
>>>>> 
>>>>> "If you want to practice anything, practice knowing you can do whatever you
>>>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>>>> 
>>>>> My blog: http://doingitdeeper.blogspot.com/
>>>>> 
>>>>> Sent from my iPad
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>>>> st.net
>>>>> 
>>>>> 
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 10
> Date: Sat, 31 Oct 2020 16:23:53 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <002d01d6afc3$ce509780$6af1c680$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> The Libra 2 has not come out for us yet in an accessible form. Likely your insurance company will not cover it if you are not taking Insulin and testing 3 to 4 times a day so if I were you I would grab that tremendous discount, especially if you can get the sensors at that discount. I have  had mine for at least two years and the app has always worked accessibly for checking sugars, logging information in, seeing some averages, knowing when you check if you are high and low. And the 14 day one is the one that is out. The newer one will be 21 days, but that is not yet accessible in this country.
> 
> Jeanette   
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:00 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 11
> Date: Sat, 31 Oct 2020 13:28:14 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000201d6afc4$5c23f700$146be500$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Right now the freestyle libre 2 is schedule to be at  pharmacy any day.what i was told is that there will be a new app to support the  freestyle libre 2.  But for now the libre you have to scan but going forward with libre 3 that will go away.libre 3 is in clinical trials as we sspeak since abbot has an advantage over dexcom in clinical trials as  they already have the  FDA ear on cobat testing and so that is why they can get an advantage on cgm clinical trials  with libre 3 as well.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Patricia Maddix <pmaddix at comcast.net>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>> have a less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am 
>> waiting to hear back, I decided to go to the web site to do research. 
>> I went to the mobile compatibility guide and immediately got confused. 
>> So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do 
>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 12
> Date: Sat, 31 Oct 2020 13:42:13 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001001d6afc6$50a1ba50$f1e52ef0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Veronica are you sure about libre2.  Libre 2 is not even in the marke place as of yet.so how do you know if iti wwill work for us or not.that is all I was asking about.i will know in due time as my endo will be getting them soon.also  he is one o the in the abbot trial for libre 3.i will be asking shortly about hat a well.
> 
> 
> 
> 
> ------------------------------
> 
> Message: 13
> Date: Sat, 31 Oct 2020 13:45:29 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001a01d6afc6$c58213b0$50863b10$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 14
> Date: Sat, 31 Oct 2020 13:46:46 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001b01d6afc6$f3f2f660$dbd8e320$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Maybe that is because it is using the  older  app and not yet adopted for voice over .i was told when I contact abbot last week that there   is a new ap pbeing developed for libre 2 .  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:21 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> The app does not work well with voiceover. So we do not have access to the alarms and such.
> 
> 
> Veronica Elsea, owner, Laurel Creek Music Designs
> 
>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?What do you mean it doesn't work for us? Just curious.
>> 
>> 
>> 
>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> 
>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 11:27 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>>> have a less costly phone, but you will be fine with the app.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Alan Wheeler
>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> Hello everyone,
>>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>>> am waiting to hear back, I decided to go to the web site to do 
>>>> research. I went to the mobile compatibility guide and immediately 
>>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>> Is the Libre compatible?
>>>> 
>>>> Alan
>>>> 
>>>> "If you want to practice anything, practice knowing you can do 
>>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>>> 
>>>> My blog: http://doingitdeeper.blogspot.com/
>>>> 
>>>> Sent from my iPad
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info 
>>>> for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm
>>>> %40comca
>>>> st.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%4
>>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>>> 0laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindstick
>>> s%40gmail.com
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 15
> Date: Sat, 31 Oct 2020 13:49:39 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001c01d6afc7$5a52d920$0ef88b60$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Alan, either one of these cgm units are going to  require being on multiple inections of insulin an testing mor then a few times a day. 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 16
> Date: Sat, 31 Oct 2020 13:50:04 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001d01d6afc7$691ba360$3b52ea20$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> What does work just out of curiosity.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Mike Capelle via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:20 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Mike Capelle <mcap at fastmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>> have a less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>> am waiting to hear back, I decided to go to the web site to do 
>>> research. I went to the mobile compatibility guide and immediately 
>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do 
>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>>> 40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks
>> %40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 17
> Date: Sat, 31 Oct 2020 17:35:12 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003501d6afcd$ba5509a0$2eff1ce0$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> I have two emails here which are cryptic and I don't know for certain what you are asking. I was saying that unless it was just approved in the US the latest model (with the alarms you can set) does not work for us. It is my understanding that that one, which is the 21 day sensor, has not yet been approved in this country by the FDA, but it is available in other countries. Here if we want that one we need to have the scanner, and there is a complicated way to get readings, but it requires use of your computer and cannot be done by those of us who use the app.  The one I was talking about is the 14 day sensor. And, what doesn't work is reading the reports that a sighted person can see. They are available through I think it is libre view, but when I print those reports I need sighted help and have not found a way to download them independently as a totally blind person. But you can get your readings, apply your sensor and scan a new one, log in your log book, see your average readings, see your lows and get some info about patterns, and for me that has made monitoring easier, safer and faster. Still, I love my freestyle libre.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:50 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What does work just out of curiosity.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Mike Capelle via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:20 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Mike Capelle <mcap at fastmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>> have a less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>> am waiting to hear back, I decided to go to the web site to do 
>>> research. I went to the mobile compatibility guide and immediately 
>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do 
>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>>> 40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks
>> %40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 18
> Date: Sat, 31 Oct 2020 17:37:07 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003601d6afcd$fc433df0$f4c9b9d0$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> Sighted people who use the scanner apparently can purchase it, but it is not yet available for us in this country with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:45 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 19
> Date: Sat, 31 Oct 2020 14:39:06 -0700
> From: Mark Feliz <mafeliz0641 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <DBD4CBCD-CB68-44EF-BE6D-B2A470BEA503 at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 20
> Date: Sat, 31 Oct 2020 18:20:44 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003d01d6afd4$20758ab0$6160a010$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> I forgot about the averages; great that you mentioned it.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mark Feliz via Diabetes-Talk
> Sent: Saturday, October 31, 2020 5:39 PM
> To: Diabetes Talk for the Blind
> Cc: Mark Feliz
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 21
> Date: Sat, 31 Oct 2020 15:54:23 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001001d6afd8$c766d410$56347c30$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> That's interesting.so when will we have acccess to libre 2.  Do you have any new info on that one.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> Sent: Saturday, October 31, 2020 2:37 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Sighted people who use the scanner apparently can purchase it, but it is not yet available for us in this country with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:45 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 22
> Date: Sat, 31 Oct 2020 15:55:33 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Mark Feliz'" <mafeliz0641 at gmail.com>, "'Diabetes Talk for the
>    Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001101d6afd8$f0a7e4e0$d1f7aea0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I'm in the same boat as you.so don?t have choice unles I pay out of pocket and dexcom for cost compared to libre system is a bit steep for my pocket.  
> 
> -----Original Message-----
> From: Mark Feliz <mafeliz0641 at gmail.com>
> Sent: Saturday, October 31, 2020 2:39 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: gary-melconian <gmelconian619 at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 1
> ********************************************


From kutash-jm at comcast.net  Sun Nov  1 17:06:47 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Sun, 1 Nov 2020 12:06:47 -0500
Subject: [Diabetes-Talk] Libre Link
In-Reply-To: <4D58FF56-784D-4163-9AD6-97E6B417D498@gmail.com>
References: <4D58FF56-784D-4163-9AD6-97E6B417D498@gmail.com>
Message-ID: <005301d6b071$628f2670$27ad7350$@comcast.net>

It may be because you have some of the new features, like the icons that we never used to see, turned on. I will try to experiment with this later and see if I can help. Otherwise it will be later in the week.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Hope Hein via Diabetes-Talk
Sent: Sunday, November 01, 2020 9:37 AM
To: diabetes-talk at nfbnet.org
Cc: Hope Hein
Subject: [Diabetes-Talk] Libre Link

hello, my name is Hope Hein. I am using the libre link sensor with my iPhone X S. I have updated it to the 14 version which does not say sensor icon when I test my sugar. I am also having trouble writing in the comments section of the libre link voiceover does not work well with it please advise if anyone is able to do these things how I can succeed with this thank you. hello, my name is Hope. I am using the libre link sensor with my iPhone XS. I updated the iPhone software yesterday to the new 14 version. The libre link sensor does not identify itself it just says button when you tap on it also I am having difficulty writing notes in the comments sections and filling out the food sections. Voiceover does not always read everything that I tell Hello, my name is Hope, I am using the libre link sensor. I am having difficulty writing in the notes section and also accessing some of the features with voiceover I received the new iPhone 14 update yesterday I have an iPhone X S and the libre link now just says button and does not say sensor icon like it used to say when I will beLibre Link

Hope Hein

> On Nov 1, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. Freestyle Libre question. (Alan Wheeler)
>   2. Re: Freestyle Libre question. (Jeanette Kutash)
>   3. Re: Freestyle Libre question. (Alan Wheeler)
>   4. Re: Freestyle Libre question. (Patricia Maddix)
>   5. Re: Freestyle Libre question. (Veronica Elsea)
>   6. Re: Freestyle Libre question. (Alan Wheeler)
>   7. Re: Freestyle Libre question. (Mike Capelle)
>   8. Re: Freestyle Libre question. (Veronica Elsea)
>   9. Re: Freestyle Libre question. (Alan Wheeler)
>  10. Re: Freestyle Libre question. (Jeanette Kutash)
>  11. Re: Freestyle Libre question. (gary-melconian)
>  12. Re: Freestyle Libre question. (gary-melconian)
>  13. Re: Freestyle Libre question. (gary-melconian)
>  14. Re: Freestyle Libre question. (gary-melconian)
>  15. Re: Freestyle Libre question. (gary-melconian)
>  16. Re: Freestyle Libre question. (gary-melconian)
>  17. Re: Freestyle Libre question. (Jeanette Kutash)
>  18. Re: Freestyle Libre question. (Jeanette Kutash)
>  19. Re: Freestyle Libre question. (Mark Feliz)
>  20. Re: Freestyle Libre question. (Jeanette Kutash)
>  21. Re: Freestyle Libre question. (gary-melconian)
>  22. Re: Freestyle Libre question. (gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Sat, 31 Oct 2020 07:31:07 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: diabetes-talk at nfbnet.org
> Subject: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <786C0D2F-9E04-4A45-B958-9D5B2F45FC92 at gmail.com>
> Content-Type: text/plain; charset=us-ascii
> 
> Hello everyone,
> I decided to ask my doctor about getting a Freestyle Libre. While I am waiting to hear back, I decided to go to the web site to do research. I went to the mobile compatibility guide and immediately got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14. Is the Libre compatible?
> 
> Alan
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Sat, 31 Oct 2020 11:23:43 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000001d6af99$d2390e60$76ab2b20$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> I havfe iphone 10 and IOS14. The app is compatible. You just will have a
> less costly phone, but you will be fine with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 10:31 AM
> To: diabetes-talk at nfbnet.org
> Cc: Alan Wheeler
> Subject: [Diabetes-Talk] Freestyle Libre question.
> 
> Hello everyone,
> I decided to ask my doctor about getting a Freestyle Libre. While I am
> waiting to hear back, I decided to go to the web site to do research. I went
> to the mobile compatibility guide and immediately got confused. So, my
> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
> Is the Libre compatible?
> 
> Alan
> 
> "If you want to practice anything, practice knowing you can do whatever you
> set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Sat, 31 Oct 2020 08:33:32 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <EEFF44FF-944A-40A1-90EA-C7BD596C47EC at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> I have the phone, I just need to update the IOS. 
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 4
> Date: Sat, 31 Oct 2020 11:26:34 -0700
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <2D053FBF-57B0-4E07-B15B-E081303DADC2 at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 5
> Date: Sat, 31 Oct 2020 12:59:59 -0700
> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000601d6afc0$6a0dcfc0$3e296f40$@laurelcreekmusic.com>
> Content-Type: text/plain;    charset="UTF-8"
> 
> As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 6
> Date: Sat, 31 Oct 2020 13:17:24 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <5280C7F2-986F-4AEE-B13B-D1E3F4C64C13 at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>> less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>> Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>> waiting to hear back, I decided to go to the web site to do research. I went
>>> to the mobile compatibility guide and immediately got confused. So, my
>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you
>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 7
> Date: Sat, 31 Oct 2020 15:20:06 -0500
> From: "Mike Capelle" <mcap at fastmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <002901d6afc3$393d4ad0$abb7e070$@fastmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>> less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>> Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>> waiting to hear back, I decided to go to the web site to do research. I went
>>> to the mobile compatibility guide and immediately got confused. So, my
>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you
>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 8
> Date: Sat, 31 Oct 2020 13:21:03 -0700
> From: Veronica Elsea <veronica at laurelcreekmusic.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID:
>    <77DAC205-1473-4E68-A17B-A250BA50D7AC at laurelcreekmusic.com>
> Content-Type: text/plain; charset=utf-8
> 
> The app does not work well with voiceover. So we do not have access to the alarms and such.
> 
> 
> Veronica Elsea, owner, Laurel Creek Music Designs
> 
>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?What do you mean it doesn't work for us? Just curious.
>> 
>> 
>> 
>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> 
>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 11:27 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>>> less costly phone, but you will be fine with the app.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>>> Alan Wheeler via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Alan Wheeler
>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> Hello everyone,
>>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>>> waiting to hear back, I decided to go to the web site to do research. I went
>>>> to the mobile compatibility guide and immediately got confused. So, my
>>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>> Is the Libre compatible?
>>>> 
>>>> Alan
>>>> 
>>>> "If you want to practice anything, practice knowing you can do whatever you
>>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>>> 
>>>> My blog: http://doingitdeeper.blogspot.com/
>>>> 
>>>> Sent from my iPad
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>>> st.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 9
> Date: Sat, 31 Oct 2020 13:24:09 -0700
> From: Alan Wheeler <blindsticks at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <5D4EEA0C-1A0F-46D8-9E6A-93BED4DA6D7E at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> So, then, is it worth the effort to even get one?
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:22 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?The app does not work well with voiceover. So we do not have access to the alarms and such.
>> 
>> 
>> Veronica Elsea, owner, Laurel Creek Music Designs
>> 
>>>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?What do you mean it doesn't work for us? Just curious.
>>> 
>>> 
>>> 
>>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> 
>>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>>> Veronica
>>>> 
>>>> 
>>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>>> To learn more, visit:
>>>> http://www.laurelcreekmusic.com
>>>>             Veronica Elsea, Owner
>>>> Laurel Creek Music Designs
>>>> Santa Cruz, California
>>>> Phone: 831-429-6407
>>>> 
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 11:27 AM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> 
>>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>>>>> less costly phone, but you will be fine with the app.
>>>>> 
>>>>> Jeanette
>>>>> 
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>>>> Alan Wheeler via Diabetes-Talk
>>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>>> To: diabetes-talk at nfbnet.org
>>>>> Cc: Alan Wheeler
>>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>>> 
>>>>> Hello everyone,
>>>>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>>>>> waiting to hear back, I decided to go to the web site to do research. I went
>>>>> to the mobile compatibility guide and immediately got confused. So, my
>>>>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>>> Is the Libre compatible?
>>>>> 
>>>>> Alan
>>>>> 
>>>>> "If you want to practice anything, practice knowing you can do whatever you
>>>>> set your complete mind to." Victor Wooten "The Music Lesson"
>>>>> 
>>>>> My blog: http://doingitdeeper.blogspot.com/
>>>>> 
>>>>> Sent from my iPad
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>>>>> st.net
>>>>> 
>>>>> 
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 10
> Date: Sat, 31 Oct 2020 16:23:53 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <002d01d6afc3$ce509780$6af1c680$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> The Libra 2 has not come out for us yet in an accessible form. Likely your insurance company will not cover it if you are not taking Insulin and testing 3 to 4 times a day so if I were you I would grab that tremendous discount, especially if you can get the sensors at that discount. I have  had mine for at least two years and the app has always worked accessibly for checking sugars, logging information in, seeing some averages, knowing when you check if you are high and low. And the 14 day one is the one that is out. The newer one will be 21 days, but that is not yet accessible in this country.
> 
> Jeanette   
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:00 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will have a
>> less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am
>> waiting to hear back, I decided to go to the web site to do research. I went
>> to the mobile compatibility guide and immediately got confused. So, my
>> question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do whatever you
>> set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 11
> Date: Sat, 31 Oct 2020 13:28:14 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <000201d6afc4$5c23f700$146be500$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Right now the freestyle libre 2 is schedule to be at  pharmacy any day.what i was told is that there will be a new app to support the  freestyle libre 2.  But for now the libre you have to scan but going forward with libre 3 that will go away.libre 3 is in clinical trials as we sspeak since abbot has an advantage over dexcom in clinical trials as  they already have the  FDA ear on cobat testing and so that is why they can get an advantage on cgm clinical trials  with libre 3 as well.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Saturday, October 31, 2020 11:27 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Patricia Maddix <pmaddix at comcast.net>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
> Patricia
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>> have a less costly phone, but you will be fine with the app.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Alan Wheeler via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 10:31 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Alan Wheeler
>> Subject: [Diabetes-Talk] Freestyle Libre question.
>> 
>> Hello everyone,
>> I decided to ask my doctor about getting a Freestyle Libre. While I am 
>> waiting to hear back, I decided to go to the web site to do research. 
>> I went to the mobile compatibility guide and immediately got confused. 
>> So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>> Is the Libre compatible?
>> 
>> Alan
>> 
>> "If you want to practice anything, practice knowing you can do 
>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 12
> Date: Sat, 31 Oct 2020 13:42:13 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001001d6afc6$50a1ba50$f1e52ef0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Veronica are you sure about libre2.  Libre 2 is not even in the marke place as of yet.so how do you know if iti wwill work for us or not.that is all I was asking about.i will know in due time as my endo will be getting them soon.also  he is one o the in the abbot trial for libre 3.i will be asking shortly about hat a well.
> 
> 
> 
> 
> ------------------------------
> 
> Message: 13
> Date: Sat, 31 Oct 2020 13:45:29 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001a01d6afc6$c58213b0$50863b10$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 14
> Date: Sat, 31 Oct 2020 13:46:46 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001b01d6afc6$f3f2f660$dbd8e320$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Maybe that is because it is using the  older  app and not yet adopted for voice over .i was told when I contact abbot last week that there   is a new ap pbeing developed for libre 2 .  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:21 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> The app does not work well with voiceover. So we do not have access to the alarms and such.
> 
> 
> Veronica Elsea, owner, Laurel Creek Music Designs
> 
>> On Oct 31, 2020, at 1:18 PM, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?What do you mean it doesn't work for us? Just curious.
>> 
>> 
>> 
>> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>> 
>> My blog: http://doingitdeeper.blogspot.com/
>> 
>> Sent from my iPad
>> 
>>>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 11:27 AM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>>> have a less costly phone, but you will be fine with the app.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>>> Sent: Saturday, October 31, 2020 10:31 AM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: Alan Wheeler
>>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>>> 
>>>> Hello everyone,
>>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>>> am waiting to hear back, I decided to go to the web site to do 
>>>> research. I went to the mobile compatibility guide and immediately 
>>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>>> Is the Libre compatible?
>>>> 
>>>> Alan
>>>> 
>>>> "If you want to practice anything, practice knowing you can do 
>>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>>> 
>>>> My blog: http://doingitdeeper.blogspot.com/
>>>> 
>>>> Sent from my iPad
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info 
>>>> for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm
>>>> %40comca
>>>> st.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%4
>>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>>> 0laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindstick
>>> s%40gmail.com
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 15
> Date: Sat, 31 Oct 2020 13:49:39 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001c01d6afc7$5a52d920$0ef88b60$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Alan, either one of these cgm units are going to  require being on multiple inections of insulin an testing mor then a few times a day. 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 16
> Date: Sat, 31 Oct 2020 13:50:04 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001d01d6afc7$691ba360$3b52ea20$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> What does work just out of curiosity.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Mike Capelle via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:20 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Mike Capelle <mcap at fastmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>> have a less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>> am waiting to hear back, I decided to go to the web site to do 
>>> research. I went to the mobile compatibility guide and immediately 
>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do 
>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>>> 40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks
>> %40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 17
> Date: Sat, 31 Oct 2020 17:35:12 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003501d6afcd$ba5509a0$2eff1ce0$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> I have two emails here which are cryptic and I don't know for certain what you are asking. I was saying that unless it was just approved in the US the latest model (with the alarms you can set) does not work for us. It is my understanding that that one, which is the 21 day sensor, has not yet been approved in this country by the FDA, but it is available in other countries. Here if we want that one we need to have the scanner, and there is a complicated way to get readings, but it requires use of your computer and cannot be done by those of us who use the app.  The one I was talking about is the 14 day sensor. And, what doesn't work is reading the reports that a sighted person can see. They are available through I think it is libre view, but when I print those reports I need sighted help and have not found a way to download them independently as a totally blind person. But you can get your readings, apply your sensor and scan a new one, log in your log book, see your average readings, see your lows and get some info about patterns, and for me that has made monitoring easier, safer and faster. Still, I love my freestyle libre.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:50 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What does work just out of curiosity.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Mike Capelle via Diabetes-Talk
> Sent: Saturday, October 31, 2020 1:20 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Mike Capelle <mcap at fastmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Yes, they sure do work
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan Wheeler via Diabetes-Talk
> Sent: Saturday, October 31, 2020 3:17 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Alan Wheeler <blindsticks at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> What do you mean it doesn't work for us? Just curious.
> 
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> 
>> On Oct 31, 2020, at 1:00 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?As far as I know, there is just one model. There is a Libre 2, which has some alarms but it doesn't work for us. And yes, you do have to scan the sensor with your phone to get the reading.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Saturday, October 31, 2020 11:27 AM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
>> 
>> My husband is considering using the freestyle libre. He has early onset type two diabetes and takes no medication but would find the sugar information valuable to motivate lifestyle changes. My question is is there more than one model of the freestyle that people are currently using? Does the app work just with the newest Version and do you have to scan the sensor with the phone or does it continuously read out? Costco was telling us about the one they call the freestyle 14 day that they sell at a tremendous discount making it not too unreasonable for people whose insurance will not cover.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Oct 31, 2020, at 8:25 AM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?I havfe iphone 10 and IOS14. The app is compatible. You just will 
>>> have a less costly phone, but you will be fine with the app.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Alan Wheeler via Diabetes-Talk
>>> Sent: Saturday, October 31, 2020 10:31 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Alan Wheeler
>>> Subject: [Diabetes-Talk] Freestyle Libre question.
>>> 
>>> Hello everyone,
>>> I decided to ask my doctor about getting a Freestyle Libre. While I 
>>> am waiting to hear back, I decided to go to the web site to do 
>>> research. I went to the mobile compatibility guide and immediately 
>>> got confused. So, my question is this: I have an iPhone 10r, and will soon be updating to IOS 14.
>>> Is the Libre compatible?
>>> 
>>> Alan
>>> 
>>> "If you want to practice anything, practice knowing you can do 
>>> whatever you set your complete mind to." Victor Wooten "The Music Lesson"
>>> 
>>> My blog: http://doingitdeeper.blogspot.com/
>>> 
>>> Sent from my iPad
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>>> 40comca
>>> st.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindsticks
>> %40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 18
> Date: Sat, 31 Oct 2020 17:37:07 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003601d6afcd$fc433df0$f4c9b9d0$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> Sighted people who use the scanner apparently can purchase it, but it is not yet available for us in this country with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:45 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 19
> Date: Sat, 31 Oct 2020 14:39:06 -0700
> From: Mark Feliz <mafeliz0641 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <DBD4CBCD-CB68-44EF-BE6D-B2A470BEA503 at gmail.com>
> Content-Type: text/plain; charset=utf-8
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> 
> 
> ------------------------------
> 
> Message: 20
> Date: Sat, 31 Oct 2020 18:20:44 -0400
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <003d01d6afd4$20758ab0$6160a010$@comcast.net>
> Content-Type: text/plain;    charset="utf-8"
> 
> I forgot about the averages; great that you mentioned it.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mark Feliz via Diabetes-Talk
> Sent: Saturday, October 31, 2020 5:39 PM
> To: Diabetes Talk for the Blind
> Cc: Mark Feliz
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 21
> Date: Sat, 31 Oct 2020 15:54:23 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001001d6afd8$c766d410$56347c30$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> That's interesting.so when will we have acccess to libre 2.  Do you have any new info on that one.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> Sent: Saturday, October 31, 2020 2:37 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> Sighted people who use the scanner apparently can purchase it, but it is not yet available for us in this country with the app.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of gary-melconian via Diabetes-Talk
> Sent: Saturday, October 31, 2020 4:45 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 22
> Date: Sat, 31 Oct 2020 15:55:33 -0700
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Mark Feliz'" <mafeliz0641 at gmail.com>, "'Diabetes Talk for the
>    Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> Message-ID: <001101d6afd8$f0a7e4e0$d1f7aea0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I'm in the same boat as you.so don?t have choice unles I pay out of pocket and dexcom for cost compared to libre system is a bit steep for my pocket.  
> 
> -----Original Message-----
> From: Mark Feliz <mafeliz0641 at gmail.com>
> Sent: Saturday, October 31, 2020 2:39 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: gary-melconian <gmelconian619 at gmail.com>
> Subject: Re: [Diabetes-Talk] Freestyle Libre question.
> 
> I use the freestyle since it is the only one approved by my insurance. There are several features that are not accessible with voiceOver but it does what I need: scan, give me a 90 or 7 day average, tell me when to replace the sensor. I have been using for almost a year and have lost 1 sensor prematurely.
> 
> 
> Sent from my iPhone
> 
>> On Oct 31, 2020, at 1:51 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?I don?t think she has accurate info.as I have not even seen the libre 2 and I was told about it by my  endo who is on the cutting edge as it relates ot diabetes research. 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mafeliz0641%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 1
> ********************************************

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From icecreamlover76 at outlook.com  Mon Nov  2 17:51:29 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Mon, 2 Nov 2020 11:51:29 -0600
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <005601d6ad5e$c240b540$46c21fc0$@gmail.com>
References: <CH2PR04MB683990B3125909783493EAB6A8170@CH2PR04MB6839.namprd04.prod.outlook.com>
 <005601d6ad5e$c240b540$46c21fc0$@gmail.com>
Message-ID: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello Gary,


Thank you for the support. It's much appreciated. And I am so glad to 
hear that you are doing as well as you are. That's very encouraging.


Keep up the good work.


Terri

On 10/28/2020 2:15 PM, gary-melconian wrote:
> Good job. Keep it up.i was in the same boat as you after 2 .5 years, my a1c
> from 10.5 is now down to 6.3.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
> Stimmel via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 11:59 AM
> To: diabetes-talk at nfbnet.org
> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Hello everyone,
>
>
> This past Monday was my appointment for my diabetes. As I mentioned in
> previous messages, I was switching my care over to my primary care doctor.
> In doing this, I will now also have appointments with a nurse practicianer
> who will help me with meal planning and such.
>
>
> My first appointment with her went very, very well. I am so happy, and so
> thankful that I made these changes. I was worried about doing this.
> But I'm not any longer.
>
>
> I felt very comfortable with her. I felt she was well educated, and kept
> up with things. She answered all my questions. I didn't feel stupid for
> what I had to ask. I felt like I was receiving top-notch care. I needed
> this after how I had been feeling with my diabetes specialest.
>
>
> She asked me if I wanted meal and snack ideas. I told her I did. So she
> emailed me a PDF. She also printed it out. This way if I had someone who
> could help me look it over, or a way to scan it, I could. She also told
> me that if I couldn't access the PDF, to let her know and she would find
> a way to help me be able to access it.
>
> I loved that she was more than willing to make things accessible for me.
> Or help me figure out ways to access stuff. I do have sighted assistance
> at times. But it's limited.
>
>
> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
> feel that's pretty good. I'm happy that it's continuing to go down. I
> want this to keep happening.
>
>
> Also, she decided to leave my Treseba at 80 units.
>
> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
> Right now, lunch is still at 25, and dinner is still at 30.
>
> She asked me what I thought of the Ozempic. I told her I didn't think it
> affected me nearly as badly as the Victoza had. But that I still thought
> it caused a lot of stomach upset. But I also told her that in some ways
> I think it helps me eat less. That once when I didn't have it for a
> week, I felt rather more hungry than usual. She said this was possible.
>
>
> I told her that my goal is to eventually need less insulin. But that I
> didn't know if this was possible. So she told me that if I were
> interested, that in time I could possibly try a pill at dinner, instead
> of insulin. I told her that I would consider this. But the medications
> such as, Farcega, and Jardiance made me nervous. To me, the side affects
> seem awful. But I am open to this.
>
>
> I decided that for now I won't ask her about the V-Go system. I am very
> curious about it. But for now I think I need to have other priorities. I
> hope that makes some sense?
>
>
> So that's what happened. I go back in mid November for a follow-up
> visit. She also did tell me that my lows were in the 4 percent range,
> and that this wasn't good. She said she'd prefer to see them at 2
> percent. Then she also stated that something else was at 95 percent, and
> that this was phenomenal. I meant to ask her what she was talking about.
> But we got onto other things, and I never got back around to it. She was
> viewing my Libre system, when she said both of these things.
>
>
> I feel so much better about things, now that I've gone to this
> appointment. I look forward to eating better, and making better choices
> for myself. I look forward to having better controlled diabetes, and not
> having to worry about it so much.
>
>
> Thank you to all of you who have kindly offered me support and advice. I
> truly appreciate it. I will keep you all posted on how things are going
> with me. My biggest struggle is realizing when I am truly hungry, or
> just wanting to eat, because I'm bored and it's something to do.
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
>


From kutash-jm at comcast.net  Mon Nov  2 18:18:14 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Mon, 2 Nov 2020 13:18:14 -0500
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB683990B3125909783493EAB6A8170@CH2PR04MB6839.namprd04.prod.outlook.com>
 <005601d6ad5e$c240b540$46c21fc0$@gmail.com>
 <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <011501d6b144$885f2e80$991d8b80$@comcast.net>

Terri, that is a great drop in A1C in only three months. Keep up the hard
work.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Terri Stimmel via Diabetes-Talk
Sent: Monday, November 02, 2020 12:51 PM
To: diabetes-talk at nfbnet.org
Cc: Terri Stimmel
Subject: Re: [Diabetes-Talk] Regarding my diabetes education appointment

Hello Gary,


Thank you for the support. It's much appreciated. And I am so glad to 
hear that you are doing as well as you are. That's very encouraging.


Keep up the good work.


Terri

On 10/28/2020 2:15 PM, gary-melconian wrote:
> Good job. Keep it up.i was in the same boat as you after 2 .5 years, my
a1c
> from 10.5 is now down to 6.3.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
> Stimmel via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 11:59 AM
> To: diabetes-talk at nfbnet.org
> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Hello everyone,
>
>
> This past Monday was my appointment for my diabetes. As I mentioned in
> previous messages, I was switching my care over to my primary care doctor.
> In doing this, I will now also have appointments with a nurse practicianer
> who will help me with meal planning and such.
>
>
> My first appointment with her went very, very well. I am so happy, and so
> thankful that I made these changes. I was worried about doing this.
> But I'm not any longer.
>
>
> I felt very comfortable with her. I felt she was well educated, and kept
> up with things. She answered all my questions. I didn't feel stupid for
> what I had to ask. I felt like I was receiving top-notch care. I needed
> this after how I had been feeling with my diabetes specialest.
>
>
> She asked me if I wanted meal and snack ideas. I told her I did. So she
> emailed me a PDF. She also printed it out. This way if I had someone who
> could help me look it over, or a way to scan it, I could. She also told
> me that if I couldn't access the PDF, to let her know and she would find
> a way to help me be able to access it.
>
> I loved that she was more than willing to make things accessible for me.
> Or help me figure out ways to access stuff. I do have sighted assistance
> at times. But it's limited.
>
>
> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
> feel that's pretty good. I'm happy that it's continuing to go down. I
> want this to keep happening.
>
>
> Also, she decided to leave my Treseba at 80 units.
>
> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
> Right now, lunch is still at 25, and dinner is still at 30.
>
> She asked me what I thought of the Ozempic. I told her I didn't think it
> affected me nearly as badly as the Victoza had. But that I still thought
> it caused a lot of stomach upset. But I also told her that in some ways
> I think it helps me eat less. That once when I didn't have it for a
> week, I felt rather more hungry than usual. She said this was possible.
>
>
> I told her that my goal is to eventually need less insulin. But that I
> didn't know if this was possible. So she told me that if I were
> interested, that in time I could possibly try a pill at dinner, instead
> of insulin. I told her that I would consider this. But the medications
> such as, Farcega, and Jardiance made me nervous. To me, the side affects
> seem awful. But I am open to this.
>
>
> I decided that for now I won't ask her about the V-Go system. I am very
> curious about it. But for now I think I need to have other priorities. I
> hope that makes some sense?
>
>
> So that's what happened. I go back in mid November for a follow-up
> visit. She also did tell me that my lows were in the 4 percent range,
> and that this wasn't good. She said she'd prefer to see them at 2
> percent. Then she also stated that something else was at 95 percent, and
> that this was phenomenal. I meant to ask her what she was talking about.
> But we got onto other things, and I never got back around to it. She was
> viewing my Libre system, when she said both of these things.
>
>
> I feel so much better about things, now that I've gone to this
> appointment. I look forward to eating better, and making better choices
> for myself. I look forward to having better controlled diabetes, and not
> having to worry about it so much.
>
>
> Thank you to all of you who have kindly offered me support and advice. I
> truly appreciate it. I will keep you all posted on how things are going
> with me. My biggest struggle is realizing when I am truly hungry, or
> just wanting to eat, because I'm bored and it's something to do.
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
>

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
st.net



From gmelconian619 at gmail.com  Mon Nov  2 18:24:32 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Mon, 2 Nov 2020 10:24:32 -0800
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB683990B3125909783493EAB6A8170@CH2PR04MB6839.namprd04.prod.outlook.com>
 <005601d6ad5e$c240b540$46c21fc0$@gmail.com>
 <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <015201d6b145$6965b020$3c311060$@gmail.com>

Thanks for the encouragement.keep it up as welll.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
Stimmel via Diabetes-Talk
Sent: Monday, November 2, 2020 9:51 AM
To: diabetes-talk at nfbnet.org
Cc: Terri Stimmel <icecreamlover76 at outlook.com>
Subject: Re: [Diabetes-Talk] Regarding my diabetes education appointment

Hello Gary,


Thank you for the support. It's much appreciated. And I am so glad to hear
that you are doing as well as you are. That's very encouraging.


Keep up the good work.


Terri

On 10/28/2020 2:15 PM, gary-melconian wrote:
> Good job. Keep it up.i was in the same boat as you after 2 .5 years, my
a1c
> from 10.5 is now down to 6.3.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
> Stimmel via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 11:59 AM
> To: diabetes-talk at nfbnet.org
> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Hello everyone,
>
>
> This past Monday was my appointment for my diabetes. As I mentioned in
> previous messages, I was switching my care over to my primary care doctor.
> In doing this, I will now also have appointments with a nurse practicianer
> who will help me with meal planning and such.
>
>
> My first appointment with her went very, very well. I am so happy, and so
> thankful that I made these changes. I was worried about doing this.
> But I'm not any longer.
>
>
> I felt very comfortable with her. I felt she was well educated, and kept
> up with things. She answered all my questions. I didn't feel stupid for
> what I had to ask. I felt like I was receiving top-notch care. I needed
> this after how I had been feeling with my diabetes specialest.
>
>
> She asked me if I wanted meal and snack ideas. I told her I did. So she
> emailed me a PDF. She also printed it out. This way if I had someone who
> could help me look it over, or a way to scan it, I could. She also told
> me that if I couldn't access the PDF, to let her know and she would find
> a way to help me be able to access it.
>
> I loved that she was more than willing to make things accessible for me.
> Or help me figure out ways to access stuff. I do have sighted assistance
> at times. But it's limited.
>
>
> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
> feel that's pretty good. I'm happy that it's continuing to go down. I
> want this to keep happening.
>
>
> Also, she decided to leave my Treseba at 80 units.
>
> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
> Right now, lunch is still at 25, and dinner is still at 30.
>
> She asked me what I thought of the Ozempic. I told her I didn't think it
> affected me nearly as badly as the Victoza had. But that I still thought
> it caused a lot of stomach upset. But I also told her that in some ways
> I think it helps me eat less. That once when I didn't have it for a
> week, I felt rather more hungry than usual. She said this was possible.
>
>
> I told her that my goal is to eventually need less insulin. But that I
> didn't know if this was possible. So she told me that if I were
> interested, that in time I could possibly try a pill at dinner, instead
> of insulin. I told her that I would consider this. But the medications
> such as, Farcega, and Jardiance made me nervous. To me, the side affects
> seem awful. But I am open to this.
>
>
> I decided that for now I won't ask her about the V-Go system. I am very
> curious about it. But for now I think I need to have other priorities. I
> hope that makes some sense?
>
>
> So that's what happened. I go back in mid November for a follow-up
> visit. She also did tell me that my lows were in the 4 percent range,
> and that this wasn't good. She said she'd prefer to see them at 2
> percent. Then she also stated that something else was at 95 percent, and
> that this was phenomenal. I meant to ask her what she was talking about.
> But we got onto other things, and I never got back around to it. She was
> viewing my Libre system, when she said both of these things.
>
>
> I feel so much better about things, now that I've gone to this
> appointment. I look forward to eating better, and making better choices
> for myself. I look forward to having better controlled diabetes, and not
> having to worry about it so much.
>
>
> Thank you to all of you who have kindly offered me support and advice. I
> truly appreciate it. I will keep you all posted on how things are going
> with me. My biggest struggle is realizing when I am truly hungry, or
> just wanting to eat, because I'm bored and it's something to do.
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
>

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
mail.com



From icecreamlover76 at outlook.com  Mon Nov  2 20:45:03 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Mon, 2 Nov 2020 14:45:03 -0600
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <0c4801d6ad69$84a86c90$8df945b0$@gmail.com>
References: <CH2PR04MB683990B3125909783493EAB6A8170@CH2PR04MB6839.namprd04.prod.outlook.com>
 <0c4801d6ad69$84a86c90$8df945b0$@gmail.com>
Message-ID: <CH2PR04MB683914A0C9B9B71283597257A8100@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello Bridgit,


Thank you for your kind words. Yes, I am very proud of myself. It's 
taken a lot of work to have gotten this far. But honestly, I love it. I 
am so glad that things are working out for me. I know I still have a 
ways to go. But I am really looking forward to it. I am enjoying making 
the changes.


Also, thank you for letting me know about the PDFs. I don't know a lot 
about how they work, or how easy it might be to get one converted.

When you read one with your phone, do you use a certain App?

I have the Voicedream App. This is what I tried using to read it the 
other day. The App did pretty well. But it could have been better.


Yes, I am able to interact with the staff online. I have an App on my 
phone that I can use, to log in to their system and send a message. I 
love it. I actually sent my diabetes specialist a message on Friday. She 
was able to respond back to me, before the end of the day. So I think 
this will work out well.


I will keep you all posted on how things are going. I feel so much 
better about things. And much happier.


Terri

On 10/28/2020 3:32 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk wrote:
> Terry,
>
> This is fantastic news. You should be incredibly proud of these
> accomplishments. Keep it up.
>
> PDFs are accessible depending on how it's created. If created as an image,
> screenreaders won't recognize the text. It shouldn't be a big deal for the
> clinic to format the PDF as a Word doc. It's quite easy to convert
> back-and-forth
>
> Also, if you use an iPhone, try reading the PDF from your phone. I find PDFs
> that don't read with JAWS will with Voiceover.
>
> Also, do you have an email for the nurse so you can email questions and
> concerns? I frequently email my med staff if I need assistance and answers
> in between appointments.
>
> Congrats and keep up the good work.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
> Stimmel via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 1:59 PM.
> To: diabetes-talk at nfbnet.org
> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Hello everyone,
>
>
> This past Monday was my appointment for my diabetes. As I mentioned in
> previous messages, I was switching my care over to my primary care doctor.
> In doing this, I will now also have appointments with a nurse practicianer
> who will help me with meal planning and such.
>
>
> My first appointment with her went very, very well. I am so happy, and so
> thankful that I made these changes. I was worried about doing this.
> But I'm not any longer.
>
>
> I felt very comfortable with her. I felt she was well educated, and kept
> up with things. She answered all my questions. I didn't feel stupid for
> what I had to ask. I felt like I was receiving top-notch care. I needed
> this after how I had been feeling with my diabetes specialest.
>
>
> She asked me if I wanted meal and snack ideas. I told her I did. So she
> emailed me a PDF. She also printed it out. This way if I had someone who
> could help me look it over, or a way to scan it, I could. She also told
> me that if I couldn't access the PDF, to let her know and she would find
> a way to help me be able to access it.
>
> I loved that she was more than willing to make things accessible for me.
> Or help me figure out ways to access stuff. I do have sighted assistance
> at times. But it's limited.
>
>
> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
> feel that's pretty good. I'm happy that it's continuing to go down. I
> want this to keep happening.
>
>
> Also, she decided to leave my Treseba at 80 units.
>
> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
> Right now, lunch is still at 25, and dinner is still at 30.
>
> She asked me what I thought of the Ozempic. I told her I didn't think it
> affected me nearly as badly as the Victoza had. But that I still thought
> it caused a lot of stomach upset. But I also told her that in some ways
> I think it helps me eat less. That once when I didn't have it for a
> week, I felt rather more hungry than usual. She said this was possible.
>
>
> I told her that my goal is to eventually need less insulin. But that I
> didn't know if this was possible. So she told me that if I were
> interested, that in time I could possibly try a pill at dinner, instead
> of insulin. I told her that I would consider this. But the medications
> such as, Farcega, and Jardiance made me nervous. To me, the side affects
> seem awful. But I am open to this.
>
>
> I decided that for now I won't ask her about the V-Go system. I am very
> curious about it. But for now I think I need to have other priorities. I
> hope that makes some sense?
>
>
> So that's what happened. I go back in mid November for a follow-up
> visit. She also did tell me that my lows were in the 4 percent range,
> and that this wasn't good. She said she'd prefer to see them at 2
> percent. Then she also stated that something else was at 95 percent, and
> that this was phenomenal. I meant to ask her what she was talking about.
> But we got onto other things, and I never got back around to it. She was
> viewing my Libre system, when she said both of these things.
>
>
> I feel so much better about things, now that I've gone to this
> appointment. I look forward to eating better, and making better choices
> for myself. I look forward to having better controlled diabetes, and not
> having to worry about it so much.
>
>
> Thank you to all of you who have kindly offered me support and advice. I
> truly appreciate it. I will keep you all posted on how things are going
> with me. My biggest struggle is realizing when I am truly hungry, or
> just wanting to eat, because I'm bored and it's something to do.
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/icecreamlover76%40outlook.com


From icecreamlover76 at outlook.com  Mon Nov  2 20:56:13 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Mon, 2 Nov 2020 14:56:13 -0600
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <01c501d6ad98$b73d4b10$25b7e130$@comcast.net>
References: <CH2PR04MB683990B3125909783493EAB6A8170@CH2PR04MB6839.namprd04.prod.outlook.com>
 <0c4801d6ad69$84a86c90$8df945b0$@gmail.com>
 <01c501d6ad98$b73d4b10$25b7e130$@comcast.net>
Message-ID: <CH2PR04MB68399D16922A39B6E4779C17A8100@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello Jeanette,


First of all, thank you for the words of encouragement. I really do 
appreciate it. It means a lot to me, and makes me happy.


I really have been working hard to make those changes. It's been 
difficult. But I really feel I have supportive friends, and great 
doctors. So this really makes a huge difference for me. I'm pleased as 
to how things are going.


I agree with what you said. I think slow and steady is better. As much 
as I do desire to be off of the insulin, I don't think I want a pill at 
meal-time. I think for now I would rather stick with the insulin. I plan 
to mention this when I go back for my follow-up appointment.

I mean, why mess with something that's working? If I need less over 
time, then great.


Thank you again for your kind words. I will keep you all posted on how 
it's going.


Terri

On 10/28/2020 9:10 PM, Jeanette Kutash via Diabetes-Talk wrote:
> Terri, This is great news. The drop in a1C and your positive attitude are
> the best I have seen since you started emailing us. Even now I look at
> people's suggestions and take the ones I think I will use and add them to my
> files. And even if this is all  good, it is normal to have a bad eating day
> once in a while or to once in a while feel frustrated. But I am thrilled
> that you saw someone who made you feel comfortable and was willing to be
> helpful. Don't worry about medication changes. Sometimes it takes
> experimenting. Slow and steady is the best way unless there is an emergency.
> It sounds like this is a great start. When I went on Insulin I was so happy
> to be feeling better than I had in years that I have vowed I will not get
> off. Just take it one step at a time.
>
> Jeanette
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 4:33 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Terry,
>
> This is fantastic news. You should be incredibly proud of these
> accomplishments. Keep it up.
>
> PDFs are accessible depending on how it's created. If created as an image,
> screenreaders won't recognize the text. It shouldn't be a big deal for the
> clinic to format the PDF as a Word doc. It's quite easy to convert
> back-and-forth
>
> Also, if you use an iPhone, try reading the PDF from your phone. I find PDFs
> that don't read with JAWS will with Voiceover.
>
> Also, do you have an email for the nurse so you can email questions and
> concerns? I frequently email my med staff if I need assistance and answers
> in between appointments.
>
> Congrats and keep up the good work.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
> Stimmel via Diabetes-Talk
> Sent: Wednesday, October 28, 2020 1:59 PM.
> To: diabetes-talk at nfbnet.org
> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>
> Hello everyone,
>
>
> This past Monday was my appointment for my diabetes. As I mentioned in
> previous messages, I was switching my care over to my primary care doctor.
> In doing this, I will now also have appointments with a nurse practicianer
> who will help me with meal planning and such.
>
>
> My first appointment with her went very, very well. I am so happy, and so
> thankful that I made these changes. I was worried about doing this.
> But I'm not any longer.
>
>
> I felt very comfortable with her. I felt she was well educated, and kept
> up with things. She answered all my questions. I didn't feel stupid for
> what I had to ask. I felt like I was receiving top-notch care. I needed
> this after how I had been feeling with my diabetes specialest.
>
>
> She asked me if I wanted meal and snack ideas. I told her I did. So she
> emailed me a PDF. She also printed it out. This way if I had someone who
> could help me look it over, or a way to scan it, I could. She also told
> me that if I couldn't access the PDF, to let her know and she would find
> a way to help me be able to access it.
>
> I loved that she was more than willing to make things accessible for me.
> Or help me figure out ways to access stuff. I do have sighted assistance
> at times. But it's limited.
>
>
> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
> feel that's pretty good. I'm happy that it's continuing to go down. I
> want this to keep happening.
>
>
> Also, she decided to leave my Treseba at 80 units.
>
> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
> Right now, lunch is still at 25, and dinner is still at 30.
>
> She asked me what I thought of the Ozempic. I told her I didn't think it
> affected me nearly as badly as the Victoza had. But that I still thought
> it caused a lot of stomach upset. But I also told her that in some ways
> I think it helps me eat less. That once when I didn't have it for a
> week, I felt rather more hungry than usual. She said this was possible.
>
>
> I told her that my goal is to eventually need less insulin. But that I
> didn't know if this was possible. So she told me that if I were
> interested, that in time I could possibly try a pill at dinner, instead
> of insulin. I told her that I would consider this. But the medications
> such as, Farcega, and Jardiance made me nervous. To me, the side affects
> seem awful. But I am open to this.
>
>
> I decided that for now I won't ask her about the V-Go system. I am very
> curious about it. But for now I think I need to have other priorities. I
> hope that makes some sense?
>
>
> So that's what happened. I go back in mid November for a follow-up
> visit. She also did tell me that my lows were in the 4 percent range,
> and that this wasn't good. She said she'd prefer to see them at 2
> percent. Then she also stated that something else was at 95 percent, and
> that this was phenomenal. I meant to ask her what she was talking about.
> But we got onto other things, and I never got back around to it. She was
> viewing my Libre system, when she said both of these things.
>
>
> I feel so much better about things, now that I've gone to this
> appointment. I look forward to eating better, and making better choices
> for myself. I look forward to having better controlled diabetes, and not
> having to worry about it so much.
>
>
> Thank you to all of you who have kindly offered me support and advice. I
> truly appreciate it. I will keep you all posted on how things are going
> with me. My biggest struggle is realizing when I am truly hungry, or
> just wanting to eat, because I'm bored and it's something to do.
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
> st.net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/icecreamlover76%40outlook.com


From pmaddix at comcast.net  Mon Nov  2 22:05:03 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Mon, 2 Nov 2020 14:05:03 -0800
Subject: [Diabetes-Talk] Freestyle libre availability update
Message-ID: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>

As my husband is considering getting the freestyle CGM I called customer service today to clarify the models that are now available in United States. The freestyle libre two became available in the United States this last July and does not yet have a phone app but plans to in the future. The freestyle 14 day CGM has both a scanner as well as the phone app and it is not necessary to buy the scanner if you want to use the phone app.
As some of you mentioned that the phone App is not completely accessible I pass this information onto the customer service representative.
Patricia

Sent from my iPhone


From mcap at fastmail.com  Mon Nov  2 22:16:04 2020
From: mcap at fastmail.com (Mike Capelle)
Date: Mon, 2 Nov 2020 16:16:04 -0600
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
References: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
Message-ID: <000801d6b165$c1fd8940$45f89bc0$@fastmail.com>

It is totally accessible on my phone.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Patricia
Maddix via Diabetes-Talk
Sent: Monday, November 2, 2020 4:05 PM
To: diabetes-talk at nfbnet.org
Cc: Patricia Maddix <pmaddix at comcast.net>
Subject: [Diabetes-Talk] Freestyle libre availability update

As my husband is considering getting the freestyle CGM I called customer
service today to clarify the models that are now available in United States.
The freestyle libre two became available in the United States this last July
and does not yet have a phone app but plans to in the future. The freestyle
14 day CGM has both a scanner as well as the phone app and it is not
necessary to buy the scanner if you want to use the phone app.
As some of you mentioned that the phone App is not completely accessible I
pass this information onto the customer service representative.
Patricia

Sent from my iPhone

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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om



From singingmywayin at gmail.com  Mon Nov  2 22:44:14 2020
From: singingmywayin at gmail.com (Danielle Ledet)
Date: Mon, 2 Nov 2020 16:44:14 -0600
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <000801d6b165$c1fd8940$45f89bc0$@fastmail.com>
References: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
 <000801d6b165$c1fd8940$45f89bc0$@fastmail.com>
Message-ID: <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>

Mine too.

On 11/2/20, Mike Capelle via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> It is totally accessible on my phone.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> Patricia
> Maddix via Diabetes-Talk
> Sent: Monday, November 2, 2020 4:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: Patricia Maddix <pmaddix at comcast.net>
> Subject: [Diabetes-Talk] Freestyle libre availability update
>
> As my husband is considering getting the freestyle CGM I called customer
> service today to clarify the models that are now available in United
> States.
> The freestyle libre two became available in the United States this last
> July
> and does not yet have a phone app but plans to in the future. The freestyle
> 14 day CGM has both a scanner as well as the phone app and it is not
> necessary to buy the scanner if you want to use the phone app.
> As some of you mentioned that the phone App is not completely accessible I
> pass this information onto the customer service representative.
> Patricia
>
> Sent from my iPhone
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.c
> om
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/singingmywayin%40gmail.com
>


-- 
How far you go in life depends on your being tender with the young,
compassionate with the aged, sympathetic with the striving and
tolerant of the weak and strong. Because someday in your life you will
have been all of these.
George Washington Carver
Email: singingmywayin at gmail.com


From pmaddix at comcast.net  Tue Nov  3 00:20:52 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Mon, 2 Nov 2020 16:20:52 -0800
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>
References: <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>
Message-ID: <1D4C2EA7-F01F-43E2-9362-C55FDA211850@comcast.net>

That is good to know. I?m glad that it is indeed accessible.
Patricia

Sent from my iPhone

> On Nov 2, 2020, at 2:46 PM, Danielle Ledet via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Mine too.
> 
>> On 11/2/20, Mike Capelle via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> It is totally accessible on my phone.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Patricia
>> Maddix via Diabetes-Talk
>> Sent: Monday, November 2, 2020 4:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: Patricia Maddix <pmaddix at comcast.net>
>> Subject: [Diabetes-Talk] Freestyle libre availability update
>> 
>> As my husband is considering getting the freestyle CGM I called customer
>> service today to clarify the models that are now available in United
>> States.
>> The freestyle libre two became available in the United States this last
>> July
>> and does not yet have a phone app but plans to in the future. The freestyle
>> 14 day CGM has both a scanner as well as the phone app and it is not
>> necessary to buy the scanner if you want to use the phone app.
>> As some of you mentioned that the phone App is not completely accessible I
>> pass this information onto the customer service representative.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.c
>> om
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/singingmywayin%40gmail.com
>> 
> 
> 
> -- 
> How far you go in life depends on your being tender with the young,
> compassionate with the aged, sympathetic with the striving and
> tolerant of the weak and strong. Because someday in your life you will
> have been all of these.
> George Washington Carver
> Email: singingmywayin at gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From veronica at laurelcreekmusic.com  Tue Nov  3 00:24:57 2020
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 2 Nov 2020 16:24:57 -0800
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>
References: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
 <000801d6b165$c1fd8940$45f89bc0$@fastmail.com>
 <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>
Message-ID: <000301d6b177$c2cb3450$48619cf0$@laurelcreekmusic.com>

Patricia, it's the FreeStyle Libre 2, which does not have an app, which
would make it accessible to us. So if one wanted a Libre which came with
alarms and some new features, we could not use it, the two, because it's the
iPhone app that makes it accessible to us. The iPhone app that comes with
the 14-day model does work. You just don't get those alarms and new stuff
that sighted people can enjoy.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Danielle Ledet via Diabetes-Talk
Sent: Monday, November 02, 2020 2:44 PM
To: Diabetes Talk for the Blind
Cc: Danielle Ledet
Subject: Re: [Diabetes-Talk] Freestyle libre availability update

Mine too.

On 11/2/20, Mike Capelle via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> It is totally accessible on my phone.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> Patricia
> Maddix via Diabetes-Talk
> Sent: Monday, November 2, 2020 4:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: Patricia Maddix <pmaddix at comcast.net>
> Subject: [Diabetes-Talk] Freestyle libre availability update
>
> As my husband is considering getting the freestyle CGM I called customer
> service today to clarify the models that are now available in United
> States.
> The freestyle libre two became available in the United States this last
> July
> and does not yet have a phone app but plans to in the future. The
freestyle
> 14 day CGM has both a scanner as well as the phone app and it is not
> necessary to buy the scanner if you want to use the phone app.
> As some of you mentioned that the phone App is not completely accessible I
> pass this information onto the customer service representative.
> Patricia
>
> Sent from my iPhone
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.c
> om
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/singingmywayin%40
gmail.com
>


-- 
How far you go in life depends on your being tender with the young,
compassionate with the aged, sympathetic with the striving and
tolerant of the weak and strong. Because someday in your life you will
have been all of these.
George Washington Carver
Email: singingmywayin at gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com



From gmelconian619 at gmail.com  Tue Nov  3 00:29:47 2020
From: gmelconian619 at gmail.com (Gary-melconian)
Date: Mon, 02 Nov 2020 16:29:47 -0800
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <000301d6b177$c2cb3450$48619cf0$@laurelcreekmusic.com>
References: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
 <000801d6b165$c1fd8940$45f89bc0$@fastmail.com>
 <CAMxXqESkfSkjtTRWZYVPQTaYFprYAYcw2FmWpxYZOuuB6Uvkng@mail.gmail.com>
 <000301d6b177$c2cb3450$48619cf0$@laurelcreekmusic.com>
Message-ID: <1758b828078.289c.76f7706a0d51902714afda849d7cf02f@gmail.com>

you are incorrect Veronica there is a new app being developed it's already 
available overseas for Android but it's not yet here available for Apple 
voiceover or anything else but you can good advantage of Android you can 
sideload the app unlike voiceover or apple where you are stick to what they 
give you so was able to sideload the app to an Android device and take a 
look at the app designed for the libre too overseas and most of the stuff 
is accessible with talkback so I don't know where you were getting your 
information from. but yeah maybe for the Apple side it's going to take time 
for it to be developed but the app is developed for Android overseas just 
now needs to be rectified or approved by the FDA here in the states for 
Android or for Apple it always takes a bit longer because it has to be 
approved by Apple and then the FDA for Apple stuff so that's why I got a 
feeling this is going to take longer for you guys to see it on the iOS side 
relative to this Android side so it just depends some apps or easily 
approved and easily developed for iOS and some developed developed are 
easily developed for Android so it just depends anyways letting you know


On November 2, 2020 4:26:02 PM Veronica Elsea via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> Patricia, it's the FreeStyle Libre 2, which does not have an app, which
> would make it accessible to us. So if one wanted a Libre which came with
> alarms and some new features, we could not use it, the two, because it's the
> iPhone app that makes it accessible to us. The iPhone app that comes with
> the 14-day model does work. You just don't get those alarms and new stuff
> that sighted people can enjoy.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> ????????????????Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Danielle Ledet via Diabetes-Talk
> Sent: Monday, November 02, 2020 2:44 PM
> To: Diabetes Talk for the Blind
> Cc: Danielle Ledet
> Subject: Re: [Diabetes-Talk] Freestyle libre availability update
>
> Mine too.
>
> On 11/2/20, Mike Capelle via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> It is totally accessible on my phone.
>>
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Patricia
>> Maddix via Diabetes-Talk
>> Sent: Monday, November 2, 2020 4:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: Patricia Maddix <pmaddix at comcast.net>
>> Subject: [Diabetes-Talk] Freestyle libre availability update
>>
>> As my husband is considering getting the freestyle CGM I called customer
>> service today to clarify the models that are now available in United
>> States.
>> The freestyle libre two became available in the United States this last
>> July
>> and does not yet have a phone app but plans to in the future. The
> freestyle
>> 14 day CGM has both a scanner as well as the phone app and it is not
>> necessary to buy the scanner if you want to use the phone app.
>> As some of you mentioned that the phone App is not completely accessible I
>> pass this information onto the customer service representative.
>> Patricia
>>
>> Sent from my iPhone
>>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>>
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.c
>> om
>>
>>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>>
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/singingmywayin%40
> gmail.com
>>
>
>
> -- 
> How far you go in life depends on your being tender with the young,
> compassionate with the aged, sympathetic with the striving and
> tolerant of the weak and strong. Because someday in your life you will
> have been all of these.
> George Washington Carver
> Email: singingmywayin at gmail.com
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com

From kutash-jm at comcast.net  Tue Nov  3 03:14:42 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Mon, 2 Nov 2020 22:14:42 -0500
Subject: [Diabetes-Talk] Freestyle libre availability update
In-Reply-To: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
References: <D7EAC2E8-1104-4A78-906A-C5DE1853ABD3@comcast.net>
Message-ID: <004201d6b18f$7d6355b0$782a0110$@comcast.net>

Some insurance companies require you to buy the scanner even though we
technically can't use it. Mine did.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Patricia Maddix via Diabetes-Talk
Sent: Monday, November 02, 2020 5:05 PM
To: diabetes-talk at nfbnet.org
Cc: Patricia Maddix
Subject: [Diabetes-Talk] Freestyle libre availability update

As my husband is considering getting the freestyle CGM I called customer
service today to clarify the models that are now available in United States.
The freestyle libre two became available in the United States this last July
and does not yet have a phone app but plans to in the future. The freestyle
14 day CGM has both a scanner as well as the phone app and it is not
necessary to buy the scanner if you want to use the phone app.
As some of you mentioned that the phone App is not completely accessible I
pass this information onto the customer service representative.
Patricia

Sent from my iPhone

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
st.net



From bkpollpeter at gmail.com  Tue Nov  3 18:13:57 2020
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 3 Nov 2020 12:13:57 -0600
Subject: [Diabetes-Talk] Changes to My Fitness Pal
Message-ID: <1c3a01d6b20d$194f1360$4bed3a20$@gmail.com>

I received the following email and thought I would share it since I know so
many here use My Fitness Pal. Hope these changes don't impact accessibility:


To our MyFitnessPal community,

As part of an ongoing strategic transformation, Under Armour announced plans
last week to sell MyFitnessPal to Francisco Partners, a leading global
private equity firm that specializes in investments in technology and
technology-enabled businesses.

This transaction, which is expected to close by the end of 2020, will enable
MyFitnessPal to realize its full potential as the world's premier food
tracking and nutrition app. Through Francisco Partners' technology expertise
and wide network of resources, MyFitnessPal will be empowered to create more
innovative features and tools to help you reach your health and fitness
goals, and be better enabled to personalize and customize content just for
you.

What does this mean for you? 
.	It's business as usual, only now we'll be able to tap into greater
expertise, additional resources and greater capabilities to bring even more
exciting features to you in the future. 
.	Coming soon, MyFitnessPal plans to launch an Artificial Intelligence
driven food recognition technology called Meal Scan, new guided plans and
expert-led workout routines, and dozens of new recipes curated by certified
nutritionists.
.	No changes to our data policies. We are committed to safeguarding
your personal information and following industry best practices to keep your
data secure.
To learn more about this exciting new chapter for MyFitnessPal, please check
out this FAQ. Thank you for your continued support and partnership in this
journey of fitness and wellness. 

On behalf of Under Armour and Francisco Partners, we're looking forward to
the future and even more exciting things to come!
Patrik Frisk
 
President & CEO,
Under Armour	Dipanjan "DJ" Deb
 
Co-Founder & CEO,
Francisco Partners 




From diana56cook at gmail.com  Wed Nov  4 17:22:44 2020
From: diana56cook at gmail.com (Diana Cook)
Date: Wed, 4 Nov 2020 12:22:44 -0500
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <4915BF17-F707-447B-9DF4-B77B8D06F9F0@gmail.com>

Thanks for sharing,Terri! Change can be scary. I have always been so timid and passive...now becoming more assertive with my care. I just changed my endocrinologist and am already grateful for that! Keep up your good work! Diana cook

Sent from my iPad

> On Nov 2, 2020, at 12:52, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hello Gary,
> 
> 
> Thank you for the support. It's much appreciated. And I am so glad to hear that you are doing as well as you are. That's very encouraging.
> 
> 
> Keep up the good work.
> 
> 
> Terri
> 
>> On 10/28/2020 2:15 PM, gary-melconian wrote:
>> Good job. Keep it up.i was in the same boat as you after 2 .5 years, my a1c
>> from 10.5 is now down to 6.3.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
>> Stimmel via Diabetes-Talk
>> Sent: Wednesday, October 28, 2020 11:59 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
>> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>> 
>> Hello everyone,
>> 
>> 
>> This past Monday was my appointment for my diabetes. As I mentioned in
>> previous messages, I was switching my care over to my primary care doctor.
>> In doing this, I will now also have appointments with a nurse practicianer
>> who will help me with meal planning and such.
>> 
>> 
>> My first appointment with her went very, very well. I am so happy, and so
>> thankful that I made these changes. I was worried about doing this.
>> But I'm not any longer.
>> 
>> 
>> I felt very comfortable with her. I felt she was well educated, and kept
>> up with things. She answered all my questions. I didn't feel stupid for
>> what I had to ask. I felt like I was receiving top-notch care. I needed
>> this after how I had been feeling with my diabetes specialest.
>> 
>> 
>> She asked me if I wanted meal and snack ideas. I told her I did. So she
>> emailed me a PDF. She also printed it out. This way if I had someone who
>> could help me look it over, or a way to scan it, I could. She also told
>> me that if I couldn't access the PDF, to let her know and she would find
>> a way to help me be able to access it.
>> 
>> I loved that she was more than willing to make things accessible for me.
>> Or help me figure out ways to access stuff. I do have sighted assistance
>> at times. But it's limited.
>> 
>> 
>> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
>> feel that's pretty good. I'm happy that it's continuing to go down. I
>> want this to keep happening.
>> 
>> 
>> Also, she decided to leave my Treseba at 80 units.
>> 
>> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
>> Right now, lunch is still at 25, and dinner is still at 30.
>> 
>> She asked me what I thought of the Ozempic. I told her I didn't think it
>> affected me nearly as badly as the Victoza had. But that I still thought
>> it caused a lot of stomach upset. But I also told her that in some ways
>> I think it helps me eat less. That once when I didn't have it for a
>> week, I felt rather more hungry than usual. She said this was possible.
>> 
>> 
>> I told her that my goal is to eventually need less insulin. But that I
>> didn't know if this was possible. So she told me that if I were
>> interested, that in time I could possibly try a pill at dinner, instead
>> of insulin. I told her that I would consider this. But the medications
>> such as, Farcega, and Jardiance made me nervous. To me, the side affects
>> seem awful. But I am open to this.
>> 
>> 
>> I decided that for now I won't ask her about the V-Go system. I am very
>> curious about it. But for now I think I need to have other priorities. I
>> hope that makes some sense?
>> 
>> 
>> So that's what happened. I go back in mid November for a follow-up
>> visit. She also did tell me that my lows were in the 4 percent range,
>> and that this wasn't good. She said she'd prefer to see them at 2
>> percent. Then she also stated that something else was at 95 percent, and
>> that this was phenomenal. I meant to ask her what she was talking about.
>> But we got onto other things, and I never got back around to it. She was
>> viewing my Libre system, when she said both of these things.
>> 
>> 
>> I feel so much better about things, now that I've gone to this
>> appointment. I look forward to eating better, and making better choices
>> for myself. I look forward to having better controlled diabetes, and not
>> having to worry about it so much.
>> 
>> 
>> Thank you to all of you who have kindly offered me support and advice. I
>> truly appreciate it. I will keep you all posted on how things are going
>> with me. My biggest struggle is realizing when I am truly hungry, or
>> just wanting to eat, because I'm bored and it's something to do.
>> 
>> 
>> Terri
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
>> mail.com
>> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com


From icecreamlover76 at outlook.com  Wed Nov  4 20:01:51 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Wed, 4 Nov 2020 14:01:51 -0600
Subject: [Diabetes-Talk] Regarding my diabetes education appointment
In-Reply-To: <4915BF17-F707-447B-9DF4-B77B8D06F9F0@gmail.com>
References: <CH2PR04MB6839B6769D94A85303F1F1E6A8100@CH2PR04MB6839.namprd04.prod.outlook.com>
 <4915BF17-F707-447B-9DF4-B77B8D06F9F0@gmail.com>
Message-ID: <CH2PR04MB6839FC6581E459846CCA47CBA8EF0@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello Diana,


Thank you for the encouragement. I really appreciate it.


I'm glad you have changed doctors, and it has worked out well for you. I 
know how difficult it can be to make these changes. I struggled for 
quite some time, before deciding? to switch doctors. But it's been one 
of the best things I could do for myself.


I hope you continue to do well.


Terri

On 11/4/2020 11:22 AM, Diana Cook via Diabetes-Talk wrote:
> Thanks for sharing,Terri! Change can be scary. I have always been so timid and passive...now becoming more assertive with my care. I just changed my endocrinologist and am already grateful for that! Keep up your good work! Diana cook
>
> Sent from my iPad
>
>> On Nov 2, 2020, at 12:52, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>
>> ?Hello Gary,
>>
>>
>> Thank you for the support. It's much appreciated. And I am so glad to hear that you are doing as well as you are. That's very encouraging.
>>
>>
>> Keep up the good work.
>>
>>
>> Terri
>>
>>> On 10/28/2020 2:15 PM, gary-melconian wrote:
>>> Good job. Keep it up.i was in the same boat as you after 2 .5 years, my a1c
>>> from 10.5 is now down to 6.3.
>>>
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
>>> Stimmel via Diabetes-Talk
>>> Sent: Wednesday, October 28, 2020 11:59 AM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: Terri Stimmel <icecreamlover76 at outlook.com>
>>> Subject: [Diabetes-Talk] Regarding my diabetes education appointment
>>>
>>> Hello everyone,
>>>
>>>
>>> This past Monday was my appointment for my diabetes. As I mentioned in
>>> previous messages, I was switching my care over to my primary care doctor.
>>> In doing this, I will now also have appointments with a nurse practicianer
>>> who will help me with meal planning and such.
>>>
>>>
>>> My first appointment with her went very, very well. I am so happy, and so
>>> thankful that I made these changes. I was worried about doing this.
>>> But I'm not any longer.
>>>
>>>
>>> I felt very comfortable with her. I felt she was well educated, and kept
>>> up with things. She answered all my questions. I didn't feel stupid for
>>> what I had to ask. I felt like I was receiving top-notch care. I needed
>>> this after how I had been feeling with my diabetes specialest.
>>>
>>>
>>> She asked me if I wanted meal and snack ideas. I told her I did. So she
>>> emailed me a PDF. She also printed it out. This way if I had someone who
>>> could help me look it over, or a way to scan it, I could. She also told
>>> me that if I couldn't access the PDF, to let her know and she would find
>>> a way to help me be able to access it.
>>>
>>> I loved that she was more than willing to make things accessible for me.
>>> Or help me figure out ways to access stuff. I do have sighted assistance
>>> at times. But it's limited.
>>>
>>>
>>> My A1C is down to 7. In about 3 months it's gone from 7.6, to 7. So I
>>> feel that's pretty good. I'm happy that it's continuing to go down. I
>>> want this to keep happening.
>>>
>>>
>>> Also, she decided to leave my Treseba at 80 units.
>>>
>>> However, she lowered my Novolog at breakfast from 25 units, to 20 units.
>>> Right now, lunch is still at 25, and dinner is still at 30.
>>>
>>> She asked me what I thought of the Ozempic. I told her I didn't think it
>>> affected me nearly as badly as the Victoza had. But that I still thought
>>> it caused a lot of stomach upset. But I also told her that in some ways
>>> I think it helps me eat less. That once when I didn't have it for a
>>> week, I felt rather more hungry than usual. She said this was possible.
>>>
>>>
>>> I told her that my goal is to eventually need less insulin. But that I
>>> didn't know if this was possible. So she told me that if I were
>>> interested, that in time I could possibly try a pill at dinner, instead
>>> of insulin. I told her that I would consider this. But the medications
>>> such as, Farcega, and Jardiance made me nervous. To me, the side affects
>>> seem awful. But I am open to this.
>>>
>>>
>>> I decided that for now I won't ask her about the V-Go system. I am very
>>> curious about it. But for now I think I need to have other priorities. I
>>> hope that makes some sense?
>>>
>>>
>>> So that's what happened. I go back in mid November for a follow-up
>>> visit. She also did tell me that my lows were in the 4 percent range,
>>> and that this wasn't good. She said she'd prefer to see them at 2
>>> percent. Then she also stated that something else was at 95 percent, and
>>> that this was phenomenal. I meant to ask her what she was talking about.
>>> But we got onto other things, and I never got back around to it. She was
>>> viewing my Libre system, when she said both of these things.
>>>
>>>
>>> I feel so much better about things, now that I've gone to this
>>> appointment. I look forward to eating better, and making better choices
>>> for myself. I look forward to having better controlled diabetes, and not
>>> having to worry about it so much.
>>>
>>>
>>> Thank you to all of you who have kindly offered me support and advice. I
>>> truly appreciate it. I will keep you all posted on how things are going
>>> with me. My biggest struggle is realizing when I am truly hungry, or
>>> just wanting to eat, because I'm bored and it's something to do.
>>>
>>>
>>> Terri
>>>
>>>
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
>>> mail.com
>>>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/icecreamlover76%40outlook.com


From icecreamlover76 at outlook.com  Fri Nov  6 22:28:01 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Fri, 6 Nov 2020 16:28:01 -0600
Subject: [Diabetes-Talk] A bit of a rant
Message-ID: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello everyone,


I apologize for this message. I think I just need some support, and 
feedback. This isn't really a rant per say. More just me letting out 
some frustration.


As you all know, I have been really working hard to restructure how I am 
eating. It's been a struggle. But for the most part, I am enjoying 
making the changes. Also, I feel like I have great support. So this is 
definitely a plus.


However, the last few days have been a bit rough for me. I feel like 
maybe I am not always eating enough. But also I feel I am struggling, 
due to things my boyfriend thinks. Now don't get me wrong, he's very 
loving, and supportive. And he has been trying to make changes right 
along with me. But earlier today when my blood sugar was low, he 
suggested I eat some chocolate. On one hand, I think he was trying to be 
funny. But also, I know that he feels like when the doctors, or 
specialists suggest things to eat, or watching carbs, that you eat bland 
foods. He makes a lot of comments about that. I know he struggles a lot 
when it comes to not ordering out a meal. Which I can as well. Although, 
it's getting easier for me.


So my biggest concern is that I am still having lows. At least, I think 
that I am. I say think, because I used my Libre. But I also used a 
Prodigy meater to check my blood sugar. Earlier, about an hour ago, my 
Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. 
That's how I can get when it's low. But I felt tired, and kind of 
depressed. Maybe a bit irritable.

But when I checked with the meater right after checking with the Libre, 
my blood sugar was 95.


Last night, the same thing happened. It was about 2 and a half hours 
after we had eaten dinner. We had Marie Calendar, chicken pot pies. I 
took my 30 units of insulin before we ate. I didn't eat anything else 
after dinner.


But when I checked with my Libre, it was 46. So I checked with the 
Prodigy. It was 93.

So which is accurate? Isn't that too big of a difference between the 
Libre, and the Prodigy?


I do plan to call my doctor, or contact the nurse practisioner and let 
her know what's going on. But I want to try to manage it better on my 
own, if I can.


For lunch today I ate a turkey sandwich. I ate it on this Healthy Life 
bread. I had just one slice of the bread. I used Land O Frost, honey 
smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on 
the sandwich. Then I had a strawberry greek yogurt. I know the brand of 
it. But I don't have a clue as to how to spell it. I know that I 
probably haven't spelled a lot of this properly. Sorry for this. But I 
know you all will understand. But please don't hesitate to ask me what I 
might have meant, if you ever can't figure something out.


Did I not eat enough carbs?

I thought with this kind of lunch that I would be good. I didn't expect 
to get the low I got. I'm thinking that if I continue to eat like this, 
that I might need less insulin overall, and not just the change she made 
at breakfast.


Sometimes, when I think about get-togethers with friends, or church 
events, or the holidays, I feel sad, and guilty. I know this doesn't 
likely make a lot of sense. But I feel like if I don't eat all the yummy 
desserts, or starchy foods, my friends won't get it. Or it's just 
another reason I might stand out, or not fit in. Another thing to add to 
the list.


Does this make any sense?

I feel silly for saying this. But it's how I feel, and what I think 
about sometimes. I know it's ok to have something sometimes. I know it's 
all about moderation, and making better choices. I'm glad to be doing 
it, for the most part. I want to do this. But I honestly never thought 
that I'd feel sad over it.


So that's it. That's what's been going on. And this has been going 
through my mind.


Thank you for listening. If this isn't the type of stuff for the list, 
please feel free to let me know.


I hope all of you are well.


Terri



From mota1252 at gmail.com  Fri Nov  6 22:52:42 2020
From: mota1252 at gmail.com (Milton)
Date: Fri, 6 Nov 2020 16:52:42 -0600
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <00b301d6b48f$89652ac0$9c2f8040$@gmail.com>

Hi Terri,

I'm not a Libra user but I have a question regarding the Libra app, does the
app have the ability to calibrate your sugar levels each time you change the
sensor? If it does, you might want to check your blood sugar levels after
you have applied the new sensor and do a calibration in the app and see if
there is still a great difference.

Yes, do talk to your doctor about your highs and lows and see if adjustment
to the amount of insulin is needed.



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
Stimmel via Diabetes-Talk
Sent: Friday, November 6, 2020 4:28 PM
To: diabetes-talk at nfbnet.org
Cc: Terri Stimmel <icecreamlover76 at outlook.com>
Subject: [Diabetes-Talk] A bit of a rant

Hello everyone,


I apologize for this message. I think I just need some support, and
feedback. This isn't really a rant per say. More just me letting out some
frustration.


As you all know, I have been really working hard to restructure how I am
eating. It's been a struggle. But for the most part, I am enjoying making
the changes. Also, I feel like I have great support. So this is definitely a
plus.


However, the last few days have been a bit rough for me. I feel like maybe I
am not always eating enough. But also I feel I am struggling, due to things
my boyfriend thinks. Now don't get me wrong, he's very loving, and
supportive. And he has been trying to make changes right along with me. But
earlier today when my blood sugar was low, he suggested I eat some
chocolate. On one hand, I think he was trying to be funny. But also, I know
that he feels like when the doctors, or specialists suggest things to eat,
or watching carbs, that you eat bland foods. He makes a lot of comments
about that. I know he struggles a lot when it comes to not ordering out a
meal. Which I can as well. Although, it's getting easier for me.


So my biggest concern is that I am still having lows. At least, I think that
I am. I say think, because I used my Libre. But I also used a Prodigy meater
to check my blood sugar. Earlier, about an hour ago, my Libre showed my
blood sugar at 54. I didn't feel shaky, or sweaty. 
That's how I can get when it's low. But I felt tired, and kind of depressed.
Maybe a bit irritable.

But when I checked with the meater right after checking with the Libre, my
blood sugar was 95.


Last night, the same thing happened. It was about 2 and a half hours 
after we had eaten dinner. We had Marie Calendar, chicken pot pies. I 
took my 30 units of insulin before we ate. I didn't eat anything else 
after dinner.


But when I checked with my Libre, it was 46. So I checked with the 
Prodigy. It was 93.

So which is accurate? Isn't that too big of a difference between the 
Libre, and the Prodigy?


I do plan to call my doctor, or contact the nurse practisioner and let 
her know what's going on. But I want to try to manage it better on my 
own, if I can.


For lunch today I ate a turkey sandwich. I ate it on this Healthy Life 
bread. I had just one slice of the bread. I used Land O Frost, honey 
smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on 
the sandwich. Then I had a strawberry greek yogurt. I know the brand of 
it. But I don't have a clue as to how to spell it. I know that I 
probably haven't spelled a lot of this properly. Sorry for this. But I 
know you all will understand. But please don't hesitate to ask me what I 
might have meant, if you ever can't figure something out.


Did I not eat enough carbs?

I thought with this kind of lunch that I would be good. I didn't expect 
to get the low I got. I'm thinking that if I continue to eat like this, 
that I might need less insulin overall, and not just the change she made 
at breakfast.


Sometimes, when I think about get-togethers with friends, or church 
events, or the holidays, I feel sad, and guilty. I know this doesn't 
likely make a lot of sense. But I feel like if I don't eat all the yummy 
desserts, or starchy foods, my friends won't get it. Or it's just 
another reason I might stand out, or not fit in. Another thing to add to 
the list.


Does this make any sense?

I feel silly for saying this. But it's how I feel, and what I think 
about sometimes. I know it's ok to have something sometimes. I know it's 
all about moderation, and making better choices. I'm glad to be doing 
it, for the most part. I want to do this. But I honestly never thought 
that I'd feel sad over it.


So that's it. That's what's been going on. And this has been going 
through my mind.


Thank you for listening. If this isn't the type of stuff for the list, 
please feel free to let me know.


I hope all of you are well.


Terri


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.
com



From diana56cook at gmail.com  Fri Nov  6 22:53:54 2020
From: diana56cook at gmail.com (Diana Cook)
Date: Fri, 6 Nov 2020 17:53:54 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <A669B06F-A48D-489D-8A58-D563E412D10B@gmail.com>

Thanks for sharing,Terri! Your medical team is there to help... use them!  I can somewhat relate; my son does most of the cooking and doesn?t quite get it! Sometimes I just give in and take more insulin via my pump. He too thinks chocolate fixes lows! Fats, ie chocolate, slows the effectiveness of the sugar in getting glucose back up. I have won that discussion! Keep making those positive changes! Diana

Sent from my iPhone

> On Nov 6, 2020, at 5:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hello everyone,
> 
> 
> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
> 
> 
> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
> 
> 
> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
> 
> 
> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
> 
> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
> 
> 
> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
> 
> 
> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
> 
> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
> 
> 
> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
> 
> 
> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
> 
> 
> Did I not eat enough carbs?
> 
> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
> 
> 
> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
> 
> 
> Does this make any sense?
> 
> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
> 
> 
> So that's it. That's what's been going on. And this has been going through my mind.
> 
> 
> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
> 
> 
> I hope all of you are well.
> 
> 
> Terri
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com


From pmaddix at comcast.net  Fri Nov  6 23:06:23 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Fri, 6 Nov 2020 15:06:23 -0800
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>

Terri,
All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
Hang in there.
Patricia

Sent
 from my iPhone

> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hello everyone,
> 
> 
> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
> 
> 
> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
> 
> 
> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
> 
> 
> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
> 
> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
> 
> 
> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
> 
> 
> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
> 
> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
> 
> 
> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
> 
> 
> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
> 
> 
> Did I not eat enough carbs?
> 
> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
> 
> 
> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
> 
> 
> Does this make any sense?
> 
> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
> 
> 
> So that's it. That's what's been going on. And this has been going through my mind.
> 
> 
> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
> 
> 
> I hope all of you are well.
> 
> 
> Terri
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From melanietorrance at icloud.com  Fri Nov  6 23:39:47 2020
From: melanietorrance at icloud.com (Melanie Torrance)
Date: Fri, 6 Nov 2020 18:39:47 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
References: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
Message-ID: <44C5B7DE-6DD5-41E7-9821-20A469841415@icloud.com>

Terri-
Your feelings of frustration, sadness, depression and anxiety are perfectly normal, and it?s very good that you are able to reach out to others when you feel that way. Diabetes is a very difficult disease to manage, and even if you were doing everything perfectly, you will still have days when things don?t go right.
     In terms of your low blood sugars, you should treat it immediately with 15 grams of carbohydrate, wait 15 minutes, then check your blood sugar again. If it is still low, then eat an additional 15 grams of carbohydrate, and check your blood sugar again in 15 minutes. You should always have something available on hand to treat a low blood sugar. The easiest thing to do is drink some orange juice. It is absorbed quickly and will bring your blood sugar up rapidly. Read the carbs on the nutrition information on your orange juice container to tell you the serving size to equal 15 grams. It should be around half a cup or less. You can also buy Glucose tablets at Walmart, in the diabetes section of the Pharmacy. These are handy to take with you when you are not at home.
Take care and remember how good you felt just a few days ago!
Melanie

Sent from Melanie's i phone

> On Nov 6, 2020, at 6:07 PM, Patricia Maddix via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Terri,
> All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
> I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
> Hang in there.
> Patricia
> 
> Sent
> from my iPhone
> 
>> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Hello everyone,
>> 
>> 
>> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
>> 
>> 
>> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
>> 
>> 
>> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
>> 
>> 
>> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
>> 
>> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
>> 
>> 
>> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
>> 
>> 
>> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
>> 
>> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
>> 
>> 
>> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
>> 
>> 
>> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
>> 
>> 
>> Did I not eat enough carbs?
>> 
>> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
>> 
>> 
>> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
>> 
>> 
>> Does this make any sense?
>> 
>> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
>> 
>> 
>> So that's it. That's what's been going on. And this has been going through my mind.
>> 
>> 
>> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
>> 
>> 
>> I hope all of you are well.
>> 
>> 
>> Terri
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
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From kutash-jm at comcast.net  Sat Nov  7 00:03:08 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Fri, 6 Nov 2020 19:03:08 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
 <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
Message-ID: <002701d6b499$606a3f20$213ebd60$@comcast.net>

Terry, the Libra will catch up with the meter in about 15 to 20 minutes. That's just how it works. You need protein or some of the foods the dietician says you should have. Chocolate will help if you really need it, but you can at least somewhat trust how you feel. And oh yes, you will go higher with chocolate but you will then go lower sometimes pretty quickly so I would say, you were probably in the middle between the libre and the meter. It takes someone who doesn't have to care about diabetes a while to understands and he may never totally get it. That is hard, but you have to decide whether you want to continue  making such good strides or whether you want to go his way. It won't always be easy, but the more you just say this is what I need to do and I feel much better this way, the more he will either stop or you will find he isn't ready or able to accept your changes. Just keep trying to do the things you are doing.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Friday, November 06, 2020 6:06 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] A bit of a rant

Terri,
All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
Hang in there.
Patricia

Sent
 from my iPhone

> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hello everyone,
> 
> 
> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
> 
> 
> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
> 
> 
> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
> 
> 
> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
> 
> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
> 
> 
> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
> 
> 
> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
> 
> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
> 
> 
> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
> 
> 
> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
> 
> 
> Did I not eat enough carbs?
> 
> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
> 
> 
> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
> 
> 
> Does this make any sense?
> 
> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
> 
> 
> So that's it. That's what's been going on. And this has been going through my mind.
> 
> 
> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
> 
> 
> I hope all of you are well.
> 
> 
> Terri
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From kutash-jm at comcast.net  Sat Nov  7 00:06:15 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Fri, 6 Nov 2020 19:06:15 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <00b301d6b48f$89652ac0$9c2f8040$@gmail.com>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
 <00b301d6b48f$89652ac0$9c2f8040$@gmail.com>
Message-ID: <002801d6b499$d03357b0$709a0710$@comcast.net>

I suspect the meter is off; I have seen three cases of that this week.You
cannot calibrate in "libre" but I've been wearing it long enough to know I'd
trust it way more than the prodigy which is not accurate in my opinion. I've
seen readings on it vary as much as 50 points within a minute of taking one
reading and the next.

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Milton via Diabetes-Talk
Sent: Friday, November 06, 2020 5:53 PM
To: 'Diabetes Talk for the Blind'
Cc: Milton
Subject: Re: [Diabetes-Talk] A bit of a rant

Hi Terri,

I'm not a Libra user but I have a question regarding the Libra app, does the
app have the ability to calibrate your sugar levels each time you change the
sensor? If it does, you might want to check your blood sugar levels after
you have applied the new sensor and do a calibration in the app and see if
there is still a great difference.

Yes, do talk to your doctor about your highs and lows and see if adjustment
to the amount of insulin is needed.



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri
Stimmel via Diabetes-Talk
Sent: Friday, November 6, 2020 4:28 PM
To: diabetes-talk at nfbnet.org
Cc: Terri Stimmel <icecreamlover76 at outlook.com>
Subject: [Diabetes-Talk] A bit of a rant

Hello everyone,


I apologize for this message. I think I just need some support, and
feedback. This isn't really a rant per say. More just me letting out some
frustration.


As you all know, I have been really working hard to restructure how I am
eating. It's been a struggle. But for the most part, I am enjoying making
the changes. Also, I feel like I have great support. So this is definitely a
plus.


However, the last few days have been a bit rough for me. I feel like maybe I
am not always eating enough. But also I feel I am struggling, due to things
my boyfriend thinks. Now don't get me wrong, he's very loving, and
supportive. And he has been trying to make changes right along with me. But
earlier today when my blood sugar was low, he suggested I eat some
chocolate. On one hand, I think he was trying to be funny. But also, I know
that he feels like when the doctors, or specialists suggest things to eat,
or watching carbs, that you eat bland foods. He makes a lot of comments
about that. I know he struggles a lot when it comes to not ordering out a
meal. Which I can as well. Although, it's getting easier for me.


So my biggest concern is that I am still having lows. At least, I think that
I am. I say think, because I used my Libre. But I also used a Prodigy meater
to check my blood sugar. Earlier, about an hour ago, my Libre showed my
blood sugar at 54. I didn't feel shaky, or sweaty. 
That's how I can get when it's low. But I felt tired, and kind of depressed.
Maybe a bit irritable.

But when I checked with the meater right after checking with the Libre, my
blood sugar was 95.


Last night, the same thing happened. It was about 2 and a half hours 
after we had eaten dinner. We had Marie Calendar, chicken pot pies. I 
took my 30 units of insulin before we ate. I didn't eat anything else 
after dinner.


But when I checked with my Libre, it was 46. So I checked with the 
Prodigy. It was 93.

So which is accurate? Isn't that too big of a difference between the 
Libre, and the Prodigy?


I do plan to call my doctor, or contact the nurse practisioner and let 
her know what's going on. But I want to try to manage it better on my 
own, if I can.


For lunch today I ate a turkey sandwich. I ate it on this Healthy Life 
bread. I had just one slice of the bread. I used Land O Frost, honey 
smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on 
the sandwich. Then I had a strawberry greek yogurt. I know the brand of 
it. But I don't have a clue as to how to spell it. I know that I 
probably haven't spelled a lot of this properly. Sorry for this. But I 
know you all will understand. But please don't hesitate to ask me what I 
might have meant, if you ever can't figure something out.


Did I not eat enough carbs?

I thought with this kind of lunch that I would be good. I didn't expect 
to get the low I got. I'm thinking that if I continue to eat like this, 
that I might need less insulin overall, and not just the change she made 
at breakfast.


Sometimes, when I think about get-togethers with friends, or church 
events, or the holidays, I feel sad, and guilty. I know this doesn't 
likely make a lot of sense. But I feel like if I don't eat all the yummy 
desserts, or starchy foods, my friends won't get it. Or it's just 
another reason I might stand out, or not fit in. Another thing to add to 
the list.


Does this make any sense?

I feel silly for saying this. But it's how I feel, and what I think 
about sometimes. I know it's ok to have something sometimes. I know it's 
all about moderation, and making better choices. I'm glad to be doing 
it, for the most part. I want to do this. But I honestly never thought 
that I'd feel sad over it.


So that's it. That's what's been going on. And this has been going 
through my mind.


Thank you for listening. If this isn't the type of stuff for the list, 
please feel free to let me know.


I hope all of you are well.


Terri


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.
com


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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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st.net



From blindsticks at gmail.com  Sat Nov  7 01:40:40 2020
From: blindsticks at gmail.com (Alan Wheeler)
Date: Fri, 6 Nov 2020 17:40:40 -0800
Subject: [Diabetes-Talk] Good news.
Message-ID: <E8047E62-2FA4-4BD7-B453-DBEED1A110B4@gmail.com>

Hi everyone,
My primary care doctor just talked to me a bit ago, and he's putting in a referral to the diabetes clinic for me. I'll keep y'all updated on what happens.

Alan


"If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad

From gmelconian619 at gmail.com  Sat Nov  7 05:28:20 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Fri, 6 Nov 2020 21:28:20 -0800
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <002701d6b499$606a3f20$213ebd60$@comcast.net>
References: <CH2PR04MB6839FBB716B0FABDE75BE754A8ED0@CH2PR04MB6839.namprd04.prod.outlook.com>
 <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
 <002701d6b499$606a3f20$213ebd60$@comcast.net>
Message-ID: <006a01d6b4c6$ce295d70$6a7c1850$@gmail.com>

That?s good to know.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Friday, November 6, 2020 4:03 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] A bit of a rant

Terry, the Libra will catch up with the meter in about 15 to 20 minutes. That's just how it works. You need protein or some of the foods the dietician says you should have. Chocolate will help if you really need it, but you can at least somewhat trust how you feel. And oh yes, you will go higher with chocolate but you will then go lower sometimes pretty quickly so I would say, you were probably in the middle between the libre and the meter. It takes someone who doesn't have to care about diabetes a while to understands and he may never totally get it. That is hard, but you have to decide whether you want to continue  making such good strides or whether you want to go his way. It won't always be easy, but the more you just say this is what I need to do and I feel much better this way, the more he will either stop or you will find he isn't ready or able to accept your changes. Just keep trying to do the things you are doing.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Friday, November 06, 2020 6:06 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] A bit of a rant

Terri,
All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
Hang in there.
Patricia

Sent
 from my iPhone

> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hello everyone,
> 
> 
> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
> 
> 
> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
> 
> 
> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
> 
> 
> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
> 
> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
> 
> 
> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
> 
> 
> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
> 
> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
> 
> 
> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
> 
> 
> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
> 
> 
> Did I not eat enough carbs?
> 
> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
> 
> 
> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
> 
> 
> Does this make any sense?
> 
> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
> 
> 
> So that's it. That's what's been going on. And this has been going through my mind.
> 
> 
> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
> 
> 
> I hope all of you are well.
> 
> 
> Terri
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com



From maxs71055 at gmail.com  Sat Nov  7 13:17:16 2020
From: maxs71055 at gmail.com (Max Smith)
Date: Sat, 7 Nov 2020 05:17:16 -0800
Subject: [Diabetes-Talk] Finding Opportunity and Equal Access for Americans
 Who Are Blind with Diabetes
Message-ID: <64A1B89C-DFC3-4A47-A8D8-2177625EDB78@gmail.com>

Join ACB on November 9th at 12pm EDT on YouTube Live as we recognize National Diabetes Awareness Month. This live event will be the first part of a ten-part series, Diabetes: Where We Are and Where We?re Going. Diabetes has rapidly become one of the leading causes of blindness in the United States. Learn about the challenges to health management and opportunities on the horizon as several members of ACB?s Diabetics in Action affiliate share their stories and discuss what barriers stand in the way of independence. To access the live video, visit: https://youtu.be/U2QSRTZsqyg.  


From diana56cook at gmail.com  Sat Nov  7 19:51:11 2020
From: diana56cook at gmail.com (Diana Cook)
Date: Sat, 7 Nov 2020 14:51:11 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
References: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
Message-ID: <263F723F-D25F-4DF4-9C8E-B5CD91C55A78@gmail.com>

Words of wisdom, Patricia! Diana

Sent from my iPad

> On Nov 6, 2020, at 18:10, Patricia Maddix via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Terri,
> All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
> I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
> Hang in there.
> Patricia
> 
> Sent
> from my iPhone
> 
>> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Hello everyone,
>> 
>> 
>> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
>> 
>> 
>> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
>> 
>> 
>> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
>> 
>> 
>> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
>> 
>> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
>> 
>> 
>> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
>> 
>> 
>> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
>> 
>> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
>> 
>> 
>> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
>> 
>> 
>> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
>> 
>> 
>> Did I not eat enough carbs?
>> 
>> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
>> 
>> 
>> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
>> 
>> 
>> Does this make any sense?
>> 
>> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
>> 
>> 
>> So that's it. That's what's been going on. And this has been going through my mind.
>> 
>> 
>> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
>> 
>> 
>> I hope all of you are well.
>> 
>> 
>> Terri
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com


From jdashiel at panix.com  Sat Nov  7 20:01:44 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Sat, 7 Nov 2020 15:01:44 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <263F723F-D25F-4DF4-9C8E-B5CD91C55A78@gmail.com>
References: <918456EF-02E8-4ED5-9007-7075DDC6B322@comcast.net>
 <263F723F-D25F-4DF4-9C8E-B5CD91C55A78@gmail.com>
Message-ID: <alpine.NEB.2.23.451.2011071459001.14551@panix1.panix.com>

Good idea to get control solution tests done on the devices that support
control solution tests regularly.  Unfortunately not easily done with
some of these devices.  How regularly, how much do you and your family
value your life?  At least once a year though.
On Sat, 7 Nov 2020, Diana
Cook via Diabetes-Talk wrote:

> Date: Sat, 7 Nov 2020 14:51:11
> From: Diana Cook via Diabetes-Talk <diabetes-talk at nfbnet.org>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Diana Cook <diana56cook at gmail.com>
> Subject: Re: [Diabetes-Talk] A bit of a rant
>
> Words of wisdom, Patricia! Diana
>
> Sent from my iPad
>
> > On Nov 6, 2020, at 18:10, Patricia Maddix via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >
> > ?Terri,
> > All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat th
 e more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
> > I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
> > Hang in there.
> > Patricia
> >
> > Sent
> > from my iPhone
> >
> >> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>
> >> ?Hello everyone,
> >>
> >>
> >> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
> >>
> >>
> >> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
> >>
> >>
> >> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
> >>
> >>
> >> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
> >>
> >> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
> >>
> >>
> >> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
> >>
> >>
> >> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
> >>
> >> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
> >>
> >>
> >> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
> >>
> >>
> >> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
> >>
> >>
> >> Did I not eat enough carbs?
> >>
> >> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
> >>
> >>
> >> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
> >>
> >>
> >> Does this make any sense?
> >>
> >> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
> >>
> >>
> >> So that's it. That's what's been going on. And this has been going through my mind.
> >>
> >>
> >> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
> >>
> >>
> >> I hope all of you are well.
> >>
> >>
> >> Terri
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >
> >
> > _______________________________________________
> > Diabetes-Talk mailing list
> > Diabetes-Talk at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> > http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jdashiel%40panix.com
>

-- 
United States has 633 Billionaires with only 10 doing any annual
significant giving.



From diana56cook at gmail.com  Sat Nov  7 22:34:45 2020
From: diana56cook at gmail.com (Diana Cook)
Date: Sat, 7 Nov 2020 17:34:45 -0500
Subject: [Diabetes-Talk] A bit of a rant
In-Reply-To: <002701d6b499$606a3f20$213ebd60$@comcast.net>
References: <002701d6b499$606a3f20$213ebd60$@comcast.net>
Message-ID: <5E0E07F5-8CDC-403F-8A3D-40CEAA4C6E04@gmail.com>

I carry glucose tablets with me always and have a container in my bedside table. When I went to the beach, I had a container they fit in that I could hang around my neck. Love the sharing here! Diana cook

Sent from my iPad

> On Nov 6, 2020, at 19:04, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Terry, the Libra will catch up with the meter in about 15 to 20 minutes. That's just how it works. You need protein or some of the foods the dietician says you should have. Chocolate will help if you really need it, but you can at least somewhat trust how you feel. And oh yes, you will go higher with chocolate but you will then go lower sometimes pretty quickly so I would say, you were probably in the middle between the libre and the meter. It takes someone who doesn't have to care about diabetes a while to understands and he may never totally get it. That is hard, but you have to decide whether you want to continue  making such good strides or whether you want to go his way. It won't always be easy, but the more you just say this is what I need to do and I feel much better this way, the more he will either stop or you will find he isn't ready or able to accept your changes. Just keep trying to do the things you are doing.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Friday, November 06, 2020 6:06 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] A bit of a rant
> 
> Terri,
> All of your feelings are totally normal and I think we can all say that we?ve been there and are sometimes there again. I find that my Prodigy meter does generally read higher than my Dexcom. Sometimes I think that is because the Dexcom legs behind what your blood sugar is actually doing so the two numbers might get closer together with slightly different timing of testing but other times I feel The Prodigy just reads higher. I also am never quite sure which one to trust. None of these devices is perfect yet and yet we all want to know exactly what our blood sugar is. Technology is not quite there yet. As you have been much more careful with your food and no doubt decreasing your intake it is very likely that you will need even less insulin. This is a good thing.Have you talked with your diabetes educator about doing carbohydrate counting. A lot of us couch our carbohydrates and then adjust our insulin intake based on what we have chosen to eat as the more carbohydrate you eat the more insulin you take. For someone who takes exactly the same amount of insulin each day, the carbohydrate intake would need to be pretty much exactly the same each day.
> I know that when you were out socially you don?t want to offend anyone by not eating the food that they have prepared but try to be strong and do what is best for your health because nothing is more important than your health. My feeling has always been if they can?t or won?t understand that?s their problem not mine. I even had a good friend recently slip another piece of dessert on my plate of course without my knowing because I didn?t see her do it and was wondering why the amount of food on my plate was not getting smaller.  You know how some people just don?t get the blindness issue and many also don?t get the diabetes issue.
> Hang in there.
> Patricia
> 
> Sent
> from my iPhone
> 
>> On Nov 6, 2020, at 2:29 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Hello everyone,
>> 
>> 
>> I apologize for this message. I think I just need some support, and feedback. This isn't really a rant per say. More just me letting out some frustration.
>> 
>> 
>> As you all know, I have been really working hard to restructure how I am eating. It's been a struggle. But for the most part, I am enjoying making the changes. Also, I feel like I have great support. So this is definitely a plus.
>> 
>> 
>> However, the last few days have been a bit rough for me. I feel like maybe I am not always eating enough. But also I feel I am struggling, due to things my boyfriend thinks. Now don't get me wrong, he's very loving, and supportive. And he has been trying to make changes right along with me. But earlier today when my blood sugar was low, he suggested I eat some chocolate. On one hand, I think he was trying to be funny. But also, I know that he feels like when the doctors, or specialists suggest things to eat, or watching carbs, that you eat bland foods. He makes a lot of comments about that. I know he struggles a lot when it comes to not ordering out a meal. Which I can as well. Although, it's getting easier for me.
>> 
>> 
>> So my biggest concern is that I am still having lows. At least, I think that I am. I say think, because I used my Libre. But I also used a Prodigy meater to check my blood sugar. Earlier, about an hour ago, my Libre showed my blood sugar at 54. I didn't feel shaky, or sweaty. That's how I can get when it's low. But I felt tired, and kind of depressed. Maybe a bit irritable.
>> 
>> But when I checked with the meater right after checking with the Libre, my blood sugar was 95.
>> 
>> 
>> Last night, the same thing happened. It was about 2 and a half hours after we had eaten dinner. We had Marie Calendar, chicken pot pies. I took my 30 units of insulin before we ate. I didn't eat anything else after dinner.
>> 
>> 
>> But when I checked with my Libre, it was 46. So I checked with the Prodigy. It was 93.
>> 
>> So which is accurate? Isn't that too big of a difference between the Libre, and the Prodigy?
>> 
>> 
>> I do plan to call my doctor, or contact the nurse practisioner and let her know what's going on. But I want to try to manage it better on my own, if I can.
>> 
>> 
>> For lunch today I ate a turkey sandwich. I ate it on this Healthy Life bread. I had just one slice of the bread. I used Land O Frost, honey smoked turkey, 2 slices. I put a little bit of Sobra, garlic hummus on the sandwich. Then I had a strawberry greek yogurt. I know the brand of it. But I don't have a clue as to how to spell it. I know that I probably haven't spelled a lot of this properly. Sorry for this. But I know you all will understand. But please don't hesitate to ask me what I might have meant, if you ever can't figure something out.
>> 
>> 
>> Did I not eat enough carbs?
>> 
>> I thought with this kind of lunch that I would be good. I didn't expect to get the low I got. I'm thinking that if I continue to eat like this, that I might need less insulin overall, and not just the change she made at breakfast.
>> 
>> 
>> Sometimes, when I think about get-togethers with friends, or church events, or the holidays, I feel sad, and guilty. I know this doesn't likely make a lot of sense. But I feel like if I don't eat all the yummy desserts, or starchy foods, my friends won't get it. Or it's just another reason I might stand out, or not fit in. Another thing to add to the list.
>> 
>> 
>> Does this make any sense?
>> 
>> I feel silly for saying this. But it's how I feel, and what I think about sometimes. I know it's ok to have something sometimes. I know it's all about moderation, and making better choices. I'm glad to be doing it, for the most part. I want to do this. But I honestly never thought that I'd feel sad over it.
>> 
>> 
>> So that's it. That's what's been going on. And this has been going through my mind.
>> 
>> 
>> Thank you for listening. If this isn't the type of stuff for the list, please feel free to let me know.
>> 
>> 
>> I hope all of you are well.
>> 
>> 
>> Terri
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com


From diana56cook at gmail.com  Sat Nov  7 22:36:21 2020
From: diana56cook at gmail.com (Diana Cook)
Date: Sat, 7 Nov 2020 17:36:21 -0500
Subject: [Diabetes-Talk] Good news.
In-Reply-To: <E8047E62-2FA4-4BD7-B453-DBEED1A110B4@gmail.com>
References: <E8047E62-2FA4-4BD7-B453-DBEED1A110B4@gmail.com>
Message-ID: <AF6D8628-A836-4B08-AA9B-271B256B9031@gmail.com>

Double YAY!

Sent from my iPad

> On Nov 6, 2020, at 20:42, Alan Wheeler via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Hi everyone,
> My primary care doctor just talked to me a bit ago, and he's putting in a referral to the diabetes clinic for me. I'll keep y'all updated on what happens.
> 
> Alan
> 
> 
> "If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"
> 
> My blog: http://doingitdeeper.blogspot.com/
> 
> Sent from my iPad
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com


From pmaddix at comcast.net  Mon Nov  9 04:53:19 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Sun, 8 Nov 2020 20:53:19 -0800
Subject: [Diabetes-Talk] Finding Opportunity and Equal Access for
 Americans Who Are Blind with Diabetes
In-Reply-To: <64A1B89C-DFC3-4A47-A8D8-2177625EDB78@gmail.com>
References: <64A1B89C-DFC3-4A47-A8D8-2177625EDB78@gmail.com>
Message-ID: <FC0EC1A1-3E68-4078-BB98-008B93240180@comcast.net>

Max,
Thanks for this info. Let us know when the other episodes will be playing.
Patricia

Sent from my iPhone

> On Nov 7, 2020, at 5:18 AM, Max Smith via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Join ACB on November 9th at 12pm EDT on YouTube Live as we recognize National Diabetes Awareness Month. This live event will be the first part of a ten-part series, Diabetes: Where We Are and Where We?re Going. Diabetes has rapidly become one of the leading causes of blindness in the United States. Learn about the challenges to health management and opportunities on the horizon as several members of ACB?s Diabetics in Action affiliate share their stories and discuss what barriers stand in the way of independence. To access the live video, visit: https://youtu.be/U2QSRTZsqyg.  
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From maxs71055 at gmail.com  Mon Nov  9 06:31:04 2020
From: maxs71055 at gmail.com (Max Smith)
Date: Sun, 8 Nov 2020 22:31:04 -0800
Subject: [Diabetes-Talk] Finding Opportunity and Equal Access for
 Americans Who Are Blind with Diabetes
In-Reply-To: <FC0EC1A1-3E68-4078-BB98-008B93240180@comcast.net>
References: <FC0EC1A1-3E68-4078-BB98-008B93240180@comcast.net>
Message-ID: <7B1781EB-3CDD-4188-8D6F-127491E96D9C@gmail.com>

It?s a live event. I hope we get to use the chat feature and ask questions 
I know this is an NFB mailing list but the ACB does a lot of great things when it comes to Diabetes. People should check them out.

> On Nov 8, 2020, at 8:53 PM, Patricia Maddix <pmaddix at comcast.net> wrote:
> 
> ?Max,
> Thanks for this info. Let us know when the other episodes will be playing.
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 7, 2020, at 5:18 AM, Max Smith via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Join ACB on November 9th at 12pm EDT on YouTube Live as we recognize National Diabetes Awareness Month. This live event will be the first part of a ten-part series, Diabetes: Where We Are and Where We?re Going. Diabetes has rapidly become one of the leading causes of blindness in the United States. Learn about the challenges to health management and opportunities on the horizon as several members of ACB?s Diabetics in Action affiliate share their stories and discuss what barriers stand in the way of independence. To access the live video, visit: https://youtu.be/U2QSRTZsqyg.  
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 


From jamielgurganus at gmail.com  Mon Nov  9 17:21:43 2020
From: jamielgurganus at gmail.com (jamielgurganus at gmail.com)
Date: Mon, 9 Nov 2020 11:21:43 -0600
Subject: [Diabetes-Talk] V-go insulin system
Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>

Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
the V-go system, and she showed it to me.  Here is the scoop on why it might
not work for many of us pump users.  

 

1.	The basal rate can only be set at 20, 30 or 40 units per day.  So,
for someone like me who only uses 13 units each day, it would be an insulin
overload all day for me.
2.	The basal rate is steady all day.    So, at 20 units total per day,
the basal rate per hour is .8.  The only time my rate is that high is for a
few hours in the middle of the night.
3.	The bolus dose is set at 2 unit increments, so taking a half unit or
just one unit is not possible.

 

Anyway, it is pretty neat for someone who might need a lot more insulin than
I do.

 

My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
quit on me by then.  So, my educator hopes that either Tandem or Omnipod
come out with something accessible for us blind users by then.  She said
that they are both working on accessible phone apps that will have the
ability to run the pump from the phone.  She also mentioned that there is a
person from Boston named DeMayo who is working on a pump.  She does not
think it will ever get on the market though.  It is a dual cartridge system
that has both insulin and glucagon in it.  I sure don't want to have to pay
for glucagon.  I refuse to fill a glucagon prescription, since it is
anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
never had to use my glucagon kit.

 

Hope everyone is staying safe and well!  

 

 
Jamie

 


From bkpollpeter at gmail.com  Mon Nov  9 17:46:33 2020
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 9 Nov 2020 11:46:33 -0600
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
References: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>

Jamie,

Thanks for the intel. This is very helpful. Like you, I have rather low
insulin needs. So, this system would not work for me either. When I moved to
Iowa, I made the decision to go off the InPen. I have no support here to
assist with pump needs when I need it. It made sense for me to transition
off. However, I want to be back on a pump. I'm using Levemir for my long
acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
it to be any different than a traditional insulin pen. I do like that I can
confirm delivered doses via its app, but other than that, it does nothing
else useful in my opinion. It does not even provide info about how much
insulin is left in the pen, which would be helpful. I confirmed with InPen
that it does not provide this info. It's supposed to pair with Dexcom, but
it does not provide real time info. I have to manually plug doeses, carbs,
etc. for it to calculate. And I hate logging on 2 separate apps, so I
stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
have not been too bad since transitioning, but I definitely have better,
tighter control with a pump. I really hope accessibility is being considered
with these apps; I would switch back to a pump in a heart beat if I had more
independent control with a pump. I know DAN and the NFB were supposed to
revive efforts on this again, but have not heard anything substantive beyond
it putting yet another committee together.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
Gurganus via Diabetes-Talk
Sent: Monday, November 9, 2020 11:22 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: jamielgurganus at gmail.com
Subject: [Diabetes-Talk] V-go insulin system

Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
the V-go system, and she showed it to me.  Here is the scoop on why it might
not work for many of us pump users.  

 

1.	The basal rate can only be set at 20, 30 or 40 units per day.  So,
for someone like me who only uses 13 units each day, it would be an insulin
overload all day for me.
2.	The basal rate is steady all day.    So, at 20 units total per day,
the basal rate per hour is .8.  The only time my rate is that high is for a
few hours in the middle of the night.
3.	The bolus dose is set at 2 unit increments, so taking a half unit or
just one unit is not possible.

 

Anyway, it is pretty neat for someone who might need a lot more insulin than
I do.

 

My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
quit on me by then.  So, my educator hopes that either Tandem or Omnipod
come out with something accessible for us blind users by then.  She said
that they are both working on accessible phone apps that will have the
ability to run the pump from the phone.  She also mentioned that there is a
person from Boston named DeMayo who is working on a pump.  She does not
think it will ever get on the market though.  It is a dual cartridge system
that has both insulin and glucagon in it.  I sure don't want to have to pay
for glucagon.  I refuse to fill a glucagon prescription, since it is
anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
never had to use my glucagon kit.

 

Hope everyone is staying safe and well!  

 

 
Jamie

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
il.com



From pmaddix at comcast.net  Mon Nov  9 19:24:54 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Mon, 9 Nov 2020 11:24:54 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
References: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C@comcast.net>

Bridget,
The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
Patricia

Sent from my iPhone

> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather low
> insulin needs. So, this system would not work for me either. When I moved to
> Iowa, I made the decision to go off the InPen. I have no support here to
> assist with pump needs when I need it. It made sense for me to transition
> off. However, I want to be back on a pump. I'm using Levemir for my long
> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> it to be any different than a traditional insulin pen. I do like that I can
> confirm delivered doses via its app, but other than that, it does nothing
> else useful in my opinion. It does not even provide info about how much
> insulin is left in the pen, which would be helpful. I confirmed with InPen
> that it does not provide this info. It's supposed to pair with Dexcom, but
> it does not provide real time info. I have to manually plug doeses, carbs,
> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> have not been too bad since transitioning, but I definitely have better,
> tighter control with a pump. I really hope accessibility is being considered
> with these apps; I would switch back to a pump in a heart beat if I had more
> independent control with a pump. I know DAN and the NFB were supposed to
> revive efforts on this again, but have not heard anything substantive beyond
> it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From kutash-jm at comcast.net  Mon Nov  9 20:26:02 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Mon, 9 Nov 2020 15:26:02 -0500
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C@comcast.net>
References: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
 <EC2B73EB-7363-4058-8EC3-93137CF9BE2C@comcast.net>
Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>

Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 

Those are my questions, Patricia, and I do look forward to your answers.

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 2:25 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Bridget,
The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
Patricia

Sent from my iPhone

> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather low
> insulin needs. So, this system would not work for me either. When I moved to
> Iowa, I made the decision to go off the InPen. I have no support here to
> assist with pump needs when I need it. It made sense for me to transition
> off. However, I want to be back on a pump. I'm using Levemir for my long
> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> it to be any different than a traditional insulin pen. I do like that I can
> confirm delivered doses via its app, but other than that, it does nothing
> else useful in my opinion. It does not even provide info about how much
> insulin is left in the pen, which would be helpful. I confirmed with InPen
> that it does not provide this info. It's supposed to pair with Dexcom, but
> it does not provide real time info. I have to manually plug doeses, carbs,
> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> have not been too bad since transitioning, but I definitely have better,
> tighter control with a pump. I really hope accessibility is being considered
> with these apps; I would switch back to a pump in a heart beat if I had more
> independent control with a pump. I know DAN and the NFB were supposed to
> revive efforts on this again, but have not heard anything substantive beyond
> it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net



From gmelconian619 at gmail.com  Mon Nov  9 20:41:55 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Mon, 9 Nov 2020 12:41:55 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
References: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
 <EC2B73EB-7363-4058-8EC3-93137CF9BE2C@comcast.net>
 <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>

I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Monday, November 9, 2020 12:26 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] V-go insulin system

Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 

Those are my questions, Patricia, and I do look forward to your answers.

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 2:25 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Bridget,
The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
Patricia

Sent from my iPhone

> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather 
> low insulin needs. So, this system would not work for me either. When 
> I moved to Iowa, I made the decision to go off the InPen. I have no 
> support here to assist with pump needs when I need it. It made sense 
> for me to transition off. However, I want to be back on a pump. I'm 
> using Levemir for my long acting, and Humalog in the InPen. First, 
> InPen is a novelty. I've not found it to be any different than a 
> traditional insulin pen. I do like that I can confirm delivered doses 
> via its app, but other than that, it does nothing else useful in my 
> opinion. It does not even provide info about how much insulin is left 
> in the pen, which would be helpful. I confirmed with InPen that it 
> does not provide this info. It's supposed to pair with Dexcom, but it 
> does not provide real time info. I have to manually plug doeses, 
> carbs, etc. for it to calculate. And I hate logging on 2 separate 
> apps, so I stopped logging on InPen, and just stick to logging info on 
> Dexcom. My BGs have not been too bad since transitioning, but I 
> definitely have better, tighter control with a pump. I really hope 
> accessibility is being considered with these apps; I would switch back 
> to a pump in a heart beat if I had more independent control with a 
> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Jamie Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
> about the V-go system, and she showed it to me.  Here is the scoop on 
> why it might not work for many of us pump users.
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an 
> insulin overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is 
> for a few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more 
> insulin than I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
> will quit on me by then.  So, my educator hopes that either Tandem or 
> Omnipod come out with something accessible for us blind users by then.  
> She said that they are both working on accessible phone apps that will 
> have the ability to run the pump from the phone.  She also mentioned 
> that there is a person from Boston named DeMayo who is working on a 
> pump.  She does not think it will ever get on the market though.  It 
> is a dual cartridge system that has both insulin and glucagon in it.  
> I sure don't want to have to pay for glucagon.  I refuse to fill a 
> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
> my 50 years of being a diabetic, I have never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
> %40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> omcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com



From pmaddix at comcast.net  Mon Nov  9 21:01:36 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Mon, 9 Nov 2020 13:01:36 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
References: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD@comcast.net>

Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.

SDubnow at nfb.org
That?s what I know so far.
Patricia



Sent from my iPhone

> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> ?Jamie,
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> Bridgit
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> Hope everyone is staying safe and well!  
>> Jamie
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From veronica at laurelcreekmusic.com  Mon Nov  9 23:19:26 2020
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 9 Nov 2020 15:19:26 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <AF5A4890-8E70-4EED-A791-D415C2F406AD@comcast.net>
References: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
 <AF5A4890-8E70-4EED-A791-D415C2F406AD@comcast.net>
Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>

The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 1:02 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.

SDubnow at nfb.org
That?s what I know so far.
Patricia



Sent from my iPhone

> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> ?Jamie,
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> Bridgit
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> Hope everyone is staying safe and well!  
>> Jamie
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com



From gmelconian619 at gmail.com  Mon Nov  9 23:28:39 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Mon, 9 Nov 2020 15:28:39 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
References: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
 <AF5A4890-8E70-4EED-A791-D415C2F406AD@comcast.net>
 <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>

Thanks veronica for all that.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, November 9, 2020 3:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] V-go insulin system

The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 1:02 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.

SDubnow at nfb.org
That?s what I know so far.
Patricia



Sent from my iPhone

> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> ?Jamie,
>> Thanks for the intel. This is very helpful. Like you, I have rather 
>> low insulin needs. So, this system would not work for me either. When 
>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>> support here to assist with pump needs when I need it. It made sense 
>> for me to transition off. However, I want to be back on a pump. I'm 
>> using Levemir for my long acting, and Humalog in the InPen. First, 
>> InPen is a novelty. I've not found it to be any different than a 
>> traditional insulin pen. I do like that I can confirm delivered doses 
>> via its app, but other than that, it does nothing else useful in my 
>> opinion. It does not even provide info about how much insulin is left 
>> in the pen, which would be helpful. I confirmed with InPen that it 
>> does not provide this info. It's supposed to pair with Dexcom, but it 
>> does not provide real time info. I have to manually plug doeses, 
>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>> apps, so I stopped logging on InPen, and just stick to logging info 
>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>> definitely have better, tighter control with a pump. I really hope 
>> accessibility is being considered with these apps; I would switch 
>> back to a pump in a heart beat if I had more independent control with 
>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>> Bridgit
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>> and she showed it to me.  Here is the scoop on why it might not work 
>> for many of us pump users.
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an 
>> insulin overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is 
>> for a few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> Anyway, it is pretty neat for someone who might need a lot more 
>> insulin than I do.
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>> it will quit on me by then.  So, my educator hopes that either Tandem 
>> or Omnipod come out with something accessible for us blind users by 
>> then.  She said that they are both working on accessible phone apps 
>> that will have the ability to run the pump from the phone.  She also 
>> mentioned that there is a person from Boston named DeMayo who is 
>> working on a pump.  She does not think it will ever get on the market 
>> though.  It is a dual cartridge system that has both insulin and 
>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>> refuse to fill a glucagon prescription, since it is anywhere from 
>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>> Hope everyone is staying safe and well!  
>> Jamie
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>> r%40gma
>> il.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>> comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> omcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com



From pmaddix at comcast.net  Tue Nov 10 00:06:37 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Mon, 9 Nov 2020 16:06:37 -0800
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
References: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4@comcast.net>

Yes thanks Veronica for that background information I did not know the history.
Patricia

Sent from my iPhone

> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Thanks veronica for all that.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, November 9, 2020 3:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch 
>>> back to a pump in a heart beat if I had more independent control with 
>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>> and she showed it to me.  Here is the scoop on why it might not work 
>>> for many of us pump users.
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>> or Omnipod come out with something accessible for us blind users by 
>>> then.  She said that they are both working on accessible phone apps 
>>> that will have the ability to run the pump from the phone.  She also 
>>> mentioned that there is a person from Boston named DeMayo who is 
>>> working on a pump.  She does not think it will ever get on the market 
>>> though.  It is a dual cartridge system that has both insulin and 
>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>> r%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net



From bkpollpeter at gmail.com  Tue Nov 10 00:32:53 2020
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 9 Nov 2020 18:32:53 -0600
Subject: [Diabetes-Talk] V-go insulin system
In-Reply-To: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
References: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
 <AF5A4890-8E70-4EED-A791-D415C2F406AD@comcast.net>
 <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>

Yep...

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, November 9, 2020 5:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] V-go insulin system

The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
Sent: Monday, November 09, 2020 1:02 PM
To: Diabetes Talk for the Blind
Cc: Patricia Maddix
Subject: Re: [Diabetes-Talk] V-go insulin system

Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.

SDubnow at nfb.org
That?s what I know so far.
Patricia



Sent from my iPhone

> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> ?Jamie,
>> Thanks for the intel. This is very helpful. Like you, I have rather 
>> low insulin needs. So, this system would not work for me either. When 
>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>> support here to assist with pump needs when I need it. It made sense 
>> for me to transition off. However, I want to be back on a pump. I'm 
>> using Levemir for my long acting, and Humalog in the InPen. First, 
>> InPen is a novelty. I've not found it to be any different than a 
>> traditional insulin pen. I do like that I can confirm delivered doses 
>> via its app, but other than that, it does nothing else useful in my 
>> opinion. It does not even provide info about how much insulin is left 
>> in the pen, which would be helpful. I confirmed with InPen that it 
>> does not provide this info. It's supposed to pair with Dexcom, but it 
>> does not provide real time info. I have to manually plug doeses, 
>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>> apps, so I stopped logging on InPen, and just stick to logging info 
>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>> definitely have better, tighter control with a pump. I really hope 
>> accessibility is being considered with these apps; I would switch 
>> back to a pump in a heart beat if I had more independent control with 
>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>> Bridgit
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>> and she showed it to me.  Here is the scoop on why it might not work 
>> for many of us pump users.
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an 
>> insulin overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is 
>> for a few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> Anyway, it is pretty neat for someone who might need a lot more 
>> insulin than I do.
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>> it will quit on me by then.  So, my educator hopes that either Tandem 
>> or Omnipod come out with something accessible for us blind users by 
>> then.  She said that they are both working on accessible phone apps 
>> that will have the ability to run the pump from the phone.  She also 
>> mentioned that there is a person from Boston named DeMayo who is 
>> working on a pump.  She does not think it will ever get on the market 
>> though.  It is a dual cartridge system that has both insulin and 
>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>> refuse to fill a glucagon prescription, since it is anywhere from 
>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>> Hope everyone is staying safe and well!  
>> Jamie
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>> r%40gma
>> il.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>> comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> omcast.net


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com



From hwmhein at gmail.com  Tue Nov 10 13:13:07 2020
From: hwmhein at gmail.com (Hope Hein)
Date: Tue, 10 Nov 2020 08:13:07 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <mailman.94.1605009602.509.diabetes-talk_nfbnet.org@nfbnet.org>
References: <mailman.94.1605009602.509.diabetes-talk_nfbnet.org@nfbnet.org>
Message-ID: <AEDD9AAD-2BEB-47CB-AE1C-288935653426@gmail.com>

Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.

Hope Hein

> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. V-go insulin system (jamielgurganus at gmail.com)
>   2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>   3. Re: V-go insulin system (Patricia Maddix)
>   4. Re: V-go insulin system (Jeanette Kutash)
>   5. Re: V-go insulin system (gary-melconian)
>   6. Re: V-go insulin system (Patricia Maddix)
>   7. Re: V-go insulin system (Veronica Elsea)
>   8. Re: V-go insulin system (gary-melconian)
>   9. Re: V-go insulin system (Patricia Maddix)
>  10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Mon, 9 Nov 2020 11:21:43 -0600
> From: <jamielgurganus at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] V-go insulin system
> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Mon, 9 Nov 2020 11:46:33 -0600
> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather low
> insulin needs. So, this system would not work for me either. When I moved to
> Iowa, I made the decision to go off the InPen. I have no support here to
> assist with pump needs when I need it. It made sense for me to transition
> off. However, I want to be back on a pump. I'm using Levemir for my long
> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> it to be any different than a traditional insulin pen. I do like that I can
> confirm delivered doses via its app, but other than that, it does nothing
> else useful in my opinion. It does not even provide info about how much
> insulin is left in the pen, which would be helpful. I confirmed with InPen
> that it does not provide this info. It's supposed to pair with Dexcom, but
> it does not provide real time info. I have to manually plug doeses, carbs,
> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> have not been too bad since transitioning, but I definitely have better,
> tighter control with a pump. I really hope accessibility is being considered
> with these apps; I would switch back to a pump in a heart beat if I had more
> independent control with a pump. I know DAN and the NFB were supposed to
> revive efforts on this again, but have not heard anything substantive beyond
> it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Mon, 9 Nov 2020 11:24:54 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 4
> Date: Mon, 9 Nov 2020 15:26:02 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
> Content-Type: text/plain;    charset="UTF-8"
> 
> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 5
> Date: Mon, 9 Nov 2020 12:41:55 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> Sent: Monday, November 9, 2020 12:26 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather 
>> low insulin needs. So, this system would not work for me either. When 
>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>> support here to assist with pump needs when I need it. It made sense 
>> for me to transition off. However, I want to be back on a pump. I'm 
>> using Levemir for my long acting, and Humalog in the InPen. First, 
>> InPen is a novelty. I've not found it to be any different than a 
>> traditional insulin pen. I do like that I can confirm delivered doses 
>> via its app, but other than that, it does nothing else useful in my 
>> opinion. It does not even provide info about how much insulin is left 
>> in the pen, which would be helpful. I confirmed with InPen that it 
>> does not provide this info. It's supposed to pair with Dexcom, but it 
>> does not provide real time info. I have to manually plug doeses, 
>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>> apps, so I stopped logging on InPen, and just stick to logging info on 
>> Dexcom. My BGs have not been too bad since transitioning, but I 
>> definitely have better, tighter control with a pump. I really hope 
>> accessibility is being considered with these apps; I would switch back 
>> to a pump in a heart beat if I had more independent control with a 
>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>> about the V-go system, and she showed it to me.  Here is the scoop on 
>> why it might not work for many of us pump users.
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an 
>> insulin overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is 
>> for a few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more 
>> insulin than I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>> will quit on me by then.  So, my educator hopes that either Tandem or 
>> Omnipod come out with something accessible for us blind users by then.  
>> She said that they are both working on accessible phone apps that will 
>> have the ability to run the pump from the phone.  She also mentioned 
>> that there is a person from Boston named DeMayo who is working on a 
>> pump.  She does not think it will ever get on the market though.  It 
>> is a dual cartridge system that has both insulin and glucagon in it.  
>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>> %40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 6
> Date: Mon, 9 Nov 2020 13:01:36 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 7
> Date: Mon, 9 Nov 2020 15:19:26 -0800
> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 8
> Date: Mon, 9 Nov 2020 15:28:39 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Thanks veronica for all that.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, November 9, 2020 3:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch 
>>> back to a pump in a heart beat if I had more independent control with 
>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>> and she showed it to me.  Here is the scoop on why it might not work 
>>> for many of us pump users.
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>> or Omnipod come out with something accessible for us blind users by 
>>> then.  She said that they are both working on accessible phone apps 
>>> that will have the ability to run the pump from the phone.  She also 
>>> mentioned that there is a person from Boston named DeMayo who is 
>>> working on a pump.  She does not think it will ever get on the market 
>>> though.  It is a dual cartridge system that has both insulin and 
>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>> r%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 9
> Date: Mon, 9 Nov 2020 16:06:37 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Yes thanks Veronica for that background information I did not know the history.
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 10
> Date: Mon, 9 Nov 2020 18:32:53 -0600
> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Yep...
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, November 9, 2020 5:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch 
>>> back to a pump in a heart beat if I had more independent control with 
>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>> and she showed it to me.  Here is the scoop on why it might not work 
>>> for many of us pump users.
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>> or Omnipod come out with something accessible for us blind users by 
>>> then.  She said that they are both working on accessible phone apps 
>>> that will have the ability to run the pump from the phone.  She also 
>>> mentioned that there is a person from Boston named DeMayo who is 
>>> working on a pump.  She does not think it will ever get on the market 
>>> though.  It is a dual cartridge system that has both insulin and 
>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>> r%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 9
> *********************************************


From mota1252 at gmail.com  Tue Nov 10 13:39:26 2020
From: mota1252 at gmail.com (Milton)
Date: Tue, 10 Nov 2020 07:39:26 -0600
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <AEDD9AAD-2BEB-47CB-AE1C-288935653426@gmail.com>
References: <mailman.94.1605009602.509.diabetes-talk_nfbnet.org@nfbnet.org>
 <AEDD9AAD-2BEB-47CB-AE1C-288935653426@gmail.com>
Message-ID: <003f01d6b766$e8e55860$bab00920$@gmail.com>

Hi,

You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
Sent: Tuesday, November 10, 2020 7:13 AM
To: diabetes-talk at nfbnet.org
Cc: Hope Hein <hwmhein at gmail.com>
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.

Hope Hein

> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. V-go insulin system (jamielgurganus at gmail.com)
>   2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>   3. Re: V-go insulin system (Patricia Maddix)
>   4. Re: V-go insulin system (Jeanette Kutash)
>   5. Re: V-go insulin system (gary-melconian)
>   6. Re: V-go insulin system (Patricia Maddix)
>   7. Re: V-go insulin system (Veronica Elsea)
>   8. Re: V-go insulin system (gary-melconian)
>   9. Re: V-go insulin system (Patricia Maddix)
>  10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Mon, 9 Nov 2020 11:21:43 -0600
> From: <jamielgurganus at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] V-go insulin system
> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Mon, 9 Nov 2020 11:46:33 -0600
> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Jamie,
> 
> Thanks for the intel. This is very helpful. Like you, I have rather low
> insulin needs. So, this system would not work for me either. When I moved to
> Iowa, I made the decision to go off the InPen. I have no support here to
> assist with pump needs when I need it. It made sense for me to transition
> off. However, I want to be back on a pump. I'm using Levemir for my long
> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> it to be any different than a traditional insulin pen. I do like that I can
> confirm delivered doses via its app, but other than that, it does nothing
> else useful in my opinion. It does not even provide info about how much
> insulin is left in the pen, which would be helpful. I confirmed with InPen
> that it does not provide this info. It's supposed to pair with Dexcom, but
> it does not provide real time info. I have to manually plug doeses, carbs,
> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> have not been too bad since transitioning, but I definitely have better,
> tighter control with a pump. I really hope accessibility is being considered
> with these apps; I would switch back to a pump in a heart beat if I had more
> independent control with a pump. I know DAN and the NFB were supposed to
> revive efforts on this again, but have not heard anything substantive beyond
> it putting yet another committee together.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> Gurganus via Diabetes-Talk
> Sent: Monday, November 9, 2020 11:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: jamielgurganus at gmail.com
> Subject: [Diabetes-Talk] V-go insulin system
> 
> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> the V-go system, and she showed it to me.  Here is the scoop on why it might
> not work for many of us pump users.  
> 
> 
> 
> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> for someone like me who only uses 13 units each day, it would be an insulin
> overload all day for me.
> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> the basal rate per hour is .8.  The only time my rate is that high is for a
> few hours in the middle of the night.
> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> just one unit is not possible.
> 
> 
> 
> Anyway, it is pretty neat for someone who might need a lot more insulin than
> I do.
> 
> 
> 
> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> come out with something accessible for us blind users by then.  She said
> that they are both working on accessible phone apps that will have the
> ability to run the pump from the phone.  She also mentioned that there is a
> person from Boston named DeMayo who is working on a pump.  She does not
> think it will ever get on the market though.  It is a dual cartridge system
> that has both insulin and glucagon in it.  I sure don't want to have to pay
> for glucagon.  I refuse to fill a glucagon prescription, since it is
> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> never had to use my glucagon kit.
> 
> 
> 
> Hope everyone is staying safe and well!  
> 
> 
> 
> 
> Jamie
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Mon, 9 Nov 2020 11:24:54 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 4
> Date: Mon, 9 Nov 2020 15:26:02 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
> Content-Type: text/plain;    charset="UTF-8"
> 
> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 5
> Date: Mon, 9 Nov 2020 12:41:55 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> Sent: Monday, November 9, 2020 12:26 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
> 
> Those are my questions, Patricia, and I do look forward to your answers.
> 
> Jeanette 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 2:25 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Bridget,
> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather 
>> low insulin needs. So, this system would not work for me either. When 
>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>> support here to assist with pump needs when I need it. It made sense 
>> for me to transition off. However, I want to be back on a pump. I'm 
>> using Levemir for my long acting, and Humalog in the InPen. First, 
>> InPen is a novelty. I've not found it to be any different than a 
>> traditional insulin pen. I do like that I can confirm delivered doses 
>> via its app, but other than that, it does nothing else useful in my 
>> opinion. It does not even provide info about how much insulin is left 
>> in the pen, which would be helpful. I confirmed with InPen that it 
>> does not provide this info. It's supposed to pair with Dexcom, but it 
>> does not provide real time info. I have to manually plug doeses, 
>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>> apps, so I stopped logging on InPen, and just stick to logging info on 
>> Dexcom. My BGs have not been too bad since transitioning, but I 
>> definitely have better, tighter control with a pump. I really hope 
>> accessibility is being considered with these apps; I would switch back 
>> to a pump in a heart beat if I had more independent control with a 
>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Jamie Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>> about the V-go system, and she showed it to me.  Here is the scoop on 
>> why it might not work for many of us pump users.
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an 
>> insulin overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is 
>> for a few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more 
>> insulin than I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>> will quit on me by then.  So, my educator hopes that either Tandem or 
>> Omnipod come out with something accessible for us blind users by then.  
>> She said that they are both working on accessible phone apps that will 
>> have the ability to run the pump from the phone.  She also mentioned 
>> that there is a person from Boston named DeMayo who is working on a 
>> pump.  She does not think it will ever get on the market though.  It 
>> is a dual cartridge system that has both insulin and glucagon in it.  
>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>> %40gma
>> il.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 6
> Date: Mon, 9 Nov 2020 13:01:36 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 7
> Date: Mon, 9 Nov 2020 15:19:26 -0800
> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 8
> Date: Mon, 9 Nov 2020 15:28:39 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Thanks veronica for all that.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, November 9, 2020 3:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch 
>>> back to a pump in a heart beat if I had more independent control with 
>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>> and she showed it to me.  Here is the scoop on why it might not work 
>>> for many of us pump users.
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>> or Omnipod come out with something accessible for us blind users by 
>>> then.  She said that they are both working on accessible phone apps 
>>> that will have the ability to run the pump from the phone.  She also 
>>> mentioned that there is a person from Boston named DeMayo who is 
>>> working on a pump.  She does not think it will ever get on the market 
>>> though.  It is a dual cartridge system that has both insulin and 
>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>> r%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Message: 9
> Date: Mon, 9 Nov 2020 16:06:37 -0800
> From: Patricia Maddix <pmaddix at comcast.net>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
> Content-Type: text/plain; charset=utf-8
> 
> Yes thanks Veronica for that background information I did not know the history.
> Patricia
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 10
> Date: Mon, 9 Nov 2020 18:32:53 -0600
> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
> Content-Type: text/plain;    charset="utf-8"
> 
> Yep...
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, November 9, 2020 5:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> Sent: Monday, November 09, 2020 1:02 PM
> To: Diabetes Talk for the Blind
> Cc: Patricia Maddix
> Subject: Re: [Diabetes-Talk] V-go insulin system
> 
> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> 
> SDubnow at nfb.org
> That?s what I know so far.
> Patricia
> 
> 
> 
> Sent from my iPhone
> 
>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> ?Jamie,
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch 
>>> back to a pump in a heart beat if I had more independent control with 
>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>> and she showed it to me.  Here is the scoop on why it might not work 
>>> for many of us pump users.
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>> or Omnipod come out with something accessible for us blind users by 
>>> then.  She said that they are both working on accessible phone apps 
>>> that will have the ability to run the pump from the phone.  She also 
>>> mentioned that there is a person from Boston named DeMayo who is 
>>> working on a pump.  She does not think it will ever get on the market 
>>> though.  It is a dual cartridge system that has both insulin and 
>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> Hope everyone is staying safe and well!  
>>> Jamie
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>> r%40gma
>>> il.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>> comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>> omcast.net
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> 
> 
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 9
> *********************************************

_______________________________________________
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From hwmhein at gmail.com  Tue Nov 10 13:59:31 2020
From: hwmhein at gmail.com (Hope Hein)
Date: Tue, 10 Nov 2020 08:59:31 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <003f01d6b766$e8e55860$bab00920$@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
Message-ID: <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>

Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegitables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?

Hope Hein

> On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> 
> ?Hi,
> 
> You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 7:13 AM
> To: diabetes-talk at nfbnet.org
> Cc: Hope Hein <hwmhein at gmail.com>
> Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> 
> Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> 
> Hope Hein
> 
>> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
>> 
>> ?Send Diabetes-Talk mailing list submissions to
>>   diabetes-talk at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>   diabetes-talk-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>   diabetes-talk-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-Talk digest..."
>> 
>> 
>> Today's Topics:
>> 
>>  1. V-go insulin system (jamielgurganus at gmail.com)
>>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>>  3. Re: V-go insulin system (Patricia Maddix)
>>  4. Re: V-go insulin system (Jeanette Kutash)
>>  5. Re: V-go insulin system (gary-melconian)
>>  6. Re: V-go insulin system (Patricia Maddix)
>>  7. Re: V-go insulin system (Veronica Elsea)
>>  8. Re: V-go insulin system (gary-melconian)
>>  9. Re: V-go insulin system (Patricia Maddix)
>> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Mon, 9 Nov 2020 11:21:43 -0600
>> From: <jamielgurganus at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: [Diabetes-Talk] V-go insulin system
>> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
>> Content-Type: text/plain;    charset="us-ascii"
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Mon, 9 Nov 2020 11:46:33 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
>> Content-Type: text/plain;    charset="US-ASCII"
>> 
>> Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Mon, 9 Nov 2020 11:24:54 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Mon, 9 Nov 2020 15:26:02 -0500
>> From: "Jeanette Kutash" <kutash-jm at comcast.net>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
>> Content-Type: text/plain;    charset="UTF-8"
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Mon, 9 Nov 2020 12:41:55 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
>> Sent: Monday, November 9, 2020 12:26 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Jeanette Kutash <kutash-jm at comcast.net>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info on 
>>> Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch back 
>>> to a pump in a heart beat if I had more independent control with a 
>>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>>> about the V-go system, and she showed it to me.  Here is the scoop on 
>>> why it might not work for many of us pump users.
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>>> will quit on me by then.  So, my educator hopes that either Tandem or 
>>> Omnipod come out with something accessible for us blind users by then.  
>>> She said that they are both working on accessible phone apps that will 
>>> have the ability to run the pump from the phone.  She also mentioned 
>>> that there is a person from Boston named DeMayo who is working on a 
>>> pump.  She does not think it will ever get on the market though.  It 
>>> is a dual cartridge system that has both insulin and glucagon in it.  
>>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>>> %40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Mon, 9 Nov 2020 13:01:36 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Mon, 9 Nov 2020 15:19:26 -0800
>> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Mon, 9 Nov 2020 15:28:39 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Mon, 9 Nov 2020 16:06:37 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Yes thanks Veronica for that background information I did not know the history.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Thanks veronica for all that.  
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 3:19 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 1:02 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>>> 
>>> SDubnow at nfb.org
>>> That?s what I know so far.
>>> Patricia
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>>> 
>>>> Those are my questions, Patricia, and I do look forward to your answers.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Monday, November 09, 2020 2:25 PM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>>> 
>>>> Bridget,
>>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> ?Jamie,
>>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>>> low insulin needs. So, this system would not work for me either. When 
>>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>>> support here to assist with pump needs when I need it. It made sense 
>>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>>> InPen is a novelty. I've not found it to be any different than a 
>>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>>> via its app, but other than that, it does nothing else useful in my 
>>>>> opinion. It does not even provide info about how much insulin is left 
>>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>>> does not provide real time info. I have to manually plug doeses, 
>>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>>> definitely have better, tighter control with a pump. I really hope 
>>>>> accessibility is being considered with these apps; I would switch 
>>>>> back to a pump in a heart beat if I had more independent control with 
>>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>>> Jamie Gurganus via Diabetes-Talk
>>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>>> Cc: jamielgurganus at gmail.com
>>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>>> for many of us pump users.
>>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>>> for someone like me who only uses 13 units each day, it would be an 
>>>>> insulin overload all day for me.
>>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>>> for a few hours in the middle of the night.
>>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>>> just one unit is not possible.
>>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>>> insulin than I do.
>>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>>> or Omnipod come out with something accessible for us blind users by 
>>>>> then.  She said that they are both working on accessible phone apps 
>>>>> that will have the ability to run the pump from the phone.  She also 
>>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>>> working on a pump.  She does not think it will ever get on the market 
>>>>> though.  It is a dual cartridge system that has both insulin and 
>>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>>> Hope everyone is staying safe and well!  
>>>>> Jamie
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>>> r%40gma
>>>>> il.com
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>>> comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>>> 0comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>>> omcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Mon, 9 Nov 2020 18:32:53 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Yep...
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 5:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of Diabetes-Talk Digest, Vol 156, Issue 9
>> *********************************************
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> 


From etscrivani at verizon.net  Tue Nov 10 15:05:53 2020
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 10 Nov 2020 10:05:53 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
Message-ID: <03DC80B92B6742BBB88156FE921D31D1@eileen>

Hi Hope,

Carbs are things like breads, cereals, rice, potatoes, pasta, beans, and yes fruits. You don?t have to totally eliminate the carbs, but learn how to make better choices and the quantities of any of these that you might want to eat at meal time.

For instance, I might typically have 30 grams of carbs at meal time, but I am also insulin dependent so I need to take an amount of insulin to cover the carbs I am eating. I strongly recommend that you ask your doctor about meeting with a certified diabetes educator & a nutritionist who can help you learn what and how much to eat. Fruit is healthy, but even there you need to watch how much of it you take in. A typical serving of fruit at a single meal is approx 15 grams.

You can have meat (protein) and veggies without a lot of worry since they are very low in carbs. Again meet with a nutritionist who is knowledgeable in diabetes.

Good luck.

Eileen

From: Hope Hein via Diabetes-Talk 
Sent: Tuesday, November 10, 2020 8:59 AM
To: mota1252 at gmail.com 
Cc: Hope Hein ; Diabetes Talk for the Blind 
Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegetables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?

Hope Hein

> On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> 
> ?Hi,
> 
> You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 7:13 AM
> To: diabetes-talk at nfbnet.org
> Cc: Hope Hein <hwmhein at gmail.com>
> Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> 
> Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> 
> Hope Hein
> 
>> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
>> 
>> ?Send Diabetes-Talk mailing list submissions to
>>   diabetes-talk at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>   diabetes-talk-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>   diabetes-talk-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-Talk digest..."
>> 
>> 
>> Today's Topics:
>> 
>>  1. V-go insulin system (jamielgurganus at gmail.com)
>>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>>  3. Re: V-go insulin system (Patricia Maddix)
>>  4. Re: V-go insulin system (Jeanette Kutash)
>>  5. Re: V-go insulin system (gary-melconian)
>>  6. Re: V-go insulin system (Patricia Maddix)
>>  7. Re: V-go insulin system (Veronica Elsea)
>>  8. Re: V-go insulin system (gary-melconian)
>>  9. Re: V-go insulin system (Patricia Maddix)
>> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Mon, 9 Nov 2020 11:21:43 -0600
>> From: <jamielgurganus at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: [Diabetes-Talk] V-go insulin system
>> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
>> Content-Type: text/plain;    charset="us-ascii"
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Mon, 9 Nov 2020 11:46:33 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
>> Content-Type: text/plain;    charset="US-ASCII"
>> 
>> Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Mon, 9 Nov 2020 11:24:54 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Mon, 9 Nov 2020 15:26:02 -0500
>> From: "Jeanette Kutash" <kutash-jm at comcast.net>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
>> Content-Type: text/plain;    charset="UTF-8"
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Mon, 9 Nov 2020 12:41:55 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
>> Sent: Monday, November 9, 2020 12:26 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Jeanette Kutash <kutash-jm at comcast.net>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info on 
>>> Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch back 
>>> to a pump in a heart beat if I had more independent control with a 
>>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>>> about the V-go system, and she showed it to me.  Here is the scoop on 
>>> why it might not work for many of us pump users.
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>>> will quit on me by then.  So, my educator hopes that either Tandem or 
>>> Omnipod come out with something accessible for us blind users by then.  
>>> She said that they are both working on accessible phone apps that will 
>>> have the ability to run the pump from the phone.  She also mentioned 
>>> that there is a person from Boston named DeMayo who is working on a 
>>> pump.  She does not think it will ever get on the market though.  It 
>>> is a dual cartridge system that has both insulin and glucagon in it.  
>>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>>> %40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Mon, 9 Nov 2020 13:01:36 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Mon, 9 Nov 2020 15:19:26 -0800
>> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Mon, 9 Nov 2020 15:28:39 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Mon, 9 Nov 2020 16:06:37 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Yes thanks Veronica for that background information I did not know the history.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Thanks veronica for all that.  
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 3:19 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 1:02 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>>> 
>>> SDubnow at nfb.org
>>> That?s what I know so far.
>>> Patricia
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>>> 
>>>> Those are my questions, Patricia, and I do look forward to your answers.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Monday, November 09, 2020 2:25 PM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>>> 
>>>> Bridget,
>>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> ?Jamie,
>>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>>> low insulin needs. So, this system would not work for me either. When 
>>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>>> support here to assist with pump needs when I need it. It made sense 
>>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>>> InPen is a novelty. I've not found it to be any different than a 
>>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>>> via its app, but other than that, it does nothing else useful in my 
>>>>> opinion. It does not even provide info about how much insulin is left 
>>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>>> does not provide real time info. I have to manually plug doeses, 
>>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>>> definitely have better, tighter control with a pump. I really hope 
>>>>> accessibility is being considered with these apps; I would switch 
>>>>> back to a pump in a heart beat if I had more independent control with 
>>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>>> Jamie Gurganus via Diabetes-Talk
>>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>>> Cc: jamielgurganus at gmail.com
>>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>>> for many of us pump users.
>>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>>> for someone like me who only uses 13 units each day, it would be an 
>>>>> insulin overload all day for me.
>>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>>> for a few hours in the middle of the night.
>>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>>> just one unit is not possible.
>>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>>> insulin than I do.
>>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>>> or Omnipod come out with something accessible for us blind users by 
>>>>> then.  She said that they are both working on accessible phone apps 
>>>>> that will have the ability to run the pump from the phone.  She also 
>>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>>> working on a pump.  She does not think it will ever get on the market 
>>>>> though.  It is a dual cartridge system that has both insulin and 
>>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>>> Hope everyone is staying safe and well!  
>>>>> Jamie
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>>> r%40gma
>>>>> il.com
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>>> comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>>> 0comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>>> omcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Mon, 9 Nov 2020 18:32:53 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Yep...
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 5:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of Diabetes-Talk Digest, Vol 156, Issue 9
>> *********************************************
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net

From jdashiel at panix.com  Tue Nov 10 15:22:33 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Tue, 10 Nov 2020 10:22:33 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
Message-ID: <alpine.NEB.2.23.451.2011101018450.5829@panix1.panix.com>

Each time you eat, 40% meat; 40% vegetables, 20% carbs.  Carbs are pasta
potatoes rice oatmeal barley millet cakes pies candy ice-cream, chocolate,
pancakes, french toast, bread of all varieties, cookies, waffles.



-- United States has 633 Billionaires with only 10 doing any annual
significant giving.



From kutash-jm at comcast.net  Tue Nov 10 15:26:36 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Tue, 10 Nov 2020 10:26:36 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
Message-ID: <001801d6b775$e24ad520$a6e07f60$@comcast.net>

Hope, I don't know how to advise you on pain but I do have a couple of thoughts. Ask about chair yoga; it helps with flexibility, you can stay seated and go at your own pace. Ask about learning to do sitting exercises for starters, as there are lots of options out there. Also, ask if there is someone who knows about gluten  free diets. I am not well-versed in this, but I do know there is information out there.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Hope Hein via Diabetes-Talk
Sent: Tuesday, November 10, 2020 9:00 AM
To: mota1252 at gmail.com
Cc: Hope Hein; Diabetes Talk for the Blind
Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegitables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?

Hope Hein

> On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> 
> ?Hi,
> 
> You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 7:13 AM
> To: diabetes-talk at nfbnet.org
> Cc: Hope Hein <hwmhein at gmail.com>
> Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> 
> Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> 
> Hope Hein
> 
>> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
>> 
>> ?Send Diabetes-Talk mailing list submissions to
>>   diabetes-talk at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>   diabetes-talk-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>   diabetes-talk-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-Talk digest..."
>> 
>> 
>> Today's Topics:
>> 
>>  1. V-go insulin system (jamielgurganus at gmail.com)
>>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>>  3. Re: V-go insulin system (Patricia Maddix)
>>  4. Re: V-go insulin system (Jeanette Kutash)
>>  5. Re: V-go insulin system (gary-melconian)
>>  6. Re: V-go insulin system (Patricia Maddix)
>>  7. Re: V-go insulin system (Veronica Elsea)
>>  8. Re: V-go insulin system (gary-melconian)
>>  9. Re: V-go insulin system (Patricia Maddix)
>> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Mon, 9 Nov 2020 11:21:43 -0600
>> From: <jamielgurganus at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: [Diabetes-Talk] V-go insulin system
>> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
>> Content-Type: text/plain;    charset="us-ascii"
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Mon, 9 Nov 2020 11:46:33 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
>> Content-Type: text/plain;    charset="US-ASCII"
>> 
>> Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Mon, 9 Nov 2020 11:24:54 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Mon, 9 Nov 2020 15:26:02 -0500
>> From: "Jeanette Kutash" <kutash-jm at comcast.net>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
>> Content-Type: text/plain;    charset="UTF-8"
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Mon, 9 Nov 2020 12:41:55 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
>> Sent: Monday, November 9, 2020 12:26 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Jeanette Kutash <kutash-jm at comcast.net>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info on 
>>> Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch back 
>>> to a pump in a heart beat if I had more independent control with a 
>>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>>> about the V-go system, and she showed it to me.  Here is the scoop on 
>>> why it might not work for many of us pump users.
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>>> will quit on me by then.  So, my educator hopes that either Tandem or 
>>> Omnipod come out with something accessible for us blind users by then.  
>>> She said that they are both working on accessible phone apps that will 
>>> have the ability to run the pump from the phone.  She also mentioned 
>>> that there is a person from Boston named DeMayo who is working on a 
>>> pump.  She does not think it will ever get on the market though.  It 
>>> is a dual cartridge system that has both insulin and glucagon in it.  
>>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>>> %40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Mon, 9 Nov 2020 13:01:36 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Mon, 9 Nov 2020 15:19:26 -0800
>> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Mon, 9 Nov 2020 15:28:39 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Mon, 9 Nov 2020 16:06:37 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Yes thanks Veronica for that background information I did not know the history.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Thanks veronica for all that.  
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 3:19 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 1:02 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>>> 
>>> SDubnow at nfb.org
>>> That?s what I know so far.
>>> Patricia
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>>> 
>>>> Those are my questions, Patricia, and I do look forward to your answers.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Monday, November 09, 2020 2:25 PM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>>> 
>>>> Bridget,
>>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> ?Jamie,
>>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>>> low insulin needs. So, this system would not work for me either. When 
>>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>>> support here to assist with pump needs when I need it. It made sense 
>>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>>> InPen is a novelty. I've not found it to be any different than a 
>>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>>> via its app, but other than that, it does nothing else useful in my 
>>>>> opinion. It does not even provide info about how much insulin is left 
>>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>>> does not provide real time info. I have to manually plug doeses, 
>>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>>> definitely have better, tighter control with a pump. I really hope 
>>>>> accessibility is being considered with these apps; I would switch 
>>>>> back to a pump in a heart beat if I had more independent control with 
>>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>>> Jamie Gurganus via Diabetes-Talk
>>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>>> Cc: jamielgurganus at gmail.com
>>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>>> for many of us pump users.
>>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>>> for someone like me who only uses 13 units each day, it would be an 
>>>>> insulin overload all day for me.
>>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>>> for a few hours in the middle of the night.
>>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>>> just one unit is not possible.
>>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>>> insulin than I do.
>>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>>> or Omnipod come out with something accessible for us blind users by 
>>>>> then.  She said that they are both working on accessible phone apps 
>>>>> that will have the ability to run the pump from the phone.  She also 
>>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>>> working on a pump.  She does not think it will ever get on the market 
>>>>> though.  It is a dual cartridge system that has both insulin and 
>>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>>> Hope everyone is staying safe and well!  
>>>>> Jamie
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>>> r%40gma
>>>>> il.com
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>>> comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>>> 0comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>>> omcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Mon, 9 Nov 2020 18:32:53 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Yep...
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 5:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of Diabetes-Talk Digest, Vol 156, Issue 9
>> *********************************************
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> 

_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net



From bkpollpeter at gmail.com  Tue Nov 10 16:35:36 2020
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 10 Nov 2020 10:35:36 -0600
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
Message-ID: <297401d6b77f$8545ebd0$8fd1c370$@gmail.com>

Fruits have carbs. Starchy veggies have carbs. Proteins do not have carbs. Carbs raise BGs and proteins stabilize BGs. Gluten free foods usually have just as much carbs as gluten foods. Working with a nurse educator is encouraged so you can learn all this and what works best for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
Sent: Tuesday, November 10, 2020 8:00 AM
To: mota1252 at gmail.com
Cc: Hope Hein <hwmhein at gmail.com>; Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegitables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?

Hope Hein

> On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> 
> ?Hi,
> 
> You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 7:13 AM
> To: diabetes-talk at nfbnet.org
> Cc: Hope Hein <hwmhein at gmail.com>
> Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> 
> Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> 
> Hope Hein
> 
>> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
>> 
>> ?Send Diabetes-Talk mailing list submissions to
>>   diabetes-talk at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>   diabetes-talk-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>   diabetes-talk-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-Talk digest..."
>> 
>> 
>> Today's Topics:
>> 
>>  1. V-go insulin system (jamielgurganus at gmail.com)
>>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>>  3. Re: V-go insulin system (Patricia Maddix)
>>  4. Re: V-go insulin system (Jeanette Kutash)
>>  5. Re: V-go insulin system (gary-melconian)
>>  6. Re: V-go insulin system (Patricia Maddix)
>>  7. Re: V-go insulin system (Veronica Elsea)
>>  8. Re: V-go insulin system (gary-melconian)
>>  9. Re: V-go insulin system (Patricia Maddix)
>> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Mon, 9 Nov 2020 11:21:43 -0600
>> From: <jamielgurganus at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: [Diabetes-Talk] V-go insulin system
>> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
>> Content-Type: text/plain;    charset="us-ascii"
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Mon, 9 Nov 2020 11:46:33 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
>> Content-Type: text/plain;    charset="US-ASCII"
>> 
>> Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Mon, 9 Nov 2020 11:24:54 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Mon, 9 Nov 2020 15:26:02 -0500
>> From: "Jeanette Kutash" <kutash-jm at comcast.net>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
>> Content-Type: text/plain;    charset="UTF-8"
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Mon, 9 Nov 2020 12:41:55 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
>> Sent: Monday, November 9, 2020 12:26 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Jeanette Kutash <kutash-jm at comcast.net>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info on 
>>> Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch back 
>>> to a pump in a heart beat if I had more independent control with a 
>>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>>> about the V-go system, and she showed it to me.  Here is the scoop on 
>>> why it might not work for many of us pump users.
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>>> will quit on me by then.  So, my educator hopes that either Tandem or 
>>> Omnipod come out with something accessible for us blind users by then.  
>>> She said that they are both working on accessible phone apps that will 
>>> have the ability to run the pump from the phone.  She also mentioned 
>>> that there is a person from Boston named DeMayo who is working on a 
>>> pump.  She does not think it will ever get on the market though.  It 
>>> is a dual cartridge system that has both insulin and glucagon in it.  
>>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>>> %40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Mon, 9 Nov 2020 13:01:36 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Mon, 9 Nov 2020 15:19:26 -0800
>> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Mon, 9 Nov 2020 15:28:39 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Mon, 9 Nov 2020 16:06:37 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Yes thanks Veronica for that background information I did not know the history.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Thanks veronica for all that.  
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 3:19 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 1:02 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>>> 
>>> SDubnow at nfb.org
>>> That?s what I know so far.
>>> Patricia
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>>> 
>>>> Those are my questions, Patricia, and I do look forward to your answers.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Monday, November 09, 2020 2:25 PM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>>> 
>>>> Bridget,
>>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> ?Jamie,
>>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>>> low insulin needs. So, this system would not work for me either. When 
>>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>>> support here to assist with pump needs when I need it. It made sense 
>>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>>> InPen is a novelty. I've not found it to be any different than a 
>>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>>> via its app, but other than that, it does nothing else useful in my 
>>>>> opinion. It does not even provide info about how much insulin is left 
>>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>>> does not provide real time info. I have to manually plug doeses, 
>>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>>> definitely have better, tighter control with a pump. I really hope 
>>>>> accessibility is being considered with these apps; I would switch 
>>>>> back to a pump in a heart beat if I had more independent control with 
>>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>>> Jamie Gurganus via Diabetes-Talk
>>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>>> Cc: jamielgurganus at gmail.com
>>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>>> for many of us pump users.
>>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>>> for someone like me who only uses 13 units each day, it would be an 
>>>>> insulin overload all day for me.
>>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>>> for a few hours in the middle of the night.
>>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>>> just one unit is not possible.
>>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>>> insulin than I do.
>>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>>> or Omnipod come out with something accessible for us blind users by 
>>>>> then.  She said that they are both working on accessible phone apps 
>>>>> that will have the ability to run the pump from the phone.  She also 
>>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>>> working on a pump.  She does not think it will ever get on the market 
>>>>> though.  It is a dual cartridge system that has both insulin and 
>>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>>> Hope everyone is staying safe and well!  
>>>>> Jamie
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>>> r%40gma
>>>>> il.com
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>>> comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>>> 0comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>>> omcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Mon, 9 Nov 2020 18:32:53 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Yep...
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 5:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of Diabetes-Talk Digest, Vol 156, Issue 9
>> *********************************************
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com



From sjryan2 at gmail.com  Tue Nov 10 17:48:05 2020
From: sjryan2 at gmail.com (sjryan2 at gmail.com)
Date: Tue, 10 Nov 2020 11:48:05 -0600
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <001801d6b775$e24ad520$a6e07f60$@comcast.net>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
 <001801d6b775$e24ad520$a6e07f60$@comcast.net>
Message-ID: <005b01d6b789$a52f4770$ef8dd650$@gmail.com>

Gluten-free foods are no less carb-filled than foods with gluten. It's good that you are limiting sweet foods. Include foods like cereals, chips, crackers, cookies, cakes, pies, ice creams, and other manufactured foods with lots of sugars, sweeteners, and refined flour in them (white refined flours). You can find lots of low-carb recipes on the Internet, but avoid those that have left out sugar, but use lots of sweeteners of any kind in its place. 

Really, it would help you a lot to have your doctor prescribe at least a few appointments with a registered dietitian. On this list we are helpful in that we know what we eat. But there is no "diabetic diet" that fits all of us, and a dietitian can help you individualize the way you want and need to eat.

Sandi


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Tuesday, November 10, 2020 9:27 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hope, I don't know how to advise you on pain but I do have a couple of thoughts. Ask about chair yoga; it helps with flexibility, you can stay seated and go at your own pace. Ask about learning to do sitting exercises for starters, as there are lots of options out there. Also, ask if there is someone who knows about gluten  free diets. I am not well-versed in this, but I do know there is information out there.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Hope Hein via Diabetes-Talk
Sent: Tuesday, November 10, 2020 9:00 AM
To: mota1252 at gmail.com
Cc: Hope Hein; Diabetes Talk for the Blind
Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9

Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegitables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?

Hope Hein

> On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> 
> ?Hi,
> 
> You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 7:13 AM
> To: diabetes-talk at nfbnet.org
> Cc: Hope Hein <hwmhein at gmail.com>
> Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> 
> Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> 
> Hope Hein
> 
>> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
>> 
>> ?Send Diabetes-Talk mailing list submissions to
>>   diabetes-talk at nfbnet.org
>> 
>> To subscribe or unsubscribe via the World Wide Web, visit
>>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>>   diabetes-talk-request at nfbnet.org
>> 
>> You can reach the person managing the list at
>>   diabetes-talk-owner at nfbnet.org
>> 
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-Talk digest..."
>> 
>> 
>> Today's Topics:
>> 
>>  1. V-go insulin system (jamielgurganus at gmail.com)
>>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>>  3. Re: V-go insulin system (Patricia Maddix)
>>  4. Re: V-go insulin system (Jeanette Kutash)
>>  5. Re: V-go insulin system (gary-melconian)
>>  6. Re: V-go insulin system (Patricia Maddix)
>>  7. Re: V-go insulin system (Veronica Elsea)
>>  8. Re: V-go insulin system (gary-melconian)
>>  9. Re: V-go insulin system (Patricia Maddix)
>> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Mon, 9 Nov 2020 11:21:43 -0600
>> From: <jamielgurganus at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: [Diabetes-Talk] V-go insulin system
>> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
>> Content-Type: text/plain;    charset="us-ascii"
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Mon, 9 Nov 2020 11:46:33 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
>> Content-Type: text/plain;    charset="US-ASCII"
>> 
>> Jamie,
>> 
>> Thanks for the intel. This is very helpful. Like you, I have rather low
>> insulin needs. So, this system would not work for me either. When I moved to
>> Iowa, I made the decision to go off the InPen. I have no support here to
>> assist with pump needs when I need it. It made sense for me to transition
>> off. However, I want to be back on a pump. I'm using Levemir for my long
>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>> it to be any different than a traditional insulin pen. I do like that I can
>> confirm delivered doses via its app, but other than that, it does nothing
>> else useful in my opinion. It does not even provide info about how much
>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>> that it does not provide this info. It's supposed to pair with Dexcom, but
>> it does not provide real time info. I have to manually plug doeses, carbs,
>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>> have not been too bad since transitioning, but I definitely have better,
>> tighter control with a pump. I really hope accessibility is being considered
>> with these apps; I would switch back to a pump in a heart beat if I had more
>> independent control with a pump. I know DAN and the NFB were supposed to
>> revive efforts on this again, but have not heard anything substantive beyond
>> it putting yet another committee together.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>> Gurganus via Diabetes-Talk
>> Sent: Monday, November 9, 2020 11:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: jamielgurganus at gmail.com
>> Subject: [Diabetes-Talk] V-go insulin system
>> 
>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>> not work for many of us pump users.  
>> 
>> 
>> 
>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>> for someone like me who only uses 13 units each day, it would be an insulin
>> overload all day for me.
>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>> the basal rate per hour is .8.  The only time my rate is that high is for a
>> few hours in the middle of the night.
>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>> just one unit is not possible.
>> 
>> 
>> 
>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>> I do.
>> 
>> 
>> 
>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>> come out with something accessible for us blind users by then.  She said
>> that they are both working on accessible phone apps that will have the
>> ability to run the pump from the phone.  She also mentioned that there is a
>> person from Boston named DeMayo who is working on a pump.  She does not
>> think it will ever get on the market though.  It is a dual cartridge system
>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>> never had to use my glucagon kit.
>> 
>> 
>> 
>> Hope everyone is staying safe and well!  
>> 
>> 
>> 
>> 
>> Jamie
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Mon, 9 Nov 2020 11:24:54 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Mon, 9 Nov 2020 15:26:02 -0500
>> From: "Jeanette Kutash" <kutash-jm at comcast.net>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
>> Content-Type: text/plain;    charset="UTF-8"
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>> insulin needs. So, this system would not work for me either. When I moved to
>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>> assist with pump needs when I need it. It made sense for me to transition
>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>> it to be any different than a traditional insulin pen. I do like that I can
>>> confirm delivered doses via its app, but other than that, it does nothing
>>> else useful in my opinion. It does not even provide info about how much
>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>> have not been too bad since transitioning, but I definitely have better,
>>> tighter control with a pump. I really hope accessibility is being considered
>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>> independent control with a pump. I know DAN and the NFB were supposed to
>>> revive efforts on this again, but have not heard anything substantive beyond
>>> it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>> Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>> not work for many of us pump users.  
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an insulin
>>> overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>> few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>> I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>> come out with something accessible for us blind users by then.  She said
>>> that they are both working on accessible phone apps that will have the
>>> ability to run the pump from the phone.  She also mentioned that there is a
>>> person from Boston named DeMayo who is working on a pump.  She does not
>>> think it will ever get on the market though.  It is a dual cartridge system
>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>> never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 5
>> Date: Mon, 9 Nov 2020 12:41:55 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
>> Sent: Monday, November 9, 2020 12:26 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Jeanette Kutash <kutash-jm at comcast.net>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>> 
>> Those are my questions, Patricia, and I do look forward to your answers.
>> 
>> Jeanette 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 2:25 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Bridget,
>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Jamie,
>>> 
>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>> low insulin needs. So, this system would not work for me either. When 
>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>> support here to assist with pump needs when I need it. It made sense 
>>> for me to transition off. However, I want to be back on a pump. I'm 
>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>> InPen is a novelty. I've not found it to be any different than a 
>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>> via its app, but other than that, it does nothing else useful in my 
>>> opinion. It does not even provide info about how much insulin is left 
>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>> does not provide real time info. I have to manually plug doeses, 
>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>> apps, so I stopped logging on InPen, and just stick to logging info on 
>>> Dexcom. My BGs have not been too bad since transitioning, but I 
>>> definitely have better, tighter control with a pump. I really hope 
>>> accessibility is being considered with these apps; I would switch back 
>>> to a pump in a heart beat if I had more independent control with a 
>>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> Jamie Gurganus via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 11:22 AM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: jamielgurganus at gmail.com
>>> Subject: [Diabetes-Talk] V-go insulin system
>>> 
>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her 
>>> about the V-go system, and she showed it to me.  Here is the scoop on 
>>> why it might not work for many of us pump users.
>>> 
>>> 
>>> 
>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>> for someone like me who only uses 13 units each day, it would be an 
>>> insulin overload all day for me.
>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>> for a few hours in the middle of the night.
>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>> just one unit is not possible.
>>> 
>>> 
>>> 
>>> Anyway, it is pretty neat for someone who might need a lot more 
>>> insulin than I do.
>>> 
>>> 
>>> 
>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it 
>>> will quit on me by then.  So, my educator hopes that either Tandem or 
>>> Omnipod come out with something accessible for us blind users by then.  
>>> She said that they are both working on accessible phone apps that will 
>>> have the ability to run the pump from the phone.  She also mentioned 
>>> that there is a person from Boston named DeMayo who is working on a 
>>> pump.  She does not think it will ever get on the market though.  It 
>>> is a dual cartridge system that has both insulin and glucagon in it.  
>>> I sure don't want to have to pay for glucagon.  I refuse to fill a 
>>> glucagon prescription, since it is anywhere from $300-600 to fill.  In 
>>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>> 
>>> 
>>> 
>>> Hope everyone is staying safe and well!  
>>> 
>>> 
>>> 
>>> 
>>> Jamie
>>> 
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>>> %40gma
>>> il.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 6
>> Date: Mon, 9 Nov 2020 13:01:36 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 7
>> Date: Mon, 9 Nov 2020 15:19:26 -0800
>> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather low
>>>> insulin needs. So, this system would not work for me either. When I moved to
>>>> Iowa, I made the decision to go off the InPen. I have no support here to
>>>> assist with pump needs when I need it. It made sense for me to transition
>>>> off. However, I want to be back on a pump. I'm using Levemir for my long
>>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
>>>> it to be any different than a traditional insulin pen. I do like that I can
>>>> confirm delivered doses via its app, but other than that, it does nothing
>>>> else useful in my opinion. It does not even provide info about how much
>>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
>>>> that it does not provide this info. It's supposed to pair with Dexcom, but
>>>> it does not provide real time info. I have to manually plug doeses, carbs,
>>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
>>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
>>>> have not been too bad since transitioning, but I definitely have better,
>>>> tighter control with a pump. I really hope accessibility is being considered
>>>> with these apps; I would switch back to a pump in a heart beat if I had more
>>>> independent control with a pump. I know DAN and the NFB were supposed to
>>>> revive efforts on this again, but have not heard anything substantive beyond
>>>> it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
>>>> Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system
>>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
>>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
>>>> not work for many of us pump users.  
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an insulin
>>>> overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is for a
>>>> few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
>>>> I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
>>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
>>>> come out with something accessible for us blind users by then.  She said
>>>> that they are both working on accessible phone apps that will have the
>>>> ability to run the pump from the phone.  She also mentioned that there is a
>>>> person from Boston named DeMayo who is working on a pump.  She does not
>>>> think it will ever get on the market though.  It is a dual cartridge system
>>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
>>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
>>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
>>>> never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 8
>> Date: Mon, 9 Nov 2020 15:28:39 -0800
>> From: "gary-melconian" <gmelconian619 at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Thanks veronica for all that.  
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 3:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 9
>> Date: Mon, 9 Nov 2020 16:06:37 -0800
>> From: Patricia Maddix <pmaddix at comcast.net>
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
>> Content-Type: text/plain; charset=utf-8
>> 
>> Yes thanks Veronica for that background information I did not know the history.
>> Patricia
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Thanks veronica for all that.  
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Monday, November 9, 2020 3:19 PM
>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>>> Veronica
>>> 
>>> 
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>              Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>>> 
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 1:02 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>>> 
>>> SDubnow at nfb.org
>>> That?s what I know so far.
>>> Patricia
>>> 
>>> 
>>> 
>>> Sent from my iPhone
>>> 
>>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> 
>>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>>> 
>>>> Those are my questions, Patricia, and I do look forward to your answers.
>>>> 
>>>> Jeanette
>>>> 
>>>> -----Original Message-----
>>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>>> Sent: Monday, November 09, 2020 2:25 PM
>>>> To: Diabetes Talk for the Blind
>>>> Cc: Patricia Maddix
>>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>>> 
>>>> Bridget,
>>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>>> Patricia
>>>> 
>>>> Sent from my iPhone
>>>> 
>>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>>> ?Jamie,
>>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>>> low insulin needs. So, this system would not work for me either. When 
>>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>>> support here to assist with pump needs when I need it. It made sense 
>>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>>> InPen is a novelty. I've not found it to be any different than a 
>>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>>> via its app, but other than that, it does nothing else useful in my 
>>>>> opinion. It does not even provide info about how much insulin is left 
>>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>>> does not provide real time info. I have to manually plug doeses, 
>>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>>> definitely have better, tighter control with a pump. I really hope 
>>>>> accessibility is being considered with these apps; I would switch 
>>>>> back to a pump in a heart beat if I had more independent control with 
>>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>>> Bridgit
>>>>> -----Original Message-----
>>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>>> Jamie Gurganus via Diabetes-Talk
>>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>>> Cc: jamielgurganus at gmail.com
>>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>>> for many of us pump users.
>>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>>> for someone like me who only uses 13 units each day, it would be an 
>>>>> insulin overload all day for me.
>>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>>> for a few hours in the middle of the night.
>>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>>> just one unit is not possible.
>>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>>> insulin than I do.
>>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>>> or Omnipod come out with something accessible for us blind users by 
>>>>> then.  She said that they are both working on accessible phone apps 
>>>>> that will have the ability to run the pump from the phone.  She also 
>>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>>> working on a pump.  She does not think it will ever get on the market 
>>>>> though.  It is a dual cartridge system that has both insulin and 
>>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>>> Hope everyone is staying safe and well!  
>>>>> Jamie
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>>> r%40gma
>>>>> il.com
>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>>> comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>>> 0comcast.net
>>>> 
>>>> 
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>>> omcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 10
>> Date: Mon, 9 Nov 2020 18:32:53 -0600
>> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
>> Content-Type: text/plain;    charset="utf-8"
>> 
>> Yep...
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, November 9, 2020 5:19 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
>> Sent: Monday, November 09, 2020 1:02 PM
>> To: Diabetes Talk for the Blind
>> Cc: Patricia Maddix
>> Subject: Re: [Diabetes-Talk] V-go insulin system
>> 
>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
>> 
>> SDubnow at nfb.org
>> That?s what I know so far.
>> Patricia
>> 
>> 
>> 
>> Sent from my iPhone
>> 
>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues. 
>>> 
>>> Those are my questions, Patricia, and I do look forward to your answers.
>>> 
>>> Jeanette
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Patricia Maddix via Diabetes-Talk
>>> Sent: Monday, November 09, 2020 2:25 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Patricia Maddix
>>> Subject: Re: [Diabetes-Talk] V-go insulin system
>>> 
>>> Bridget,
>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.  
>>> Patricia
>>> 
>>> Sent from my iPhone
>>> 
>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>>> ?Jamie,
>>>> Thanks for the intel. This is very helpful. Like you, I have rather 
>>>> low insulin needs. So, this system would not work for me either. When 
>>>> I moved to Iowa, I made the decision to go off the InPen. I have no 
>>>> support here to assist with pump needs when I need it. It made sense 
>>>> for me to transition off. However, I want to be back on a pump. I'm 
>>>> using Levemir for my long acting, and Humalog in the InPen. First, 
>>>> InPen is a novelty. I've not found it to be any different than a 
>>>> traditional insulin pen. I do like that I can confirm delivered doses 
>>>> via its app, but other than that, it does nothing else useful in my 
>>>> opinion. It does not even provide info about how much insulin is left 
>>>> in the pen, which would be helpful. I confirmed with InPen that it 
>>>> does not provide this info. It's supposed to pair with Dexcom, but it 
>>>> does not provide real time info. I have to manually plug doeses, 
>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate 
>>>> apps, so I stopped logging on InPen, and just stick to logging info 
>>>> on Dexcom. My BGs have not been too bad since transitioning, but I 
>>>> definitely have better, tighter control with a pump. I really hope 
>>>> accessibility is being considered with these apps; I would switch 
>>>> back to a pump in a heart beat if I had more independent control with 
>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
>>>> Bridgit
>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>>> Jamie Gurganus via Diabetes-Talk
>>>> Sent: Monday, November 9, 2020 11:22 AM
>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>>>> Cc: jamielgurganus at gmail.com
>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came 
>>>> from seeing my Diabetic Educator.  I asked her about the V-go system, 
>>>> and she showed it to me.  Here is the scoop on why it might not work 
>>>> for many of us pump users.
>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
>>>> for someone like me who only uses 13 units each day, it would be an 
>>>> insulin overload all day for me.
>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
>>>> the basal rate per hour is .8.  The only time my rate is that high is 
>>>> for a few hours in the middle of the night.
>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
>>>> just one unit is not possible.
>>>> Anyway, it is pretty neat for someone who might need a lot more 
>>>> insulin than I do.
>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean 
>>>> it will quit on me by then.  So, my educator hopes that either Tandem 
>>>> or Omnipod come out with something accessible for us blind users by 
>>>> then.  She said that they are both working on accessible phone apps 
>>>> that will have the ability to run the pump from the phone.  She also 
>>>> mentioned that there is a person from Boston named DeMayo who is 
>>>> working on a pump.  She does not think it will ever get on the market 
>>>> though.  It is a dual cartridge system that has both insulin and 
>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I 
>>>> refuse to fill a glucagon prescription, since it is anywhere from 
>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
>>>> Hope everyone is staying safe and well!  
>>>> Jamie
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
>>>> r%40gma
>>>> il.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
>>>> comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>>> 0comcast.net
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
>>> omcast.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> 
>> 
>> ------------------------------
>> 
>> End of Diabetes-Talk Digest, Vol 156, Issue 9
>> *********************************************
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> 

_______________________________________________
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From jdashiel at panix.com  Tue Nov 10 19:12:31 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Tue, 10 Nov 2020 14:12:31 -0500
Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
 Diabetes-Talk Digest, Vol 156, Issue 9
In-Reply-To: <005b01d6b789$a52f4770$ef8dd650$@gmail.com>
References: <003f01d6b766$e8e55860$bab00920$@gmail.com>
 <AB870747-56B1-4605-955F-8F9895ADE95E@gmail.com>
 <001801d6b775$e24ad520$a6e07f60$@comcast.net>
 <005b01d6b789$a52f4770$ef8dd650$@gmail.com>
Message-ID: <alpine.NEB.2.23.451.2011101406100.22555@panix1.panix.com>

Understand processed meats lunch meat chicken tenders sausage and hot
dogs probably are sugar perpetrators as well.  Since I'm living in a
retirement facility I live on a controled diet both portion and content
controled.  We get processed foods turkey dogs, turkey bacon sausage and
chicken tenders infrequently in each menu rotation.

On Tue, 10 Nov 2020, Sandi Ryan via Diabetes-Talk wrote:

> Date: Tue, 10 Nov 2020 12:48:05
> From: Sandi Ryan via Diabetes-Talk <diabetes-talk at nfbnet.org>
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: sjryan2 at gmail.com
> Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re:
>     Diabetes-Talk Digest, Vol 156, Issue 9
>
> Gluten-free foods are no less carb-filled than foods with gluten. It's good that you are limiting sweet foods. Include foods like cereals, chips, crackers, cookies, cakes, pies, ice creams, and other manufactured foods with lots of sugars, sweeteners, and refined flour in them (white refined flours). You can find lots of low-carb recipes on the Internet, but avoid those that have left out sugar, but use lots of sweeteners of any kind in its place.
>
> Really, it would help you a lot to have your doctor prescribe at least a few appointments with a registered dietitian. On this list we are helpful in that we know what we eat. But there is no "diabetic diet" that fits all of us, and a dietitian can help you individualize the way you want and need to eat.
>
> Sandi
>
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 9:27 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
>
> Hope, I don't know how to advise you on pain but I do have a couple of thoughts. Ask about chair yoga; it helps with flexibility, you can stay seated and go at your own pace. Ask about learning to do sitting exercises for starters, as there are lots of options out there. Also, ask if there is someone who knows about gluten  free diets. I am not well-versed in this, but I do know there is information out there.
>
> Jeanette
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Hope Hein via Diabetes-Talk
> Sent: Tuesday, November 10, 2020 9:00 AM
> To: mota1252 at gmail.com
> Cc: Hope Hein; Diabetes Talk for the Blind
> Subject: Re: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
>
> Hello all, this is Hope Hein I am not exercising a lot right now because I?ve had some pain. I am going to the a diabetes physician I?ve saw her last week and I?m going to talk to her on the phone tomorrow. I am asking you guys about the food because you guys know more than I do about the diabetes and I would like to lower my blood sugar or figure out what to do about it. I also have some other health issues that might be interfering but I?m having trouble understanding what exactly are the carbohydrates and I?m supposed to lower my carbohydrates how do I do that? I am not eating a lot of meat I am eating vegitables and fruit. Trying not to have sweets in the house i really want to know what helps you all on a daily basis. Any reading recommendations?
>
> Hope Hein
>
> > On Nov 10, 2020, at 8:39 AM, Milton <mota1252 at gmail.com> wrote:
> >
> > ?Hi,
> >
> > You did not mention if you are exercising as part of your diabetes control? If you are, then you need to seek out a diabetes educator/dietitian or ask your doctor for a referral . Your situation may be more complicated for this list to make suggestions.
> >
> >
> > -----Original Message-----
> > From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
> > Sent: Tuesday, November 10, 2020 7:13 AM
> > To: diabetes-talk at nfbnet.org
> > Cc: Hope Hein <hwmhein at gmail.com>
> > Subject: [Diabetes-Talk] What should I eat to lower blood sugar?Re: Diabetes-Talk Digest, Vol 156, Issue 9
> >
> > Hello all, this is Hope Hein, what should I eat to help lower my blood sugar? I am gluten-free as I have allergies to foods with gluten. I am frustrated because my blood sugar is keeps going up high and I feel like I?m eating well but obviously I?m not question thank you for all of your assistance I really appreciate this list.
> >
> > Hope Hein
> >
> >> On Nov 10, 2020, at 7:02 AM, diabetes-talk-request at nfbnet.org wrote:
> >>
> >> ?Send Diabetes-Talk mailing list submissions to
> >>   diabetes-talk at nfbnet.org
> >>
> >> To subscribe or unsubscribe via the World Wide Web, visit
> >>   http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> or, via email, send a message with subject or body 'help' to
> >>   diabetes-talk-request at nfbnet.org
> >>
> >> You can reach the person managing the list at
> >>   diabetes-talk-owner at nfbnet.org
> >>
> >> When replying, please edit your Subject line so it is more specific
> >> than "Re: Contents of Diabetes-Talk digest..."
> >>
> >>
> >> Today's Topics:
> >>
> >>  1. V-go insulin system (jamielgurganus at gmail.com)
> >>  2. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
> >>  3. Re: V-go insulin system (Patricia Maddix)
> >>  4. Re: V-go insulin system (Jeanette Kutash)
> >>  5. Re: V-go insulin system (gary-melconian)
> >>  6. Re: V-go insulin system (Patricia Maddix)
> >>  7. Re: V-go insulin system (Veronica Elsea)
> >>  8. Re: V-go insulin system (gary-melconian)
> >>  9. Re: V-go insulin system (Patricia Maddix)
> >> 10. Re: V-go insulin system (Bridgit Kuenning-Pollpeter)
> >>
> >>
> >> ----------------------------------------------------------------------
> >>
> >> Message: 1
> >> Date: Mon, 9 Nov 2020 11:21:43 -0600
> >> From: <jamielgurganus at gmail.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <024b01d6b6bc$cb7556e0$626004a0$@gmail.com>
> >> Content-Type: text/plain;    charset="us-ascii"
> >>
> >> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >> not work for many of us pump users.
> >>
> >>
> >>
> >> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >> for someone like me who only uses 13 units each day, it would be an insulin
> >> overload all day for me.
> >> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >> the basal rate per hour is .8.  The only time my rate is that high is for a
> >> few hours in the middle of the night.
> >> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >> just one unit is not possible.
> >>
> >>
> >>
> >> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >> I do.
> >>
> >>
> >>
> >> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >> come out with something accessible for us blind users by then.  She said
> >> that they are both working on accessible phone apps that will have the
> >> ability to run the pump from the phone.  She also mentioned that there is a
> >> person from Boston named DeMayo who is working on a pump.  She does not
> >> think it will ever get on the market though.  It is a dual cartridge system
> >> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >> never had to use my glucagon kit.
> >>
> >>
> >>
> >> Hope everyone is staying safe and well!
> >>
> >>
> >>
> >>
> >> Jamie
> >>
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 2
> >> Date: Mon, 9 Nov 2020 11:46:33 -0600
> >> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <26f101d6b6c0$444cfac0$cce6f040$@gmail.com>
> >> Content-Type: text/plain;    charset="US-ASCII"
> >>
> >> Jamie,
> >>
> >> Thanks for the intel. This is very helpful. Like you, I have rather low
> >> insulin needs. So, this system would not work for me either. When I moved to
> >> Iowa, I made the decision to go off the InPen. I have no support here to
> >> assist with pump needs when I need it. It made sense for me to transition
> >> off. However, I want to be back on a pump. I'm using Levemir for my long
> >> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> >> it to be any different than a traditional insulin pen. I do like that I can
> >> confirm delivered doses via its app, but other than that, it does nothing
> >> else useful in my opinion. It does not even provide info about how much
> >> insulin is left in the pen, which would be helpful. I confirmed with InPen
> >> that it does not provide this info. It's supposed to pair with Dexcom, but
> >> it does not provide real time info. I have to manually plug doeses, carbs,
> >> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> >> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> >> have not been too bad since transitioning, but I definitely have better,
> >> tighter control with a pump. I really hope accessibility is being considered
> >> with these apps; I would switch back to a pump in a heart beat if I had more
> >> independent control with a pump. I know DAN and the NFB were supposed to
> >> revive efforts on this again, but have not heard anything substantive beyond
> >> it putting yet another committee together.
> >>
> >> Bridgit
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> >> Gurganus via Diabetes-Talk
> >> Sent: Monday, November 9, 2020 11:22 AM
> >> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >> Cc: jamielgurganus at gmail.com
> >> Subject: [Diabetes-Talk] V-go insulin system
> >>
> >> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >> not work for many of us pump users.
> >>
> >>
> >>
> >> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >> for someone like me who only uses 13 units each day, it would be an insulin
> >> overload all day for me.
> >> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >> the basal rate per hour is .8.  The only time my rate is that high is for a
> >> few hours in the middle of the night.
> >> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >> just one unit is not possible.
> >>
> >>
> >>
> >> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >> I do.
> >>
> >>
> >>
> >> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >> come out with something accessible for us blind users by then.  She said
> >> that they are both working on accessible phone apps that will have the
> >> ability to run the pump from the phone.  She also mentioned that there is a
> >> person from Boston named DeMayo who is working on a pump.  She does not
> >> think it will ever get on the market though.  It is a dual cartridge system
> >> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >> never had to use my glucagon kit.
> >>
> >>
> >>
> >> Hope everyone is staying safe and well!
> >>
> >>
> >>
> >>
> >> Jamie
> >>
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for
> >> Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> >> il.com
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 3
> >> Date: Mon, 9 Nov 2020 11:24:54 -0800
> >> From: Patricia Maddix <pmaddix at comcast.net>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <EC2B73EB-7363-4058-8EC3-93137CF9BE2C at comcast.net>
> >> Content-Type: text/plain; charset=utf-8
> >>
> >> Bridget,
> >> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >> Patricia
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Jamie,
> >>>
> >>> Thanks for the intel. This is very helpful. Like you, I have rather low
> >>> insulin needs. So, this system would not work for me either. When I moved to
> >>> Iowa, I made the decision to go off the InPen. I have no support here to
> >>> assist with pump needs when I need it. It made sense for me to transition
> >>> off. However, I want to be back on a pump. I'm using Levemir for my long
> >>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> >>> it to be any different than a traditional insulin pen. I do like that I can
> >>> confirm delivered doses via its app, but other than that, it does nothing
> >>> else useful in my opinion. It does not even provide info about how much
> >>> insulin is left in the pen, which would be helpful. I confirmed with InPen
> >>> that it does not provide this info. It's supposed to pair with Dexcom, but
> >>> it does not provide real time info. I have to manually plug doeses, carbs,
> >>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> >>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> >>> have not been too bad since transitioning, but I definitely have better,
> >>> tighter control with a pump. I really hope accessibility is being considered
> >>> with these apps; I would switch back to a pump in a heart beat if I had more
> >>> independent control with a pump. I know DAN and the NFB were supposed to
> >>> revive efforts on this again, but have not heard anything substantive beyond
> >>> it putting yet another committee together.
> >>>
> >>> Bridgit
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> >>> Gurganus via Diabetes-Talk
> >>> Sent: Monday, November 9, 2020 11:22 AM
> >>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>> Cc: jamielgurganus at gmail.com
> >>> Subject: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >>> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >>> not work for many of us pump users.
> >>>
> >>>
> >>>
> >>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>> for someone like me who only uses 13 units each day, it would be an insulin
> >>> overload all day for me.
> >>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>> the basal rate per hour is .8.  The only time my rate is that high is for a
> >>> few hours in the middle of the night.
> >>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>> just one unit is not possible.
> >>>
> >>>
> >>>
> >>> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >>> I do.
> >>>
> >>>
> >>>
> >>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >>> come out with something accessible for us blind users by then.  She said
> >>> that they are both working on accessible phone apps that will have the
> >>> ability to run the pump from the phone.  She also mentioned that there is a
> >>> person from Boston named DeMayo who is working on a pump.  She does not
> >>> think it will ever get on the market though.  It is a dual cartridge system
> >>> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >>> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >>> never had to use my glucagon kit.
> >>>
> >>>
> >>>
> >>> Hope everyone is staying safe and well!
> >>>
> >>>
> >>>
> >>>
> >>> Jamie
> >>>
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> >>> il.com
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 4
> >> Date: Mon, 9 Nov 2020 15:26:02 -0500
> >> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <006301d6b6d6$8d70ba00$a8522e00$@comcast.net>
> >> Content-Type: text/plain;    charset="UTF-8"
> >>
> >> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>
> >> Those are my questions, Patricia, and I do look forward to your answers.
> >>
> >> Jeanette
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >> Sent: Monday, November 09, 2020 2:25 PM
> >> To: Diabetes Talk for the Blind
> >> Cc: Patricia Maddix
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Bridget,
> >> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >> Patricia
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Jamie,
> >>>
> >>> Thanks for the intel. This is very helpful. Like you, I have rather low
> >>> insulin needs. So, this system would not work for me either. When I moved to
> >>> Iowa, I made the decision to go off the InPen. I have no support here to
> >>> assist with pump needs when I need it. It made sense for me to transition
> >>> off. However, I want to be back on a pump. I'm using Levemir for my long
> >>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> >>> it to be any different than a traditional insulin pen. I do like that I can
> >>> confirm delivered doses via its app, but other than that, it does nothing
> >>> else useful in my opinion. It does not even provide info about how much
> >>> insulin is left in the pen, which would be helpful. I confirmed with InPen
> >>> that it does not provide this info. It's supposed to pair with Dexcom, but
> >>> it does not provide real time info. I have to manually plug doeses, carbs,
> >>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> >>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> >>> have not been too bad since transitioning, but I definitely have better,
> >>> tighter control with a pump. I really hope accessibility is being considered
> >>> with these apps; I would switch back to a pump in a heart beat if I had more
> >>> independent control with a pump. I know DAN and the NFB were supposed to
> >>> revive efforts on this again, but have not heard anything substantive beyond
> >>> it putting yet another committee together.
> >>>
> >>> Bridgit
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> >>> Gurganus via Diabetes-Talk
> >>> Sent: Monday, November 9, 2020 11:22 AM
> >>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>> Cc: jamielgurganus at gmail.com
> >>> Subject: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >>> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >>> not work for many of us pump users.
> >>>
> >>>
> >>>
> >>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>> for someone like me who only uses 13 units each day, it would be an insulin
> >>> overload all day for me.
> >>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>> the basal rate per hour is .8.  The only time my rate is that high is for a
> >>> few hours in the middle of the night.
> >>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>> just one unit is not possible.
> >>>
> >>>
> >>>
> >>> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >>> I do.
> >>>
> >>>
> >>>
> >>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >>> come out with something accessible for us blind users by then.  She said
> >>> that they are both working on accessible phone apps that will have the
> >>> ability to run the pump from the phone.  She also mentioned that there is a
> >>> person from Boston named DeMayo who is working on a pump.  She does not
> >>> think it will ever get on the market though.  It is a dual cartridge system
> >>> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >>> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >>> never had to use my glucagon kit.
> >>>
> >>>
> >>>
> >>> Hope everyone is staying safe and well!
> >>>
> >>>
> >>>
> >>>
> >>> Jamie
> >>>
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> >>> il.com
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 5
> >> Date: Mon, 9 Nov 2020 12:41:55 -0800
> >> From: "gary-melconian" <gmelconian619 at gmail.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <001801d6b6d8$c3919ee0$4ab4dca0$@gmail.com>
> >> Content-Type: text/plain;    charset="utf-8"
> >>
> >> I'm in total agreement. We should have accessible meters, accessible cgm with all aspects of the app to the cgm accessible to us.
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jeanette Kutash via Diabetes-Talk
> >> Sent: Monday, November 9, 2020 12:26 PM
> >> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>
> >> Those are my questions, Patricia, and I do look forward to your answers.
> >>
> >> Jeanette
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >> Sent: Monday, November 09, 2020 2:25 PM
> >> To: Diabetes Talk for the Blind
> >> Cc: Patricia Maddix
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Bridget,
> >> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >> Patricia
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Jamie,
> >>>
> >>> Thanks for the intel. This is very helpful. Like you, I have rather
> >>> low insulin needs. So, this system would not work for me either. When
> >>> I moved to Iowa, I made the decision to go off the InPen. I have no
> >>> support here to assist with pump needs when I need it. It made sense
> >>> for me to transition off. However, I want to be back on a pump. I'm
> >>> using Levemir for my long acting, and Humalog in the InPen. First,
> >>> InPen is a novelty. I've not found it to be any different than a
> >>> traditional insulin pen. I do like that I can confirm delivered doses
> >>> via its app, but other than that, it does nothing else useful in my
> >>> opinion. It does not even provide info about how much insulin is left
> >>> in the pen, which would be helpful. I confirmed with InPen that it
> >>> does not provide this info. It's supposed to pair with Dexcom, but it
> >>> does not provide real time info. I have to manually plug doeses,
> >>> carbs, etc. for it to calculate. And I hate logging on 2 separate
> >>> apps, so I stopped logging on InPen, and just stick to logging info on
> >>> Dexcom. My BGs have not been too bad since transitioning, but I
> >>> definitely have better, tighter control with a pump. I really hope
> >>> accessibility is being considered with these apps; I would switch back
> >>> to a pump in a heart beat if I had more independent control with a
> >>> pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> >>>
> >>> Bridgit
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> >>> Jamie Gurganus via Diabetes-Talk
> >>> Sent: Monday, November 9, 2020 11:22 AM
> >>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>> Cc: jamielgurganus at gmail.com
> >>> Subject: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her
> >>> about the V-go system, and she showed it to me.  Here is the scoop on
> >>> why it might not work for many of us pump users.
> >>>
> >>>
> >>>
> >>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>> for someone like me who only uses 13 units each day, it would be an
> >>> insulin overload all day for me.
> >>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>> the basal rate per hour is .8.  The only time my rate is that high is
> >>> for a few hours in the middle of the night.
> >>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>> just one unit is not possible.
> >>>
> >>>
> >>>
> >>> Anyway, it is pretty neat for someone who might need a lot more
> >>> insulin than I do.
> >>>
> >>>
> >>>
> >>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it
> >>> will quit on me by then.  So, my educator hopes that either Tandem or
> >>> Omnipod come out with something accessible for us blind users by then.
> >>> She said that they are both working on accessible phone apps that will
> >>> have the ability to run the pump from the phone.  She also mentioned
> >>> that there is a person from Boston named DeMayo who is working on a
> >>> pump.  She does not think it will ever get on the market though.  It
> >>> is a dual cartridge system that has both insulin and glucagon in it.
> >>> I sure don't want to have to pay for glucagon.  I refuse to fill a
> >>> glucagon prescription, since it is anywhere from $300-600 to fill.  In
> >>> my 50 years of being a diabetic, I have never had to use my glucagon kit.
> >>>
> >>>
> >>>
> >>> Hope everyone is staying safe and well!
> >>>
> >>>
> >>>
> >>>
> >>> Jamie
> >>>
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for
> >>> Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
> >>> %40gma
> >>> il.com
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> >>> omcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 6
> >> Date: Mon, 9 Nov 2020 13:01:36 -0800
> >> From: Patricia Maddix <pmaddix at comcast.net>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <AF5A4890-8E70-4EED-A791-D415C2F406AD at comcast.net>
> >> Content-Type: text/plain; charset=utf-8
> >>
> >> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> >>
> >> SDubnow at nfb.org
> >> That?s what I know so far.
> >> Patricia
> >>
> >>
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>>
> >>> Those are my questions, Patricia, and I do look forward to your answers.
> >>>
> >>> Jeanette
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >>> Sent: Monday, November 09, 2020 2:25 PM
> >>> To: Diabetes Talk for the Blind
> >>> Cc: Patricia Maddix
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Bridget,
> >>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >>> Patricia
> >>>
> >>> Sent from my iPhone
> >>>
> >>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>> ?Jamie,
> >>>> Thanks for the intel. This is very helpful. Like you, I have rather low
> >>>> insulin needs. So, this system would not work for me either. When I moved to
> >>>> Iowa, I made the decision to go off the InPen. I have no support here to
> >>>> assist with pump needs when I need it. It made sense for me to transition
> >>>> off. However, I want to be back on a pump. I'm using Levemir for my long
> >>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> >>>> it to be any different than a traditional insulin pen. I do like that I can
> >>>> confirm delivered doses via its app, but other than that, it does nothing
> >>>> else useful in my opinion. It does not even provide info about how much
> >>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
> >>>> that it does not provide this info. It's supposed to pair with Dexcom, but
> >>>> it does not provide real time info. I have to manually plug doeses, carbs,
> >>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> >>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> >>>> have not been too bad since transitioning, but I definitely have better,
> >>>> tighter control with a pump. I really hope accessibility is being considered
> >>>> with these apps; I would switch back to a pump in a heart beat if I had more
> >>>> independent control with a pump. I know DAN and the NFB were supposed to
> >>>> revive efforts on this again, but have not heard anything substantive beyond
> >>>> it putting yet another committee together.
> >>>> Bridgit
> >>>> -----Original Message-----
> >>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> >>>> Gurganus via Diabetes-Talk
> >>>> Sent: Monday, November 9, 2020 11:22 AM
> >>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>>> Cc: jamielgurganus at gmail.com
> >>>> Subject: [Diabetes-Talk] V-go insulin system
> >>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >>>> not work for many of us pump users.
> >>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>>> for someone like me who only uses 13 units each day, it would be an insulin
> >>>> overload all day for me.
> >>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>>> the basal rate per hour is .8.  The only time my rate is that high is for a
> >>>> few hours in the middle of the night.
> >>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>>> just one unit is not possible.
> >>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >>>> I do.
> >>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >>>> come out with something accessible for us blind users by then.  She said
> >>>> that they are both working on accessible phone apps that will have the
> >>>> ability to run the pump from the phone.  She also mentioned that there is a
> >>>> person from Boston named DeMayo who is working on a pump.  She does not
> >>>> think it will ever get on the market though.  It is a dual cartridge system
> >>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >>>> never had to use my glucagon kit.
> >>>> Hope everyone is staying safe and well!
> >>>> Jamie
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for
> >>>> Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> >>>> il.com
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 7
> >> Date: Mon, 9 Nov 2020 15:19:26 -0800
> >> From: "Veronica Elsea" <veronica at laurelcreekmusic.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <000001d6b6ee$c4a30ce0$4de926a0$@laurelcreekmusic.com>
> >> Content-Type: text/plain;    charset="utf-8"
> >>
> >> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> >> Veronica
> >>
> >>
> >> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
> >> To learn more, visit:
> >> http://www.laurelcreekmusic.com
> >>               Veronica Elsea, Owner
> >> Laurel Creek Music Designs
> >> Santa Cruz, California
> >> Phone: 831-429-6407
> >>
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >> Sent: Monday, November 09, 2020 1:02 PM
> >> To: Diabetes Talk for the Blind
> >> Cc: Patricia Maddix
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> >>
> >> SDubnow at nfb.org
> >> That?s what I know so far.
> >> Patricia
> >>
> >>
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>>
> >>> Those are my questions, Patricia, and I do look forward to your answers.
> >>>
> >>> Jeanette
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >>> Sent: Monday, November 09, 2020 2:25 PM
> >>> To: Diabetes Talk for the Blind
> >>> Cc: Patricia Maddix
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Bridget,
> >>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >>> Patricia
> >>>
> >>> Sent from my iPhone
> >>>
> >>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>> ?Jamie,
> >>>> Thanks for the intel. This is very helpful. Like you, I have rather low
> >>>> insulin needs. So, this system would not work for me either. When I moved to
> >>>> Iowa, I made the decision to go off the InPen. I have no support here to
> >>>> assist with pump needs when I need it. It made sense for me to transition
> >>>> off. However, I want to be back on a pump. I'm using Levemir for my long
> >>>> acting, and Humalog in the InPen. First, InPen is a novelty. I've not found
> >>>> it to be any different than a traditional insulin pen. I do like that I can
> >>>> confirm delivered doses via its app, but other than that, it does nothing
> >>>> else useful in my opinion. It does not even provide info about how much
> >>>> insulin is left in the pen, which would be helpful. I confirmed with InPen
> >>>> that it does not provide this info. It's supposed to pair with Dexcom, but
> >>>> it does not provide real time info. I have to manually plug doeses, carbs,
> >>>> etc. for it to calculate. And I hate logging on 2 separate apps, so I
> >>>> stopped logging on InPen, and just stick to logging info on Dexcom. My BGs
> >>>> have not been too bad since transitioning, but I definitely have better,
> >>>> tighter control with a pump. I really hope accessibility is being considered
> >>>> with these apps; I would switch back to a pump in a heart beat if I had more
> >>>> independent control with a pump. I know DAN and the NFB were supposed to
> >>>> revive efforts on this again, but have not heard anything substantive beyond
> >>>> it putting yet another committee together.
> >>>> Bridgit
> >>>> -----Original Message-----
> >>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
> >>>> Gurganus via Diabetes-Talk
> >>>> Sent: Monday, November 9, 2020 11:22 AM
> >>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>>> Cc: jamielgurganus at gmail.com
> >>>> Subject: [Diabetes-Talk] V-go insulin system
> >>>> Hi all!  I just came from seeing my Diabetic Educator.  I asked her about
> >>>> the V-go system, and she showed it to me.  Here is the scoop on why it might
> >>>> not work for many of us pump users.
> >>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>>> for someone like me who only uses 13 units each day, it would be an insulin
> >>>> overload all day for me.
> >>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>>> the basal rate per hour is .8.  The only time my rate is that high is for a
> >>>> few hours in the middle of the night.
> >>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>>> just one unit is not possible.
> >>>> Anyway, it is pretty neat for someone who might need a lot more insulin than
> >>>> I do.
> >>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean it will
> >>>> quit on me by then.  So, my educator hopes that either Tandem or Omnipod
> >>>> come out with something accessible for us blind users by then.  She said
> >>>> that they are both working on accessible phone apps that will have the
> >>>> ability to run the pump from the phone.  She also mentioned that there is a
> >>>> person from Boston named DeMayo who is working on a pump.  She does not
> >>>> think it will ever get on the market though.  It is a dual cartridge system
> >>>> that has both insulin and glucagon in it.  I sure don't want to have to pay
> >>>> for glucagon.  I refuse to fill a glucagon prescription, since it is
> >>>> anywhere from $300-600 to fill.  In my 50 years of being a diabetic, I have
> >>>> never had to use my glucagon kit.
> >>>> Hope everyone is staying safe and well!
> >>>> Jamie
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for
> >>>> Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> >>>> il.com
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 8
> >> Date: Mon, 9 Nov 2020 15:28:39 -0800
> >> From: "gary-melconian" <gmelconian619 at gmail.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <006801d6b6f0$0e7e8ff0$2b7bafd0$@gmail.com>
> >> Content-Type: text/plain;    charset="utf-8"
> >>
> >> Thanks veronica for all that.
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> >> Sent: Monday, November 9, 2020 3:19 PM
> >> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> >> Veronica
> >>
> >>
> >> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
> >> To learn more, visit:
> >> http://www.laurelcreekmusic.com
> >>               Veronica Elsea, Owner
> >> Laurel Creek Music Designs
> >> Santa Cruz, California
> >> Phone: 831-429-6407
> >>
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >> Sent: Monday, November 09, 2020 1:02 PM
> >> To: Diabetes Talk for the Blind
> >> Cc: Patricia Maddix
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> >>
> >> SDubnow at nfb.org
> >> That?s what I know so far.
> >> Patricia
> >>
> >>
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>>
> >>> Those are my questions, Patricia, and I do look forward to your answers.
> >>>
> >>> Jeanette
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
> >>> Behalf Of Patricia Maddix via Diabetes-Talk
> >>> Sent: Monday, November 09, 2020 2:25 PM
> >>> To: Diabetes Talk for the Blind
> >>> Cc: Patricia Maddix
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Bridget,
> >>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >>> Patricia
> >>>
> >>> Sent from my iPhone
> >>>
> >>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>> ?Jamie,
> >>>> Thanks for the intel. This is very helpful. Like you, I have rather
> >>>> low insulin needs. So, this system would not work for me either. When
> >>>> I moved to Iowa, I made the decision to go off the InPen. I have no
> >>>> support here to assist with pump needs when I need it. It made sense
> >>>> for me to transition off. However, I want to be back on a pump. I'm
> >>>> using Levemir for my long acting, and Humalog in the InPen. First,
> >>>> InPen is a novelty. I've not found it to be any different than a
> >>>> traditional insulin pen. I do like that I can confirm delivered doses
> >>>> via its app, but other than that, it does nothing else useful in my
> >>>> opinion. It does not even provide info about how much insulin is left
> >>>> in the pen, which would be helpful. I confirmed with InPen that it
> >>>> does not provide this info. It's supposed to pair with Dexcom, but it
> >>>> does not provide real time info. I have to manually plug doeses,
> >>>> carbs, etc. for it to calculate. And I hate logging on 2 separate
> >>>> apps, so I stopped logging on InPen, and just stick to logging info
> >>>> on Dexcom. My BGs have not been too bad since transitioning, but I
> >>>> definitely have better, tighter control with a pump. I really hope
> >>>> accessibility is being considered with these apps; I would switch
> >>>> back to a pump in a heart beat if I had more independent control with
> >>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> >>>> Bridgit
> >>>> -----Original Message-----
> >>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> >>>> Jamie Gurganus via Diabetes-Talk
> >>>> Sent: Monday, November 9, 2020 11:22 AM
> >>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>>> Cc: jamielgurganus at gmail.com
> >>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came
> >>>> from seeing my Diabetic Educator.  I asked her about the V-go system,
> >>>> and she showed it to me.  Here is the scoop on why it might not work
> >>>> for many of us pump users.
> >>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>>> for someone like me who only uses 13 units each day, it would be an
> >>>> insulin overload all day for me.
> >>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>>> the basal rate per hour is .8.  The only time my rate is that high is
> >>>> for a few hours in the middle of the night.
> >>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>>> just one unit is not possible.
> >>>> Anyway, it is pretty neat for someone who might need a lot more
> >>>> insulin than I do.
> >>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean
> >>>> it will quit on me by then.  So, my educator hopes that either Tandem
> >>>> or Omnipod come out with something accessible for us blind users by
> >>>> then.  She said that they are both working on accessible phone apps
> >>>> that will have the ability to run the pump from the phone.  She also
> >>>> mentioned that there is a person from Boston named DeMayo who is
> >>>> working on a pump.  She does not think it will ever get on the market
> >>>> though.  It is a dual cartridge system that has both insulin and
> >>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I
> >>>> refuse to fill a glucagon prescription, since it is anywhere from
> >>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
> >>>> Hope everyone is staying safe and well!
> >>>> Jamie
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for
> >>>> Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
> >>>> r%40gma
> >>>> il.com
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
> >>>> comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> >>> 0comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> >>> omcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 9
> >> Date: Mon, 9 Nov 2020 16:06:37 -0800
> >> From: Patricia Maddix <pmaddix at comcast.net>
> >> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <AD91143F-D7A7-4111-BE5E-103D97FC11A4 at comcast.net>
> >> Content-Type: text/plain; charset=utf-8
> >>
> >> Yes thanks Veronica for that background information I did not know the history.
> >> Patricia
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 3:29 PM, gary-melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Thanks veronica for all that.
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> >>> Sent: Monday, November 9, 2020 3:19 PM
> >>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> >>> Veronica
> >>>
> >>>
> >>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
> >>> To learn more, visit:
> >>> http://www.laurelcreekmusic.com
> >>>              Veronica Elsea, Owner
> >>> Laurel Creek Music Designs
> >>> Santa Cruz, California
> >>> Phone: 831-429-6407
> >>>
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >>> Sent: Monday, November 09, 2020 1:02 PM
> >>> To: Diabetes Talk for the Blind
> >>> Cc: Patricia Maddix
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> >>>
> >>> SDubnow at nfb.org
> >>> That?s what I know so far.
> >>> Patricia
> >>>
> >>>
> >>>
> >>> Sent from my iPhone
> >>>
> >>>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>>
> >>>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>>>
> >>>> Those are my questions, Patricia, and I do look forward to your answers.
> >>>>
> >>>> Jeanette
> >>>>
> >>>> -----Original Message-----
> >>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
> >>>> Behalf Of Patricia Maddix via Diabetes-Talk
> >>>> Sent: Monday, November 09, 2020 2:25 PM
> >>>> To: Diabetes Talk for the Blind
> >>>> Cc: Patricia Maddix
> >>>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>>
> >>>> Bridget,
> >>>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >>>> Patricia
> >>>>
> >>>> Sent from my iPhone
> >>>>
> >>>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>>> ?Jamie,
> >>>>> Thanks for the intel. This is very helpful. Like you, I have rather
> >>>>> low insulin needs. So, this system would not work for me either. When
> >>>>> I moved to Iowa, I made the decision to go off the InPen. I have no
> >>>>> support here to assist with pump needs when I need it. It made sense
> >>>>> for me to transition off. However, I want to be back on a pump. I'm
> >>>>> using Levemir for my long acting, and Humalog in the InPen. First,
> >>>>> InPen is a novelty. I've not found it to be any different than a
> >>>>> traditional insulin pen. I do like that I can confirm delivered doses
> >>>>> via its app, but other than that, it does nothing else useful in my
> >>>>> opinion. It does not even provide info about how much insulin is left
> >>>>> in the pen, which would be helpful. I confirmed with InPen that it
> >>>>> does not provide this info. It's supposed to pair with Dexcom, but it
> >>>>> does not provide real time info. I have to manually plug doeses,
> >>>>> carbs, etc. for it to calculate. And I hate logging on 2 separate
> >>>>> apps, so I stopped logging on InPen, and just stick to logging info
> >>>>> on Dexcom. My BGs have not been too bad since transitioning, but I
> >>>>> definitely have better, tighter control with a pump. I really hope
> >>>>> accessibility is being considered with these apps; I would switch
> >>>>> back to a pump in a heart beat if I had more independent control with
> >>>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> >>>>> Bridgit
> >>>>> -----Original Message-----
> >>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> >>>>> Jamie Gurganus via Diabetes-Talk
> >>>>> Sent: Monday, November 9, 2020 11:22 AM
> >>>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>>>> Cc: jamielgurganus at gmail.com
> >>>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came
> >>>>> from seeing my Diabetic Educator.  I asked her about the V-go system,
> >>>>> and she showed it to me.  Here is the scoop on why it might not work
> >>>>> for many of us pump users.
> >>>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>>>> for someone like me who only uses 13 units each day, it would be an
> >>>>> insulin overload all day for me.
> >>>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>>>> the basal rate per hour is .8.  The only time my rate is that high is
> >>>>> for a few hours in the middle of the night.
> >>>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>>>> just one unit is not possible.
> >>>>> Anyway, it is pretty neat for someone who might need a lot more
> >>>>> insulin than I do.
> >>>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean
> >>>>> it will quit on me by then.  So, my educator hopes that either Tandem
> >>>>> or Omnipod come out with something accessible for us blind users by
> >>>>> then.  She said that they are both working on accessible phone apps
> >>>>> that will have the ability to run the pump from the phone.  She also
> >>>>> mentioned that there is a person from Boston named DeMayo who is
> >>>>> working on a pump.  She does not think it will ever get on the market
> >>>>> though.  It is a dual cartridge system that has both insulin and
> >>>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I
> >>>>> refuse to fill a glucagon prescription, since it is anywhere from
> >>>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
> >>>>> Hope everyone is staying safe and well!
> >>>>> Jamie
> >>>>> _______________________________________________
> >>>>> Diabetes-Talk mailing list
> >>>>> Diabetes-Talk at nfbnet.org
> >>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>>> To unsubscribe, change your list options or get your account info for
> >>>>> Diabetes-Talk:
> >>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
> >>>>> r%40gma
> >>>>> il.com
> >>>>> _______________________________________________
> >>>>> Diabetes-Talk mailing list
> >>>>> Diabetes-Talk at nfbnet.org
> >>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
> >>>>> comcast.net
> >>>>
> >>>>
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> >>>> 0comcast.net
> >>>>
> >>>>
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> >>>> omcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Message: 10
> >> Date: Mon, 9 Nov 2020 18:32:53 -0600
> >> From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >> Message-ID: <28aa01d6b6f9$079908b0$16cb1a10$@gmail.com>
> >> Content-Type: text/plain;    charset="utf-8"
> >>
> >> Yep...
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> >> Sent: Monday, November 9, 2020 5:19 PM
> >> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> The insulin pump group came out of a study done by a John Hopkins student who realized that more respondents to the survey were concerned about pumps than about meters. Previously NFB had formed an accessible medical device task force, which was addressing all medical devices, not even just diabetes. It was a great group and for about six months, it was the most hope I'd had. It was suddenly discontinued and referred to the Jernigan institute, where it has apparently just died. I was heart-broken over this one. I'm trying to give this group a chance, I really am. But I am afraid that we are going to be many years behind, again! But I'll give my all whenever I find an opening.
> >> Veronica
> >>
> >>
> >> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club.
> >> To learn more, visit:
> >> http://www.laurelcreekmusic.com
> >>               Veronica Elsea, Owner
> >> Laurel Creek Music Designs
> >> Santa Cruz, California
> >> Phone: 831-429-6407
> >>
> >>
> >> -----Original Message-----
> >> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Patricia Maddix via Diabetes-Talk
> >> Sent: Monday, November 09, 2020 1:02 PM
> >> To: Diabetes Talk for the Blind
> >> Cc: Patricia Maddix
> >> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>
> >> Regarding the committee, probably a couple of months ago Stacie Dubnow posted a note on this list serve saying that she was going to be forming a Insulin pumpinsulin pump accessibility work group and asked for volunteers to contact her. Several of us responded and that?s how the group was formed. You could check with her if you were interested in joining the group and I will include her contact information below. She had indicated that previously the NFB Had a work group addressing the issue of blood glucose meters but I do not know the outcome of that work group as I was not a member of this group at the time. Perhaps some of the people in this group that have been members longer know that information. She said that they have identified accessibility of insulin pumps as an area specifically that needs to be addressed and that?s what this work group is about.
> >>
> >> SDubnow at nfb.org
> >> That?s what I know so far.
> >> Patricia
> >>
> >>
> >>
> >> Sent from my iPhone
> >>
> >>>> On Nov 9, 2020, at 12:27 PM, Jeanette Kutash via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>
> >>> ?Nor have any of us  on this list. We were waiting to hear that a committee was actually selected, and why is it only pumps that are being addressed, and not inaccurate meters, unavailability for some who qualify, or the good but not total accessibility of freestyle libre, to name a few issues.
> >>>
> >>> Those are my questions, Patricia, and I do look forward to your answers.
> >>>
> >>> Jeanette
> >>>
> >>> -----Original Message-----
> >>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
> >>> Behalf Of Patricia Maddix via Diabetes-Talk
> >>> Sent: Monday, November 09, 2020 2:25 PM
> >>> To: Diabetes Talk for the Blind
> >>> Cc: Patricia Maddix
> >>> Subject: Re: [Diabetes-Talk] V-go insulin system
> >>>
> >>> Bridget,
> >>> The NFB did just recently start up a work group to address this issue. The person at NFB who is heading it up is an attorney by the name of Stacie Dub now. there are five of us from the Dan group on the committee and we had our first zoom conference meeting about a week and a half ago. We discussed a letter that had been drafted to send to influential people at each of the pump companies explaining our issues and needs.  We will keep you allWe will keep you all posted but I imagine things will move slowly.
> >>> Patricia
> >>>
> >>> Sent from my iPhone
> >>>
> >>>>>> On Nov 9, 2020, at 9:49 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> >>>> ?Jamie,
> >>>> Thanks for the intel. This is very helpful. Like you, I have rather
> >>>> low insulin needs. So, this system would not work for me either. When
> >>>> I moved to Iowa, I made the decision to go off the InPen. I have no
> >>>> support here to assist with pump needs when I need it. It made sense
> >>>> for me to transition off. However, I want to be back on a pump. I'm
> >>>> using Levemir for my long acting, and Humalog in the InPen. First,
> >>>> InPen is a novelty. I've not found it to be any different than a
> >>>> traditional insulin pen. I do like that I can confirm delivered doses
> >>>> via its app, but other than that, it does nothing else useful in my
> >>>> opinion. It does not even provide info about how much insulin is left
> >>>> in the pen, which would be helpful. I confirmed with InPen that it
> >>>> does not provide this info. It's supposed to pair with Dexcom, but it
> >>>> does not provide real time info. I have to manually plug doeses,
> >>>> carbs, etc. for it to calculate. And I hate logging on 2 separate
> >>>> apps, so I stopped logging on InPen, and just stick to logging info
> >>>> on Dexcom. My BGs have not been too bad since transitioning, but I
> >>>> definitely have better, tighter control with a pump. I really hope
> >>>> accessibility is being considered with these apps; I would switch
> >>>> back to a pump in a heart beat if I had more independent control with
> >>>> a pump. I know DAN and the NFB were supposed to revive efforts on this again, but have not heard anything substantive beyond it putting yet another committee together.
> >>>> Bridgit
> >>>> -----Original Message-----
> >>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> >>>> Jamie Gurganus via Diabetes-Talk
> >>>> Sent: Monday, November 9, 2020 11:22 AM
> >>>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> >>>> Cc: jamielgurganus at gmail.com
> >>>> Subject: [Diabetes-Talk] V-go insulin system Hi all!  I just came
> >>>> from seeing my Diabetic Educator.  I asked her about the V-go system,
> >>>> and she showed it to me.  Here is the scoop on why it might not work
> >>>> for many of us pump users.
> >>>> 1.    The basal rate can only be set at 20, 30 or 40 units per day.  So,
> >>>> for someone like me who only uses 13 units each day, it would be an
> >>>> insulin overload all day for me.
> >>>> 2.    The basal rate is steady all day.    So, at 20 units total per day,
> >>>> the basal rate per hour is .8.  The only time my rate is that high is
> >>>> for a few hours in the middle of the night.
> >>>> 3.    The bolus dose is set at 2 unit increments, so taking a half unit or
> >>>> just one unit is not possible.
> >>>> Anyway, it is pretty neat for someone who might need a lot more
> >>>> insulin than I do.
> >>>> My Medtronic 530G is out of warranty in 2022, but that doesn't mean
> >>>> it will quit on me by then.  So, my educator hopes that either Tandem
> >>>> or Omnipod come out with something accessible for us blind users by
> >>>> then.  She said that they are both working on accessible phone apps
> >>>> that will have the ability to run the pump from the phone.  She also
> >>>> mentioned that there is a person from Boston named DeMayo who is
> >>>> working on a pump.  She does not think it will ever get on the market
> >>>> though.  It is a dual cartridge system that has both insulin and
> >>>> glucagon in it.  I sure don't want to have to pay for glucagon.  I
> >>>> refuse to fill a glucagon prescription, since it is anywhere from
> >>>> $300-600 to fill.  In my 50 years of being a diabetic, I have never had to use my glucagon kit.
> >>>> Hope everyone is staying safe and well!
> >>>> Jamie
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for
> >>>> Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpete
> >>>> r%40gma
> >>>> il.com
> >>>> _______________________________________________
> >>>> Diabetes-Talk mailing list
> >>>> Diabetes-Talk at nfbnet.org
> >>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40
> >>>> comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> >>> 0comcast.net
> >>>
> >>>
> >>> _______________________________________________
> >>> Diabetes-Talk mailing list
> >>> Diabetes-Talk at nfbnet.org
> >>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40c
> >>> omcast.net
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> >>
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> >> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> >>
> >>
> >>
> >>
> >> ------------------------------
> >>
> >> Subject: Digest Footer
> >>
> >> _______________________________________________
> >> Diabetes-Talk mailing list
> >> Diabetes-Talk at nfbnet.org
> >> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>
> >>
> >> ------------------------------
> >>
> >> End of Diabetes-Talk Digest, Vol 156, Issue 9
> >> *********************************************
> >
> > _______________________________________________
> > Diabetes-Talk mailing list
> > Diabetes-Talk at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> > To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> > http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com
> >
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jdashiel%40panix.com
>

-- 
United States has 633 Billionaires with only 10 doing any annual
significant giving.



From icecreamlover76 at outlook.com  Wed Nov 11 17:32:24 2020
From: icecreamlover76 at outlook.com (Terri Stimmel)
Date: Wed, 11 Nov 2020 11:32:24 -0600
Subject: [Diabetes-Talk] Looking for recipe sites
Message-ID: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>

Hello everyone,


First of all, thank you for the responses the other day, after I posted 
my little rant. I really appreciate the support, and feedback. I do plan 
to respond back to the posts. I've just kind of felt a bit under the 
weather the last few days.


Anyway, where could I possibly go to find healthy, yet easily prepared 
meals?

Does such a site even exist?


I am wanting to try to start doing a little more cooking. I can bake, 
and use the oven. Plus, we do have a crockpot we can use. I have to 
figure out a safe way to use our stovetop. I am a little unsure of this, 
as it is one with no burners. Well at least not in the traditional sense.


I am working hard to eat better. My boyfriend suggested caseroles. I am 
fine with this. He asked about purchasing pre-made ones from the store. 
I told him that I would look into this. But I am concerned that they 
will have too many carbs. I told him that I need to start eating more 
chicken. And that we need to try to eat fish. But I've not ever 
purchased fish. I don't know the first thing about preparing it.


We've discussed possibly purchasing an air frier. But then there's 
having the space for one. Not to mention, finding one that would be 
accessible, or that could be made accessible. And also, I'm not really 
sure how safe they are.


Sorry, I got a bit off track here. I basically want to be able to find 
some recipes to start making us different meals. I think we are going to 
get tired of baked chicken, and mixed veggies pretty quickly.


Any thoughts or suggestions are much appreciated.


Thank you,


Terri



From pmaddix at comcast.net  Wed Nov 11 18:51:04 2020
From: pmaddix at comcast.net (Patricia Maddix)
Date: Wed, 11 Nov 2020 10:51:04 -0800
Subject: [Diabetes-Talk] Looking for recipe sites
In-Reply-To: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <79269268-B598-4E58-8E5A-BF0EB50A787A@comcast.net>

I have attached below a link to what are referred to as sheet pan dinners. Your protein and veggies and sometimes potatoes as well or cooked all on the same sheet pan/cookie sheet lined with either parchment or foil to make for easy cleanup and are very easy. If you don?t happen to have a particular herb or spice calledfor you can generally leave it out or substitute something you like. The only thing unhealthy about some of these recipes is they call for way too much oil. I generally put the ingredients in a bowl before putting them on the cookie sheet and tossed them with a much smaller amount of oil. For two people don?t  I use no more than about a tablespoon or tablespoon and a half of oil maximum. The recipes can be easily adjusted down to make just enough for two people. As most of these meals are generally protein and lots of veggies they are very healthy and not too high in carbs. Depending on your carbohydrate goal you can always add a healthy starch as an additional side dish or perhaps some fruit or milk.
These recipes are also higher in salt than it is really necessary especially if you are supposed to be restricting sodium. However, it is very easy just to cut down on the addition of salt as the ingredients themselves that are used are generally fresh and do not contain a lot of sodium as convenience Foods would have.
Patricia

https://www.thepioneerwoman.com/food-cooking/meals-menus/g32934608/sheet-pan-dinner-recipes/

https://www.thepioneerwoman.com/food-cooking/meals-menus/g32934608/sheet-pan-dinner-recipes/

Sent from my iPhone

>> On Nov 11, 2020, at 9:36 AM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> ?Hello everyone,
> 
> 
> First of all, thank you for the responses the other day, after I posted my little rant. I really appreciate the support, and feedback. I do plan to respond back to the posts. I've just kind of felt a bit under the weather the last few days.
> 
> 
> Anyway, where could I possibly go to find healthy, yet easily prepared meals?
> 
> Does such a site even exist?
> 
> 
> I am wanting to try to start doing a little more cooking. I can bake, and use the oven. Plus, we do have a crockpot we can use. I have to figure out a safe way to use our stovetop. I am a little unsure of this, as it is one with no burners. Well at least not in the traditional sense.
> 
> 
> I am working hard to eat better. My boyfriend suggested caseroles. I am fine with this. He asked about purchasing pre-made ones from the store. I told him that I would look into this. But I am concerned that they will have too many carbs. I told him that I need to start eating more chicken. And that we need to try to eat fish. But I've not ever purchased fish. I don't know the first thing about preparing it.
> 
> 
> We've discussed possibly purchasing an air frier. But then there's having the space for one. Not to mention, finding one that would be accessible, or that could be made accessible. And also, I'm not really sure how safe they are.
> 
> 
> Sorry, I got a bit off track here. I basically want to be able to find some recipes to start making us different meals. I think we are going to get tired of baked chicken, and mixed veggies pretty quickly.
> 
> 
> Any thoughts or suggestions are much appreciated.
> 
> 
> Thank you,
> 
> 
> Terri
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/pmaddix%40comcast.net

From kutash-jm at comcast.net  Wed Nov 11 19:01:24 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Wed, 11 Nov 2020 14:01:24 -0500
Subject: [Diabetes-Talk] Looking for recipe sites
In-Reply-To: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <000301d6b85d$0dcebc10$296c3430$@comcast.net>

Terry, Do you read Braille? I may still have a casserole book and if I do as
I am getting rid of cookbooks I no longer use we could talk about this.

I will also check in my resources as I have used some good websites for
recipes.

You can also create your own casseroles. If you like to stir-fry you can do
Chicken with vegetables, and add things like a little soy sauce, there is
low sodium, or use small amounts of barbecue sauce or worcestershire sauce. 

I will look around and email again soon.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Terri Stimmel via Diabetes-Talk
Sent: Wednesday, November 11, 2020 12:32 PM
To: diabetes-talk at nfbnet.org
Cc: Terri Stimmel
Subject: [Diabetes-Talk] Looking for recipe sites

Hello everyone,


First of all, thank you for the responses the other day, after I posted 
my little rant. I really appreciate the support, and feedback. I do plan 
to respond back to the posts. I've just kind of felt a bit under the 
weather the last few days.


Anyway, where could I possibly go to find healthy, yet easily prepared 
meals?

Does such a site even exist?


I am wanting to try to start doing a little more cooking. I can bake, 
and use the oven. Plus, we do have a crockpot we can use. I have to 
figure out a safe way to use our stovetop. I am a little unsure of this, 
as it is one with no burners. Well at least not in the traditional sense.


I am working hard to eat better. My boyfriend suggested caseroles. I am 
fine with this. He asked about purchasing pre-made ones from the store. 
I told him that I would look into this. But I am concerned that they 
will have too many carbs. I told him that I need to start eating more 
chicken. And that we need to try to eat fish. But I've not ever 
purchased fish. I don't know the first thing about preparing it.


We've discussed possibly purchasing an air frier. But then there's 
having the space for one. Not to mention, finding one that would be 
accessible, or that could be made accessible. And also, I'm not really 
sure how safe they are.


Sorry, I got a bit off track here. I basically want to be able to find 
some recipes to start making us different meals. I think we are going to 
get tired of baked chicken, and mixed veggies pretty quickly.


Any thoughts or suggestions are much appreciated.


Thank you,


Terri


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
st.net



From missktlab1217 at frontier.com  Wed Nov 11 19:56:54 2020
From: missktlab1217 at frontier.com (Lisa Belville)
Date: Wed, 11 Nov 2020 13:56:54 -0600
Subject: [Diabetes-Talk] Looking for recipe sites
In-Reply-To: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
References: <CH2PR04MB6839C0C30FA8051721466B42A8E80@CH2PR04MB6839.namprd04.prod.outlook.com>
Message-ID: <776f4468-79a5-285f-5113-7c915e4bfc3a@frontier.com>

Hi, Terri.? You can try https://www.diabetesselfmanagement.com/. There's 
some good recipes there and some interesting articles.


The other resource is a cooking list, ran by the ACB.? I'm posting it 
here because it's a well run list that has been of great help to me over 
the years.? And also because I don't think the NFB has a list 
specifically for cooking or cooking-related issues. ? The Cooking in the 
dark list covers anything from recipes and cooking techniques to gadget 
access tips.? The subject of using stoves with no burners comes up quite 
a bit.


You can subscribe and learn more here:


http://acbradio.org/mailman/listinfo/cookinginthedark


Hope this helps.


Lisa



Lisa Belville
missktlab1217 at frontier.com

On 11/11/2020 11:32 AM, Terri Stimmel via Diabetes-Talk wrote:
> Hello everyone,
>
>
> First of all, thank you for the responses the other day, after I 
> posted my little rant. I really appreciate the support, and feedback. 
> I do plan to respond back to the posts. I've just kind of felt a bit 
> under the weather the last few days.
>
>
> Anyway, where could I possibly go to find healthy, yet easily prepared 
> meals?
>
> Does such a site even exist?
>
>
> I am wanting to try to start doing a little more cooking. I can bake, 
> and use the oven. Plus, we do have a crockpot we can use. I have to 
> figure out a safe way to use our stovetop. I am a little unsure of 
> this, as it is one with no burners. Well at least not in the 
> traditional sense.
>
>
> I am working hard to eat better. My boyfriend suggested caseroles. I 
> am fine with this. He asked about purchasing pre-made ones from the 
> store. I told him that I would look into this. But I am concerned that 
> they will have too many carbs. I told him that I need to start eating 
> more chicken. And that we need to try to eat fish. But I've not ever 
> purchased fish. I don't know the first thing about preparing it.
>
>
> We've discussed possibly purchasing an air frier. But then there's 
> having the space for one. Not to mention, finding one that would be 
> accessible, or that could be made accessible. And also, I'm not really 
> sure how safe they are.
>
>
> Sorry, I got a bit off track here. I basically want to be able to find 
> some recipes to start making us different meals. I think we are going 
> to get tired of baked chicken, and mixed veggies pretty quickly.
>
>
> Any thoughts or suggestions are much appreciated.
>
>
> Thank you,
>
>
> Terri
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/missktlab1217%40frontier.com 
>


From jdashiel at panix.com  Sat Nov 14 12:56:49 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Sat, 14 Nov 2020 07:56:49 -0500
Subject: [Diabetes-Talk] onion water for blood sugar control
Message-ID: <alpine.NEB.2.23.451.2011140756170.12059@panix1.panix.com>

https://food.ndtv.com/health/world-diabetes-day-how-to-make-onion-water-to-manage-blood-sugar-2324733



-- 
United States has 633 Billionaires with only 10 doing any annual
significant giving.



From blindsticks at gmail.com  Tue Nov 17 14:53:11 2020
From: blindsticks at gmail.com (Alan Wheeler)
Date: Tue, 17 Nov 2020 06:53:11 -0800
Subject: [Diabetes-Talk] Blood sugar overnight changes.
Message-ID: <FCF0D503-FF13-40B4-AA34-A8DCE8254273@gmail.com>

I apologize if I am repeating a question I've already asked. Am I correct in understanding that it should be, basically, the norm for blood sugars to lower overnight?

If not, if they can rise overnight, what is a typical range, if there is one, for how high they would rise?

I ask because, according to my glucometer I went from 180 last night at 10 PM to 202 this morning at 6 AM. Thankfully I have an appointment with the diabetes clinic/Endocrinology clinic on Friday and can pin down some answers. In the meantime, I just wanted to double check my understanding about changes in blood sugar overnight. Thank you.

Alan



"If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad

From bkpollpeter at gmail.com  Tue Nov 17 16:24:58 2020
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 17 Nov 2020 10:24:58 -0600
Subject: [Diabetes-Talk] Blood sugar overnight changes.
In-Reply-To: <FCF0D503-FF13-40B4-AA34-A8DCE8254273@gmail.com>
References: <FCF0D503-FF13-40B4-AA34-A8DCE8254273@gmail.com>
Message-ID: <099101d6bcfe$318e9030$94abb090$@gmail.com>

Allen,

It's typically ideal for fasting BGs to be under 100. So, if they are not,
you need to speak with your doctor about changing your protocol to work on
this. If you use fast acting insulin, it might mean taking larger boluses.
If you also take long acting insulin, you might need to increase and/or
change this. Perhaps you need to change what and when you eat dinner.
There's a variety of things your doctor might want you to try. But again,
this can only be determined by you and your doctor.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan
Wheeler via Diabetes-Talk
Sent: Tuesday, November 17, 2020 8:53 AM
To: diabetes-talk at nfbnet.org
Cc: Alan Wheeler <blindsticks at gmail.com>
Subject: [Diabetes-Talk] Blood sugar overnight changes.

I apologize if I am repeating a question I've already asked. Am I correct in
understanding that it should be, basically, the norm for blood sugars to
lower overnight?

If not, if they can rise overnight, what is a typical range, if there is
one, for how high they would rise?

I ask because, according to my glucometer I went from 180 last night at 10
PM to 202 this morning at 6 AM. Thankfully I have an appointment with the
diabetes clinic/Endocrinology clinic on Friday and can pin down some
answers. In the meantime, I just wanted to double check my understanding
about changes in blood sugar overnight. Thank you.

Alan



"If you want to practice anything, practice knowing you can do whatever you
set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
il.com



From paujor at roadrunner.com  Tue Nov 17 23:55:41 2020
From: paujor at roadrunner.com (Paul JOrdan)
Date: Tue, 17 Nov 2020 18:55:41 -0500
Subject: [Diabetes-Talk] Blood sugar overnight changes.
In-Reply-To: <099101d6bcfe$318e9030$94abb090$@gmail.com>
References: <FCF0D503-FF13-40B4-AA34-A8DCE8254273@gmail.com>
 <099101d6bcfe$318e9030$94abb090$@gmail.com>
Message-ID: <056401d6bd3d$28748d30$795da790$@roadrunner.com>

Hi all. First of all, this message has nothing to do with the subject line,
but I couldn't figure out any other way to get an email to the group, so
please be patient with my lack of computer skills.

Hello all. My husband is a type 2 diabetic. He is unable to test his blood
sugar using the typical finger stick. Several people have suggested the
freestyle libra and I'm wondering if it might work for him. I know there has
been some discussion on this list in the past, but I can't seem to figure
out how to access it. Since this has been discussed in the past and in order
not to clutter the list you can email me privately at paujor at roadrunner.com.
Thanks in advance.
Paula Jordan

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, November 17, 2020 11:25 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Blood sugar overnight changes.

Allen,

It's typically ideal for fasting BGs to be under 100. So, if they are not,
you need to speak with your doctor about changing your protocol to work on
this. If you use fast acting insulin, it might mean taking larger boluses.
If you also take long acting insulin, you might need to increase and/or
change this. Perhaps you need to change what and when you eat dinner.
There's a variety of things your doctor might want you to try. But again,
this can only be determined by you and your doctor.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan
Wheeler via Diabetes-Talk
Sent: Tuesday, November 17, 2020 8:53 AM
To: diabetes-talk at nfbnet.org
Cc: Alan Wheeler <blindsticks at gmail.com>
Subject: [Diabetes-Talk] Blood sugar overnight changes.

I apologize if I am repeating a question I've already asked. Am I correct in
understanding that it should be, basically, the norm for blood sugars to
lower overnight?

If not, if they can rise overnight, what is a typical range, if there is
one, for how high they would rise?

I ask because, according to my glucometer I went from 180 last night at 10
PM to 202 this morning at 6 AM. Thankfully I have an appointment with the
diabetes clinic/Endocrinology clinic on Friday and can pin down some
answers. In the meantime, I just wanted to double check my understanding
about changes in blood sugar overnight. Thank you.

Alan



"If you want to practice anything, practice knowing you can do whatever you
set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
il.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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er.com



From gmelconian619 at gmail.com  Thu Nov 19 22:10:37 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Thu, 19 Nov 2020 14:10:37 -0800
Subject: [Diabetes-Talk] re freestyle libre 2
Message-ID: <008c01d6bec0$cf958810$6ec09830$@gmail.com>

Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
erlier , they said that their   app is waiting FDA  approval, and no idea
when that  will be out.so I then contacted my endo to have him change the
prescription back to libre 1 from libre 2 as there is no app for us blind
users to use with our Apple I OS or android devices. If any one else is
prescribed the libre2, have their doctor change to libre 1 so that they
don't end up  in the mess  ai had to  go through earlier today.   Don't  get
why they put out a product without any thought to an app.in modern times
all cgm use apps and not the readers.i know hat with the dexcom they make
you get the reader but her is an app and the app does nto change hat much
with update version of their app withehte operating system of he smart
phones dotn get why abbot could not have built all this into the freestyle
libre app and then gotten all the approvals hathey needed instead of going
through he messy process thathey arare going through giving aa new product
with a  reader but no app and your stuck out of luck . 


From kutash-jm at comcast.net  Thu Nov 19 23:48:37 2020
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Thu, 19 Nov 2020 18:48:37 -0500
Subject: [Diabetes-Talk] re freestyle libre 2
In-Reply-To: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
References: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
Message-ID: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>

Gary, that is why I haven't asked for the change. Sorry that happened to
you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Thursday, November 19, 2020 5:11 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re freestyle libre 2

Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
erlier , they said that their   app is waiting FDA  approval, and no idea
when that  will be out.so I then contacted my endo to have him change the
prescription back to libre 1 from libre 2 as there is no app for us blind
users to use with our Apple I OS or android devices. If any one else is
prescribed the libre2, have their doctor change to libre 1 so that they
don't end up  in the mess  ai had to  go through earlier today.   Don't  get
why they put out a product without any thought to an app.in modern times
all cgm use apps and not the readers.i know hat with the dexcom they make
you get the reader but her is an app and the app does nto change hat much
with update version of their app withehte operating system of he smart
phones dotn get why abbot could not have built all this into the freestyle
libre app and then gotten all the approvals hathey needed instead of going
through he messy process thathey arare going through giving aa new product
with a  reader but no app and your stuck out of luck . 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
st.net



From gmelconian619 at gmail.com  Fri Nov 20 00:48:01 2020
From: gmelconian619 at gmail.com (Gary-melconian)
Date: Thu, 19 Nov 2020 16:48:01 -0800
Subject: [Diabetes-Talk] re freestyle libre 2
In-Reply-To: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
References: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
 <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
Message-ID: <175e31f4de8.27b7.76f7706a0d51902714afda849d7cf02f@gmail.com>

I knew that this would happen I told him that what he said oh yeah the 
Apple work with libre too and I said no and I knew that so I went home I 
contacted Abbott and they'll ask them and they said no the app is still 
enough the approval with libretto side to contact them get the prescription 
change from libre to you to libre one and now I'm going to be happy for 
next year because I have I told him to set it up for a year so that way 
I'll have a universal worth of freestyle libre 1 to go with so lesson 
learned always ask and always do a lot of research a lot a lot of doctors 
don't have idea if they think everything works sometimes it works sometimes 
it doesn't work in this case we already know that it was not going to work 
so we'll just have to wait and see when libretti will be available but the 
funny thing is Leroy and libre 3 both are going to be using the same app so 
whatever habit works on in the clinical trials for laboratory it's going to 
be the same for libre too


On November 19, 2020 3:49:43 PM Jeanette Kutash via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> Gary, that is why I haven't asked for the change. Sorry that happened to
> you.
>
> Jeanette
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Thursday, November 19, 2020 5:11 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re freestyle libre 2
>
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change the
> prescription back to libre 1 from libre 2 as there is no app for us blind
> users to use with our Apple I OS or android devices. If any one else is
> prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern times
> all cgm use apps and not the readers.i know hat with the dexcom they make
> you get the reader but her is an app and the app does nto change hat much
> with update version of their app withehte operating system of he smart
> phones dotn get why abbot could not have built all this into the freestyle
> libre app and then gotten all the approvals hathey needed instead of going
> through he messy process thathey arare going through giving aa new product
> with a  reader but no app and your stuck out of luck .
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
> st.net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com

From hwmhein at gmail.com  Fri Nov 20 13:33:26 2020
From: hwmhein at gmail.com (Hope Hein)
Date: Fri, 20 Nov 2020 08:33:26 -0500
Subject: [Diabetes-Talk] Dexcom
In-Reply-To: <mailman.76.1605873602.3312.diabetes-talk_nfbnet.org@nfbnet.org>
References: <mailman.76.1605873602.3312.diabetes-talk_nfbnet.org@nfbnet.org>
Message-ID: <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>

Hi all, 
I was just prescribed Dexcom by my physician and find that it is easier to use with my Iphone then was Libre. It is also easier to put on the sensor.

Hope Hein

> On Nov 20, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. re freestyle libre 2 (gary-melconian)
>   2. Re: re freestyle libre 2 (Jeanette Kutash)
>   3. Re: re freestyle libre 2 (Gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Thu, 19 Nov 2020 14:10:37 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change the
> prescription back to libre 1 from libre 2 as there is no app for us blind
> users to use with our Apple I OS or android devices. If any one else is
> prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern times
> all cgm use apps and not the readers.i know hat with the dexcom they make
> you get the reader but her is an app and the app does nto change hat much
> with update version of their app withehte operating system of he smart
> phones dotn get why abbot could not have built all this into the freestyle
> libre app and then gotten all the approvals hathey needed instead of going
> through he messy process thathey arare going through giving aa new product
> with a  reader but no app and your stuck out of luck . 
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Thu, 19 Nov 2020 18:48:37 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Gary, that is why I haven't asked for the change. Sorry that happened to
> you.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Thursday, November 19, 2020 5:11 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re freestyle libre 2
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change the
> prescription back to libre 1 from libre 2 as there is no app for us blind
> users to use with our Apple I OS or android devices. If any one else is
> prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern times
> all cgm use apps and not the readers.i know hat with the dexcom they make
> you get the reader but her is an app and the app does nto change hat much
> with update version of their app withehte operating system of he smart
> phones dotn get why abbot could not have built all this into the freestyle
> libre app and then gotten all the approvals hathey needed instead of going
> through he messy process thathey arare going through giving aa new product
> with a  reader but no app and your stuck out of luck . 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Thu, 19 Nov 2020 16:48:01 -0800
> From: "Gary-melconian" <gmelconian619 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID:
>    <175e31f4de8.27b7.76f7706a0d51902714afda849d7cf02f at gmail.com>
> Content-Type: text/plain; format=flowed; charset="us-ascii"
> 
> I knew that this would happen I told him that what he said oh yeah the 
> Apple work with libre too and I said no and I knew that so I went home I 
> contacted Abbott and they'll ask them and they said no the app is still 
> enough the approval with libretto side to contact them get the prescription 
> change from libre to you to libre one and now I'm going to be happy for 
> next year because I have I told him to set it up for a year so that way 
> I'll have a universal worth of freestyle libre 1 to go with so lesson 
> learned always ask and always do a lot of research a lot a lot of doctors 
> don't have idea if they think everything works sometimes it works sometimes 
> it doesn't work in this case we already know that it was not going to work 
> so we'll just have to wait and see when libretti will be available but the 
> funny thing is Leroy and libre 3 both are going to be using the same app so 
> whatever habit works on in the clinical trials for laboratory it's going to 
> be the same for libre too
> 
> 
>> On November 19, 2020 3:49:43 PM Jeanette Kutash via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:
>> 
>> Gary, that is why I haven't asked for the change. Sorry that happened to
>> you.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> gary-melconian via Diabetes-Talk
>> Sent: Thursday, November 19, 2020 5:11 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: gary-melconian
>> Subject: [Diabetes-Talk] re freestyle libre 2
>> 
>> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
>> erlier , they said that their   app is waiting FDA  approval, and no idea
>> when that  will be out.so I then contacted my endo to have him change the
>> prescription back to libre 1 from libre 2 as there is no app for us blind
>> users to use with our Apple I OS or android devices. If any one else is
>> prescribed the libre2, have their doctor change to libre 1 so that they
>> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
>> why they put out a product without any thought to an app.in modern times
>> all cgm use apps and not the readers.i know hat with the dexcom they make
>> you get the reader but her is an app and the app does nto change hat much
>> with update version of their app withehte operating system of he smart
>> phones dotn get why abbot could not have built all this into the freestyle
>> libre app and then gotten all the approvals hathey needed instead of going
>> through he messy process thathey arare going through giving aa new product
>> with a  reader but no app and your stuck out of luck .
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 16
> **********************************************


From mota1252 at gmail.com  Fri Nov 20 13:57:02 2020
From: mota1252 at gmail.com (Milton)
Date: Fri, 20 Nov 2020 07:57:02 -0600
Subject: [Diabetes-Talk] Dexcom
In-Reply-To: <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>
References: <mailman.76.1605873602.3312.diabetes-talk_nfbnet.org@nfbnet.org>
 <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>
Message-ID: <000001d6bf45$0653eb60$12fbc220$@gmail.com>

Glad to hear that you like the Dexcom.I'm also a Dexcom user.


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
Sent: Friday, November 20, 2020 7:33 AM
To: diabetes-talk at nfbnet.org
Cc: Hope Hein <hwmhein at gmail.com>
Subject: [Diabetes-Talk] Dexcom

Hi all,
I was just prescribed Dexcom by my physician and find that it is easier to use with my Iphone then was Libre. It is also easier to put on the sensor.

Hope Hein

> On Nov 20, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific 
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. re freestyle libre 2 (gary-melconian)
>   2. Re: re freestyle libre 2 (Jeanette Kutash)
>   3. Re: re freestyle libre 2 (Gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Thu, 19 Nov 2020 14:10:37 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Thu, 19 Nov 2020 18:48:37 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Gary, that is why I haven't asked for the change. Sorry that happened 
> to you.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of gary-melconian via Diabetes-Talk
> Sent: Thursday, November 19, 2020 5:11 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re freestyle libre 2
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Thu, 19 Nov 2020 16:48:01 -0800
> From: "Gary-melconian" <gmelconian619 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID:
>    <175e31f4de8.27b7.76f7706a0d51902714afda849d7cf02f at gmail.com>
> Content-Type: text/plain; format=flowed; charset="us-ascii"
> 
> I knew that this would happen I told him that what he said oh yeah the 
> Apple work with libre too and I said no and I knew that so I went home 
> I contacted Abbott and they'll ask them and they said no the app is 
> still enough the approval with libretto side to contact them get the 
> prescription change from libre to you to libre one and now I'm going 
> to be happy for next year because I have I told him to set it up for a 
> year so that way I'll have a universal worth of freestyle libre 1 to 
> go with so lesson learned always ask and always do a lot of research a 
> lot a lot of doctors don't have idea if they think everything works 
> sometimes it works sometimes it doesn't work in this case we already 
> know that it was not going to work so we'll just have to wait and see 
> when libretti will be available but the funny thing is Leroy and libre 
> 3 both are going to be using the same app so whatever habit works on 
> in the clinical trials for laboratory it's going to be the same for 
> libre too
> 
> 
>> On November 19, 2020 3:49:43 PM Jeanette Kutash via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:
>> 
>> Gary, that is why I haven't asked for the change. Sorry that happened 
>> to you.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of gary-melconian via Diabetes-Talk
>> Sent: Thursday, November 19, 2020 5:11 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: gary-melconian
>> Subject: [Diabetes-Talk] re freestyle libre 2
>> 
>> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
>> erlier , they said that their   app is waiting FDA  approval, and no idea
>> when that  will be out.so I then contacted my endo to have him change 
>> the prescription back to libre 1 from libre 2 as there is no app for 
>> us blind users to use with our Apple I OS or android devices. If any 
>> one else is prescribed the libre2, have their doctor change to libre 1 so that they
>> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
>> why they put out a product without any thought to an app.in modern 
>> times all cgm use apps and not the readers.i know hat with the dexcom 
>> they make you get the reader but her is an app and the app does nto 
>> change hat much with update version of their app withehte operating 
>> system of he smart phones dotn get why abbot could not have built all 
>> this into the freestyle libre app and then gotten all the approvals 
>> hathey needed instead of going through he messy process thathey arare 
>> going through giving aa new product with a  reader but no app and your stuck out of luck .
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>> 40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian
>> 619%40gmail.com
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 16
> **********************************************

_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com



From gmelconian619 at gmail.com  Fri Nov 20 17:06:20 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Fri, 20 Nov 2020 09:06:20 -0800
Subject: [Diabetes-Talk] Dexcom
In-Reply-To: <000001d6bf45$0653eb60$12fbc220$@gmail.com>
References: <mailman.76.1605873602.3312.diabetes-talk_nfbnet.org@nfbnet.org>
 <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>
 <000001d6bf45$0653eb60$12fbc220$@gmail.com>
Message-ID: <007301d6bf5f$7830a2e0$6891e8a0$@gmail.com>

I would like to  have the  dexcom but my insurance will not bother to cover it and refuses to do and has just given me the abbot freestyle libre for the time being, that?s better   then not having a cgm at all .when the cost of dexcom  is as close  to  abbot then my insurance provider will cover it.its all about cost and not about benefit to the user of the diabetic supplies but what the insurance is considering as cost savings over health savings. 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Milton via Diabetes-Talk
Sent: Friday, November 20, 2020 5:57 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Milton <mota1252 at gmail.com>
Subject: Re: [Diabetes-Talk] Dexcom

Glad to hear that you like the Dexcom.I'm also a Dexcom user.


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
Sent: Friday, November 20, 2020 7:33 AM
To: diabetes-talk at nfbnet.org
Cc: Hope Hein <hwmhein at gmail.com>
Subject: [Diabetes-Talk] Dexcom

Hi all,
I was just prescribed Dexcom by my physician and find that it is easier to use with my Iphone then was Libre. It is also easier to put on the sensor.

Hope Hein

> On Nov 20, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific 
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. re freestyle libre 2 (gary-melconian)
>   2. Re: re freestyle libre 2 (Jeanette Kutash)
>   3. Re: re freestyle libre 2 (Gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Thu, 19 Nov 2020 14:10:37 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Thu, 19 Nov 2020 18:48:37 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Gary, that is why I haven't asked for the change. Sorry that happened 
> to you.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of gary-melconian via Diabetes-Talk
> Sent: Thursday, November 19, 2020 5:11 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re freestyle libre 2
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Thu, 19 Nov 2020 16:48:01 -0800
> From: "Gary-melconian" <gmelconian619 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID:
>    <175e31f4de8.27b7.76f7706a0d51902714afda849d7cf02f at gmail.com>
> Content-Type: text/plain; format=flowed; charset="us-ascii"
> 
> I knew that this would happen I told him that what he said oh yeah the 
> Apple work with libre too and I said no and I knew that so I went home 
> I contacted Abbott and they'll ask them and they said no the app is 
> still enough the approval with libretto side to contact them get the 
> prescription change from libre to you to libre one and now I'm going 
> to be happy for next year because I have I told him to set it up for a 
> year so that way I'll have a universal worth of freestyle libre 1 to 
> go with so lesson learned always ask and always do a lot of research a 
> lot a lot of doctors don't have idea if they think everything works 
> sometimes it works sometimes it doesn't work in this case we already 
> know that it was not going to work so we'll just have to wait and see 
> when libretti will be available but the funny thing is Leroy and libre
> 3 both are going to be using the same app so whatever habit works on 
> in the clinical trials for laboratory it's going to be the same for 
> libre too
> 
> 
>> On November 19, 2020 3:49:43 PM Jeanette Kutash via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:
>> 
>> Gary, that is why I haven't asked for the change. Sorry that happened 
>> to you.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of gary-melconian via Diabetes-Talk
>> Sent: Thursday, November 19, 2020 5:11 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: gary-melconian
>> Subject: [Diabetes-Talk] re freestyle libre 2
>> 
>> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
>> erlier , they said that their   app is waiting FDA  approval, and no idea
>> when that  will be out.so I then contacted my endo to have him change 
>> the prescription back to libre 1 from libre 2 as there is no app for 
>> us blind users to use with our Apple I OS or android devices. If any 
>> one else is prescribed the libre2, have their doctor change to libre 1 so that they
>> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
>> why they put out a product without any thought to an app.in modern 
>> times all cgm use apps and not the readers.i know hat with the dexcom 
>> they make you get the reader but her is an app and the app does nto 
>> change hat much with update version of their app withehte operating 
>> system of he smart phones dotn get why abbot could not have built all 
>> this into the freestyle libre app and then gotten all the approvals 
>> hathey needed instead of going through he messy process thathey arare 
>> going through giving aa new product with a  reader but no app and your stuck out of luck .
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>> 40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian
>> 619%40gmail.com
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 16
> **********************************************

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mota1252%40gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com



From gmelconian619 at gmail.com  Fri Nov 20 17:07:35 2020
From: gmelconian619 at gmail.com (gary-melconian)
Date: Fri, 20 Nov 2020 09:07:35 -0800
Subject: [Diabetes-Talk] Dexcom
In-Reply-To: <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>
References: <mailman.76.1605873602.3312.diabetes-talk_nfbnet.org@nfbnet.org>
 <073184B6-D6A7-4652-B24E-1A5B50472013@gmail.com>
Message-ID: <007401d6bf5f$a50bf170$ef23d450$@gmail.com>

They both work as long a you can figure iit out. The next gen libre libre 3 will be the same as the   dexcom g6 based on what i was told by my endo yesterday.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Hope Hein via Diabetes-Talk
Sent: Friday, November 20, 2020 5:33 AM
To: diabetes-talk at nfbnet.org
Cc: Hope Hein <hwmhein at gmail.com>
Subject: [Diabetes-Talk] Dexcom

Hi all,
I was just prescribed Dexcom by my physician and find that it is easier to use with my Iphone then was Libre. It is also easier to put on the sensor.

Hope Hein

> On Nov 20, 2020, at 7:00 AM, diabetes-talk-request at nfbnet.org wrote:
> 
> ?Send Diabetes-Talk mailing list submissions to
>    diabetes-talk at nfbnet.org
> 
> To subscribe or unsubscribe via the World Wide Web, visit
>    http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
>    diabetes-talk-request at nfbnet.org
> 
> You can reach the person managing the list at
>    diabetes-talk-owner at nfbnet.org
> 
> When replying, please edit your Subject line so it is more specific 
> than "Re: Contents of Diabetes-Talk digest..."
> 
> 
> Today's Topics:
> 
>   1. re freestyle libre 2 (gary-melconian)
>   2. Re: re freestyle libre 2 (Jeanette Kutash)
>   3. Re: re freestyle libre 2 (Gary-melconian)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Thu, 19 Nov 2020 14:10:37 -0800
> From: "gary-melconian" <gmelconian619 at gmail.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <008c01d6bec0$cf958810$6ec09830$@gmail.com>
> Content-Type: text/plain;    charset="US-ASCII"
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Thu, 19 Nov 2020 18:48:37 -0500
> From: "Jeanette Kutash" <kutash-jm at comcast.net>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID: <009b01d6bece$80a2ed70$81e8c850$@comcast.net>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Gary, that is why I haven't asked for the change. Sorry that happened 
> to you.
> 
> Jeanette
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of gary-melconian via Diabetes-Talk
> Sent: Thursday, November 19, 2020 5:11 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re freestyle libre 2
> 
> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
> erlier , they said that their   app is waiting FDA  approval, and no idea
> when that  will be out.so I then contacted my endo to have him change 
> the prescription back to libre 1 from libre 2 as there is no app for 
> us blind users to use with our Apple I OS or android devices. If any 
> one else is prescribed the libre2, have their doctor change to libre 1 so that they
> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
> why they put out a product without any thought to an app.in modern 
> times all cgm use apps and not the readers.i know hat with the dexcom 
> they make you get the reader but her is an app and the app does nto 
> change hat much with update version of their app withehte operating 
> system of he smart phones dotn get why abbot could not have built all 
> this into the freestyle libre app and then gotten all the approvals 
> hathey needed instead of going through he messy process thathey arare 
> going through giving aa new product with a  reader but no app and your stuck out of luck .
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comca
> st.net
> 
> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Thu, 19 Nov 2020 16:48:01 -0800
> From: "Gary-melconian" <gmelconian619 at gmail.com>
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Subject: Re: [Diabetes-Talk] re freestyle libre 2
> Message-ID:
>    <175e31f4de8.27b7.76f7706a0d51902714afda849d7cf02f at gmail.com>
> Content-Type: text/plain; format=flowed; charset="us-ascii"
> 
> I knew that this would happen I told him that what he said oh yeah the 
> Apple work with libre too and I said no and I knew that so I went home 
> I contacted Abbott and they'll ask them and they said no the app is 
> still enough the approval with libretto side to contact them get the 
> prescription change from libre to you to libre one and now I'm going 
> to be happy for next year because I have I told him to set it up for a 
> year so that way I'll have a universal worth of freestyle libre 1 to 
> go with so lesson learned always ask and always do a lot of research a 
> lot a lot of doctors don't have idea if they think everything works 
> sometimes it works sometimes it doesn't work in this case we already 
> know that it was not going to work so we'll just have to wait and see 
> when libretti will be available but the funny thing is Leroy and libre 
> 3 both are going to be using the same app so whatever habit works on 
> in the clinical trials for laboratory it's going to be the same for 
> libre too
> 
> 
>> On November 19, 2020 3:49:43 PM Jeanette Kutash via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:
>> 
>> Gary, that is why I haven't asked for the change. Sorry that happened 
>> to you.
>> 
>> Jeanette
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of gary-melconian via Diabetes-Talk
>> Sent: Thursday, November 19, 2020 5:11 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: gary-melconian
>> Subject: [Diabetes-Talk] re freestyle libre 2
>> 
>> Hello I was  just prescribed the freestyle libre 2. When I contactted Abbot
>> erlier , they said that their   app is waiting FDA  approval, and no idea
>> when that  will be out.so I then contacted my endo to have him change 
>> the prescription back to libre 1 from libre 2 as there is no app for 
>> us blind users to use with our Apple I OS or android devices. If any 
>> one else is prescribed the libre2, have their doctor change to libre 1 so that they
>> don't end up  in the mess  ai had to  go through earlier today.   Don't  get
>> why they put out a product without any thought to an app.in modern 
>> times all cgm use apps and not the readers.i know hat with the dexcom 
>> they make you get the reader but her is an app and the app does nto 
>> change hat much with update version of their app withehte operating 
>> system of he smart phones dotn get why abbot could not have built all 
>> this into the freestyle libre app and then gotten all the approvals 
>> hathey needed instead of going through he messy process thathey arare 
>> going through giving aa new product with a  reader but no app and your stuck out of luck .
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%
>> 40comca
>> st.net
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian
>> 619%40gmail.com
> 
> 
> ------------------------------
> 
> Subject: Digest Footer
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> 
> 
> ------------------------------
> 
> End of Diabetes-Talk Digest, Vol 156, Issue 16
> **********************************************

_______________________________________________
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From blindsticks at gmail.com  Fri Nov 20 21:43:05 2020
From: blindsticks at gmail.com (Alan Wheeler)
Date: Fri, 20 Nov 2020 13:43:05 -0800
Subject: [Diabetes-Talk] An update on me.
Message-ID: <2AA25A5E-55DA-40AA-A9EF-00E6F7694AB9@gmail.com>

Hi everyone,

Well, after visiting the diabetes clinic, I am back on glipocide (sp?) which I used to take. I stopped it when they put me on the doxycycline for the infection in my left arm. 
I had to do some trouble shooting on my glucometer after comparing a blood sugar reading from it to one from the meter at the clinic. My meters reading was much lower, but after calling Prodigy and troubleshooting, we found my meter is accurate. I also learned it is best to compare the reading to my A1C instead of a different glucometer. My a1C is 7, as I stated before, and I got a 154 reading from my meter, and a 308 from their meter. Needless to say that would indicate an 11 A1C, and I don't think I've shot that high since October 28th.

So, we'll see what happens when I am back on the second diabetes drug. That's where things stand for now. One more thing, the doctor I met with at the clinic is taking a long shot and trying to acquire a Freestyle Libre for me. We both know it probably won't happen. Unlike certain presidents, however, I can accept the outcome. Har har.
Alan


P.s: to remind folks I am type 2, that why I am not saying anything about insulin.

"If you want to practice anything, practice knowing you can do whatever you set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad

From mcap at fastmail.com  Fri Nov 20 21:51:27 2020
From: mcap at fastmail.com (Mike Capelle)
Date: Fri, 20 Nov 2020 15:51:27 -0600
Subject: [Diabetes-Talk] An update on me.
In-Reply-To: <2AA25A5E-55DA-40AA-A9EF-00E6F7694AB9@gmail.com>
References: <2AA25A5E-55DA-40AA-A9EF-00E6F7694AB9@gmail.com>
Message-ID: <003501d6bf87$4d48dfc0$e7da9f40$@fastmail.com>

You will love the lebre style meter, it is very accurate.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Alan
Wheeler via Diabetes-Talk
Sent: Friday, November 20, 2020 3:43 PM
To: diabetes-talk at nfbnet.org
Cc: Alan Wheeler <blindsticks at gmail.com>
Subject: [Diabetes-Talk] An update on me.

Hi everyone,

Well, after visiting the diabetes clinic, I am back on glipocide (sp?) which
I used to take. I stopped it when they put me on the doxycycline for the
infection in my left arm. 
I had to do some trouble shooting on my glucometer after comparing a blood
sugar reading from it to one from the meter at the clinic. My meters reading
was much lower, but after calling Prodigy and troubleshooting, we found my
meter is accurate. I also learned it is best to compare the reading to my
A1C instead of a different glucometer. My a1C is 7, as I stated before, and
I got a 154 reading from my meter, and a 308 from their meter. Needless to
say that would indicate an 11 A1C, and I don't think I've shot that high
since October 28th.

So, we'll see what happens when I am back on the second diabetes drug.
That's where things stand for now. One more thing, the doctor I met with at
the clinic is taking a long shot and trying to acquire a Freestyle Libre for
me. We both know it probably won't happen. Unlike certain presidents,
however, I can accept the outcome. Har har.
Alan


P.s: to remind folks I am type 2, that why I am not saying anything about
insulin.

"If you want to practice anything, practice knowing you can do whatever you
set your complete mind to." Victor Wooten "The Music Lesson"

My blog: http://doingitdeeper.blogspot.com/

Sent from my iPad
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/mcap%40fastmail.c
om



From jdashiel at panix.com  Mon Nov 23 02:14:18 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Sun, 22 Nov 2020 21:14:18 -0500
Subject: [Diabetes-Talk] [blind-gamers] its time for NVDA Con 2020. (fwd)
Message-ID: <alpine.NEB.2.23.451.2011222114080.14973@panix1.panix.com>



-- 

United States has 633 Billionaires with only 10 doing any annual
significant giving.


---------- Forwarded message ----------
Date: Sun, 22 Nov 2020 20:58:05
From: Austin Pinto <austinpinto.xaviers at gmail.com>
Reply-To: blind-gamers at groups.io
To: blind-gamers at groups.io
Subject: [blind-gamers] its time for NVDA Con 2020.

Dear NVDA users, software developers, and accessibility enthusiasts
around the world!

I am Austin Pinto, one of the members of the NVDACon international
planning Committee. NVDA (Nonvisual Desktop Access) is a free and open
source screen reader that allows blind people around the world access
to technology at no greater cost than their sighted peers. You can
find out more about NVDA at http://www.nvaccess.org.

The NVDA conference started out in 2014 so that users of the screen
reader could connect and talk to other screen reader users.  Every
year, we host a conference on NVDA, with topics to be presented by the
NVDA community.

We are currently planning for hour 7th NVDACon for   the NVDA
community. This conference will be held in December 4to6 2020. Some of
our presenters for this conference include NV Access and more,
We are excited for NVDACon 2020, and we hope you are excited too! The
  website is
nvdacon.org, and you can follow us on twitter   @NVDACon We are also
on Facebook. just do a search for NVDACon.
Thank you
Austin Pinto


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View/Reply Online (#123000): https://groups.io/g/blind-gamers/message/123000
Mute This Topic: https://groups.io/mt/78444958/11102
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Unsubscribe: https://groups.io/g/blind-gamers/leave/4267083/685646766/xyzzy [jdashiel at panix.com]
-=-=-=-=-=-=-=-=-=-=-=-




From bernienfb75 at gmail.com  Mon Nov 23 03:34:40 2020
From: bernienfb75 at gmail.com (Bernadette Jacobs)
Date: Sun, 22 Nov 2020 22:34:40 -0500
Subject: [Diabetes-Talk] [blind-gamers] its time for NVDA Con 2020. (fwd)
In-Reply-To: <alpine.NEB.2.23.451.2011222114080.14973@panix1.panix.com>
References: <alpine.NEB.2.23.451.2011222114080.14973@panix1.panix.com>
Message-ID: <1A53965F-CA25-4EEC-A25A-8D45B94979DC@gmail.com>

Off topic.

Sent from my iPhone

> On Nov 22, 2020, at 9:15 PM, Jude DaShiell via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> ?
> 
> -- 
> 
> United States has 633 Billionaires with only 10 doing any annual
> significant giving.
> 
> 
> ---------- Forwarded message ----------
> Date: Sun, 22 Nov 2020 20:58:05
> From: Austin Pinto <austinpinto.xaviers at gmail.com>
> Reply-To: blind-gamers at groups.io
> To: blind-gamers at groups.io
> Subject: [blind-gamers] its time for NVDA Con 2020.
> 
> Dear NVDA users, software developers, and accessibility enthusiasts
> around the world!
> 
> I am Austin Pinto, one of the members of the NVDACon international
> planning Committee. NVDA (Nonvisual Desktop Access) is a free and open
> source screen reader that allows blind people around the world access
> to technology at no greater cost than their sighted peers. You can
> find out more about NVDA at http://www.nvaccess.org.
> 
> The NVDA conference started out in 2014 so that users of the screen
> reader could connect and talk to other screen reader users.  Every
> year, we host a conference on NVDA, with topics to be presented by the
> NVDA community.
> 
> We are currently planning for hour 7th NVDACon for   the NVDA
> community. This conference will be held in December 4to6 2020. Some of
> our presenters for this conference include NV Access and more,
> We are excited for NVDACon 2020, and we hope you are excited too! The
>  website is
> nvdacon.org, and you can follow us on twitter   @NVDACon We are also
> on Facebook. just do a search for NVDACon.
> Thank you
> Austin Pinto
> 
> 
> -=-=-=-=-=-=-=-=-=-=-=-
> Groups.io Links: You receive all messages sent to this group.
> View/Reply Online (#123000): https://groups.io/g/blind-gamers/message/123000
> Mute This Topic: https://groups.io/mt/78444958/11102
> Group Owner: blind-gamers+owner at groups.io
> Unsubscribe: https://groups.io/g/blind-gamers/leave/4267083/685646766/xyzzy [jdashiel at panix.com]
> -=-=-=-=-=-=-=-=-=-=-=-
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com


From joystigile at gmail.com  Wed Nov 25 01:11:06 2020
From: joystigile at gmail.com (joystigile at gmail.com)
Date: Tue, 24 Nov 2020 17:11:06 -0800
Subject: [Diabetes-Talk] Diabetes Action Network of California meeting,
 Dec. 1 at 7:30 p.m.
Message-ID: <003901d6c2c7$da47d730$8ed78590$@gmail.com>

Hello Fellow Federationists,

 

The Diabetes Action Network of California will be having their first
educational meeting outside of convention!  It will be through Zoom on
Tuesday December 1, 2020 at 7:30 p.m.PST.  Our first presenter will be Diane
Alford a Licensed Vocational Nurse (LVN).  MS Alford has a keen interest in
Diabetes and will speak for 30 minutes with lots of time afterward for
questions.

 

Below you will find the zoom information for this meeting.  All are Welcome!


 

Topic: Diabetes Action Network of California

Date:  Tuesday December 1, 2020

Time: 07:30 PM Pacific Time (US and Canada)

 

Join Zoom Meeting

https://us02web.zoom.us/j/82122371592?pwd=SE56S1dmRkdFV0Z4QTdMVlQ1MkNQQT09

 

Meeting ID: 821 2237 1592

Passcode: 416128

One tap mobile

+16699009128,,82122371592#,,,,,,0#,,416128# US (San Jose)

 

Dial by your location

        +1 669 900 9128 US (San Jose)

 

Warmly, Joy Stigile

President Diabetes Action Network of California 

joystigile at gmail.com <mailto:joystigile at gmail.com> 

C:  818.510.2353

 


From joystigile at gmail.com  Sat Nov 28 21:28:37 2020
From: joystigile at gmail.com (joystigile at gmail.com)
Date: Sat, 28 Nov 2020 13:28:37 -0800
Subject: [Diabetes-Talk] Diabetes Action Network Pampered Chef fundraising
 party December 5
Message-ID: <00fd01d6c5cd$6f437df0$4dca79d0$@gmail.com>

You are invited to a Zoom Pampered Chef Fundraising Party to benefit the
Diabetes action Network of the National Federation of the Blind.  

Join us for a party! We're going to learn new recipes and cooking tips,
shop, and spend time together! 

This unique event will be in the comfort of your own home on Saturday,
December 5, at 3 p.m. Eastern.

Dial in and find out what is new from Pampered Chef with the assistance of
Consultant Marcine Campbell who will walk us through most of the new
products for this season.  The Division will receive 15%of the cost of each
item you order (excluding shipping and tax) from Pampered Chef.  Your order
will be shipped directly to your door.

If your order is $80 or more you will receive a free gift and if your order
is $150 or more you will have free shipping excluding shipping and tax).from
Pampered Chef.  Your order will be shipped directly to your door. 

To browse her website ahead of time or place your order early, use this link

Click here to learn more: https://www.pamperedchef.com/party/joystigile1205

The show will stay open until Friday, December 11, 2020.

You won't want to miss it! 

(If you are unable to order at this time book a party with Marcine Campbell
by December 11, and the Diabetes Action Network will receive $10.)

Topic: Diabetes Action Network Pampered chef Fundraising party

Time: Dec 5, 2020 12:00 PM Pacific, 3 p.m. eastern (US and Canada) 

Join Zoom Meeting

https://us02web.zoom.us/j/85993343856?pwd=VW1HdHFqcHJDUFY3MnJtVldEWS9mQT09 

Meeting ID: 859 9334 3856

Passcode: 448306

One tap mobile 

+16699006833,,85993343856# US (San Jose) 12532158782,,85993343856# US 

+(Tacoma)

 

Dial by your location 

        +1 669 900 6833 US (San Jose) 

        +1 253 215 8782 US (Tacoma) 

        +1 346 248 7799 US (Houston) 

        +1 301 715 8592 US (Washington D.C) 

        +1 312 626 6799 US (Chicago) 

        +1 929 205 6099 US (New York)

Meeting ID: 859 9334 3856

Find your local number: https://us02web.zoom.us/u/kcSrOovba6 

 

Warmly, Joy Stigile

Treasurer Diabetes Action Network

 


From chad.mnelson.1971 at gmail.com  Mon Nov 30 00:18:21 2020
From: chad.mnelson.1971 at gmail.com (Chad Nelson)
Date: Sun, 29 Nov 2020 18:18:21 -0600
Subject: [Diabetes-Talk] Accessible websites and recipes
Message-ID: <ABCCCA71-5DDE-4537-B1DE-604B9AC82611@gmail.com>



Sent from my US cellular iPhone SE. hi everyone, hope y?all had a good Thanksgiving. Just had a question for the list. Does anyone have any good suggestions of websites to go to that have healthy, diabetic friendly recipes are simple and easy without any of this fancy stuff? Every website I try to find recipes it?s totally in accessible with voiceover and I can?t get anywhere. I was purchasing an Jennie Craig but I can?t afford that for too long so I?m looking for things like that but that aren?t as expensive. Any help is greatly appreciated. Chad

From jdashiel at panix.com  Mon Nov 30 00:51:03 2020
From: jdashiel at panix.com (Jude DaShiell)
Date: Sun, 29 Nov 2020 19:51:03 -0500
Subject: [Diabetes-Talk] Accessible websites and recipes
In-Reply-To: <ABCCCA71-5DDE-4537-B1DE-604B9AC82611@gmail.com>
References: <ABCCCA71-5DDE-4537-B1DE-604B9AC82611@gmail.com>
Message-ID: <alpine.NEB.2.23.451.2011291942470.13404@panix1.panix.com>

Do you know how to interact with controls on web pages yet?  That skill
can open up content that couldn't be accessed before.
It is true Apple for a long time hadn't updated webkit version for
Safari and if they haven't done so yet probably even interacting with
controls on web pages won't help.
It was a long time ago I used a Mac Mini, I think it was
command-option-enter to interact once positioned on a control.  I
started with Tiger then went to Leopard then Snow Leopard but my
computer got struck by lightning while an attempt was made by a
certified Apple Technician to upgrade the computer to Mountain Lion.
Unfortunately the computer had earlier chips in it than we knew and we
found out later Apple had sold me one of their discontinued models 4
months after that model got discontinued.  Now that's all water under
the bridge.

On Sun, 29 Nov 2020, Chad Nelson via Diabetes-Talk wrote:

> Date: Sun, 29 Nov 2020 19:18:21
> From: Chad Nelson via Diabetes-Talk <diabetes-talk at nfbnet.org>
> To: diabetes-talk at nfbnet.org
> Cc: Chad Nelson <chad.mnelson.1971 at gmail.com>
> Subject: [Diabetes-Talk] Accessible websites and recipes
>
>
>
> Sent from my US cellular iPhone SE. hi everyone, hope y?all had a good Thanksgiving. Just had a question for the list. Does anyone have any good suggestions of websites to go to that have healthy, diabetic friendly recipes are simple and easy without any of this fancy stuff? Every website I try to find recipes it?s totally in accessible with voiceover and I can?t get anywhere. I was purchasing an Jennie Craig but I can?t afford that for too long so I?m looking for things like that but that aren?t as expensive. Any help is greatly appreciated. Chad
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jdashiel%40panix.com
>

-- 


