From magills at bigpond.com  Sat Jun  1 11:04:08 2019
From: magills at bigpond.com (Paul Magill)
Date: Sat, 1 Jun 2019 21:04:08 +1000
Subject: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
 and a question...
Message-ID: <003301d51869$bc910130$35b30390$@bigpond.com>

Hi all,

Yesterday I replaced the sensor on my G5 for the first time, and apart from
removing the adhesive backing, all went well.

It took a very long time for me to get those backing tabs off, but its worth
the hassel, and I expect it will get easier over time.

I spoke to the company rep, who it turns out also uses the G5 himself, and
he said that when he next changes his sensor, he will do it with his eyes
closed, and see if he can come up with a method that might help.

I changed the warning and alert sounds, to be better able to hear them
without my hearing aids, and am becoming more familiar with the app, so
things are looking up.

Thanks again for all the advice,   
Paul from Australia.

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk

I found it helpful to pull the backing off at a slight angle. In this
regard, oh the G6 is so much easier. Here's what I do with these split tabs.
I find the first one and fold it back just a small amount. This makes it
easier to find without creaming the sticky part. After you fold the first
one back and crease it a bit, find the second little tab. You need to pull
it back and just slightly away from the other half of the backing paper.
Hope that made sense. Then you put your hand on the remaining paper and find
that little folded tab. Again, pull down and slightly way from the sticky
half. That will give you the best shot at not messing up the tape. And if
you do mess it up for awhile, welcome to the club. When I first started with
the G5, everyone just kept saying, oh no problem. I thought I was the only
idiot on the list because I really struggled not to end up with wrinkled
tape. So don't be too hard on yourself for awhile and watch for the G6. It
will make your day. <grin> And please keep us posted. You're not doing this
alone.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Friday, May 24, 2019 7:34 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...

In my experience, you just pull the tab and it comes right off. On the side,
there are tabs that stick up or stick out. The tab is split, one for each
side. With your finger tips, hold onto one tab and pull away from the sticky
part. When done with the first one, grab the remaining tab and pull away. It
helps me to keep my thumb and pointer finger holding the sticky sensor down
on each side to keep it sticking together. Once the tabs are removed,
immediately place on your body where you want to insert it. Hope this helps
and makes sense.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Tamera
via Diabetes-Talk
Sent: Friday, May 24, 2019 9:22 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Tamera <fidano at comcast.net>
Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...

It is the trickiest part to it all!
I really can only offer, time and patience and let Dexcom know if one gets
too messed up to use, hopefully they will send you a replacement.
I try to find one of the tabs, around the center of the pad, and carefully
feel where it comes off easily and then go for the other.
Again, deep breaths and it should be easier as it goes!
	Tamera

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul
Magill via Diabetes-Talk
Sent: Friday, May 24, 2019 5:11 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Paul Magill <magills at bigpond.com>
Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a question...

Hi all,

 

Celabrations! 

 

Today a representative from the company that markets the Dexcom G5 in
Australia, came to my place and patiently stepped me through applying it and
setting it up.

 

So far, the only real issue I have, is pealing off the adhesive backing
tabs.  On my first attempt, my fingers also grabbed the adhesive patch, and
it tore.  

 

The second time I was more aware of how careful I needed to be, but found it
quite difficult to pull off the backing without damaging the actual adhesive
patch.  I think my fingers may not be as sensitive as they should be.

 

Can anyone please offer any suggestions on how to make this a bit easier?

 

With appreciation,

Paul from Australia

 

 

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
net


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
il.com


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
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Diabetes-Talk:
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.com




From taylor9209 at gmail.com  Sat Jun  1 16:47:04 2019
From: taylor9209 at gmail.com (Taylor Scott)
Date: Sat, 1 Jun 2019 11:47:04 -0500
Subject: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
 and a question...
In-Reply-To: <003301d51869$bc910130$35b30390$@bigpond.com>
References: <003301d51869$bc910130$35b30390$@bigpond.com>
Message-ID: <CAE5LqVyvD9_xfuk8ia6hrb7yiDhogHnmyHzWHTrqfLAbmd+j2g@mail.gmail.com>

Glad things are going good for you Paul!

I'm waiting for my G5 to be shipped, so I've been reading others
experiences like yours to see what I might be in for. lol


On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> Hi all,
>
> Yesterday I replaced the sensor on my G5 for the first time, and apart from
> removing the adhesive backing, all went well.
>
> It took a very long time for me to get those backing tabs off, but its
> worth
> the hassel, and I expect it will get easier over time.
>
> I spoke to the company rep, who it turns out also uses the G5 himself, and
> he said that when he next changes his sensor, he will do it with his eyes
> closed, and see if he can come up with a method that might help.
>
> I changed the warning and alert sounds, to be better able to hear them
> without my hearing aids, and am becoming more familiar with the app, so
> things are looking up.
>
> Thanks again for all the advice,
> Paul from Australia.
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
>
> I found it helpful to pull the backing off at a slight angle. In this
> regard, oh the G6 is so much easier. Here's what I do with these split
> tabs.
> I find the first one and fold it back just a small amount. This makes it
> easier to find without creaming the sticky part. After you fold the first
> one back and crease it a bit, find the second little tab. You need to pull
> it back and just slightly away from the other half of the backing paper.
> Hope that made sense. Then you put your hand on the remaining paper and
> find
> that little folded tab. Again, pull down and slightly way from the sticky
> half. That will give you the best shot at not messing up the tape. And if
> you do mess it up for awhile, welcome to the club. When I first started
> with
> the G5, everyone just kept saying, oh no problem. I thought I was the only
> idiot on the list because I really struggled not to end up with wrinkled
> tape. So don't be too hard on yourself for awhile and watch for the G6. It
> will make your day. <grin> And please keep us posted. You're not doing this
> alone.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
> on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...
>
> In my experience, you just pull the tab and it comes right off. On the
> side,
> there are tabs that stick up or stick out. The tab is split, one for each
> side. With your finger tips, hold onto one tab and pull away from the
> sticky
> part. When done with the first one, grab the remaining tab and pull away.
> It
> helps me to keep my thumb and pointer finger holding the sticky sensor down
> on each side to keep it sticking together. Once the tabs are removed,
> immediately place on your body where you want to insert it. Hope this helps
> and makes sense.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Tamera
> via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...
>
> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one gets
> too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and carefully
> feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
> 	Tamera
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul
> Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a question...
>
> Hi all,
>
>
>
> Celabrations!
>
>
>
> Today a representative from the company that markets the Dexcom G5 in
> Australia, came to my place and patiently stepped me through applying it
> and
> setting it up.
>
>
>
> So far, the only real issue I have, is pealing off the adhesive backing
> tabs.  On my first attempt, my fingers also grabbed the adhesive patch, and
> it tore.
>
>
>
> The second time I was more aware of how careful I needed to be, but found
> it
> quite difficult to pull off the backing without damaging the actual
> adhesive
> patch.  I think my fingers may not be as sensitive as they should be.
>
>
>
> Can anyone please offer any suggestions on how to make this a bit easier?
>
>
>
> With appreciation,
>
> Paul from Australia
>
>
>
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/taylor9209%40gmail.com
>



From veronica at laurelcreekmusic.com  Sat Jun  1 18:16:03 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Sat, 1 Jun 2019 11:16:03 -0700
Subject: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
 and a question...
In-Reply-To: <CAE5LqVyvD9_xfuk8ia6hrb7yiDhogHnmyHzWHTrqfLAbmd+j2g@mail.gmail.com>
References: <003301d51869$bc910130$35b30390$@bigpond.com>
	<CAE5LqVyvD9_xfuk8ia6hrb7yiDhogHnmyHzWHTrqfLAbmd+j2g@mail.gmail.com>
Message-ID: <005d01d518a6$12aca600$3805f200$@laurelcreekmusic.com>

Hi Paul. Glad things are settling in just a bit. Again. Fold the end tabs
back a bit before just grabbing and pulling. And remember not to pull
straight back on the tab. It really wants a slight angle that goes away from
the other half of the backing or sticky area. Wish I could sit beside you
and show you. <grin>
On the G6 sensors, you do pull straight back on the tabs, but not the G5's.
Hang in there and keep at it. 
I remember this phase. I cried almost every time for the first month and a
half. <sniff.
Thanks for the update. Keep 'em coming.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Saturday, June 01, 2019 9:47 AM
To: Diabetes Talk for the Blind
Cc: Taylor Scott
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Glad things are going good for you Paul!

I'm waiting for my G5 to be shipped, so I've been reading others
experiences like yours to see what I might be in for. lol


On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> Hi all,
>
> Yesterday I replaced the sensor on my G5 for the first time, and apart
from
> removing the adhesive backing, all went well.
>
> It took a very long time for me to get those backing tabs off, but its
> worth
> the hassel, and I expect it will get easier over time.
>
> I spoke to the company rep, who it turns out also uses the G5 himself, and
> he said that when he next changes his sensor, he will do it with his eyes
> closed, and see if he can come up with a method that might help.
>
> I changed the warning and alert sounds, to be better able to hear them
> without my hearing aids, and am becoming more familiar with the app, so
> things are looking up.
>
> Thanks again for all the advice,
> Paul from Australia.
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
>
> I found it helpful to pull the backing off at a slight angle. In this
> regard, oh the G6 is so much easier. Here's what I do with these split
> tabs.
> I find the first one and fold it back just a small amount. This makes it
> easier to find without creaming the sticky part. After you fold the first
> one back and crease it a bit, find the second little tab. You need to pull
> it back and just slightly away from the other half of the backing paper.
> Hope that made sense. Then you put your hand on the remaining paper and
> find
> that little folded tab. Again, pull down and slightly way from the sticky
> half. That will give you the best shot at not messing up the tape. And if
> you do mess it up for awhile, welcome to the club. When I first started
> with
> the G5, everyone just kept saying, oh no problem. I thought I was the only
> idiot on the list because I really struggled not to end up with wrinkled
> tape. So don't be too hard on yourself for awhile and watch for the G6. It
> will make your day. <grin> And please keep us posted. You're not doing
this
> alone.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
> on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...
>
> In my experience, you just pull the tab and it comes right off. On the
> side,
> there are tabs that stick up or stick out. The tab is split, one for each
> side. With your finger tips, hold onto one tab and pull away from the
> sticky
> part. When done with the first one, grab the remaining tab and pull away.
> It
> helps me to keep my thumb and pointer finger holding the sticky sensor
down
> on each side to keep it sticking together. Once the tabs are removed,
> immediately place on your body where you want to insert it. Hope this
helps
> and makes sense.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Tamera
> via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...
>
> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one gets
> too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and carefully
> feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
> 	Tamera
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul
> Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...
>
> Hi all,
>
>
>
> Celabrations!
>
>
>
> Today a representative from the company that markets the Dexcom G5 in
> Australia, came to my place and patiently stepped me through applying it
> and
> setting it up.
>
>
>
> So far, the only real issue I have, is pealing off the adhesive backing
> tabs.  On my first attempt, my fingers also grabbed the adhesive patch,
and
> it tore.
>
>
>
> The second time I was more aware of how careful I needed to be, but found
> it
> quite difficult to pull off the backing without damaging the actual
> adhesive
> patch.  I think my fingers may not be as sensitive as they should be.
>
>
>
> Can anyone please offer any suggestions on how to make this a bit easier?
>
>
>
> With appreciation,
>
> Paul from Australia
>
>
>
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/taylor9209%40gmai
l.com
>

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From jamielgurganus at gmail.com  Sat Jun  1 19:05:51 2019
From: jamielgurganus at gmail.com (jamielgurganus at gmail.com)
Date: Sat, 1 Jun 2019 14:05:51 -0500
Subject: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
 and a question...
In-Reply-To: <005d01d518a6$12aca600$3805f200$@laurelcreekmusic.com>
References: <003301d51869$bc910130$35b30390$@bigpond.com>	<CAE5LqVyvD9_xfuk8ia6hrb7yiDhogHnmyHzWHTrqfLAbmd+j2g@mail.gmail.com>
	<005d01d518a6$12aca600$3805f200$@laurelcreekmusic.com>
Message-ID: <030d01d518ad$080a28b0$181e7a10$@gmail.com>

I agree with Veronica that the angle is the key.  Pulling straight down
pulls the sensor out from the inserter device.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Saturday, June 1, 2019 1:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Hi Paul. Glad things are settling in just a bit. Again. Fold the end tabs
back a bit before just grabbing and pulling. And remember not to pull
straight back on the tab. It really wants a slight angle that goes away from
the other half of the backing or sticky area. Wish I could sit beside you
and show you. <grin> On the G6 sensors, you do pull straight back on the
tabs, but not the G5's.
Hang in there and keep at it. 
I remember this phase. I cried almost every time for the first month and a
half. <sniff.
Thanks for the update. Keep 'em coming.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Saturday, June 01, 2019 9:47 AM
To: Diabetes Talk for the Blind
Cc: Taylor Scott
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Glad things are going good for you Paul!

I'm waiting for my G5 to be shipped, so I've been reading others experiences
like yours to see what I might be in for. lol


On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> Hi all,
>
> Yesterday I replaced the sensor on my G5 for the first time, and apart
from
> removing the adhesive backing, all went well.
>
> It took a very long time for me to get those backing tabs off, but its 
> worth the hassel, and I expect it will get easier over time.
>
> I spoke to the company rep, who it turns out also uses the G5 himself, 
> and he said that when he next changes his sensor, he will do it with 
> his eyes closed, and see if he can come up with a method that might help.
>
> I changed the warning and alert sounds, to be better able to hear them 
> without my hearing aids, and am becoming more familiar with the app, 
> so things are looking up.
>
> Thanks again for all the advice,
> Paul from Australia.
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
>
> I found it helpful to pull the backing off at a slight angle. In this 
> regard, oh the G6 is so much easier. Here's what I do with these split 
> tabs.
> I find the first one and fold it back just a small amount. This makes 
> it easier to find without creaming the sticky part. After you fold the 
> first one back and crease it a bit, find the second little tab. You 
> need to pull it back and just slightly away from the other half of the
backing paper.
> Hope that made sense. Then you put your hand on the remaining paper 
> and find that little folded tab. Again, pull down and slightly way 
> from the sticky half. That will give you the best shot at not messing 
> up the tape. And if you do mess it up for awhile, welcome to the club. 
> When I first started with the G5, everyone just kept saying, oh no 
> problem. I thought I was the only idiot on the list because I really 
> struggled not to end up with wrinkled tape. So don't be too hard on 
> yourself for awhile and watch for the G6. It will make your day. 
> <grin> And please keep us posted. You're not doing
this
> alone.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the 
> Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> In my experience, you just pull the tab and it comes right off. On the 
> side, there are tabs that stick up or stick out. The tab is split, one 
> for each side. With your finger tips, hold onto one tab and pull away 
> from the sticky part. When done with the first one, grab the remaining 
> tab and pull away.
> It
> helps me to keep my thumb and pointer finger holding the sticky sensor
down
> on each side to keep it sticking together. Once the tabs are removed, 
> immediately place on your body where you want to insert it. Hope this
helps
> and makes sense.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Tamera via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one 
> gets too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and 
> carefully feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
> 	Tamera
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Paul Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...
>
> Hi all,
>
>
>
> Celabrations!
>
>
>
> Today a representative from the company that markets the Dexcom G5 in 
> Australia, came to my place and patiently stepped me through applying 
> it and setting it up.
>
>
>
> So far, the only real issue I have, is pealing off the adhesive 
> backing tabs.  On my first attempt, my fingers also grabbed the 
> adhesive patch,
and
> it tore.
>
>
>
> The second time I was more aware of how careful I needed to be, but 
> found it quite difficult to pull off the backing without damaging the 
> actual adhesive patch.  I think my fingers may not be as sensitive as 
> they should be.
>
>
>
> Can anyone please offer any suggestions on how to make this a bit easier?
>
>
>
> With appreciation,
>
> Paul from Australia
>
>
>
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/taylor9209%40gmai
l.com
>

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
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gmail.com




From dmgina at mysero.net  Sun Jun  2 02:39:20 2019
From: dmgina at mysero.net (d m gina)
Date: Sat, 01 Jun 2019 22:39:20 -0400
Subject: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
 and a question...
Message-ID: <28541ed2.420e.491a.a689.8d65b22589cb@samobile.net>

Glad it is getting better for you.
Keep up the good work.

Original message:
> Hi all,

> Yesterday I replaced the sensor on my G5 for the first time, and apart from
> removing the adhesive backing, all went well.

> It took a very long time for me to get those backing tabs off, but its worth
> the hassel, and I expect it will get easier over time.

> I spoke to the company rep, who it turns out also uses the G5 himself, and
> he said that when he next changes his sensor, he will do it with his eyes
> closed, and see if he can come up with a method that might help.

> I changed the warning and alert sounds, to be better able to hear them
> without my hearing aids, and am becoming more familiar with the app, so
> things are looking up.

> Thanks again for all the advice,
> Paul from Australia.

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk

> I found it helpful to pull the backing off at a slight angle. In this
> regard, oh the G6 is so much easier. Here's what I do with these split tabs.
> I find the first one and fold it back just a small amount. This makes it
> easier to find without creaming the sticky part. After you fold the first
> one back and crease it a bit, find the second little tab. You need to pull
> it back and just slightly away from the other half of the backing paper.
> Hope that made sense. Then you put your hand on the remaining paper and find
> that little folded tab. Again, pull down and slightly way from the sticky
> half. That will give you the best shot at not messing up the tape. And if
> you do mess it up for awhile, welcome to the club. When I first started with
> the G5, everyone just kept saying, oh no problem. I thought I was the only
> idiot on the list because I really struggled not to end up with wrinkled
> tape. So don't be too hard on yourself for awhile and watch for the G6. It
> will make your day. <grin> And please keep us posted. You're not doing this
> alone.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> ????????????????Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407


> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...

> In my experience, you just pull the tab and it comes right off. On the side,
> there are tabs that stick up or stick out. The tab is split, one for each
> side. With your finger tips, hold onto one tab and pull away from the sticky
> part. When done with the first one, grab the remaining tab and pull away. It
> helps me to keep my thumb and pointer finger holding the sticky sensor down
> on each side to keep it sticking together. Once the tabs are removed,
> immediately place on your body where you want to insert it. Hope this helps
> and makes sense.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Tamera
> via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...

> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one gets
> too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and carefully
> feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
>         Tamera

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul
> Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a question...

> Hi all,



> Celabrations!



> Today a representative from the company that markets the Dexcom G5 in
> Australia, came to my place and patiently stepped me through applying it and
> setting it up.



> So far, the only real issue I have, is pealing off the adhesive backing
> tabs.  On my first attempt, my fingers also grabbed the adhesive patch, and
> it tore.



> The second time I was more aware of how careful I needed to be, but found it
> quite difficult to pull off the backing without damaging the actual adhesive
> patch.  I think my fingers may not be as sensitive as they should be.



> Can anyone please offer any suggestions on how to make this a bit easier?



> With appreciation,

> Paul from Australia





> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future



From angela.mperone at optimum.net  Sun Jun  2 15:23:00 2019
From: angela.mperone at optimum.net (angela.mperone at optimum.net)
Date: Sun, 2 Jun 2019 11:23:00 -0400
Subject: [Diabetes-Talk] dex com 6
Message-ID: <002501d51957$10ad4e20$3207ea60$@optimum.net>

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 



From bkpollpeter at gmail.com  Sun Jun  2 16:08:45 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Sun, 2 Jun 2019 11:08:45 -0500
Subject: [Diabetes-Talk] dex com 6
In-Reply-To: <002501d51957$10ad4e20$3207ea60$@optimum.net>
References: <002501d51957$10ad4e20$3207ea60$@optimum.net>
Message-ID: <038b01d5195d$74cf4010$5e6dc030$@gmail.com>

You need to ask your endo to write a script, and they will start the
process. Unless you plan to pay out of pocket, but your doctor can still
help you with all the info.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com




From jamielgurganus at gmail.com  Sun Jun  2 17:19:59 2019
From: jamielgurganus at gmail.com (jamielgurganus at gmail.com)
Date: Sun, 2 Jun 2019 12:19:59 -0500
Subject: [Diabetes-Talk] dex com 6
In-Reply-To: <002501d51957$10ad4e20$3207ea60$@optimum.net>
References: <002501d51957$10ad4e20$3207ea60$@optimum.net>
Message-ID: <03c301d51967$68a55810$39f00830$@gmail.com>

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com




From joystigile at gmail.com  Mon Jun  3 03:48:42 2019
From: joystigile at gmail.com (Joy Stigile)
Date: Sun, 2 Jun 2019 20:48:42 -0700
Subject: [Diabetes-Talk] dex com 6
In-Reply-To: <03c301d51967$68a55810$39f00830$@gmail.com>
References: <002501d51957$10ad4e20$3207ea60$@optimum.net>
	<03c301d51967$68a55810$39f00830$@gmail.com>
Message-ID: <004701d519bf$3d3db5c0$b7b92140$@gmail.com>

Hi,
I have another phone number for Dexcom:
877-dex-com4 or
877-339-2664
Warmly, Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jamie Gurganus via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:20 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] dex com 6

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com


_______________________________________________
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To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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l.com




From dianefilipe at comcast.net  Mon Jun  3 13:34:35 2019
From: dianefilipe at comcast.net (dianefilipe at comcast.net)
Date: Mon, 3 Jun 2019 07:34:35 -0600
Subject: [Diabetes-Talk] dex com 6
In-Reply-To: <002501d51957$10ad4e20$3207ea60$@optimum.net>
References: <002501d51957$10ad4e20$3207ea60$@optimum.net>
Message-ID: <3136F27E-B76C-4254-AEAC-48E5A020E121@comcast.net>

Have you tried DEXCOM?
Diane

Sent from my iPhone

> On Jun 2, 2019, at 9:23 AM, angela.mperone--- via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Does anyone have a phone number of a company where I can order a dex com 6?
> Angela Perone 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40comcast.net




From veronica at laurelcreekmusic.com  Mon Jun  3 16:11:23 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 3 Jun 2019 09:11:23 -0700
Subject: [Diabetes-Talk] dex com 6
In-Reply-To: <3136F27E-B76C-4254-AEAC-48E5A020E121@comcast.net>
References: <002501d51957$10ad4e20$3207ea60$@optimum.net>
	<3136F27E-B76C-4254-AEAC-48E5A020E121@comcast.net>
Message-ID: <006401d51a26$fd40cee0$f7c26ca0$@laurelcreekmusic.com>

Hi everyone.
I'm beginning to think that one could hit any random digits on the phone and
get Dexcom, they have so many phone numbers now. <laughing!> 
But I always use the 877 number that Joy gave because that's where I
started. But I agree with those who suggested you start by calling because
they'll get all the necessary paper work to your doctor. Good luck.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Diane via Diabetes-Talk
Sent: Monday, June 03, 2019 6:35 AM
To: Diabetes Talk for the Blind
Cc: dianefilipe at comcast.net
Subject: Re: [Diabetes-Talk] dex com 6

Have you tried DEXCOM?
Diane

Sent from my iPhone

> On Jun 2, 2019, at 9:23 AM, angela.mperone--- via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
> 
> Does anyone have a phone number of a company where I can order a dex com
6?
> Angela Perone 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dianefilipe%40com
cast.net


_______________________________________________
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To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From percygarrett at sw.rr.com  Mon Jun  3 22:24:55 2019
From: percygarrett at sw.rr.com (percygarrett at sw.rr.com)
Date: Mon, 3 Jun 2019 17:24:55 -0500
Subject: [Diabetes-Talk] Diabetes-Talk Digest, Vol 139, Issue 3
In-Reply-To: <mailman.25.1559563205.31149.diabetes-talk_nfbnet.org@nfbnet.org>
References: <mailman.25.1559563205.31149.diabetes-talk_nfbnet.org@nfbnet.org>
Message-ID: <009b01d51a5b$2da19d10$88e4d730$@sw.rr.com>

Thanks, this is a very good question! Here is a phone# to Dexcom:
858-366-4996. Hopes this helps.
Percy Garrett

Bible Talk

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
diabetes-talk-request at nfbnet.org
Sent: Monday, June 3, 2019 7:00 AM
To: diabetes-talk at nfbnet.org
Subject: Diabetes-Talk Digest, Vol 139, Issue 3

Send Diabetes-Talk mailing list submissions to
	diabetes-talk at nfbnet.org

To subscribe or unsubscribe via the World Wide Web, visit
	http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
or, via email, send a message with subject or body 'help' to
	diabetes-talk-request at nfbnet.org

You can reach the person managing the list at
	diabetes-talk-owner at nfbnet.org

When replying, please edit your Subject line so it is more specific than
"Re: Contents of Diabetes-Talk digest..."


Today's Topics:

   1. dex com 6 (angela.mperone at optimum.net)
   2. Re: dex com 6 (Bridgit Kuenning-Pollpeter)
   3. Re: dex com 6 (jamielgurganus at gmail.com)
   4. Re: dex com 6 (Joy Stigile)


----------------------------------------------------------------------

Message: 1
Date: Sun, 2 Jun 2019 11:23:00 -0400
From: <angela.mperone at optimum.net>
To: "diabetes talk" <diabetes-talk at nfbnet.org>
Subject: [Diabetes-Talk] dex com 6
Message-ID: <002501d51957$10ad4e20$3207ea60$@optimum.net>
Content-Type: text/plain;	charset="us-ascii"

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 



------------------------------

Message: 2
Date: Sun, 2 Jun 2019 11:08:45 -0500
From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <038b01d5195d$74cf4010$5e6dc030$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

You need to ask your endo to write a script, and they will start the
process. Unless you plan to pay out of pocket, but your doctor can still
help you with all the info.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com




------------------------------

Message: 3
Date: Sun, 2 Jun 2019 12:19:59 -0500
From: <jamielgurganus at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <03c301d51967$68a55810$39f00830$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com




------------------------------

Message: 4
Date: Sun, 2 Jun 2019 20:48:42 -0700
From: "Joy Stigile" <joystigile at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <004701d519bf$3d3db5c0$b7b92140$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

Hi,
I have another phone number for Dexcom:
877-dex-com4 or
877-339-2664
Warmly, Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jamie Gurganus via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:20 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] dex com 6

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmai
l.com




------------------------------

Subject: Digest Footer

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org


------------------------------

End of Diabetes-Talk Digest, Vol 139, Issue 3
*********************************************




From joystigile at gmail.com  Mon Jun  3 22:39:05 2019
From: joystigile at gmail.com (Joy Stigile)
Date: Mon, 3 Jun 2019 15:39:05 -0700
Subject: [Diabetes-Talk] Diabetes-Talk Digest, Vol 139, Issue 3
In-Reply-To: <009b01d51a5b$2da19d10$88e4d730$@sw.rr.com>
References: <mailman.25.1559563205.31149.diabetes-talk_nfbnet.org@nfbnet.org>
	<009b01d51a5b$2da19d10$88e4d730$@sw.rr.com>
Message-ID: <002d01d51a5d$274212e0$75c638a0$@gmail.com>

Hi Percy,
This number is not a valid number for Dexcom!  I just called it because I
have free long distance calling.  
Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Percy Garrett via Diabetes-Talk
Sent: Monday, June 3, 2019 3:25 PM
To: diabetes-talk at nfbnet.org
Cc: percygarrett at sw.rr.com
Subject: Re: [Diabetes-Talk] Diabetes-Talk Digest, Vol 139, Issue 3

Thanks, this is a very good question! Here is a phone# to Dexcom:
858-366-4996. Hopes this helps.
Percy Garrett

Bible Talk

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
diabetes-talk-request at nfbnet.org
Sent: Monday, June 3, 2019 7:00 AM
To: diabetes-talk at nfbnet.org
Subject: Diabetes-Talk Digest, Vol 139, Issue 3

Send Diabetes-Talk mailing list submissions to
	diabetes-talk at nfbnet.org

To subscribe or unsubscribe via the World Wide Web, visit
	http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
or, via email, send a message with subject or body 'help' to
	diabetes-talk-request at nfbnet.org

You can reach the person managing the list at
	diabetes-talk-owner at nfbnet.org

When replying, please edit your Subject line so it is more specific than
"Re: Contents of Diabetes-Talk digest..."


Today's Topics:

   1. dex com 6 (angela.mperone at optimum.net)
   2. Re: dex com 6 (Bridgit Kuenning-Pollpeter)
   3. Re: dex com 6 (jamielgurganus at gmail.com)
   4. Re: dex com 6 (Joy Stigile)


----------------------------------------------------------------------

Message: 1
Date: Sun, 2 Jun 2019 11:23:00 -0400
From: <angela.mperone at optimum.net>
To: "diabetes talk" <diabetes-talk at nfbnet.org>
Subject: [Diabetes-Talk] dex com 6
Message-ID: <002501d51957$10ad4e20$3207ea60$@optimum.net>
Content-Type: text/plain;	charset="us-ascii"

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 



------------------------------

Message: 2
Date: Sun, 2 Jun 2019 11:08:45 -0500
From: "Bridgit Kuenning-Pollpeter" <bkpollpeter at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <038b01d5195d$74cf4010$5e6dc030$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

You need to ask your endo to write a script, and they will start the
process. Unless you plan to pay out of pocket, but your doctor can still
help you with all the info.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com




------------------------------

Message: 3
Date: Sun, 2 Jun 2019 12:19:59 -0500
From: <jamielgurganus at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <03c301d51967$68a55810$39f00830$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com




------------------------------

Message: 4
Date: Sun, 2 Jun 2019 20:48:42 -0700
From: "Joy Stigile" <joystigile at gmail.com>
To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
Subject: Re: [Diabetes-Talk] dex com 6
Message-ID: <004701d519bf$3d3db5c0$b7b92140$@gmail.com>
Content-Type: text/plain;	charset="us-ascii"

Hi,
I have another phone number for Dexcom:
877-dex-com4 or
877-339-2664
Warmly, Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jamie Gurganus via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:20 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] dex com 6

Hi Angela!  You can contact Dexcom directly at 1-855-339-2664.  They can
assist you with everything including verifying your insurance benefits.  I
believe you still need a doctor's prescription regardless if you pay out of
pocket or through insurance.  If they don't take your insurance, they will
have names of other places that you can call.  Only technical services is
available now, so you will have to call tomorrow to talk with someone in
sales.

				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
angela.mperone--- via Diabetes-Talk
Sent: Sunday, June 2, 2019 10:23 AM
To: diabetes talk <diabetes-talk at nfbnet.org>
Cc: angela.mperone at optimum.net
Subject: [Diabetes-Talk] dex com 6

Does anyone have a phone number of a company where I can order a dex com 6?
Angela Perone 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40
gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmai
l.com




------------------------------

Subject: Digest Footer

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org


------------------------------

End of Diabetes-Talk Digest, Vol 139, Issue 3
*********************************************


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmai
l.com




From jamielgurganus at gmail.com  Sat Jun  8 00:23:34 2019
From: jamielgurganus at gmail.com (Jamie Gurganus)
Date: Fri, 7 Jun 2019 19:23:34 -0500
Subject: [Diabetes-Talk] Reading G6 code
Message-ID: <892B200F-51B6-4E93-BDD0-4CB04F622ED5@gmail.com>

Hi everyone! Michael Barber asked us a few months ago how to read the sensor code with our phone. I struggled getting it to read each time, but would eventually get the code. I was changing my sensor tonight, and my son walked in the room. He said that I was holding the package the wrong way. It is so simple for the camera to read the code now. You need to hold the package with the flat part facing up and the cardboard part that peels off facing to the right. Hold the camera over the flat part, and it instantly reads the code.

 I was trying to read the code with the flat part being horizontal when it needs to be vertical!

    Jamie

Sent from my iPhone


From bkpollpeter at gmail.com  Sat Jun  8 01:18:52 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Fri, 7 Jun 2019 20:18:52 -0500
Subject: [Diabetes-Talk] Reading G6 code
In-Reply-To: <892B200F-51B6-4E93-BDD0-4CB04F622ED5@gmail.com>
References: <892B200F-51B6-4E93-BDD0-4CB04F622ED5@gmail.com>
Message-ID: <08c401d51d98$22c10fd0$68432f70$@gmail.com>

Great info, thanks for sharing.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Jamie
Gurganus via Diabetes-Talk
Sent: Friday, June 7, 2019 7:24 PM
To: diabetes-talk at nfbnet.org
Cc: Jamie Gurganus <jamielgurganus at gmail.com>
Subject: [Diabetes-Talk] Reading G6 code

Hi everyone! Michael Barber asked us a few months ago how to read the sensor
code with our phone. I struggled getting it to read each time, but would
eventually get the code. I was changing my sensor tonight, and my son walked
in the room. He said that I was holding the package the wrong way. It is so
simple for the camera to read the code now. You need to hold the package
with the flat part facing up and the cardboard part that peels off facing to
the right. Hold the camera over the flat part, and it instantly reads the
code.

 I was trying to read the code with the flat part being horizontal when it
needs to be vertical!

    Jamie

Sent from my iPhone
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com




From magills at bigpond.com  Sat Jun  8 06:46:38 2019
From: magills at bigpond.com (Paul Magill)
Date: Sat, 8 Jun 2019 16:46:38 +1000
Subject: [Diabetes-Talk] Query, and further to using my new Dexcom G5
Message-ID: <001401d51dc5$ec50f8b0$c4f2ea10$@bigpond.com>

Hi all,

Yesterday I made my second sensor change, and surprise, it all went quite
well

I actually managed to get hold of the little tabs and peal them back without
too much bother.

I think that it must have been a fluke, when it was previously just so much
hassel.  Perhaps the tabs were not so tightly stuck down on that one.

Smile! I was so surprised that I spent a little while going around it
checking if I had torn it, or something else.

Thank you all so much for the help and support!

Warm regards,
Paul from Australia.




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk
Sent: Sunday, 2 June 2019 4:16 AM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Hi Paul. Glad things are settling in just a bit. Again. Fold the end tabs
back a bit before just grabbing and pulling. And remember not to pull
straight back on the tab. It really wants a slight angle that goes away from
the other half of the backing or sticky area. Wish I could sit beside you
and show you. <grin> On the G6 sensors, you do pull straight back on the
tabs, but not the G5's.
Hang in there and keep at it. 
I remember this phase. I cried almost every time for the first month and a
half. <sniff.
Thanks for the update. Keep 'em coming.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Saturday, June 01, 2019 9:47 AM
To: Diabetes Talk for the Blind
Cc: Taylor Scott
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Glad things are going good for you Paul!

I'm waiting for my G5 to be shipped, so I've been reading others experiences
like yours to see what I might be in for. lol


On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> Hi all,
>
> Yesterday I replaced the sensor on my G5 for the first time, and apart
from
> removing the adhesive backing, all went well.
>
> It took a very long time for me to get those backing tabs off, but its 
> worth the hassel, and I expect it will get easier over time.
>
> I spoke to the company rep, who it turns out also uses the G5 himself, 
> and he said that when he next changes his sensor, he will do it with 
> his eyes closed, and see if he can come up with a method that might help.
>
> I changed the warning and alert sounds, to be better able to hear them 
> without my hearing aids, and am becoming more familiar with the app, 
> so things are looking up.
>
> Thanks again for all the advice,
> Paul from Australia.
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
>
> I found it helpful to pull the backing off at a slight angle. In this 
> regard, oh the G6 is so much easier. Here's what I do with these split 
> tabs.
> I find the first one and fold it back just a small amount. This makes 
> it easier to find without creaming the sticky part. After you fold the 
> first one back and crease it a bit, find the second little tab. You 
> need to pull it back and just slightly away from the other half of the
backing paper.
> Hope that made sense. Then you put your hand on the remaining paper 
> and find that little folded tab. Again, pull down and slightly way 
> from the sticky half. That will give you the best shot at not messing 
> up the tape. And if you do mess it up for awhile, welcome to the club. 
> When I first started with the G5, everyone just kept saying, oh no 
> problem. I thought I was the only idiot on the list because I really 
> struggled not to end up with wrinkled tape. So don't be too hard on 
> yourself for awhile and watch for the G6. It will make your day. 
> <grin> And please keep us posted. You're not doing
this
> alone.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the 
> Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> In my experience, you just pull the tab and it comes right off. On the 
> side, there are tabs that stick up or stick out. The tab is split, one 
> for each side. With your finger tips, hold onto one tab and pull away 
> from the sticky part. When done with the first one, grab the remaining 
> tab and pull away.
> It
> helps me to keep my thumb and pointer finger holding the sticky sensor
down
> on each side to keep it sticking together. Once the tabs are removed, 
> immediately place on your body where you want to insert it. Hope this
helps
> and makes sense.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Tamera via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one 
> gets too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and 
> carefully feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
> 	Tamera
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Paul Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...
>
> Hi all,
>
>
>
> Celabrations!
>
>
>
> Today a representative from the company that markets the Dexcom G5 in 
> Australia, came to my place and patiently stepped me through applying 
> it and setting it up.
>
>
>
> So far, the only real issue I have, is pealing off the adhesive 
> backing tabs.  On my first attempt, my fingers also grabbed the 
> adhesive patch,
and
> it tore.
>
>
>
> The second time I was more aware of how careful I needed to be, but 
> found it quite difficult to pull off the backing without damaging the 
> actual adhesive patch.  I think my fingers may not be as sensitive as 
> they should be.
>
>
>
> Can anyone please offer any suggestions on how to make this a bit easier?
>
>
>
> With appreciation,
>
> Paul from Australia
>
>
>
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/taylor9209%40gmai
l.com
>

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To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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creekmusic.com


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.com




From veronica at laurelcreekmusic.com  Sat Jun  8 16:26:38 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Sat, 8 Jun 2019 09:26:38 -0700
Subject: [Diabetes-Talk] Reading G6 code
In-Reply-To: <892B200F-51B6-4E93-BDD0-4CB04F622ED5@gmail.com>
References: <892B200F-51B6-4E93-BDD0-4CB04F622ED5@gmail.com>
Message-ID: <003c01d51e16$f2aa79b0$d7ff6d10$@laurelcreekmusic.com>

This kind of depends on how you hold your phone as well. The way I hold it
allows me to have my phone on the table so I'm not trying to hold it still,
given how fussy Seeing AI can get. I'm not completely sure I understood your
description, but I think we're doing similar things, just changing how we
hold the phone, which means having the package at a different angle.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jamie Gurganus via Diabetes-Talk
Sent: Friday, June 07, 2019 5:24 PM
To: diabetes-talk at nfbnet.org
Cc: Jamie Gurganus
Subject: [Diabetes-Talk] Reading G6 code

Hi everyone! Michael Barber asked us a few months ago how to read the sensor
code with our phone. I struggled getting it to read each time, but would
eventually get the code. I was changing my sensor tonight, and my son walked
in the room. He said that I was holding the package the wrong way. It is so
simple for the camera to read the code now. You need to hold the package
with the flat part facing up and the cardboard part that peels off facing to
the right. Hold the camera over the flat part, and it instantly reads the
code.

 I was trying to read the code with the flat part being horizontal when it
needs to be vertical!

    Jamie

Sent from my iPhone
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creekmusic.com




From fidano at comcast.net  Sun Jun  9 04:37:38 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Sat, 8 Jun 2019 21:37:38 -0700
Subject: [Diabetes-Talk] Query, and further to using my new Dexcom G5
In-Reply-To: <001401d51dc5$ec50f8b0$c4f2ea10$@bigpond.com>
References: <001401d51dc5$ec50f8b0$c4f2ea10$@bigpond.com>
Message-ID: <001501d51e7d$119413c0$34bc3b40$@comcast.net>

Yahoo! Just takes perseverance and getting a feel for it!
	Tamera

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Paul
Magill via Diabetes-Talk
Sent: Friday, June 7, 2019 11:47 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Paul Magill <magills at bigpond.com>
Subject: Re: [Diabetes-Talk] Query, and further to using my new Dexcom G5

Hi all,

Yesterday I made my second sensor change, and surprise, it all went quite
well

I actually managed to get hold of the little tabs and peal them back without
too much bother.

I think that it must have been a fluke, when it was previously just so much
hassel.  Perhaps the tabs were not so tightly stuck down on that one.

Smile! I was so surprised that I spent a little while going around it
checking if I had torn it, or something else.

Thank you all so much for the help and support!

Warm regards,
Paul from Australia.




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk
Sent: Sunday, 2 June 2019 4:16 AM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Hi Paul. Glad things are settling in just a bit. Again. Fold the end tabs
back a bit before just grabbing and pulling. And remember not to pull
straight back on the tab. It really wants a slight angle that goes away from
the other half of the backing or sticky area. Wish I could sit beside you
and show you. <grin> On the G6 sensors, you do pull straight back on the
tabs, but not the G5's.
Hang in there and keep at it. 
I remember this phase. I cried almost every time for the first month and a
half. <sniff.
Thanks for the update. Keep 'em coming.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Saturday, June 01, 2019 9:47 AM
To: Diabetes Talk for the Blind
Cc: Taylor Scott
Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
and a question...

Glad things are going good for you Paul!

I'm waiting for my G5 to be shipped, so I've been reading others experiences
like yours to see what I might be in for. lol


On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> Hi all,
>
> Yesterday I replaced the sensor on my G5 for the first time, and apart
from
> removing the adhesive backing, all went well.
>
> It took a very long time for me to get those backing tabs off, but its 
> worth the hassel, and I expect it will get easier over time.
>
> I spoke to the company rep, who it turns out also uses the G5 himself, 
> and he said that when he next changes his sensor, he will do it with 
> his eyes closed, and see if he can come up with a method that might help.
>
> I changed the warning and alert sounds, to be better able to hear them 
> without my hearing aids, and am becoming more familiar with the app, 
> so things are looking up.
>
> Thanks again for all the advice,
> Paul from Australia.
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
>
> I found it helpful to pull the backing off at a slight angle. In this 
> regard, oh the G6 is so much easier. Here's what I do with these split 
> tabs.
> I find the first one and fold it back just a small amount. This makes 
> it easier to find without creaming the sticky part. After you fold the 
> first one back and crease it a bit, find the second little tab. You 
> need to pull it back and just slightly away from the other half of the
backing paper.
> Hope that made sense. Then you put your hand on the remaining paper 
> and find that little folded tab. Again, pull down and slightly way 
> from the sticky half. That will give you the best shot at not messing 
> up the tape. And if you do mess it up for awhile, welcome to the club.
> When I first started with the G5, everyone just kept saying, oh no 
> problem. I thought I was the only idiot on the list because I really 
> struggled not to end up with wrinkled tape. So don't be too hard on 
> yourself for awhile and watch for the G6. It will make your day.
> <grin> And please keep us posted. You're not doing
this
> alone.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the 
> Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, May 24, 2019 7:34 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> In my experience, you just pull the tab and it comes right off. On the 
> side, there are tabs that stick up or stick out. The tab is split, one 
> for each side. With your finger tips, hold onto one tab and pull away 
> from the sticky part. When done with the first one, grab the remaining 
> tab and pull away.
> It
> helps me to keep my thumb and pointer finger holding the sticky sensor
down
> on each side to keep it sticking together. Once the tabs are removed, 
> immediately place on your body where you want to insert it. Hope this
helps
> and makes sense.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Tamera via Diabetes-Talk
> Sent: Friday, May 24, 2019 9:22 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Tamera <fidano at comcast.net>
> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
> question...
>
> It is the trickiest part to it all!
> I really can only offer, time and patience and let Dexcom know if one 
> gets too messed up to use, hopefully they will send you a replacement.
> I try to find one of the tabs, around the center of the pad, and 
> carefully feel where it comes off easily and then go for the other.
> Again, deep breaths and it should be easier as it goes!
> 	Tamera
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Paul Magill via Diabetes-Talk
> Sent: Friday, May 24, 2019 5:11 AM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Paul Magill <magills at bigpond.com>
> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a
question...
>
> Hi all,
>
>
>
> Celabrations!
>
>
>
> Today a representative from the company that markets the Dexcom G5 in 
> Australia, came to my place and patiently stepped me through applying 
> it and setting it up.
>
>
>
> So far, the only real issue I have, is pealing off the adhesive 
> backing tabs.  On my first attempt, my fingers also grabbed the 
> adhesive patch,
and
> it tore.
>
>
>
> The second time I was more aware of how careful I needed to be, but 
> found it quite difficult to pull off the backing without damaging the 
> actual adhesive patch.  I think my fingers may not be as sensitive as 
> they should be.
>
>
>
> Can anyone please offer any suggestions on how to make this a bit easier?
>
>
>
> With appreciation,
>
> Paul from Australia
>
>
>
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/magills%40bigpond
> .com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/taylor9209%40gmai
l.com
>

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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creekmusic.com


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net




From bernienfb75 at gmail.com  Tue Jun 11 13:44:48 2019
From: bernienfb75 at gmail.com (Bernadette Jacobs)
Date: Tue, 11 Jun 2019 09:44:48 -0400
Subject: [Diabetes-Talk] Query, and further to using my new Dexcom G5
In-Reply-To: <001401d51dc5$ec50f8b0$c4f2ea10$@bigpond.com>
References: <001401d51dc5$ec50f8b0$c4f2ea10$@bigpond.com>
Message-ID: <E5B6BEA0-8D00-41EA-8977-4CB98DA4499F@gmail.com>

I actually think part of this is that this all becomes easier each time you complete the task, as in anything, you become more familiar with all the steps in the completion of that task and you?re more familiar with all the parts with which you are working.  Ya know gthe old saying, ?Practice makes perfect??  

Sent from my iPhone

> On Jun 8, 2019, at 2:46 AM, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi all,
> 
> Yesterday I made my second sensor change, and surprise, it all went quite
> well
> 
> I actually managed to get hold of the little tabs and peal them back without
> too much bother.
> 
> I think that it must have been a fluke, when it was previously just so much
> hassel.  Perhaps the tabs were not so tightly stuck down on that one.
> 
> Smile! I was so surprised that I spent a little while going around it
> checking if I had torn it, or something else.
> 
> Thank you all so much for the help and support!
> 
> Warm regards,
> Paul from Australia.
> 
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Veronica Elsea via Diabetes-Talk
> Sent: Sunday, 2 June 2019 4:16 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
> and a question...
> 
> Hi Paul. Glad things are settling in just a bit. Again. Fold the end tabs
> back a bit before just grabbing and pulling. And remember not to pull
> straight back on the tab. It really wants a slight angle that goes away from
> the other half of the backing or sticky area. Wish I could sit beside you
> and show you. <grin> On the G6 sensors, you do pull straight back on the
> tabs, but not the G5's.
> Hang in there and keep at it. 
> I remember this phase. I cried almost every time for the first month and a
> half. <sniff.
> Thanks for the update. Keep 'em coming.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Taylor Scott via Diabetes-Talk
> Sent: Saturday, June 01, 2019 9:47 AM
> To: Diabetes Talk for the Blind
> Cc: Taylor Scott
> Subject: Re: [Diabetes-Talk] Follow up to, Started with my Dexcom G5 today,
> and a question...
> 
> Glad things are going good for you Paul!
> 
> I'm waiting for my G5 to be shipped, so I've been reading others experiences
> like yours to see what I might be in for. lol
> 
> 
>> On 6/1/19, Paul Magill via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> Hi all,
>> 
>> Yesterday I replaced the sensor on my G5 for the first time, and apart
> from
>> removing the adhesive backing, all went well.
>> 
>> It took a very long time for me to get those backing tabs off, but its 
>> worth the hassel, and I expect it will get easier over time.
>> 
>> I spoke to the company rep, who it turns out also uses the G5 himself, 
>> and he said that when he next changes his sensor, he will do it with 
>> his eyes closed, and see if he can come up with a method that might help.
>> 
>> I changed the warning and alert sounds, to be better able to hear them 
>> without my hearing aids, and am becoming more familiar with the app, 
>> so things are looking up.
>> 
>> Thanks again for all the advice,
>> Paul from Australia.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> 
>> I found it helpful to pull the backing off at a slight angle. In this 
>> regard, oh the G6 is so much easier. Here's what I do with these split 
>> tabs.
>> I find the first one and fold it back just a small amount. This makes 
>> it easier to find without creaming the sticky part. After you fold the 
>> first one back and crease it a bit, find the second little tab. You 
>> need to pull it back and just slightly away from the other half of the
> backing paper.
>> Hope that made sense. Then you put your hand on the remaining paper 
>> and find that little folded tab. Again, pull down and slightly way 
>> from the sticky half. That will give you the best shot at not messing 
>> up the tape. And if you do mess it up for awhile, welcome to the club. 
>> When I first started with the G5, everyone just kept saying, oh no 
>> problem. I thought I was the only idiot on the list because I really 
>> struggled not to end up with wrinkled tape. So don't be too hard on 
>> yourself for awhile and watch for the G6. It will make your day. 
>> <grin> And please keep us posted. You're not doing
> this
>> alone.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Friday, May 24, 2019 7:34 AM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
>> question...
>> 
>> In my experience, you just pull the tab and it comes right off. On the 
>> side, there are tabs that stick up or stick out. The tab is split, one 
>> for each side. With your finger tips, hold onto one tab and pull away 
>> from the sticky part. When done with the first one, grab the remaining 
>> tab and pull away.
>> It
>> helps me to keep my thumb and pointer finger holding the sticky sensor
> down
>> on each side to keep it sticking together. Once the tabs are removed, 
>> immediately place on your body where you want to insert it. Hope this
> helps
>> and makes sense.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Tamera via Diabetes-Talk
>> Sent: Friday, May 24, 2019 9:22 AM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Tamera <fidano at comcast.net>
>> Subject: Re: [Diabetes-Talk] Started with my Dexcom G5 today, and a 
>> question...
>> 
>> It is the trickiest part to it all!
>> I really can only offer, time and patience and let Dexcom know if one 
>> gets too messed up to use, hopefully they will send you a replacement.
>> I try to find one of the tabs, around the center of the pad, and 
>> carefully feel where it comes off easily and then go for the other.
>> Again, deep breaths and it should be easier as it goes!
>>    Tamera
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Paul Magill via Diabetes-Talk
>> Sent: Friday, May 24, 2019 5:11 AM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Paul Magill <magills at bigpond.com>
>> Subject: [Diabetes-Talk] Started with my Dexcom G5 today, and a
> question...
>> 
>> Hi all,
>> 
>> 
>> 
>> Celabrations!
>> 
>> 
>> 
>> Today a representative from the company that markets the Dexcom G5 in 
>> Australia, came to my place and patiently stepped me through applying 
>> it and setting it up.
>> 
>> 
>> 
>> So far, the only real issue I have, is pealing off the adhesive 
>> backing tabs.  On my first attempt, my fingers also grabbed the 
>> adhesive patch,
> and
>> it tore.
>> 
>> 
>> 
>> The second time I was more aware of how careful I needed to be, but 
>> found it quite difficult to pull off the backing without damaging the 
>> actual adhesive patch.  I think my fingers may not be as sensitive as 
>> they should be.
>> 
>> 
>> 
>> Can anyone please offer any suggestions on how to make this a bit easier?
>> 
>> 
>> 
>> With appreciation,
>> 
>> Paul from Australia
>> 
>> 
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> 
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
>> net
>> 
>> 
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> 
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
>> il.com
>> 
>> 
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> 
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>> creekmusic.com
>> 
>> 
>> _______________________________________________
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> 
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>> .com
>> 
>> 
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> 
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> l.com
>> 
> 
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> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
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> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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> Diabetes-Talk:
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From princessterri76 at gmail.com  Fri Jun 14 20:29:04 2019
From: princessterri76 at gmail.com (Terri Stimmel)
Date: Fri, 14 Jun 2019 15:29:04 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
Message-ID: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone


From etscrivani at verizon.net  Fri Jun 14 20:48:31 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Fri, 14 Jun 2019 16:48:31 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
Message-ID: <E5464D04D2C44173A76467BCB661B93C@eileen>

Hi Terri,

While I have never used Victoza since I am a type 1 diabetic, I can relate to your not wanting to be nauseous to the point of throwing up on a daily basis. And since BG?s over 400 are very high, I wonder if you & your doctor might consider going on insulin of one type or the other to control the blood sugars? Right now I am using an insulin pump so don?t have to inject myself multiple times the way I was before the pump, but even when I took insulin injections I always said I prefered the injections to my finger sticks. I?m only telling you that because I think when some diabetics here insulin injections they are horrified by the thought of them. Its important, as you already know, to get the BG numbers down.

Good luck with this.

Eileen 

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 4:29 PM
To: Diabetes-talk 
Cc: Terri Stimmel 
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From jamielgurganus at gmail.com  Fri Jun 14 20:58:25 2019
From: jamielgurganus at gmail.com (jamielgurganus at gmail.com)
Date: Fri, 14 Jun 2019 15:58:25 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
Message-ID: <016001d522f3$e9438010$bbca8030$@gmail.com>

Terry,

     I exercise with a woman who is type2, and she started on Trulicity  several months ago.  She said she is doing great on it.  She does still take the Metforman with it though.  Having been insulin dependent most of my life, I am not up on all of the options for oral medications.  The Trulicity is a weekly injection that she gives herself.  If I am correct the one that you just stopped was what she stopped taking on her own, because it had a $600 co-pay each month.  She said the Trulicity only costs $50 a month.

  				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40gmail.com




From bkpollpeter at gmail.com  Fri Jun 14 21:21:51 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Fri, 14 Jun 2019 16:21:51 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <E5464D04D2C44173A76467BCB661B93C@eileen>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<E5464D04D2C44173A76467BCB661B93C@eileen>
Message-ID: <00e901d522f7$2f1d3f10$8d57bd30$@gmail.com>

And to back this up, study after study shows that the sooner most type 2s go on insulin, usually the better management they have over glucose levels. It can take some trial and error with carb/insulin ratios to figure out what works for you, similar to trial and error with antidepressants, but it often results in better glucose control for type 2s.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Friday, June 14, 2019 3:49 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hi Terri,

While I have never used Victoza since I am a type 1 diabetic, I can relate to your not wanting to be nauseous to the point of throwing up on a daily basis. And since BG?s over 400 are very high, I wonder if you & your doctor might consider going on insulin of one type or the other to control the blood sugars? Right now I am using an insulin pump so don?t have to inject myself multiple times the way I was before the pump, but even when I took insulin injections I always said I prefered the injections to my finger sticks. I?m only telling you that because I think when some diabetics here insulin injections they are horrified by the thought of them. Its important, as you already know, to get the BG numbers down.

Good luck with this.

Eileen 

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 4:29 PM
To: Diabetes-talk 
Cc: Terri Stimmel 
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Fri Jun 14 21:19:46 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Fri, 14 Jun 2019 16:19:46 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
Message-ID: <00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>

Terri,

Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.

As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From veronica at laurelcreekmusic.com  Fri Jun 14 21:31:16 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Fri, 14 Jun 2019 14:31:16 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <016001d522f3$e9438010$bbca8030$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<016001d522f3$e9438010$bbca8030$@gmail.com>
Message-ID: <006401d522f8$7f858bf0$7e90a3d0$@laurelcreekmusic.com>

Hi Terri.
First, the high BG alone could contribute to the swelling in your legs. One place you could start would be to do one injection of long-acting insulin, usually at night. That way you're not yet doing insulin with every meal but you could have a better basal insulin. And frankly, most type two's I know say they feel so much better once they start insulin and wonder why they resisted. My hubby has been unable to tolerate a bunch of Type 2 meds, including Trulicity. He hasn't yet started Victoza because using Tresiba long-acting insulin is starting to help. I hope this gives you options when you talk with your doctor.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jamie Gurganus via Diabetes-Talk
Sent: Friday, June 14, 2019 1:58 PM
To: 'Diabetes Talk for the Blind'
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terry,

     I exercise with a woman who is type2, and she started on Trulicity  several months ago.  She said she is doing great on it.  She does still take the Metforman with it though.  Having been insulin dependent most of my life, I am not up on all of the options for oral medications.  The Trulicity is a weekly injection that she gives herself.  If I am correct the one that you just stopped was what she stopped taking on her own, because it had a $600 co-pay each month.  She said the Trulicity only costs $50 a month.

  				Jamie


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
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From kutash-jm at comcast.net  Fri Jun 14 23:51:41 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Fri, 14 Jun 2019 19:51:41 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
Message-ID: <002401d5230c$1e261690$5a7243b0$@comcast.net>

Terri, I took and still take Victoza and have been fortunate enough not to have experienced the side effects you have, but let me say a few things that I know. I might have decreased my dose down to the 1.2, which is 20 clicks on your pen. That might have decreased your nausea and diarrhea. I know someone who tried Trulicity and after a month she still has some diarrhea, so I would ask about that one. Metformen may not have been bringing your levels down enough which is why your doctor may not like that option for you. 

Bridgit always makes excellent points. I will tell you I had side effects like yours with Metformen for almost eight years and finally was offered the option of Insulin. For me it seems to be working with Victoza in the morning, and a Long-acting Insulin in the evening. But we are all different, and it is often trial and error.

If your numbers are in the 400 range, I would drink lots of fluids to try to keep the numbers down till you have your appointment. Let us know how it goes, and good luck. I have to tell you, since I eliminated metformin and added Insulin in its place I feel better than I have in a long time. And whether your doctor does long-acting or quick-acting or both, it is something to ask about.

Jeanette  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Friday, June 14, 2019 5:20 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.

As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From joystigile at gmail.com  Sat Jun 15 00:50:39 2019
From: joystigile at gmail.com (Joy Stigile)
Date: Fri, 14 Jun 2019 17:50:39 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <002401d5230c$1e261690$5a7243b0$@comcast.net>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
	<002401d5230c$1e261690$5a7243b0$@comcast.net>
Message-ID: <004b01d52314$5b213a40$1163aec0$@gmail.com>

Hi Terri,
I am a type one and I take Victoza plus Insulin.  I have had no side effects but, my husband did.  He like Jeanette dropped his dosage down to 1.2 after calling his Doctor.  It stopped his nausea.  Neither one of us are constipated but, we are both heavy water drinkers.
One bit of advice, if you let your blood sugar  stay above 400 for several days you might move into a coma.  Plus, is your boyfriend in the medical field?  If not, go back taking the Victoza immediately!
With much care, Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Friday, June 14, 2019 4:52 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri, I took and still take Victoza and have been fortunate enough not to have experienced the side effects you have, but let me say a few things that I know. I might have decreased my dose down to the 1.2, which is 20 clicks on your pen. That might have decreased your nausea and diarrhea. I know someone who tried Trulicity and after a month she still has some diarrhea, so I would ask about that one. Metformen may not have been bringing your levels down enough which is why your doctor may not like that option for you. 

Bridgit always makes excellent points. I will tell you I had side effects like yours with Metformen for almost eight years and finally was offered the option of Insulin. For me it seems to be working with Victoza in the morning, and a Long-acting Insulin in the evening. But we are all different, and it is often trial and error.

If your numbers are in the 400 range, I would drink lots of fluids to try to keep the numbers down till you have your appointment. Let us know how it goes, and good luck. I have to tell you, since I eliminated metformin and added Insulin in its place I feel better than I have in a long time. And whether your doctor does long-acting or quick-acting or both, it is something to ask about.

Jeanette  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Friday, June 14, 2019 5:20 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.

As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From gmelconian619 at gmail.com  Sat Jun 15 01:13:36 2019
From: gmelconian619 at gmail.com (G Melconian)
Date: Fri, 14 Jun 2019 18:13:36 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <004b01d52314$5b213a40$1163aec0$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
	<002401d5230c$1e261690$5a7243b0$@comcast.net>
	<004b01d52314$5b213a40$1163aec0$@gmail.com>
Message-ID: <16b58b26a00.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>

just like Joyce I am on insulin both long-term and short-term and I am on 
exam pick which is basically a one-week version of victoza so I am montazem 
pic so if you guys are in big toes are you doing it daily and you want to 
do it weekly you can do ozempic which is basically the same formation they 
will most likely be getting rid of victoza in favor of ozempic just letting 
you guys know who are using victoza and there are not that many side 
effects with ozempic compared to victoza and you only have to do it once a 
week instead of doing it everyday we have to get with victoza just letting 
you guys know


On June 14, 2019 5:51:38 PM Joy Stigile via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> Hi Terri,
> I am a type one and I take Victoza plus Insulin.  I have had no side 
> effects but, my husband did.  He like Jeanette dropped his dosage down to 
> 1.2 after calling his Doctor.  It stopped his nausea.  Neither one of us 
> are constipated but, we are both heavy water drinkers.
> One bit of advice, if you let your blood sugar  stay above 400 for several 
> days you might move into a coma.  Plus, is your boyfriend in the medical 
> field?  If not, go back taking the Victoza immediately!
> With much care, Joy
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of 
> Jeanette Kutash via Diabetes-Talk
> Sent: Friday, June 14, 2019 4:52 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Jeanette Kutash <kutash-jm at comcast.net>
> Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Terri, I took and still take Victoza and have been fortunate enough not to 
> have experienced the side effects you have, but let me say a few things 
> that I know. I might have decreased my dose down to the 1.2, which is 20 
> clicks on your pen. That might have decreased your nausea and diarrhea. I 
> know someone who tried Trulicity and after a month she still has some 
> diarrhea, so I would ask about that one. Metformen may not have been 
> bringing your levels down enough which is why your doctor may not like that 
> option for you.
>
> Bridgit always makes excellent points. I will tell you I had side effects 
> like yours with Metformen for almost eight years and finally was offered 
> the option of Insulin. For me it seems to be working with Victoza in the 
> morning, and a Long-acting Insulin in the evening. But we are all 
> different, and it is often trial and error.
>
> If your numbers are in the 400 range, I would drink lots of fluids to try 
> to keep the numbers down till you have your appointment. Let us know how it 
> goes, and good luck. I have to tell you, since I eliminated metformin and 
> added Insulin in its place I feel better than I have in a long time. And 
> whether your doctor does long-acting or quick-acting or both, it is 
> something to ask about.
>
> Jeanette
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of 
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Friday, June 14, 2019 5:20 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Terri,
>
> Have you considered taking Humalog or novolog for meal boluses? Likely 
> you're going high after meals and do not have enough on-board insulin in 
> your system to combat any carbs. So, taking insulin to bolus at meals might 
> be a good idea.
>
> As for swelling and tingling in the feet, sorry to say, but sounds like 
> neuropathy, which is common in diabetics, especially when blood sugars are 
> high for extended periods of time. There is medication that can help 
> alleviate the symptoms, but nothing to reverse existing damage to the 
> nerves. If you are able to lower your glucose levels and maintain them, 
> there's a good chance nerve damage won't progress though.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri 
> Stimmel via Diabetes-Talk
> Sent: Friday, June 14, 2019 3:29 PM
> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
> Cc: Terri Stimmel <princessterri76 at gmail.com>
> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Hello everyone,
>
> As my subject says, I have some questions regarding Victoza. I have been 
> taking this medication for at least three years now. Maybe a little bit 
> longer. I have been taking 1.8 units for quite a while now. Not long after 
> I started it actually. In the beginning, for about the first two or three 
> weeks of starting it, it made me very ill! I almost quit taking it. That?s 
> how bad it was. I was extremely nauseated, and was throwing up almost every 
> morning. Anyway, I have stuck with it over the years. It did help me lose a 
> little weight. And it did help control my blood sugar pretty well.
> However, it has always seemed to make me pretty constipated, and I could 
> still have nausea. But I think part of that is due to being so constipated. 
> I got tired of feeling this way. Plus, anytime I have ended up in the 
> hospital, they don?t have this medication. So then I am off of it for a few 
> days. Which is never helpful when you have to restart it. So after a lot of 
> consideration, and talking it out with my boyfriend, I decided to stop the 
> Victoza. I did not want to be nauseated anymore, or constipated. Which now 
> this does seem a lot better.
>
> However, my blood sugar is quite high now. I do not eat a diabetic diet. I 
> never really have. But I do try to watch what I eat to a point. Anyway, I 
> have an appointment set up with my doctor for the 20th of this month. 
> Already had an appointment toward the end of this month anyway. But, I did 
> call them and told them that I stopped the medication. So they tried to get 
> me in a little earlier. I know he is not going to be thrilled about this. I 
> want him to understand that I did not do this to be noncompliant. And also, 
> in my last couple visits, I did try to explain to him why I wanted to stop 
> the medication. I wanted to get back on the Met Forman. But he did not feel 
> this was a good choice for me again. He said it was too dangerous. So in a 
> way I felt like he wasn?t hearing me. Which is usually not the case with 
> him. So I really think I just need to express myself more.
>
> With all that said though, I have noticed that along with my blood sugar 
> being high, sometimes over 400, my legs and feet have been swollen. Now I 
> can deal with this every once in a while, or maybe a day or so. But usually 
> it is not an ongoing thing. So this be a strange result, or reaction from 
> stopping the Victoza? Or is this just a coincidence most likely?
>
> Any thoughts or suggestions are appreciated. I would just like to know 
> others experiences who have maybe had to stop this medication. I want to 
> find out what alternatives might be out there besides a medicine that can 
> make you feel so awful!
>
> Thank you,
>
> Terri
>
> Sent from my iPhone
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com





From gmelconian619 at gmail.com  Sat Jun 15 01:17:27 2019
From: gmelconian619 at gmail.com (G Melconian)
Date: Fri, 14 Jun 2019 18:17:27 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <00e901d522f7$2f1d3f10$8d57bd30$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<E5464D04D2C44173A76467BCB661B93C@eileen>
	<00e901d522f7$2f1d3f10$8d57bd30$@gmail.com>
Message-ID: <16b58b5f058.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>

do agree with Bridget I have been on insulin for 18 months now and 
long-term and short-term and my A1C Zara blue seven couple of the ones that 
I had in the past 6 months they've been between 6.7 and 7.0 as far as my 
A1C goes I do agree having an insolent regiment does impact and help 
glucose levels with with type cheese I am a type 2 I'm on Zen pick NovoLog 
and tresiba does of the three insulin that I'm on and they do their job as 
they're supposed to so I do agree starting an insulin regimen even if your 
type 2 is worth it. In the long run. If not then you'll have issues down 
the road where the


On June 14, 2019 3:23:54 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> And to back this up, study after study shows that the sooner most type 2s 
> go on insulin, usually the better management they have over glucose levels. 
> It can take some trial and error with carb/insulin ratios to figure out 
> what works for you, similar to trial and error with antidepressants, but it 
> often results in better glucose control for type 2s.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen 
> Scrivani via Diabetes-Talk
> Sent: Friday, June 14, 2019 3:49 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Hi Terri,
>
> While I have never used Victoza since I am a type 1 diabetic, I can relate 
> to your not wanting to be nauseous to the point of throwing up on a daily 
> basis. And since BG?s over 400 are very high, I wonder if you & your doctor 
> might consider going on insulin of one type or the other to control the 
> blood sugars? Right now I am using an insulin pump so don?t have to inject 
> myself multiple times the way I was before the pump, but even when I took 
> insulin injections I always said I prefered the injections to my finger 
> sticks. I?m only telling you that because I think when some diabetics here 
> insulin injections they are horrified by the thought of them. Its 
> important, as you already know, to get the BG numbers down.
>
> Good luck with this.
>
> Eileen
>
> From: Terri Stimmel via Diabetes-Talk
> Sent: Friday, June 14, 2019 4:29 PM
> To: Diabetes-talk
> Cc: Terri Stimmel
> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Hello everyone,
>
> As my subject says, I have some questions regarding Victoza. I have been 
> taking this medication for at least three years now. Maybe a little bit 
> longer. I have been taking 1.8 units for quite a while now. Not long after 
> I started it actually. In the beginning, for about the first two or three 
> weeks of starting it, it made me very ill! I almost quit taking it. That?s 
> how bad it was. I was extremely nauseated, and was throwing up almost every 
> morning. Anyway, I have stuck with it over the years. It did help me lose a 
> little weight. And it did help control my blood sugar pretty well.
> However, it has always seemed to make me pretty constipated, and I could 
> still have nausea. But I think part of that is due to being so constipated. 
> I got tired of feeling this way. Plus, anytime I have ended up in the 
> hospital, they don?t have this medication. So then I am off of it for a few 
> days. Which is never helpful when you have to restart it. So after a lot of 
> consideration, and talking it out with my boyfriend, I decided to stop the 
> Victoza. I did not want to be nauseated anymore, or constipated. Which now 
> this does seem a lot better.
>
> However, my blood sugar is quite high now. I do not eat a diabetic diet. I 
> never really have. But I do try to watch what I eat to a point. Anyway, I 
> have an appointment set up with my doctor for the 20th of this month. 
> Already had an appointment toward the end of this month anyway. But, I did 
> call them and told them that I stopped the medication. So they tried to get 
> me in a little earlier. I know he is not going to be thrilled about this. I 
> want him to understand that I did not do this to be noncompliant. And also, 
> in my last couple visits, I did try to explain to him why I wanted to stop 
> the medication. I wanted to get back on the Met Forman. But he did not feel 
> this was a good choice for me again. He said it was too dangerous. So in a 
> way I felt like he wasn?t hearing me. Which is usually not the case with 
> him. So I really think I just need to express myself more.
>
> With all that said though, I have noticed that along with my blood sugar 
> being high, sometimes over 400, my legs and feet have been swollen. Now I 
> can deal with this every once in a while, or maybe a day or so. But usually 
> it is not an ongoing thing. So this be a strange result, or reaction from 
> stopping the Victoza? Or is this just a coincidence most likely?
>
> Any thoughts or suggestions are appreciated. I would just like to know 
> others experiences who have maybe had to stop this medication. I want to 
> find out what alternatives might be out there besides a medicine that can 
> make you feel so awful!
>
> Thank you,
>
> Terri
>
> Sent from my iPhone
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com





From gmelconian619 at gmail.com  Sat Jun 15 01:19:47 2019
From: gmelconian619 at gmail.com (G Melconian)
Date: Fri, 14 Jun 2019 18:19:47 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
Message-ID: <16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>

here's a question I have I'd like to know what is the difference between 
humalog and novolog do they work the same for a type to you I just wanted 
to know how to go about doing it doing for units 6 units 8 units 10 units 
how does one go about the right amount if either humalog and novolog for 
mealtime scenarios just would like to have some thoughts about this if you 
guys could give me more info I'd appreciate it I am new at this I been on 
insulin for 18 months and so I'm just you know playing it now with just a 
short-term I mean he had a meal time insulin I used to take the fastest 
long-term insulin and the once-a-week type trulicity and it was not working 
for me with trulicity side went to exempt EXO SM pick is working better for 
me compared to


On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> Terri,
>
> Have you considered taking Humalog or novolog for meal boluses? Likely 
> you're going high after meals and do not have enough on-board insulin in 
> your system to combat any carbs. So, taking insulin to bolus at meals might 
> be a good idea.
>
> As for swelling and tingling in the feet, sorry to say, but sounds like 
> neuropathy, which is common in diabetics, especially when blood sugars are 
> high for extended periods of time. There is medication that can help 
> alleviate the symptoms, but nothing to reverse existing damage to the 
> nerves. If you are able to lower your glucose levels and maintain them, 
> there's a good chance nerve damage won't progress though.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri 
> Stimmel via Diabetes-Talk
> Sent: Friday, June 14, 2019 3:29 PM
> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
> Cc: Terri Stimmel <princessterri76 at gmail.com>
> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>
> Hello everyone,
>
> As my subject says, I have some questions regarding Victoza. I have been 
> taking this medication for at least three years now. Maybe a little bit 
> longer. I have been taking 1.8 units for quite a while now. Not long after 
> I started it actually. In the beginning, for about the first two or three 
> weeks of starting it, it made me very ill! I almost quit taking it. That?s 
> how bad it was. I was extremely nauseated, and was throwing up almost every 
> morning. Anyway, I have stuck with it over the years. It did help me lose a 
> little weight. And it did help control my blood sugar pretty well.
> However, it has always seemed to make me pretty constipated, and I could 
> still have nausea. But I think part of that is due to being so constipated. 
> I got tired of feeling this way. Plus, anytime I have ended up in the 
> hospital, they don?t have this medication. So then I am off of it for a few 
> days. Which is never helpful when you have to restart it. So after a lot of 
> consideration, and talking it out with my boyfriend, I decided to stop the 
> Victoza. I did not want to be nauseated anymore, or constipated. Which now 
> this does seem a lot better.
>
> However, my blood sugar is quite high now. I do not eat a diabetic diet. I 
> never really have. But I do try to watch what I eat to a point. Anyway, I 
> have an appointment set up with my doctor for the 20th of this month. 
> Already had an appointment toward the end of this month anyway. But, I did 
> call them and told them that I stopped the medication. So they tried to get 
> me in a little earlier. I know he is not going to be thrilled about this. I 
> want him to understand that I did not do this to be noncompliant. And also, 
> in my last couple visits, I did try to explain to him why I wanted to stop 
> the medication. I wanted to get back on the Met Forman. But he did not feel 
> this was a good choice for me again. He said it was too dangerous. So in a 
> way I felt like he wasn?t hearing me. Which is usually not the case with 
> him. So I really think I just need to express myself more.
>
> With all that said though, I have noticed that along with my blood sugar 
> being high, sometimes over 400, my legs and feet have been swollen. Now I 
> can deal with this every once in a while, or maybe a day or so. But usually 
> it is not an ongoing thing. So this be a strange result, or reaction from 
> stopping the Victoza? Or is this just a coincidence most likely?
>
> Any thoughts or suggestions are appreciated. I would just like to know 
> others experiences who have maybe had to stop this medication. I want to 
> find out what alternatives might be out there besides a medicine that can 
> make you feel so awful!
>
> Thank you,
>
> Terri
>
> Sent from my iPhone
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com





From bkpollpeter at gmail.com  Sat Jun 15 02:25:16 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Fri, 14 Jun 2019 21:25:16 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <004b01d52314$5b213a40$1163aec0$@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>	<002401d5230c$1e261690$5a7243b0$@comcast.net>
	<004b01d52314$5b213a40$1163aec0$@gmail.com>
Message-ID: <018301d52321$9266c800$b7345800$@gmail.com>

This is very true. After of being in the 400s for days, you can go into DKA, which is no fun. And is very serious.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Joy Stigile via Diabetes-Talk
Sent: Friday, June 14, 2019 7:51 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Joy Stigile <joystigile at gmail.com>
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hi Terri,
I am a type one and I take Victoza plus Insulin.  I have had no side effects but, my husband did.  He like Jeanette dropped his dosage down to 1.2 after calling his Doctor.  It stopped his nausea.  Neither one of us are constipated but, we are both heavy water drinkers.
One bit of advice, if you let your blood sugar  stay above 400 for several days you might move into a coma.  Plus, is your boyfriend in the medical field?  If not, go back taking the Victoza immediately!
With much care, Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Friday, June 14, 2019 4:52 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Jeanette Kutash <kutash-jm at comcast.net>
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri, I took and still take Victoza and have been fortunate enough not to have experienced the side effects you have, but let me say a few things that I know. I might have decreased my dose down to the 1.2, which is 20 clicks on your pen. That might have decreased your nausea and diarrhea. I know someone who tried Trulicity and after a month she still has some diarrhea, so I would ask about that one. Metformen may not have been bringing your levels down enough which is why your doctor may not like that option for you. 

Bridgit always makes excellent points. I will tell you I had side effects like yours with Metformen for almost eight years and finally was offered the option of Insulin. For me it seems to be working with Victoza in the morning, and a Long-acting Insulin in the evening. But we are all different, and it is often trial and error.

If your numbers are in the 400 range, I would drink lots of fluids to try to keep the numbers down till you have your appointment. Let us know how it goes, and good luck. I have to tell you, since I eliminated metformin and added Insulin in its place I feel better than I have in a long time. And whether your doctor does long-acting or quick-acting or both, it is something to ask about.

Jeanette  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Friday, June 14, 2019 5:20 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.

As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
Sent: Friday, June 14, 2019 3:29 PM
To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
Cc: Terri Stimmel <princessterri76 at gmail.com>
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.

However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.

With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?

Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!

Thank you,

Terri

Sent from my iPhone
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmail.com


_______________________________________________
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From princessterri76 at gmail.com  Sat Jun 15 02:31:57 2019
From: princessterri76 at gmail.com (Terri Stimmel)
Date: Fri, 14 Jun 2019 21:31:57 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
	<16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>
Message-ID: <673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com



From jamielgurganus at gmail.com  Sat Jun 15 03:13:49 2019
From: jamielgurganus at gmail.com (Jamie Gurganus)
Date: Fri, 14 Jun 2019 22:13:49 -0500
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com>
	<00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com>
	<16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>
	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>
Message-ID: <8608B9E3-6487-4B3D-80CB-567997A4CBE4@gmail.com>

Hello all! One thing that I learned from this thread is that A person taking insulin can also take these other medications. I did not know that this was the case.


    Jamie

Sent from my iPhone

> On Jun 14, 2019, at 9:31 PM, Terri Stimmel via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hello everyone,
> 
> First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.
> 
> Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 
> 
> You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.
> 
> Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.
> 
> Thank you!
> 
> Terri 
> 
> 
> 
> Sent from my iPhone
> 
>> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
>> 
>> 
>>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>>> 
>>> Terri,
>>> 
>>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>>> 
>>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>>> 
>>> Bridgit
>>> 
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>>> Sent: Friday, June 14, 2019 3:29 PM
>>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>>> 
>>> Hello everyone,
>>> 
>>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>>> 
>>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>>> 
>>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>>> 
>>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>>> 
>>> Thank you,
>>> 
>>> Terri
>>> 
>>> Sent from my iPhone
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>>> 
>>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40gmail.com



From dmgina at mysero.net  Sat Jun 15 04:04:31 2019
From: dmgina at mysero.net (d m gina)
Date: Sat, 15 Jun 2019 00:04:31 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
Message-ID: <bd3b9f61.27c3.4cb8.b334.7b217a97f8ba@samobile.net>

I tried it as well,
Where my heart went so fast it would wake me up in the middle of the night.
Even though my blanket was on high I was shivering because I was so cold.
The next morning I shared with the doctor what he could do with this 
medicine and I threw it away.
Now being a heart patient I wouldn't take it again.
Just my thoughts,
You made the rite choice.


Original message:
> Hello everyone,

> As my subject says, I have some questions regarding Victoza. I have 
> been taking this medication for at least three years now. Maybe a 
> little bit longer. I have been taking 1.8 units for quite a while now. 
> Not long after I started it actually. In the beginning, for about the 
> first two or three weeks of starting it, it made me very ill! I almost 
> quit taking it. That?s how bad it was. I was extremely nauseated, and 
> was throwing up almost every morning. Anyway, I have stuck with it over 
> the years. It did help me lose a little weight. And it did help control 
> my blood sugar pretty well.
> However, it has always seemed to make me pretty constipated, and I 
> could still have nausea. But I think part of that is due to being so 
> constipated. I got tired of feeling this way. Plus, anytime I have 
> ended up in the hospital, they don?t have this medication. So then I am 
> off of it for a few days. Which is never helpful when you have to 
> restart it. So after a lot of consideration, and talking it out with my 
> boyfriend, I decided to stop the Victoza. I did not want to be 
> nauseated anymore, or constipated. Which now this does seem a lot better.

> However, my blood sugar is quite high now. I do not eat a diabetic 
> diet. I never really have. But I do try to watch what I eat to a point. 
> Anyway, I have an appointment set up with my doctor for the 20th of 
> this month. Already had an appointment toward the end of this month 
> anyway. But, I did call them and told them that I stopped the 
> medication. So they tried to get me in a little earlier. I know he is 
> not going to be thrilled about this. I want him to understand that I 
> did not do this to be noncompliant. And also, in my last couple visits, 
> I did try to explain to him why I wanted to stop the medication. I 
> wanted to get back on the Met Forman. But he did not feel this was a 
> good choice for me again. He said it was too dangerous. So in a way I 
> felt like he wasn?t hearing me. Which is usually not the case with him. 
> So I really think I just need to express myself more.

> With all that said though, I have noticed that along with my blood 
> sugar being high, sometimes over 400, my legs and feet have been 
> swollen. Now I can deal with this every once in a while, or maybe a day 
> or so. But usually it is not an ongoing thing. So this be a strange 
> result, or reaction from stopping the Victoza? Or is this just a 
> coincidence most likely?

> Any thoughts or suggestions are appreciated. I would just like to know 
> others experiences who have maybe had to stop this medication. I want 
> to find out what alternatives might be out there besides a medicine 
> that can make you feel so awful!

> Thank you,

> Terri

> Sent from my iPhone
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From blindhands at aol.com  Sat Jun 15 04:09:18 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Sat, 15 Jun 2019 00:09:18 -0400
Subject: [Diabetes-Talk] Dexcom 6
Message-ID: <012e01d52330$1a8ba760$4fa2f620$@aol.com>

I was talking to where I get my Dexcom supplies and asked about the Dexcom 6
and Medicare.  I was told Medicare has put a hold on the Dexcom 6 until
January 2020.  I was told that Dexcom got backed up and could not keep up
with the demand and there were delays getting the   the transmitters   out.
They said to touch base with  them in December as they need to coordinate
sending out the transmitter for the Dexcom 6 when you are due for a new
transmitter.

 

Gee whiz at least 6 more months.

 

Joyce



From dmgina at mysero.net  Sat Jun 15 04:15:59 2019
From: dmgina at mysero.net (d m gina)
Date: Sat, 15 Jun 2019 00:15:59 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
Message-ID: <7ca8972e.67a5.4d4e.87d6.4ba9a534eea6@samobile.net>

I am excited to see what my a one c will be in August.
Now that I am on the long and short insulin as well.
I also know that my numbers have been wow.
I will share when I learn myself.


Original message:
> do agree with Bridget I have been on insulin for 18 months now and
> long-term and short-term and my A1C Zara blue seven couple of the ones that
> I had in the past 6 months they've been between 6.7 and 7.0 as far as my
> A1C goes I do agree having an insolent regiment does impact and help
> glucose levels with with type cheese I am a type 2 I'm on Zen pick NovoLog
> and tresiba does of the three insulin that I'm on and they do their job as
> they're supposed to so I do agree starting an insulin regimen even if your
> type 2 is worth it. In the long run. If not then you'll have issues down
> the road where the


> On June 14, 2019 3:23:54 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk
> <diabetes-talk at nfbnet.org> wrote:

>> And to back this up, study after study shows that the sooner most type 2s
>> go on insulin, usually the better management they have over glucose levels.
>> It can take some trial and error with carb/insulin ratios to figure out
>> what works for you, similar to trial and error with antidepressants, but it
>> often results in better glucose control for type 2s.

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen
>> Scrivani via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:49 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

>> Hi Terri,

>> While I have never used Victoza since I am a type 1 diabetic, I can relate
>> to your not wanting to be nauseous to the point of throwing up on a daily
>> basis. And since BG?s over 400 are very high, I wonder if you & your doctor
>> might consider going on insulin of one type or the other to control the
>> blood sugars? Right now I am using an insulin pump so don?t have to inject
>> myself multiple times the way I was before the pump, but even when I took
>> insulin injections I always said I prefered the injections to my finger
>> sticks. I?m only telling you that because I think when some diabetics here
>> insulin injections they are horrified by the thought of them. Its
>> important, as you already know, to get the BG numbers down.

>> Good luck with this.

>> Eileen

>> From: Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 4:29 PM
>> To: Diabetes-talk
>> Cc: Terri Stimmel
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment

>> Hello everyone,

>> As my subject says, I have some questions regarding Victoza. I have been
>> taking this medication for at least three years now. Maybe a little bit
>> longer. I have been taking 1.8 units for quite a while now. Not long after
>> I started it actually. In the beginning, for about the first two or three
>> weeks of starting it, it made me very ill! I almost quit taking it. That?s
>> how bad it was. I was extremely nauseated, and was throwing up almost every
>> morning. Anyway, I have stuck with it over the years. It did help me lose a
>> little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could
>> still have nausea. But I think part of that is due to being so constipated.
>> I got tired of feeling this way. Plus, anytime I have ended up in the
>> hospital, they don?t have this medication. So then I am off of it for a few
>> days. Which is never helpful when you have to restart it. So after a lot of
>> consideration, and talking it out with my boyfriend, I decided to stop the
>> Victoza. I did not want to be nauseated anymore, or constipated. Which now
>> this does seem a lot better.

>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I
>> never really have. But I do try to watch what I eat to a point. Anyway, I
>> have an appointment set up with my doctor for the 20th of this month.
>> Already had an appointment toward the end of this month anyway. But, I did
>> call them and told them that I stopped the medication. So they tried to get
>> me in a little earlier. I know he is not going to be thrilled about this. I
>> want him to understand that I did not do this to be noncompliant. And also,
>> in my last couple visits, I did try to explain to him why I wanted to stop
>> the medication. I wanted to get back on the Met Forman. But he did not feel
>> this was a good choice for me again. He said it was too dangerous. So in a
>> way I felt like he wasn?t hearing me. Which is usually not the case with
>> him. So I really think I just need to express myself more.

>> With all that said though, I have noticed that along with my blood sugar
>> being high, sometimes over 400, my legs and feet have been swollen. Now I
>> can deal with this every once in a while, or maybe a day or so. But usually
>> it is not an ongoing thing. So this be a strange result, or reaction from
>> stopping the Victoza? Or is this just a coincidence most likely?

>> Any thoughts or suggestions are appreciated. I would just like to know
>> others experiences who have maybe had to stop this medication. I want to
>> find out what alternatives might be out there besides a medicine that can
>> make you feel so awful!

>> Thank you,

>> Terri

>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From etscrivani at verizon.net  Sat Jun 15 04:17:43 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Sat, 15 Jun 2019 00:17:43 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com><00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com><16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>
	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>
Message-ID: <34B2870323FC4CA087BDB444575A9EDF@eileen>

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you?re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com

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From kutash-jm at comcast.net  Sat Jun 15 15:01:48 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Sat, 15 Jun 2019 11:01:48 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <34B2870323FC4CA087BDB444575A9EDF@eileen>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com><00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com><16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>
	<34B2870323FC4CA087BDB444575A9EDF@eileen>
Message-ID: <000301d5238b$4234a3b0$c69deb10$@comcast.net>

Let me restate--I never said I decreased my dose of Victoza. Please read emails carefully. I said you might want to consider doing this, but would never encourage it unless discussed with your doctor.

And to the person who states Victoza will soon be discontinued, please email back and tell me where you found that information. I will also do more research.

Thank you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Saturday, June 15, 2019 12:18 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you?re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com

_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From kutash-jm at comcast.net  Sat Jun 15 15:40:45 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Sat, 15 Jun 2019 11:40:45 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <000301d5238b$4234a3b0$c69deb10$@comcast.net>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com><00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com><16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>	<34B2870323FC4CA087BDB444575A9EDF@eileen>
	<000301d5238b$4234a3b0$c69deb10$@comcast.net>
Message-ID: <000401d52390$b330a4b0$1991ee10$@comcast.net>

I just did some research and found out this--even if side effects of Victoza are bad, Victoza is not one of those medications you should just stop. It should either be tapered every other day, or the dose lowered. If not, blood sugars will go up until a replacement is found. Teri, I was on the phone with a pharmacist about another issue and I asked, out of curiosity, and did some research as well on the computer. 

Jeanette
-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 11:02 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Let me restate--I never said I decreased my dose of Victoza. Please read emails carefully. I said you might want to consider doing this, but would never encourage it unless discussed with your doctor.

And to the person who states Victoza will soon be discontinued, please email back and tell me where you found that information. I will also do more research.

Thank you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Saturday, June 15, 2019 12:18 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you?re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


_______________________________________________
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From veronica at laurelcreekmusic.com  Sat Jun 15 17:51:10 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Sat, 15 Jun 2019 10:51:10 -0700
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <000401d52390$b330a4b0$1991ee10$@comcast.net>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com><00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com><16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>	<34B2870323FC4CA087BDB444575A9EDF@eileen>	<000301d5238b$4234a3b0$c69deb10$@comcast.net>
	<000401d52390$b330a4b0$1991ee10$@comcast.net>
Message-ID: <004501d523a2$eacd39d0$c067ad70$@laurelcreekmusic.com>

Terri, my hubby was told by his endocrinologist to take the Victoza one hour before the largest meal of the day. Anyone else get told that?
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 8:41 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

I just did some research and found out this--even if side effects of Victoza are bad, Victoza is not one of those medications you should just stop. It should either be tapered every other day, or the dose lowered. If not, blood sugars will go up until a replacement is found. Teri, I was on the phone with a pharmacist about another issue and I asked, out of curiosity, and did some research as well on the computer. 

Jeanette
-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 11:02 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Let me restate--I never said I decreased my dose of Victoza. Please read emails carefully. I said you might want to consider doing this, but would never encourage it unless discussed with your doctor.

And to the person who states Victoza will soon be discontinued, please email back and tell me where you found that information. I will also do more research.

Thank you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Saturday, June 15, 2019 12:18 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you?re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


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From kutash-jm at comcast.net  Sat Jun 15 20:07:16 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Sat, 15 Jun 2019 16:07:16 -0400
Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
In-Reply-To: <004501d523a2$eacd39d0$c067ad70$@laurelcreekmusic.com>
References: <E76EC23E-F089-4EA8-B1A6-A2286F4B667B@gmail.com><00e301d522f6$e4ff3f50$aefdbdf0$@gmail.com><16b58b80f50.27d4.76f7706a0d51902714afda849d7cf02f@gmail.com>	<673DBC32-9DF0-4ADE-AD96-CF781CDF6B96@gmail.com>	<34B2870323FC4CA087BDB444575A9EDF@eileen>	<000301d5238b$4234a3b0$c69deb10$@comcast.net>	<000401d52390$b330a4b0$1991ee10$@comcast.net>
	<004501d523a2$eacd39d0$c067ad70$@laurelcreekmusic.com>
Message-ID: <000301d523b5$eeeb52f0$ccc1f8d0$@comcast.net>

Veronica, I was told you can take it any time of the day but taking it before a meal might help it work better because of the way it interacts to assist with getting Insulin working when necessary. I was also told when I started that some people felt more comfortable taking it at night and sleeping for the first few hours that it works. Since one dose works over a 24 hour period, it all seems to even out, and I know I have been told for some it works better before or around meal times, and some have better luck at night. I started out taking it at night and now take it in the morning before meals and find no huge difference in the way it works for me. Sugar levels do go down and stay more level as long as it is in my system.

Jeanette   

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Saturday, June 15, 2019 1:51 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri, my hubby was told by his endocrinologist to take the Victoza one hour before the largest meal of the day. Anyone else get told that?
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 8:41 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

I just did some research and found out this--even if side effects of Victoza are bad, Victoza is not one of those medications you should just stop. It should either be tapered every other day, or the dose lowered. If not, blood sugars will go up until a replacement is found. Teri, I was on the phone with a pharmacist about another issue and I asked, out of curiosity, and did some research as well on the computer. 

Jeanette
-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jeanette Kutash via Diabetes-Talk
Sent: Saturday, June 15, 2019 11:02 AM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Let me restate--I never said I decreased my dose of Victoza. Please read emails carefully. I said you might want to consider doing this, but would never encourage it unless discussed with your doctor.

And to the person who states Victoza will soon be discontinued, please email back and tell me where you found that information. I will also do more research.

Thank you.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Saturday, June 15, 2019 12:18 AM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Terri,

As its already been mentioned from others here, its really important that you discuss this with your doctor before changing up your medications and routines around taking them. It sounds to me like you?re taking high doses of insulin and it makes me think you are eating a large number of carbs in your diet. Have you ever asked your doctor to send you to either a CDE or a nutritionist for nutritional counseling. The carb to insulin ratio is very important in knowing how much insulin you need to X-number of carbohydrates at meals. The carb to insulin ratio is a personal thing and varies from person to person so you should really have a nutritionist who specializes in diabetes go over this with you.

Good luck.

Eileen

From: Terri Stimmel via Diabetes-Talk 
Sent: Friday, June 14, 2019 10:31 PM
To: Diabetes Talk for the Blind 
Cc: Terri Stimmel 
Subject: Re: [Diabetes-Talk] Questions regarding Victoza and ending treatment

Hello everyone,

First of all, I appreciate all the responses to my questions. I wasn?t sure if anyone would respond. Or if anyone would have any ideas. So I am so thankful.

Also, let me explain something that I left out earlier. I wasn?t thinking about this. But I am currently on two different insulin?s. I take a long lasting, and a quick acting. For my long-lasting, I take Tresiba For my quick acting, I take novalog. They definitely seem to help me a lot. Before I stopped taking the Victoza, I did notice that my blood sugar was starting to go up some. I?m not sure why. But it would be in the low 200s. But now without the Victoza, as I mentioned earlier, it could be up around 400. Also, are use the libre system to test my blood sugar. I was taking both my insulin and my Victoza in the morning. And then just the quick acting insulin with my other meals. I take 50 units of the long acting. Then I take 15 units of the quick acting, that?s my base. But if my blood sugar is over 150, then I add two units. Then if it is  200, then I add three units, and so on. 

You know, I never thought about taking my tresiba at night. I wonder if that would help me more? That?s an idea. And I wonder if maybe I could start taking the Victoza at night as well? I think that I might start it up again, and try taking it at night. Maybe I will see what that does. And I will definitely discuss all of this with my doctor on the 20th. I will let you all know what he suggests. Also, as for the Met Forman, I have not been on that for a couple of years now. I believe he took me off of it, because he thought the insulin would help me more. Which it has. But also, because I was having such nasty side effects from the Met Forman. I have some stomach problems as it is. So when medications can add to this, and they do at times, it makes it much more rough on me.

Anyway, I do appreciate all the suggestions and help. I will definitely keep you all posted.

Thank you!

Terri 



Sent from my iPhone

> On Jun 14, 2019, at 8:19 PM, G Melconian via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> here's a question I have I'd like to know what is the difference between humalog and novolog do they work the same for a type to you I just wanted to know how to go about doing it doing for units 6 units 8 units 10 units how does one go about the right amount if either humalog and novolog for mealtime scenarios just would like to have some thoughts about this if you guys could give me more info I'd appreciate it I am new at this I been on insulin for 18 months and so I'm just you know playing it now with just a short-term I mean he had a meal time insulin I used to take the fastest long-term insulin and the once-a-week type trulicity and it was not working for me with trulicity side went to exempt EXO SM pick is working better for me compared to
> 
> 
>> On June 14, 2019 3:23:43 PM Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Terri,
>> 
>> Have you considered taking Humalog or novolog for meal boluses? Likely you're going high after meals and do not have enough on-board insulin in your system to combat any carbs. So, taking insulin to bolus at meals might be a good idea.
>> 
>> As for swelling and tingling in the feet, sorry to say, but sounds like neuropathy, which is common in diabetics, especially when blood sugars are high for extended periods of time. There is medication that can help alleviate the symptoms, but nothing to reverse existing damage to the nerves. If you are able to lower your glucose levels and maintain them, there's a good chance nerve damage won't progress though.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Terri Stimmel via Diabetes-Talk
>> Sent: Friday, June 14, 2019 3:29 PM
>> To: Diabetes-talk <Diabetes-Talk at nfbnet.org>
>> Cc: Terri Stimmel <princessterri76 at gmail.com>
>> Subject: [Diabetes-Talk] Questions regarding Victoza and ending treatment
>> 
>> Hello everyone,
>> 
>> As my subject says, I have some questions regarding Victoza. I have been taking this medication for at least three years now. Maybe a little bit longer. I have been taking 1.8 units for quite a while now. Not long after I started it actually. In the beginning, for about the first two or three weeks of starting it, it made me very ill! I almost quit taking it. That?s how bad it was. I was extremely nauseated, and was throwing up almost every morning. Anyway, I have stuck with it over the years. It did help me lose a little weight. And it did help control my blood sugar pretty well.
>> However, it has always seemed to make me pretty constipated, and I could still have nausea. But I think part of that is due to being so constipated. I got tired of feeling this way. Plus, anytime I have ended up in the hospital, they don?t have this medication. So then I am off of it for a few days. Which is never helpful when you have to restart it. So after a lot of consideration, and talking it out with my boyfriend, I decided to stop the Victoza. I did not want to be nauseated anymore, or constipated. Which now this does seem a lot better.
>> 
>> However, my blood sugar is quite high now. I do not eat a diabetic diet. I never really have. But I do try to watch what I eat to a point. Anyway, I have an appointment set up with my doctor for the 20th of this month. Already had an appointment toward the end of this month anyway. But, I did call them and told them that I stopped the medication. So they tried to get me in a little earlier. I know he is not going to be thrilled about this. I want him to understand that I did not do this to be noncompliant. And also, in my last couple visits, I did try to explain to him why I wanted to stop the medication. I wanted to get back on the Met Forman. But he did not feel this was a good choice for me again. He said it was too dangerous. So in a way I felt like he wasn?t hearing me. Which is usually not the case with him. So I really think I just need to express myself more.
>> 
>> With all that said though, I have noticed that along with my blood sugar being high, sometimes over 400, my legs and feet have been swollen. Now I can deal with this every once in a while, or maybe a day or so. But usually it is not an ongoing thing. So this be a strange result, or reaction from stopping the Victoza? Or is this just a coincidence most likely?
>> 
>> Any thoughts or suggestions are appreciated. I would just like to know others experiences who have maybe had to stop this medication. I want to find out what alternatives might be out there besides a medicine that can make you feel so awful!
>> 
>> Thank you,
>> 
>> Terri
>> 
>> Sent from my iPhone
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40gmail.com
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/princessterri76%40gmail.com

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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From etscrivani at verizon.net  Tue Jun 18 20:32:34 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 18 Jun 2019 16:32:34 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
Message-ID: <10986C218337444EAA43E6497AF22B35@eileen>

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended
for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied
in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings
and precautions associated with system and its components, please consult 
http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at 
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen
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From walterl.mitch2 at gmail.com  Tue Jun 18 20:54:58 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 16:54:58 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <10986C218337444EAA43E6497AF22B35@eileen>
References: <10986C218337444EAA43E6497AF22B35@eileen>
Message-ID: <00ca01d52618$17d5dd20$47819760$@gmail.com>

Greetings,

I was hoping that the Accessible Medical Equipment group would have addressed a few dilemmas such as this at the convention, but there has been no conversations about this or any other aspects. I hope that we get moving on the situations we face like this soon!

Sincerely,
Walter Mitchell
V-President, Ohio Diabetes Action Network
Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:33 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen




From bkpollpeter at gmail.com  Tue Jun 18 21:01:01 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 18 Jun 2019 16:01:01 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <10986C218337444EAA43E6497AF22B35@eileen>
References: <10986C218337444EAA43E6497AF22B35@eileen>
Message-ID: <056501d52618$efb9cee0$cf2d6ca0$@gmail.com>

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen




From veronica at laurelcreekmusic.com  Tue Jun 18 21:12:49 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 14:12:49 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
Message-ID: <000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From walterl.mitch2 at gmail.com  Tue Jun 18 21:23:07 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 17:23:07 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
Message-ID: <010601d5261c$06735860$135a0920$@gmail.com>

We had a great thing going on but we lost Dillon and Eric, pretty much at the same time. Looking back over what we accomplished and how it came to a screeching hault has raised a few questions in my mind. Has anyone else had questions come to mind about this???

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com




From walterl.mitch2 at gmail.com  Tue Jun 18 21:29:44 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 17:29:44 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
Message-ID: <010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com




From veronica at laurelcreekmusic.com  Tue Jun 18 22:28:52 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 15:28:52 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010601d5261c$06735860$135a0920$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<010601d5261c$06735860$135a0920$@gmail.com>
Message-ID: <001b01d52625$3573bac0$a05b3040$@laurelcreekmusic.com>

Walter, major questions. I am extremely disheartened and as I said in my previous post, sure looks like the NFB no longer gets it. The point of working through a national organization really, clout and contacts. As individuals it's tougher to get inside other companies and governmental bodies. But guess that's what has to happen.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:23 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

We had a great thing going on but we lost Dillon and Eric, pretty much at the same time. Looking back over what we accomplished and how it came to a screeching hault has raised a few questions in my mind. Has anyone else had questions come to mind about this???

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From veronica at laurelcreekmusic.com  Tue Jun 18 22:30:08 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 15:30:08 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
Message-ID: <001d01d52625$62c8a620$2859f260$@laurelcreekmusic.com>

I don't know any specifics, but I suspect something happened higher up the food chain, where I don't happen to be able to partake. <grin> 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:30 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From etscrivani at verizon.net  Tue Jun 18 22:59:14 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 18 Jun 2019 18:59:14 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen><056501d52618$efb9cee0$cf2d6ca0$@gmail.com><000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
Message-ID: <0D7C6D0BE15D4A39A744FFE961096F14@eileen>

Walter,

Do you know who took the places of Eric & 
Dylan? My thinking is that a diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.

I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.

Eileen

From: Walter Mitchell via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 5:29 PM
To: 'Diabetes Talk for the Blind' 
Cc: Walter Mitchell 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net


From etscrivani at verizon.net  Tue Jun 18 23:02:14 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 18 Jun 2019 19:02:14 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
Message-ID: <D039D742705F48E68A999A02133941EB@eileen>

I know you tried forming a group. And, if it had been on or through another platform, other than FB I would have signed on. I despise FaceBook and won?t use it. 

Eileen

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind' 
Cc: Bridgit Kuenning-Pollpeter 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net


From etscrivani at verizon.net  Tue Jun 18 23:03:43 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 18 Jun 2019 19:03:43 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <00ca01d52618$17d5dd20$47819760$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<00ca01d52618$17d5dd20$47819760$@gmail.com>
Message-ID: <62DC2F792E3E4DBBA20B79B410A916FB@eileen>

This is greatly disappointing. Year after year, after year passes and nothing gets done and now we?re all in a rocky ship.

Eileen

From: Walter Mitchell via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 4:54 PM
To: 'Diabetes Talk for the Blind' 
Cc: Walter Mitchell 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Greetings,

I was hoping that the Accessible Medical Equipment group would have addressed a few dilemmas such as this at the convention, but there has been no conversations about this or any other aspects. I hope that we get moving on the situations we face like this soon!

Sincerely,
Walter Mitchell
V-President, Ohio Diabetes Action Network
Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:33 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net


From etscrivani at verizon.net  Tue Jun 18 23:04:48 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Tue, 18 Jun 2019 19:04:48 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen><056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
Message-ID: <96AE99E42CB1448CAAB8291492BB1C2A@eileen>

Yes, but we haven?t been hearing a single thing about what?s going on with that. 

Eileen

From: Veronica Elsea via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 5:12 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net


From m.barber817 at gmail.com  Tue Jun 18 23:06:21 2019
From: m.barber817 at gmail.com (Michael Barber)
Date: Tue, 18 Jun 2019 18:06:21 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <0D7C6D0BE15D4A39A744FFE961096F14@eileen>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
Message-ID: <DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & 
> Dylan? My thinking is that a diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk 
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell 
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817%40gmail.com



From veronica at laurelcreekmusic.com  Tue Jun 18 23:38:55 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 16:38:55 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
Message-ID: <000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>

He is with the Jernigan institute and knows nothing about diabetes. He has stated that he wants us to do it on our own. He has turned down multiple offers from me to bring him up to speed. And nothing, absolutely nothing has happened since he took over. No phone calls, nothing. 
Sorry, but right now I have as much faith in the NFB as I do in Medtronic and they've been promising to come up with a pump for blind people for decades. 
At some point I'll get on things again to see who I can find. I just had to take a break and frankly, grieve what almost was.
Veronica
insYes, I know. He is with theJernigan

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:06 PM
To: Diabetes Talk for the Blind
Cc: Michael Barber
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & 
> Dylan? My thinking is that a diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk 
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell 
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817%40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From walterl.mitch2 at gmail.com  Tue Jun 18 23:52:33 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 19:52:33 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
Message-ID: <011301d52630$e6440200$b2cc0600$@gmail.com>

Well let's do something about this! the Accessible Medical Equipment group mailing list is still operational. If we have a group of individuals that feel that this is a important venture, why don't we meet and discuss just how we can move forward with the important issue of accessible equipment??? We have identified the problem, that is 50% of solving it.

Walter

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 7:39 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

He is with the Jernigan institute and knows nothing about diabetes. He has stated that he wants us to do it on our own. He has turned down multiple offers from me to bring him up to speed. And nothing, absolutely nothing has happened since he took over. No phone calls, nothing. 
Sorry, but right now I have as much faith in the NFB as I do in Medtronic and they've been promising to come up with a pump for blind people for decades. 
At some point I'll get on things again to see who I can find. I just had to take a break and frankly, grieve what almost was.
Veronica
insYes, I know. He is with theJernigan

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:06 PM
To: Diabetes Talk for the Blind
Cc: Michael Barber
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & 
> Dylan? My thinking is that a diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk 
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell 
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817%40gmail.com

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From gmelconian619 at gmail.com  Tue Jun 18 23:57:44 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Tue, 18 Jun 2019 16:57:44 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
 oi am again on my own
Message-ID: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  



From walterl.mitch2 at gmail.com  Wed Jun 19 00:21:52 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 20:21:52 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <001b01d52625$3573bac0$a05b3040$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<010601d5261c$06735860$135a0920$@gmail.com>
	<001b01d52625$3573bac0$a05b3040$@laurelcreekmusic.com>
Message-ID: <011501d52634$fede15e0$fc9a41a0$@gmail.com>

Veronica, I agree with you to a point. Allot of my work is to advocate for the blind and low vision community. In my opinion we have testimonies of just how this dilemma has effected each of our lives. There is power in numbers and if we were to organize and get the right representation, we may be able to make noise again. The ground work has already been laid, we just need to walk down the road that already exist. I'm not saying that it would be easy, but I truly believe that it is obtainable. The work that you have done should not be in vain. The blog that Anil put out is correct, accessible medical equipment is a life or death scenario for many people. The spirit inside of me will not allow me to stand aside and continue to allow this to happen to people just because we are blind. I am hoping that when the NFB recognize that we are serious about this issue that they will support our efforts but not take the lead in our efforts. In my book accessible medical equipment is important to my independence just as a white kane is to a blind person.

I didn't mean to get in the pulpit, but I have medical issues just as you and we are blind. I want to live, do you?

Walter

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:29 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Walter, major questions. I am extremely disheartened and as I said in my previous post, sure looks like the NFB no longer gets it. The point of working through a national organization really, clout and contacts. As individuals it's tougher to get inside other companies and governmental bodies. But guess that's what has to happen.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:23 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

We had a great thing going on but we lost Dillon and Eric, pretty much at the same time. Looking back over what we accomplished and how it came to a screeching hault has raised a few questions in my mind. Has anyone else had questions come to mind about this???

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


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From fidano at comcast.net  Wed Jun 19 00:38:17 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Tue, 18 Jun 2019 17:38:17 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
Message-ID: <002b01d52637$4a278b60$de76a220$@comcast.net>

Veronica,
I hear you!!! Take a rest and see what doors/windows open ...
Stay strong!
BTW Walmart did not pan out, cause Medicare is still trying to figure out how to bill for the G6!!! Geeze... How about 1 IT person to spend a day on it and get it rolling!
	Tamera


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:39 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

He is with the Jernigan institute and knows nothing about diabetes. He has stated that he wants us to do it on our own. He has turned down multiple offers from me to bring him up to speed. And nothing, absolutely nothing has happened since he took over. No phone calls, nothing. 
Sorry, but right now I have as much faith in the NFB as I do in Medtronic and they've been promising to come up with a pump for blind people for decades. 
At some point I'll get on things again to see who I can find. I just had to take a break and frankly, grieve what almost was.
Veronica
insYes, I know. He is with theJernigan

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:06 PM
To: Diabetes Talk for the Blind
Cc: Michael Barber
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From fidano at comcast.net  Wed Jun 19 00:44:35 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Tue, 18 Jun 2019 17:44:35 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
Message-ID: <004301d52638$2b6dd520$82497f60$@comcast.net>

My experience is.. its nice the NFB is a back ground, but it is US individually opening to whomever or wherever we can!
I fought like a Banshee when we could not use our smart phones, paying out of pocket and now  appealing over and over for each out of pocket purchase... even thought the first was passed.. then the second... and third!  But they got hoops regardless of  the situation.. what a blinking waste of tax dollars!
Along w/my own.. and I even lost funds as Medicare reduces what they will pay Dexcom, from what I paid for as a cash customer.
But, I have been told I was a top instrument in Dexcom getting Medicare to change some of their wording.. allowing us to use the smart device.
So, we do make some differences in the fight.. takes time to  hear about it! And even longer to Reap the benefits!
	Tamera 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:30 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


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http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.net




From bkpollpeter at gmail.com  Wed Jun 19 01:09:59 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 18 Jun 2019 20:09:59 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
Message-ID: <059201d5263b$b76bf810$2643e830$@gmail.com>

Yep.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:13 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Wed Jun 19 01:13:09 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 18 Jun 2019 20:13:09 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <D039D742705F48E68A999A02133941EB@eileen>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<D039D742705F48E68A999A02133941EB@eileen>
Message-ID: <059a01d5263c$28f5d370$7ae17a50$@gmail.com>

The group was not specific to Facebook. The FB group was to work in tandem with the listserve and DAN in general. But to be honest, the DAN board needs to run with this and light a fire somewhere.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:02 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I know you tried forming a group. And, if it had been on or through another platform, other than FB I would have signed on. I despise FaceBook and won?t use it. 

Eileen

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind' 
Cc: Bridgit Kuenning-Pollpeter 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com




From bkpollpeter at gmail.com  Wed Jun 19 01:14:28 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 18 Jun 2019 20:14:28 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
Message-ID: <059b01d5263c$57cb6b60$07624220$@gmail.com>

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Wed Jun 19 01:15:57 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 18 Jun 2019 20:15:57 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<000c01d5262e$fec48220$fc4d8660$@laurelcreekmusic.com>
Message-ID: <059c01d5263c$8ccdd2d0$a6697870$@gmail.com>

The Jernigan Institute is just one of national's entities; it's all one joint enterprise, but regardless, this is Ludacris and frustrating.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:39 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

He is with the Jernigan institute and knows nothing about diabetes. He has stated that he wants us to do it on our own. He has turned down multiple offers from me to bring him up to speed. And nothing, absolutely nothing has happened since he took over. No phone calls, nothing. 
Sorry, but right now I have as much faith in the NFB as I do in Medtronic and they've been promising to come up with a pump for blind people for decades. 
At some point I'll get on things again to see who I can find. I just had to take a break and frankly, grieve what almost was.
Veronica
insYes, I know. He is with theJernigan

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:06 PM
To: Diabetes Talk for the Blind
Cc: Michael Barber
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From walterl.mitch2 at gmail.com  Wed Jun 19 01:25:18 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Tue, 18 Jun 2019 21:25:18 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <059b01d5263c$57cb6b60$07624220$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<059b01d5263c$57cb6b60$07624220$@gmail.com>
Message-ID: <011701d5263d$db3f58c0$91be0a40$@gmail.com>

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network
Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com




From veronica at laurelcreekmusic.com  Wed Jun 19 01:45:48 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 18:45:48 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>
Message-ID: <001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>

Oh how stupid. Let me get this straight. Because the Dexcom is helping you
get good control, they won't cover it. Boy, talk about not understanding how
diabetes works. Oh this is disgusting! I'm so sorry Gary.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:58 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
oi am again on my own

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From veronica at laurelcreekmusic.com  Wed Jun 19 02:01:34 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 18 Jun 2019 19:01:34 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <011701d5263d$db3f58c0$91be0a40$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
Message-ID: <002001d52642$ec1cb8e0$c4562aa0$@laurelcreekmusic.com>

Okay, here's an example. Many medical device companies are turning to Android as a basis for their new products. This includes, pumps, CPap machines, and other devices. I have been trying to figure out how to get Google to start with their health division, Verily, to come up with funding, then somehow to make the TalkBack system a part of the operating system installed in all of these devices. Trouble is, I haven't landed the right contacts yet. I'm sending emails, trying to ask people who they know and so on, but I haven't hit the right person yet. This is the sort of thing a national organization could really do better than an individual. I have been saying this for a year and a half now. The NFB says, oh we know people at Google. But they're not in the right department and I haven't seen any action. If the NFB is so concerned about the Dexcom, why didn't they push harder to remove the question about whether or not we're going to use the receiver with the G6? Yes, they don't seem to be enforcing this, but the average person doesn't know this. There's a job half completed. My experience with the NFB over many years is that they start something and when they get some sense of maybe a little bit happened, they stop. One of these days I'm just going to stage a sit-in at the Google campus until I get directed somewhere. Time is not our friend here. So we have to get past complaining on a list, whether it's this one or the used to be task force one. If I knew where to plant my noise, I'd have done it long ago. I actually all but closed my business so that I could devote my efforts to the medical device task force, because I had so much hope. I care very much about other blind people and myself. That's why I've made such an effort to make the Omnipod work for now. I will happily spend any amount of time helping others as I did in the early Dexcom days because it matters to me. All of you matter to me. I matter to me. And I have said all of this on the task force list, many times. Sorry if I've flagged a bit. I'm broken-hearted and I've had other family emergencies that demanded my attention. And I could really use someone who has good connections somewhere. Till that time comes, I'll keep looking. I will also keep on with my daily struggle to keep using technology that really isn't designed with me in mind. Thanks for listening.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:25 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network
Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From kutash-jm at comcast.net  Wed Jun 19 02:27:13 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Tue, 18 Jun 2019 22:27:13 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <011701d5263d$db3f58c0$91be0a40$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
Message-ID: <000001d52646$821ef210$865cd630$@comcast.net>

It's not just Medtronic. Even the Abbott Company and insurance companies require blind people to get the completely inaccessible meter, and if on the pre-approval for you say you don't need a meter they don't even look at your approval information. And all of you have made good points. Not approving something because results are better is just stupid, so let's all brainstorm about how we can get people to listen to us. I don't think we can do this before convention but perhaps we need to start having Diabetic calls specifically addressing these issues and we can develop some strategies to get companies to start listening again. 

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:25 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network
Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From sjryan2 at gmail.com  Wed Jun 19 02:46:23 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 21:46:23 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <059b01d5263c$57cb6b60$07624220$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<059b01d5263c$57cb6b60$07624220$@gmail.com>
Message-ID: <5d09a1fd.1c69fb81.1dfe4.af70@mx.google.com>

Well, when the committee existed, it was the DAN board plus Michael Barber and I, since the first resolution originated in Iowa. 

I have quit saying anything here, because last time I did, I was pretty much told to back off, but Veronica, I feel your deep pain! We really were accomplishing something with Dylan and Eric. 

Sandi


Sent from Mail for Windows 10

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:16 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult 
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From sjryan2 at gmail.com  Wed Jun 19 02:51:13 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 21:51:13 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <059a01d5263c$28f5d370$7ae17a50$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<D039D742705F48E68A999A02133941EB@eileen>
	<059a01d5263c$28f5d370$7ae17a50$@gmail.com>
Message-ID: <5d09a31f.1c69fb81.645e.b5d8@mx.google.com>

The DAN board lit the fire, Dylan and Eric worked with us to get Medicare to stop requiring the receiver for the Dexcom, then they left, we were told there would be more meetings soon, then Veronica and I tried to bring the next person up-to-date, and were told we were rude, then NFB decided, without any consultation with DAN or the committee, so far as I know, to lump medical devices in a bill with home appliances and they took it to Washington Seminar, but nothing has come of it. Michael Barber was told that was done because we?d lose some things, but perhaps medical devices would be what was kept from that bill, which was already tried in 2010 (insanity, anyone), and now, so far as I can tell, it?s been dropped.

I?m done, personally. I?ve tried to get NFB to help fight this fight for 6 years, and twice I thought something was actually going to happen. But I no longer believe that.

Sandi


Sent from Mail for Windows 10

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:15 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

The group was not specific to Facebook. The FB group was to work in tandem with the listserve and DAN in general. But to be honest, the DAN board needs to run with this and light a fire somewhere.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:02 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I know you tried forming a group. And, if it had been on or through another platform, other than FB I would have signed on. I despise FaceBook and won?t use it. 

Eileen

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk 
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind' 
Cc: Bridgit Kuenning-Pollpeter 
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From sjryan2 at gmail.com  Wed Jun 19 02:57:05 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 21:57:05 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
Message-ID: <5d09a47f.1c69fb81.db1c.32de@mx.google.com>

In what way?

Sandi


Sent from Mail for Windows 10

From: Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:07 PM
To: Diabetes Talk for the Blind
Cc: Michael Barber
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & 
> Dylan? My thinking is that a diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk 
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell 
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817%40gmail.com

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From sjryan2 at gmail.com  Wed Jun 19 03:02:59 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 22:02:59 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
Message-ID: <5d09a5e1.1c69fb81.2faeb.56ab@mx.google.com>

Both Dylan and Eric left the employ of the National Office. Not sure how that went down all at the same time. Then Anile was put in charge. The blog he wrote was okay, but written, so far as I know, without the DAN, and as I said before, the proposed legislation was done the same way.

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:31 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


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From sjryan2 at gmail.com  Wed Jun 19 03:05:37 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 22:05:37 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <010601d5261c$06735860$135a0920$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<010601d5261c$06735860$135a0920$@gmail.com>
Message-ID: <5d09a67f.1c69fb81.4510d.8898@mx.google.com>

If this were the first time something seemed to be happening and then everything came to a halt, I wouldn?t have questions, but the same thing happened earlier, when Mike Freeman was President. After he died and Tom Ley died, nothing more happened for nearly two years. Then, with letters from this group sent to President Riccobono, the group led by Dylan and Eric was formed. 

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:24 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

We had a great thing going on but we lost Dillon and Eric, pretty much at the same time. Looking back over what we accomplished and how it came to a screeching hault has raised a few questions in my mind. Has anyone else had questions come to mind about this???

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


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http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



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From sjryan2 at gmail.com  Wed Jun 19 03:07:24 2019
From: sjryan2 at gmail.com (sandi)
Date: Tue, 18 Jun 2019 22:07:24 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
Message-ID: <5d09a6ea.1c69fb81.c9d9c.54c1@mx.google.com>

Amen!


Sent from Mail for Windows 10

From: Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> 
But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



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From fidano at comcast.net  Wed Jun 19 03:40:59 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Tue, 18 Jun 2019 20:40:59 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <5d09a5e1.1c69fb81.2faeb.56ab@mx.google.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<5d09a5e1.1c69fb81.2faeb.56ab@mx.google.com>
Message-ID: <000701d52650$d02480b0$706d8210$@comcast.net>

Wow! NFB is falling, or Failing?
Don?t mean to step on the diehards but.. I have other areas  I've needed NFB assistance.. simply advice and its not to be had!!!
	Tamera

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:03 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: sandi <sjryan2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Both Dylan and Eric left the employ of the National Office. Not sure how that went down all at the same time. Then Anile was put in charge. The blog he wrote was okay, but written, so far as I know, without the DAN, and as I said before, the proposed legislation was done the same way.

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:31 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



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_______________________________________________
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From joystigile at gmail.com  Wed Jun 19 04:03:21 2019
From: joystigile at gmail.com (Joy Stigile)
Date: Tue, 18 Jun 2019 21:03:21 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <5d09a5e1.1c69fb81.2faeb.56ab@mx.google.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<5d09a5e1.1c69fb81.2faeb.56ab@mx.google.com>
Message-ID: <005701d52653$f09cb300$d1d61900$@gmail.com>

Hi Friends,
Yes, Eric retired in May, to move back home to Ohio and Dylan left NFB in August for better employment in Washington D.C.
Since, several positions in the Government Affairs department disappeared, it is no wonder the the accessible medical equipment task force was dropped.

We now have more than 50% Democrats in the U.S. Congress and the U.S. Senate. Let's all try to call our representatives and inform them on how we feel about the Greater accessibility in Independence through Non Visual Accessibility (Gain Act)!  Until we have more of congress and senators co-signing on the bill, no bill number will be given.

I wish you all could come to the DAN meeting at National Convention!  We could certainly use your fire.  The last 2 years we were unable to fill all of the positions on the DAN board.
Warmly, Joy

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of sandi via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:03 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: sandi <sjryan2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Both Dylan and Eric left the employ of the National Office. Not sure how that went down all at the same time. Then Anile was put in charge. The blog he wrote was okay, but written, so far as I know, without the DAN, and as I said before, the proposed legislation was done the same way.

Sandi


Sent from Mail for Windows 10

From: Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:31 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 5:13 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Actually, this is slightly nicer than what used to be on their web site.
As for the NFB, in 2018, the accessible medical equipment task force started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 2:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.

BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Tuesday, June 18, 2019 3:33 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] The Stupidity of Medtronic.

Hi All,

I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 

By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?

At the end of what I was reading came the following which is very annoying to me. Here?s what it states:

?Pump therapy is not recommended for people whose vision or hearing does not allow recognition of pump signals and alarms. Pump therapy is not recommended for people who are unwilling or unable to maintain contact with their healthcare professional. The safety of the MiniMed? 670G system has not been studied in pregnant women. For complete details of the system, including product and important safety information such as indications, contraindications, warnings and precautions associated with system and its components, please consult http://www.medtronicdiabetes.com/important-safety-information#minimed-670g
  and the appropriate user guide at
http://www.medtronicdiabetes.com/download-library?

If you are interested in reading this for yourselves, , here is the link to what I was reading:

https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-takes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-promo&utm_content=pumpcaretips_first_loopblog2


Eileen


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From gmelconian619 at gmail.com  Wed Jun 19 05:01:16 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Tue, 18 Jun 2019 22:01:16 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>
	<001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
Message-ID: <004501d5265c$076edb50$164c91f0$@gmail.com>

Thanks for understanding. I don?t get it either.of ot ebay tograb some
snessorsan some g 5 transmitters.i ffound a seller sellingabunch of g5
senssors now haveot find osme more g 5 transmitters an theni will be golden
for a whiel.i know itsnothe g6 but it will keep me alive an around managing
my type 2.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Oh how stupid. Let me get this straight. Because the Dexcom is helping you
get good control, they won't cover it. Boy, talk about not understanding how
diabetes works. Oh this is disgusting! I'm so sorry Gary.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:58 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
oi am again on my own

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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creekmusic.com


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From bkpollpeter at gmail.com  Wed Jun 19 13:32:29 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 08:32:29 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <011701d5263d$db3f58c0$91be0a40$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
Message-ID: <05ec01d526a3$71839070$548ab150$@gmail.com>

But are any of you still on this committee that Anil is heading up? That's my question.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

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From bkpollpeter at gmail.com  Wed Jun 19 13:35:49 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 08:35:49 -0500
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>
	<001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
Message-ID: <05ed01d526a3$e8d1dc90$ba7595b0$@gmail.com>

Exactly, this is absurd. Sick of the entities controlling healthcare
thinking they know best; and it's thinking is led by money. This means
Dexcom is working. So, so should those of us on insulin stop taking it
because our BGs are in target ranges? Geesh...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Oh how stupid. Let me get this straight. Because the Dexcom is helping you
get good control, they won't cover it. Boy, talk about not understanding how
diabetes works. Oh this is disgusting! I'm so sorry Gary.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:58 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
oi am again on my own

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


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ail.com




From dmgina at mysero.net  Wed Jun 19 16:14:17 2019
From: dmgina at mysero.net (d m gina)
Date: Wed, 19 Jun 2019 12:14:17 -0400
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
Message-ID: <38718d5c.2d8e.4425.a845.63a1e28871c7@samobile.net>

So if your numbers are oer the moon they will help you?
I thought it was to make sure you were getting better.
Just unreal.

Original message:
> Oh how stupid. Let me get this straight. Because the Dexcom is helping you
> get good control, they won't cover it. Boy, talk about not understanding how
> diabetes works. Oh this is disgusting! I'm so sorry Gary.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> ????????????????Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407


> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 4:58 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
> oi am again on my own

> Hello since my a1c numbers have been low lately my insurance provider does
> not want to cover the dexcom cgm system.so I am again out on my own.i have
> just decided to get dexcom g5 units off the bay and I have an expert
> engineer who can hack them and replace the batteries and get more long
> lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
> can find them whether that be  the bay or  amazon so if anyone has old g5
> transmitters that they have around. That way I can    give them new life.
> Just email me off the group and I can then take them off your hands .it's
> easy for my techy engineer to do as he has the tools to get this done.

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future



From dmgina at mysero.net  Wed Jun 19 16:16:19 2019
From: dmgina at mysero.net (d m gina)
Date: Wed, 19 Jun 2019 12:16:19 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
Message-ID: <33717f31.651c.4e68.9c25.2a51c91b3824@samobile.net>

So all diabetics have to change from apple products to androyd?
Or get a second phone?
Hmmm wonder what apple did they eat?

Original message:
> Okay, here's an example. Many medical device companies are turning to 
> Android as a basis for their new products. This includes, pumps, CPap 
> machines, and other devices. I have been trying to figure out how to 
> get Google to start with their health division, Verily, to come up with 
> funding, then somehow to make the TalkBack system a part of the 
> operating system installed in all of these devices. Trouble is, I 
> haven't landed the right contacts yet. I'm sending emails, trying to 
> ask people who they know and so on, but I haven't hit the right person 
> yet. This is the sort of thing a national organization could really do 
> better than an individual. I have been saying this for a year and a 
> half now. The NFB says, oh we know people at Google. But they're not in 
> the right department and I haven't seen any action. If the NFB is so 
> concerned about the Dexcom, why didn't they push harder to remove the 
> question about whether or not we're going to use the receiver with the 
> G6? Yes, they don't seem to be enforcing this, but the average person 
> doesn't know this. There's a job half completed. My experience with the 
> NFB over many years is that they start something and when they get some 
> sense of maybe a little bit happened, they stop. One of these days I'm 
> just going to stage a sit-in at the Google campus until I get directed 
> somewhere. Time is not our friend here. So we have to get past 
> complaining on a list, whether it's this one or the used to be task 
> force one. If I knew where to plant my noise, I'd have done it long 
> ago. I actually all but closed my business so that I could devote my 
> efforts to the medical device task force, because I had so much hope. I 
> care very much about other blind people and myself. That's why I've 
> made such an effort to make the Omnipod work for now. I will happily 
> spend any amount of time helping others as I did in the early Dexcom 
> days because it matters to me. All of you matter to me. I matter to me. 
> And I have said all of this on the task force list, many times. Sorry 
> if I've flagged a bit. I'm broken-hearted and I've had other family 
> emergencies that demanded my attention. And I could really use someone 
> who has good connections somewhere. Till that time comes, I'll keep 
> looking. I will also keep on with my daily struggle to keep using 
> technology that really isn't designed with me in mind. Thanks for listening.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide 
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407



> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:25 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Yes, I am on the National DAN Board and I was on the committee. There 
> was others as well Bernadette was on the board. The DAN was the 
> originator of the idea.

> Walter Mitchell
> V-President, Ohio Diabetes Action Network
> Board member, National Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com




> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Is anyone from the DAN board on the committee? Is national working with 
> DAN on this? If not, it should.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Anil Lewis is the person heading up this committee at this time.



> Cordially,
> Michael D. Barber

>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Walter,

>> Do you know who took the places of Eric & Dylan? My thinking is that a
>> diabetic with understanding of pump use & glucose monitors and who is 
>> blind from this group should be on that committee. I?m disgusted with 
>> the lack of motivation, interest, what ever the driving force is to try 
>> and get something done for diabetics who are blind and need to use 
>> these devices be they pumps, glucose monitors. I believe they should 
>> not be thrown into a large group of generic appliances.

>> I have my pump that's working and under warrantee so I feel safe, for a 
>> while, but I am very worried about the future and am frightened for 
>> those blind diabetics whose pumps breakdown and won?t be able to get 
>> replacement pumps. Luckily for the person I spoke with yesterday, after 
>> speaking with me they called Medtronics who said they would work with 
>> them to get a pump they could use. At some point the supply of 
>> Medtronic pumps that a blind person can operate will dry up and go 
>> away. When I?ve spoken with Medtronic reps & my pump trainer they swear 
>> to me they are working on getting another pump that will be 
>> operational, but when, when. It is frightening to think about it.

>> Eileen

>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> I understand your comments, but my questions are based around, just how 
>> we lost both our experts in close proximity. We made a considerable 
>> amount of noise with them and without them, we haven't made a sound. In 
>> my book, I don't think that was a coincidence. That is just my opinion.

>> Walter


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force
>> started off working very hard and really was setting up goals, plans 
>> and assigning tasks to people. Unfortunately the NFB transferred 
>> everything to the Jernigan Institute. They dropped all of the medical 
>> equipment into one giant bill, which aims to address everything from 
>> dish washers to DVD's. They want the Access board to set up rule making 
>> and so on and so forth. If I follow this language, it will be at least 
>> 10 years before anything happens. And nobody using current diabetes 
>> management equipment is currently asked to help. So from where I sit, 
>> looks like they dropped us. But while it lasted, it was a good task 
>> force and I worked my butt off. Okay, it's still there. Darn! <grin> 
>> But I do live in fear of what will happen when Insulet decides to 
>> discontinue the model of PDM I'm using. And to think we could be a year 
>> further along in our efforts if things had continued as they started 
>> last year. Very disappointing.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the Guide 
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> It's wrong but pretty standard pump language. Most companies have a 
>> similar warning. I know pens used to have similar verbiage and there 
>> was a legal action to remove this language from pen info and packaging. 
>> Wondering if something similar needs to happen with pump companies. 
>> Although, now that Medtronic is no longer making the 530G, there are 
>> not currently any pumps with work-arounds on the market.

>> BTW, we tried to get a group together to work on this accessibility 
>> issue, and the only thing to come out out of it was a bitchfest about 
>> using Facebook in addition to the listserve. So...

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>> Hi All,

>> I got an email from Medtronic today and its subject was ?Pre-travel 
>> Tips To Get You Ready For Summer.? It sounded interesting to me so I 
>> decided to click on a link in the message that brought me to their web 
>> site. I was reading along and then came their disclaimer which while I 
>> know its how they think, I couldn?t believe they had the below written 
>> out. The article was talking about the latest & greatest pumps they 
>> make which as blind diabetics we can?t use. Maybe though they should 
>> make a statement that their current pumps do not take into account 
>> accessibility rather than saying someone without vision or impaired 
>> vision should not be using insulin pump therapy. I find it especially 
>> upsetting since I just was put in touch with a person yesterday who?s 
>> current pump is going out of its warentee soon and this person is in 
>> the rough position of finding a pump to use independantly.

>> By the way, folks, where is the DAN on working on this topic for 
>> getting accessibility into pumps? Any plans for the up-coming convention?

>> At the end of what I was reading came the following which is very 
>> annoying to me. Here?s what it states:

>> ?Pump therapy is not recommended for people whose vision or hearing
>> does not allow recognition of pump signals and alarms. Pump therapy is
>> not recommended for people who are unwilling or unable to maintain
>> contact with their healthcare professional. The safety of the MiniMed?
>> 670G system has not been studied in pregnant women. For complete
>> details of the system, including product and important safety
>> information such as indications, contraindications, warnings and
>> precautions associated with system and its components, please consult
>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>> 670g
>>  and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?

>> If you are interested in reading this for yourselves, , here is the 
>> link to what I was reading:

>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>> mo&utm_content=pumpcaretips_first_loopblog2


>> Eileen


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>> 40verizon.net _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>> %40gmail.com

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From dmgina at mysero.net  Wed Jun 19 16:18:39 2019
From: dmgina at mysero.net (d m gina)
Date: Wed, 19 Jun 2019 12:18:39 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
Message-ID: <8ca9a6fa.35d0.4290.9ab8.049a3fc1197a@samobile.net>

I have a question,
Not all of us have ira as I do, where could that company help you run 
the devices you are speaking about?
Not having any, would this mean you would have to call them often?
Remember these are just questions.

Original message:
> It's not just Medtronic. Even the Abbott Company and insurance 
> companies require blind people to get the completely inaccessible 
> meter, and if on the pre-approval for you say you don't need a meter 
> they don't even look at your approval information. And all of you have 
> made good points. Not approving something because results are better is 
> just stupid, so let's all brainstorm about how we can get people to 
> listen to us. I don't think we can do this before convention but 
> perhaps we need to start having Diabetic calls specifically addressing 
> these issues and we can develop some strategies to get companies to 
> start listening again.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:25 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Yes, I am on the National DAN Board and I was on the committee. There 
> was others as well Bernadette was on the board. The DAN was the 
> originator of the idea.

> Walter Mitchell
> V-President, Ohio Diabetes Action Network
> Board member, National Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com




> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Is anyone from the DAN board on the committee? Is national working with 
> DAN on this? If not, it should.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Anil Lewis is the person heading up this committee at this time.



> Cordially,
> Michael D. Barber

>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Walter,

>> Do you know who took the places of Eric & Dylan? My thinking is that a
>> diabetic with understanding of pump use & glucose monitors and who is 
>> blind from this group should be on that committee. I?m disgusted with 
>> the lack of motivation, interest, what ever the driving force is to try 
>> and get something done for diabetics who are blind and need to use 
>> these devices be they pumps, glucose monitors. I believe they should 
>> not be thrown into a large group of generic appliances.

>> I have my pump that's working and under warrantee so I feel safe, for a 
>> while, but I am very worried about the future and am frightened for 
>> those blind diabetics whose pumps breakdown and won?t be able to get 
>> replacement pumps. Luckily for the person I spoke with yesterday, after 
>> speaking with me they called Medtronics who said they would work with 
>> them to get a pump they could use. At some point the supply of 
>> Medtronic pumps that a blind person can operate will dry up and go 
>> away. When I?ve spoken with Medtronic reps & my pump trainer they swear 
>> to me they are working on getting another pump that will be 
>> operational, but when, when. It is frightening to think about it.

>> Eileen

>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> I understand your comments, but my questions are based around, just how 
>> we lost both our experts in close proximity. We made a considerable 
>> amount of noise with them and without them, we haven't made a sound. In 
>> my book, I don't think that was a coincidence. That is just my opinion.

>> Walter


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force
>> started off working very hard and really was setting up goals, plans 
>> and assigning tasks to people. Unfortunately the NFB transferred 
>> everything to the Jernigan Institute. They dropped all of the medical 
>> equipment into one giant bill, which aims to address everything from 
>> dish washers to DVD's. They want the Access board to set up rule making 
>> and so on and so forth. If I follow this language, it will be at least 
>> 10 years before anything happens. And nobody using current diabetes 
>> management equipment is currently asked to help. So from where I sit, 
>> looks like they dropped us. But while it lasted, it was a good task 
>> force and I worked my butt off. Okay, it's still there. Darn! <grin> 
>> But I do live in fear of what will happen when Insulet decides to 
>> discontinue the model of PDM I'm using. And to think we could be a year 
>> further along in our efforts if things had continued as they started 
>> last year. Very disappointing.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the Guide 
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> It's wrong but pretty standard pump language. Most companies have a 
>> similar warning. I know pens used to have similar verbiage and there 
>> was a legal action to remove this language from pen info and packaging. 
>> Wondering if something similar needs to happen with pump companies. 
>> Although, now that Medtronic is no longer making the 530G, there are 
>> not currently any pumps with work-arounds on the market.

>> BTW, we tried to get a group together to work on this accessibility 
>> issue, and the only thing to come out out of it was a bitchfest about 
>> using Facebook in addition to the listserve. So...

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>> Hi All,

>> I got an email from Medtronic today and its subject was ?Pre-travel 
>> Tips To Get You Ready For Summer.? It sounded interesting to me so I 
>> decided to click on a link in the message that brought me to their web 
>> site. I was reading along and then came their disclaimer which while I 
>> know its how they think, I couldn?t believe they had the below written 
>> out. The article was talking about the latest & greatest pumps they 
>> make which as blind diabetics we can?t use. Maybe though they should 
>> make a statement that their current pumps do not take into account 
>> accessibility rather than saying someone without vision or impaired 
>> vision should not be using insulin pump therapy. I find it especially 
>> upsetting since I just was put in touch with a person yesterday who?s 
>> current pump is going out of its warentee soon and this person is in 
>> the rough position of finding a pump to use independantly.

>> By the way, folks, where is the DAN on working on this topic for 
>> getting accessibility into pumps? Any plans for the up-coming convention?

>> At the end of what I was reading came the following which is very 
>> annoying to me. Here?s what it states:

>> ?Pump therapy is not recommended for people whose vision or hearing
>> does not allow recognition of pump signals and alarms. Pump therapy is
>> not recommended for people who are unwilling or unable to maintain
>> contact with their healthcare professional. The safety of the MiniMed?
>> 670G system has not been studied in pregnant women. For complete
>> details of the system, including product and important safety
>> information such as indications, contraindications, warnings and
>> precautions associated with system and its components, please consult
>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>> 670g
>>  and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?

>> If you are interested in reading this for yourselves, , here is the 
>> link to what I was reading:

>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>> mo&utm_content=pumpcaretips_first_loopblog2


>> Eileen


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>> 40verizon.net _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>> %40gmail.com

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From sjryan2 at gmail.com  Wed Jun 19 16:33:05 2019
From: sjryan2 at gmail.com (sandi)
Date: Wed, 19 Jun 2019 11:33:05 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <05ec01d526a3$71839070$548ab150$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
	<05ec01d526a3$71839070$548ab150$@gmail.com>
Message-ID: <5d0a63bd.1c69fb81.faa55.4d5e@mx.google.com>

We still get the notices each month about the group existing. Or I do, anyway. But no activity since Dylan and Eric left, except the blog, which I think was sent through that list.

Sandi


Sent from Mail for Windows 10

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 8:34 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

But are any of you still on this committee that Anil is heading up? That's my question.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


_______________________________________________
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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---
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From bkpollpeter at gmail.com  Wed Jun 19 17:27:10 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 12:27:10 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <33717f31.651c.4e68.9c25.2a51c91b3824@samobile.net>
References: <33717f31.651c.4e68.9c25.2a51c91b3824@samobile.net>
Message-ID: <062b01d526c4$3a29a170$ae7ce450$@gmail.com>

Dar,

This is specific to the Omnipod insulin pump; not all diabetic products.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 11:16 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

So all diabetics have to change from apple products to androyd?
Or get a second phone?
Hmmm wonder what apple did they eat?

Original message:
> Okay, here's an example. Many medical device companies are turning to 
> Android as a basis for their new products. This includes, pumps, CPap 
> machines, and other devices. I have been trying to figure out how to 
> get Google to start with their health division, Verily, to come up 
> with funding, then somehow to make the TalkBack system a part of the 
> operating system installed in all of these devices. Trouble is, I 
> haven't landed the right contacts yet. I'm sending emails, trying to 
> ask people who they know and so on, but I haven't hit the right person 
> yet. This is the sort of thing a national organization could really do 
> better than an individual. I have been saying this for a year and a 
> half now. The NFB says, oh we know people at Google. But they're not 
> in the right department and I haven't seen any action. If the NFB is 
> so concerned about the Dexcom, why didn't they push harder to remove 
> the question about whether or not we're going to use the receiver with 
> the G6? Yes, they don't seem to be enforcing this, but the average 
> person doesn't know this. There's a job half completed. My experience 
> with the NFB over many years is that they start something and when 
> they get some sense of maybe a little bit happened, they stop. One of 
> these days I'm just going to stage a sit-in at the Google campus until 
> I get directed somewhere. Time is not our friend here. So we have to 
> get past complaining on a list, whether it's this one or the used to 
> be task force one. If I knew where to plant my noise, I'd have done it 
> long ago. I actually all but closed my business so that I could devote 
> my efforts to the medical device task force, because I had so much 
> hope. I care very much about other blind people and myself. That's why 
> I've made such an effort to make the Omnipod work for now. I will 
> happily spend any amount of time helping others as I did in the early 
> Dexcom days because it matters to me. All of you matter to me. I matter to me.
> And I have said all of this on the task force list, many times. Sorry 
> if I've flagged a bit. I'm broken-hearted and I've had other family 
> emergencies that demanded my attention. And I could really use someone 
> who has good connections somewhere. Till that time comes, I'll keep 
> looking. I will also keep on with my daily struggle to keep using 
> technology that really isn't designed with me in mind. Thanks for listening.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide 
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407



> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:25 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Yes, I am on the National DAN Board and I was on the committee. There 
> was others as well Bernadette was on the board. The DAN was the 
> originator of the idea.

> Walter Mitchell
> V-President, Ohio Diabetes Action Network
> Board member, National Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com




> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Is anyone from the DAN board on the committee? Is national working with 
> DAN on this? If not, it should.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Anil Lewis is the person heading up this committee at this time.



> Cordially,
> Michael D. Barber

>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Walter,

>> Do you know who took the places of Eric & Dylan? My thinking is that a
>> diabetic with understanding of pump use & glucose monitors and who is 
>> blind from this group should be on that committee. I?m disgusted with 
>> the lack of motivation, interest, what ever the driving force is to try 
>> and get something done for diabetics who are blind and need to use 
>> these devices be they pumps, glucose monitors. I believe they should 
>> not be thrown into a large group of generic appliances.

>> I have my pump that's working and under warrantee so I feel safe, for a 
>> while, but I am very worried about the future and am frightened for 
>> those blind diabetics whose pumps breakdown and won?t be able to get 
>> replacement pumps. Luckily for the person I spoke with yesterday, after 
>> speaking with me they called Medtronics who said they would work with 
>> them to get a pump they could use. At some point the supply of 
>> Medtronic pumps that a blind person can operate will dry up and go 
>> away. When I?ve spoken with Medtronic reps & my pump trainer they swear 
>> to me they are working on getting another pump that will be 
>> operational, but when, when. It is frightening to think about it.

>> Eileen

>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> I understand your comments, but my questions are based around, just how 
>> we lost both our experts in close proximity. We made a considerable 
>> amount of noise with them and without them, we haven't made a sound. In 
>> my book, I don't think that was a coincidence. That is just my opinion.

>> Walter


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force
>> started off working very hard and really was setting up goals, plans 
>> and assigning tasks to people. Unfortunately the NFB transferred 
>> everything to the Jernigan Institute. They dropped all of the medical 
>> equipment into one giant bill, which aims to address everything from 
>> dish washers to DVD's. They want the Access board to set up rule making 
>> and so on and so forth. If I follow this language, it will be at least 
>> 10 years before anything happens. And nobody using current diabetes 
>> management equipment is currently asked to help. So from where I sit, 
>> looks like they dropped us. But while it lasted, it was a good task 
>> force and I worked my butt off. Okay, it's still there. Darn! <grin> 
>> But I do live in fear of what will happen when Insulet decides to 
>> discontinue the model of PDM I'm using. And to think we could be a year 
>> further along in our efforts if things had continued as they started 
>> last year. Very disappointing.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the Guide 
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> It's wrong but pretty standard pump language. Most companies have a 
>> similar warning. I know pens used to have similar verbiage and there 
>> was a legal action to remove this language from pen info and packaging. 
>> Wondering if something similar needs to happen with pump companies. 
>> Although, now that Medtronic is no longer making the 530G, there are 
>> not currently any pumps with work-arounds on the market.

>> BTW, we tried to get a group together to work on this accessibility 
>> issue, and the only thing to come out out of it was a bitchfest about 
>> using Facebook in addition to the listserve. So...

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>> Hi All,

>> I got an email from Medtronic today and its subject was ?Pre-travel 
>> Tips To Get You Ready For Summer.? It sounded interesting to me so I 
>> decided to click on a link in the message that brought me to their web 
>> site. I was reading along and then came their disclaimer which while I 
>> know its how they think, I couldn?t believe they had the below written 
>> out. The article was talking about the latest & greatest pumps they 
>> make which as blind diabetics we can?t use. Maybe though they should 
>> make a statement that their current pumps do not take into account 
>> accessibility rather than saying someone without vision or impaired 
>> vision should not be using insulin pump therapy. I find it especially 
>> upsetting since I just was put in touch with a person yesterday who?s 
>> current pump is going out of its warentee soon and this person is in 
>> the rough position of finding a pump to use independantly.

>> By the way, folks, where is the DAN on working on this topic for 
>> getting accessibility into pumps? Any plans for the up-coming convention?

>> At the end of what I was reading came the following which is very 
>> annoying to me. Here?s what it states:

>> ?Pump therapy is not recommended for people whose vision or hearing
>> does not allow recognition of pump signals and alarms. Pump therapy is
>> not recommended for people who are unwilling or unable to maintain
>> contact with their healthcare professional. The safety of the MiniMed?
>> 670G system has not been studied in pregnant women. For complete
>> details of the system, including product and important safety
>> information such as indications, contraindications, warnings and
>> precautions associated with system and its components, please consult
>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>> 670g
>>  and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?

>> If you are interested in reading this for yourselves, , here is the 
>> link to what I was reading:

>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>> mo&utm_content=pumpcaretips_first_loopblog2


>> Eileen


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>> 40verizon.net _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>> %40gmail.com

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
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From bkpollpeter at gmail.com  Wed Jun 19 17:33:14 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 12:33:14 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <8ca9a6fa.35d0.4290.9ab8.049a3fc1197a@samobile.net>
References: <8ca9a6fa.35d0.4290.9ab8.049a3fc1197a@samobile.net>
Message-ID: <062c01d526c5$13391ae0$39ab50a0$@gmail.com>

Dar,

If you have an inaccessible meter and cannot use it visually or do not have help reading it, and you wanted to use a service like AIRA or Be My Eyes, you would have to use it every time you test your BGS, which for many of us, could be 4 times a day, could be 8 times a day.

For those of us with insulin pumps, it's very difficult for a person on a video call to see the screen. I've tried Be My Eyes and AIRA with my pump, and it was incredibly difficult for the agent to see the screen on my pump.

At the end of the day, using AIRA is not practical, and my problem with AIRA is that while it has its uses, it's not creating independent solutions for blind people. You are still relying on sighted assistance with a service like AIRA. We shouldn't have to use AIRA, Be My Eyes or anything else; accessibility should be a given in medical devices. I should be able to operate all functions on my pump without assistance. Likewise, it should be a given that a blind diabetic gets approval for a talking meter.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 11:19 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I have a question,
Not all of us have ira as I do, where could that company help you run the devices you are speaking about?
Not having any, would this mean you would have to call them often?
Remember these are just questions.

Original message:
> It's not just Medtronic. Even the Abbott Company and insurance 
> companies require blind people to get the completely inaccessible 
> meter, and if on the pre-approval for you say you don't need a meter 
> they don't even look at your approval information. And all of you have 
> made good points. Not approving something because results are better 
> is just stupid, so let's all brainstorm about how we can get people to 
> listen to us. I don't think we can do this before convention but 
> perhaps we need to start having Diabetic calls specifically addressing 
> these issues and we can develop some strategies to get companies to 
> start listening again.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:25 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Yes, I am on the National DAN Board and I was on the committee. There 
> was others as well Bernadette was on the board. The DAN was the 
> originator of the idea.

> Walter Mitchell
> V-President, Ohio Diabetes Action Network Board member, National 
> Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com




> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Is anyone from the DAN board on the committee? Is national working 
> with DAN on this? If not, it should.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Anil Lewis is the person heading up this committee at this time.



> Cordially,
> Michael D. Barber

>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Walter,

>> Do you know who took the places of Eric & Dylan? My thinking is that 
>> a diabetic with understanding of pump use & glucose monitors and who 
>> is blind from this group should be on that committee. I?m disgusted 
>> with the lack of motivation, interest, what ever the driving force is 
>> to try and get something done for diabetics who are blind and need to 
>> use these devices be they pumps, glucose monitors. I believe they 
>> should not be thrown into a large group of generic appliances.

>> I have my pump that's working and under warrantee so I feel safe, for 
>> a while, but I am very worried about the future and am frightened for 
>> those blind diabetics whose pumps breakdown and won?t be able to get 
>> replacement pumps. Luckily for the person I spoke with yesterday, 
>> after speaking with me they called Medtronics who said they would 
>> work with them to get a pump they could use. At some point the supply 
>> of Medtronic pumps that a blind person can operate will dry up and go 
>> away. When I?ve spoken with Medtronic reps & my pump trainer they 
>> swear to me they are working on getting another pump that will be 
>> operational, but when, when. It is frightening to think about it.

>> Eileen

>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> I understand your comments, but my questions are based around, just 
>> how we lost both our experts in close proximity. We made a 
>> considerable amount of noise with them and without them, we haven't 
>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

>> Walter


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force 
>> started off working very hard and really was setting up goals, plans 
>> and assigning tasks to people. Unfortunately the NFB transferred 
>> everything to the Jernigan Institute. They dropped all of the medical 
>> equipment into one giant bill, which aims to address everything from 
>> dish washers to DVD's. They want the Access board to set up rule 
>> making and so on and so forth. If I follow this language, it will be 
>> at least
>> 10 years before anything happens. And nobody using current diabetes 
>> management equipment is currently asked to help. So from where I sit, 
>> looks like they dropped us. But while it lasted, it was a good task 
>> force and I worked my butt off. Okay, it's still there. Darn! <grin> 
>> But I do live in fear of what will happen when Insulet decides to 
>> discontinue the model of PDM I'm using. And to think we could be a 
>> year further along in our efforts if things had continued as they 
>> started last year. Very disappointing.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> It's wrong but pretty standard pump language. Most companies have a 
>> similar warning. I know pens used to have similar verbiage and there 
>> was a legal action to remove this language from pen info and packaging.
>> Wondering if something similar needs to happen with pump companies. 
>> Although, now that Medtronic is no longer making the 530G, there are 
>> not currently any pumps with work-arounds on the market.

>> BTW, we tried to get a group together to work on this accessibility 
>> issue, and the only thing to come out out of it was a bitchfest about 
>> using Facebook in addition to the listserve. So...

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>> Hi All,

>> I got an email from Medtronic today and its subject was ?Pre-travel 
>> Tips To Get You Ready For Summer.? It sounded interesting to me so I 
>> decided to click on a link in the message that brought me to their 
>> web site. I was reading along and then came their disclaimer which 
>> while I know its how they think, I couldn?t believe they had the 
>> below written out. The article was talking about the latest & 
>> greatest pumps they make which as blind diabetics we can?t use. Maybe 
>> though they should make a statement that their current pumps do not 
>> take into account accessibility rather than saying someone without 
>> vision or impaired vision should not be using insulin pump therapy. I 
>> find it especially upsetting since I just was put in touch with a 
>> person yesterday who?s current pump is going out of its warentee soon 
>> and this person is in the rough position of finding a pump to use independantly.

>> By the way, folks, where is the DAN on working on this topic for 
>> getting accessibility into pumps? Any plans for the up-coming convention?

>> At the end of what I was reading came the following which is very 
>> annoying to me. Here?s what it states:

>> ?Pump therapy is not recommended for people whose vision or hearing 
>> does not allow recognition of pump signals and alarms. Pump therapy 
>> is not recommended for people who are unwilling or unable to maintain 
>> contact with their healthcare professional. The safety of the 
>> MiniMed? 670G system has not been studied in pregnant women. For 
>> complete details of the system, including product and important 
>> safety information such as indications, contraindications, warnings 
>> and precautions associated with system and its components, please 
>> consult
>> http://www.medtronicdiabetes.com/important-safety-information#minimed
>> -
>> 670g
>>  and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?

>> If you are interested in reading this for yourselves, , here is the 
>> link to what I was reading:

>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-
>> t 
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pr
>> o
>> mo&utm_content=pumpcaretips_first_loopblog2


>> Eileen


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>> 0
>> laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mi
>> t
>> ch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani
>> % 40verizon.net _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber81
>> 7
>> %40gmail.com

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
> %40gmail.com


> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com


> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
> 0comcast.net


> _______________________________________________
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> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
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From mikecapelle at charter.net  Wed Jun 19 17:46:03 2019
From: mikecapelle at charter.net (Michael Capelle)
Date: Wed, 19 Jun 2019 12:46:03 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <062c01d526c5$13391ae0$39ab50a0$@gmail.com>
References: <8ca9a6fa.35d0.4290.9ab8.049a3fc1197a@samobile.net>
	<062c01d526c5$13391ae0$39ab50a0$@gmail.com>
Message-ID: <001701d526c6$dd815b40$988411c0$@charter.net>

I totally agree.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 12:33 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Dar,

If you have an inaccessible meter and cannot use it visually or do not have help reading it, and you wanted to use a service like AIRA or Be My Eyes, you would have to use it every time you test your BGS, which for many of us, could be 4 times a day, could be 8 times a day.

For those of us with insulin pumps, it's very difficult for a person on a video call to see the screen. I've tried Be My Eyes and AIRA with my pump, and it was incredibly difficult for the agent to see the screen on my pump.

At the end of the day, using AIRA is not practical, and my problem with AIRA is that while it has its uses, it's not creating independent solutions for blind people. You are still relying on sighted assistance with a service like AIRA. We shouldn't have to use AIRA, Be My Eyes or anything else; accessibility should be a given in medical devices. I should be able to operate all functions on my pump without assistance. Likewise, it should be a given that a blind diabetic gets approval for a talking meter.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 11:19 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I have a question,
Not all of us have ira as I do, where could that company help you run the devices you are speaking about?
Not having any, would this mean you would have to call them often?
Remember these are just questions.

Original message:
> It's not just Medtronic. Even the Abbott Company and insurance 
> companies require blind people to get the completely inaccessible 
> meter, and if on the pre-approval for you say you don't need a meter 
> they don't even look at your approval information. And all of you have 
> made good points. Not approving something because results are better 
> is just stupid, so let's all brainstorm about how we can get people to 
> listen to us. I don't think we can do this before convention but 
> perhaps we need to start having Diabetic calls specifically addressing 
> these issues and we can develop some strategies to get companies to 
> start listening again.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:25 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Yes, I am on the National DAN Board and I was on the committee. There 
> was others as well Bernadette was on the board. The DAN was the 
> originator of the idea.

> Walter Mitchell
> V-President, Ohio Diabetes Action Network Board member, National 
> Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com




> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Is anyone from the DAN board on the committee? Is national working 
> with DAN on this? If not, it should.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> Anil Lewis is the person heading up this committee at this time.



> Cordially,
> Michael D. Barber

>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Walter,

>> Do you know who took the places of Eric & Dylan? My thinking is that 
>> a diabetic with understanding of pump use & glucose monitors and who 
>> is blind from this group should be on that committee. I?m disgusted 
>> with the lack of motivation, interest, what ever the driving force is 
>> to try and get something done for diabetics who are blind and need to 
>> use these devices be they pumps, glucose monitors. I believe they 
>> should not be thrown into a large group of generic appliances.

>> I have my pump that's working and under warrantee so I feel safe, for 
>> a while, but I am very worried about the future and am frightened for 
>> those blind diabetics whose pumps breakdown and won?t be able to get 
>> replacement pumps. Luckily for the person I spoke with yesterday, 
>> after speaking with me they called Medtronics who said they would 
>> work with them to get a pump they could use. At some point the supply 
>> of Medtronic pumps that a blind person can operate will dry up and go 
>> away. When I?ve spoken with Medtronic reps & my pump trainer they 
>> swear to me they are working on getting another pump that will be 
>> operational, but when, when. It is frightening to think about it.

>> Eileen

>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> I understand your comments, but my questions are based around, just 
>> how we lost both our experts in close proximity. We made a 
>> considerable amount of noise with them and without them, we haven't 
>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

>> Walter


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force 
>> started off working very hard and really was setting up goals, plans 
>> and assigning tasks to people. Unfortunately the NFB transferred 
>> everything to the Jernigan Institute. They dropped all of the medical 
>> equipment into one giant bill, which aims to address everything from 
>> dish washers to DVD's. They want the Access board to set up rule 
>> making and so on and so forth. If I follow this language, it will be 
>> at least
>> 10 years before anything happens. And nobody using current diabetes 
>> management equipment is currently asked to help. So from where I sit, 
>> looks like they dropped us. But while it lasted, it was a good task 
>> force and I worked my butt off. Okay, it's still there. Darn! <grin> 
>> But I do live in fear of what will happen when Insulet decides to 
>> discontinue the model of PDM I'm using. And to think we could be a 
>> year further along in our efforts if things had continued as they 
>> started last year. Very disappointing.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407


>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> It's wrong but pretty standard pump language. Most companies have a 
>> similar warning. I know pens used to have similar verbiage and there 
>> was a legal action to remove this language from pen info and packaging.
>> Wondering if something similar needs to happen with pump companies. 
>> Although, now that Medtronic is no longer making the 530G, there are 
>> not currently any pumps with work-arounds on the market.

>> BTW, we tried to get a group together to work on this accessibility 
>> issue, and the only thing to come out out of it was a bitchfest about 
>> using Facebook in addition to the listserve. So...

>> Bridgit

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>> Hi All,

>> I got an email from Medtronic today and its subject was ?Pre-travel 
>> Tips To Get You Ready For Summer.? It sounded interesting to me so I 
>> decided to click on a link in the message that brought me to their 
>> web site. I was reading along and then came their disclaimer which 
>> while I know its how they think, I couldn?t believe they had the 
>> below written out. The article was talking about the latest & 
>> greatest pumps they make which as blind diabetics we can?t use. Maybe 
>> though they should make a statement that their current pumps do not 
>> take into account accessibility rather than saying someone without 
>> vision or impaired vision should not be using insulin pump therapy. I 
>> find it especially upsetting since I just was put in touch with a 
>> person yesterday who?s current pump is going out of its warentee soon 
>> and this person is in the rough position of finding a pump to use independantly.

>> By the way, folks, where is the DAN on working on this topic for 
>> getting accessibility into pumps? Any plans for the up-coming convention?

>> At the end of what I was reading came the following which is very 
>> annoying to me. Here?s what it states:

>> ?Pump therapy is not recommended for people whose vision or hearing 
>> does not allow recognition of pump signals and alarms. Pump therapy 
>> is not recommended for people who are unwilling or unable to maintain 
>> contact with their healthcare professional. The safety of the 
>> MiniMed? 670G system has not been studied in pregnant women. For 
>> complete details of the system, including product and important 
>> safety information such as indications, contraindications, warnings 
>> and precautions associated with system and its components, please 
>> consult 
>> http://www.medtronicdiabetes.com/important-safety-information#minimed
>> -
>> 670g
>>  and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?

>> If you are interested in reading this for yourselves, , here is the 
>> link to what I was reading:

>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-
>> t
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pr
>> o
>> mo&utm_content=pumpcaretips_first_loopblog2


>> Eileen


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>> 0
>> laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mi
>> t
>> ch2%40gmail.com


>> _______________________________________________
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>> 7
>> %40gmail.com

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--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
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From gmelconian619 at gmail.com  Wed Jun 19 19:31:06 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Wed, 19 Jun 2019 12:31:06 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <05ed01d526a3$e8d1dc90$ba7595b0$@gmail.com>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>	<001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
	<05ed01d526a3$e8d1dc90$ba7595b0$@gmail.com>
Message-ID: <013c01d526d5$8af68940$a0e39bc0$@gmail.com>

That?s what I told them this morning.  i am basically done with the provider
as soon as I can change in a few months I will be ditching the provider and
seeing what other covered California providers  that I can find that won't
give me this crap when it comes to diabetes stuff.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 6:36 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Exactly, this is absurd. Sick of the entities controlling healthcare
thinking they know best; and it's thinking is led by money. This means
Dexcom is working. So, so should those of us on insulin stop taking it
because our BGs are in target ranges? Geesh...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Oh how stupid. Let me get this straight. Because the Dexcom is helping you
get good control, they won't cover it. Boy, talk about not understanding how
diabetes works. Oh this is disgusting! I'm so sorry Gary.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:58 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
oi am again on my own

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  

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From gmelconian619 at gmail.com  Wed Jun 19 19:32:11 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Wed, 19 Jun 2019 12:32:11 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <38718d5c.2d8e.4425.a845.63a1e28871c7@samobile.net>
References: <38718d5c.2d8e.4425.a845.63a1e28871c7@samobile.net>
Message-ID: <013d01d526d5$b186aae0$149400a0$@gmail.com>

Yes that is what I thought as well.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Wednesday, June 19, 2019 9:14 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

So if your numbers are oer the moon they will help you?
I thought it was to make sure you were getting better.
Just unreal.

Original message:
> Oh how stupid. Let me get this straight. Because the Dexcom is helping 
> you get good control, they won't cover it. Boy, talk about not 
> understanding how diabetes works. Oh this is disgusting! I'm so sorry
Gary.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide
Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> ????????????????Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407


> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of gary-melconian via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 4:58 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom 
> cgmso oi am again on my own

> Hello since my a1c numbers have been low lately my insurance provider 
> does not want to cover the dexcom cgm system.so I am again out on my 
> own.i have just decided to get dexcom g5 units off the bay and I have 
> an expert engineer who can hack them and replace the batteries and get 
> more long lasting use out of them.  Now off to grab g5 sennsors  from 
> where ever  I can find them whether that be  the bay or  amazon so if
anyone has old g5
> transmitters that they have around. That way I can    give them new life.
> Just email me off the group and I can then take them off your hands 
> .it's easy for my techy engineer to do as he has the tools to get this
done.

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurel
> creekmusic.com


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> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From dmgina at mysero.net  Wed Jun 19 19:34:51 2019
From: dmgina at mysero.net (d m gina)
Date: Wed, 19 Jun 2019 15:34:51 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
Message-ID: <93e0dc96.b35a.4bb4.b019.e0b69752a49d@samobile.net>

Ok would ira be able to help with pumps?
Or would it take to long to get done what you need done at the time of a beep?

Original message:
> Dar,

> This is specific to the Omnipod insulin pump; not all diabetic products.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
> gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:16 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> So all diabetics have to change from apple products to androyd?
> Or get a second phone?
> Hmmm wonder what apple did they eat?

> Original message:
>> Okay, here's an example. Many medical device companies are turning to
>> Android as a basis for their new products. This includes, pumps, CPap
>> machines, and other devices. I have been trying to figure out how to
>> get Google to start with their health division, Verily, to come up
>> with funding, then somehow to make the TalkBack system a part of the
>> operating system installed in all of these devices. Trouble is, I
>> haven't landed the right contacts yet. I'm sending emails, trying to
>> ask people who they know and so on, but I haven't hit the right person
>> yet. This is the sort of thing a national organization could really do
>> better than an individual. I have been saying this for a year and a
>> half now. The NFB says, oh we know people at Google. But they're not
>> in the right department and I haven't seen any action. If the NFB is
>> so concerned about the Dexcom, why didn't they push harder to remove
>> the question about whether or not we're going to use the receiver with
>> the G6? Yes, they don't seem to be enforcing this, but the average
>> person doesn't know this. There's a job half completed. My experience
>> with the NFB over many years is that they start something and when
>> they get some sense of maybe a little bit happened, they stop. One of
>> these days I'm just going to stage a sit-in at the Google campus until
>> I get directed somewhere. Time is not our friend here. So we have to
>> get past complaining on a list, whether it's this one or the used to
>> be task force one. If I knew where to plant my noise, I'd have done it
>> long ago. I actually all but closed my business so that I could devote
>> my efforts to the medical device task force, because I had so much
>> hope. I care very much about other blind people and myself. That's why
>> I've made such an effort to make the Omnipod work for now. I will
>> happily spend any amount of time helping others as I did in the early
>> Dexcom days because it matters to me. All of you matter to me. I matter to me.
>> And I have said all of this on the task force list, many times. Sorry
>> if I've flagged a bit. I'm broken-hearted and I've had other family
>> emergencies that demanded my attention. And I could really use someone
>> who has good connections somewhere. Till that time comes, I'll keep
>> looking. I will also keep on with my daily struggle to keep using
>> technology that really isn't designed with me in mind. Thanks for listening.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the Guide
>> Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There
>> was others as well Bernadette was on the board. The DAN was the
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network
>> Board member, National Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working with
>> DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that a
>>> diabetic with understanding of pump use & glucose monitors and who is
>>> blind from this group should be on that committee. I?m disgusted with
>>> the lack of motivation, interest, what ever the driving force is to try
>>> and get something done for diabetics who are blind and need to use
>>> these devices be they pumps, glucose monitors. I believe they should
>>> not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, for a
>>> while, but I am very worried about the future and am frightened for
>>> those blind diabetics whose pumps breakdown and won?t be able to get
>>> replacement pumps. Luckily for the person I spoke with yesterday, after
>>> speaking with me they called Medtronics who said they would work with
>>> them to get a pump they could use. At some point the supply of
>>> Medtronic pumps that a blind person can operate will dry up and go
>>> away. When I?ve spoken with Medtronic reps & my pump trainer they swear
>>> to me they are working on getting another pump that will be
>>> operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just how
>>> we lost both our experts in close proximity. We made a considerable
>>> amount of noise with them and without them, we haven't made a sound. In
>>> my book, I don't think that was a coincidence. That is just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force
>>> started off working very hard and really was setting up goals, plans
>>> and assigning tasks to people. Unfortunately the NFB transferred
>>> everything to the Jernigan Institute. They dropped all of the medical
>>> equipment into one giant bill, which aims to address everything from
>>> dish washers to DVD's. They want the Access board to set up rule making
>>> and so on and so forth. If I follow this language, it will be at least
>>> 10 years before anything happens. And nobody using current diabetes
>>> management equipment is currently asked to help. So from where I sit,
>>> looks like they dropped us. But while it lasted, it was a good task
>>> force and I worked my butt off. Okay, it's still there. Darn! <grin>
>>> But I do live in fear of what will happen when Insulet decides to
>>> discontinue the model of PDM I'm using. And to think we could be a year
>>> further along in our efforts if things had continued as they started
>>> last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the Guide
>>> Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their web
>>> site. I was reading along and then came their disclaimer which while I
>>> know its how they think, I couldn?t believe they had the below written
>>> out. The article was talking about the latest & greatest pumps they
>>> make which as blind diabetics we can?t use. Maybe though they should
>>> make a statement that their current pumps do not take into account
>>> accessibility rather than saying someone without vision or impaired
>>> vision should not be using insulin pump therapy. I find it especially
>>> upsetting since I just was put in touch with a person yesterday who?s
>>> current pump is going out of its warentee soon and this person is in
>>> the rough position of finding a pump to use independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:

>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy is
>>> not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the MiniMed?
>>> 670G system has not been studied in pregnant women. For complete
>>> details of the system, including product and important safety
>>> information such as indications, contraindications, warnings and
>>> precautions associated with system and its components, please consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>>> laurelcreekmusic.com


>>> _______________________________________________
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>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>>> ch2%40gmail.com


>>> _______________________________________________
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>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>>> 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>>> %40gmail.com

>> _______________________________________________
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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>> _______________________________________________
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
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>> _______________________________________________
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>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
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>> _______________________________________________
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>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From dmgina at mysero.net  Wed Jun 19 19:38:04 2019
From: dmgina at mysero.net (d m gina)
Date: Wed, 19 Jun 2019 15:38:04 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
Message-ID: <1fa31523.f0d9.42b9.9a8f.51c586108b6b@samobile.net>

Yes I agree with what you are saying, where if I would need help I 
would call ira as often as needed if they could see the meeter.
You wouldn't be on a phone call long.
It seems to me that even though we are in the year we are the blind 
have to fight so hard.
I hope as children growing up, they don't have to fight as hard as we 
have done to help us out.
Understand I am in your park, I do understand what you are saying.

Original message:
> Dar,

> If you have an inaccessible meter and cannot use it visually or do not 
> have help reading it, and you wanted to use a service like AIRA or Be 
> My Eyes, you would have to use it every time you test your BGS, which 
> for many of us, could be 4 times a day, could be 8 times a day.

> For those of us with insulin pumps, it's very difficult for a person on 
> a video call to see the screen. I've tried Be My Eyes and AIRA with my 
> pump, and it was incredibly difficult for the agent to see the screen 
> on my pump.

> At the end of the day, using AIRA is not practical, and my problem with 
> AIRA is that while it has its uses, it's not creating independent 
> solutions for blind people. You are still relying on sighted assistance 
> with a service like AIRA. We shouldn't have to use AIRA, Be My Eyes or 
> anything else; accessibility should be a given in medical devices. I 
> should be able to operate all functions on my pump without assistance. 
> Likewise, it should be a given that a blind diabetic gets approval for 
> a talking meter.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
> gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:19 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> I have a question,
> Not all of us have ira as I do, where could that company help you run 
> the devices you are speaking about?
> Not having any, would this mean you would have to call them often?
> Remember these are just questions.

> Original message:
>> It's not just Medtronic. Even the Abbott Company and insurance
>> companies require blind people to get the completely inaccessible
>> meter, and if on the pre-approval for you say you don't need a meter
>> they don't even look at your approval information. And all of you have
>> made good points. Not approving something because results are better
>> is just stupid, so let's all brainstorm about how we can get people to
>> listen to us. I don't think we can do this before convention but
>> perhaps we need to start having Diabetic calls specifically addressing
>> these issues and we can develop some strategies to get companies to
>> start listening again.

>> Jeanette

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There
>> was others as well Bernadette was on the board. The DAN was the
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network Board member, National
>> Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working
>> with DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that
>>> a diabetic with understanding of pump use & glucose monitors and who
>>> is blind from this group should be on that committee. I?m disgusted
>>> with the lack of motivation, interest, what ever the driving force is
>>> to try and get something done for diabetics who are blind and need to
>>> use these devices be they pumps, glucose monitors. I believe they
>>> should not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, for
>>> a while, but I am very worried about the future and am frightened for
>>> those blind diabetics whose pumps breakdown and won?t be able to get
>>> replacement pumps. Luckily for the person I spoke with yesterday,
>>> after speaking with me they called Medtronics who said they would
>>> work with them to get a pump they could use. At some point the supply
>>> of Medtronic pumps that a blind person can operate will dry up and go
>>> away. When I?ve spoken with Medtronic reps & my pump trainer they
>>> swear to me they are working on getting another pump that will be
>>> operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just
>>> how we lost both our experts in close proximity. We made a
>>> considerable amount of noise with them and without them, we haven't
>>> made a sound. In my book, I don't think that was a coincidence. That is 
>>> just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force
>>> started off working very hard and really was setting up goals, plans
>>> and assigning tasks to people. Unfortunately the NFB transferred
>>> everything to the Jernigan Institute. They dropped all of the medical
>>> equipment into one giant bill, which aims to address everything from
>>> dish washers to DVD's. They want the Access board to set up rule
>>> making and so on and so forth. If I follow this language, it will be
>>> at least
>>> 10 years before anything happens. And nobody using current diabetes
>>> management equipment is currently asked to help. So from where I sit,
>>> looks like they dropped us. But while it lasted, it was a good task
>>> force and I worked my butt off. Okay, it's still there. Darn! <grin>
>>> But I do live in fear of what will happen when Insulet decides to
>>> discontinue the model of PDM I'm using. And to think we could be a
>>> year further along in our efforts if things had continued as they
>>> started last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their
>>> web site. I was reading along and then came their disclaimer which
>>> while I know its how they think, I couldn?t believe they had the
>>> below written out. The article was talking about the latest &
>>> greatest pumps they make which as blind diabetics we can?t use. Maybe
>>> though they should make a statement that their current pumps do not
>>> take into account accessibility rather than saying someone without
>>> vision or impaired vision should not be using insulin pump therapy. I
>>> find it especially upsetting since I just was put in touch with a
>>> person yesterday who?s current pump is going out of its warentee soon
>>> and this person is in the rough position of finding a pump to use 
>>> independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:

>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy
>>> is not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the
>>> MiniMed? 670G system has not been studied in pregnant women. For
>>> complete details of the system, including product and important
>>> safety information such as indications, contraindications, warnings
>>> and precautions associated with system and its components, please
>>> consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed
>>> -
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-
>>> t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pr
>>> o
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>>> 0
>>> laurelcreekmusic.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mi
>>> t
>>> ch2%40gmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani
>>> % 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber81
>>> 7
>>> %40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>> %40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From etscrivani at verizon.net  Wed Jun 19 20:08:12 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 19 Jun 2019 16:08:12 -0400
Subject: [Diabetes-Talk] Reading The Pump Screen.
Message-ID: <A8AE990BD20E4312A0E701215BDBBC75@eileen>

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen
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From bkpollpeter at gmail.com  Wed Jun 19 20:16:43 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 15:16:43 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <93e0dc96.b35a.4bb4.b019.e0b69752a49d@samobile.net>
References: <93e0dc96.b35a.4bb4.b019.e0b69752a49d@samobile.net>
Message-ID: <068c01d526db$ea07a300$be16e900$@gmail.com>

Dar,

I addressed pumps in my last post. No, it's difficult to see a pump screen through the screen of a phone. AIRA, Be My Eyes and FaceTime don't work, because it's difficult for the person on the other end to see the pump screen.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 2:35 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Ok would ira be able to help with pumps?
Or would it take to long to get done what you need done at the time of a beep?

Original message:
> Dar,

> This is specific to the Omnipod insulin pump; not all diabetic products.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:16 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> So all diabetics have to change from apple products to androyd?
> Or get a second phone?
> Hmmm wonder what apple did they eat?

> Original message:
>> Okay, here's an example. Many medical device companies are turning to 
>> Android as a basis for their new products. This includes, pumps, CPap 
>> machines, and other devices. I have been trying to figure out how to 
>> get Google to start with their health division, Verily, to come up 
>> with funding, then somehow to make the TalkBack system a part of the 
>> operating system installed in all of these devices. Trouble is, I 
>> haven't landed the right contacts yet. I'm sending emails, trying to 
>> ask people who they know and so on, but I haven't hit the right 
>> person yet. This is the sort of thing a national organization could 
>> really do better than an individual. I have been saying this for a 
>> year and a half now. The NFB says, oh we know people at Google. But 
>> they're not in the right department and I haven't seen any action. If 
>> the NFB is so concerned about the Dexcom, why didn't they push harder 
>> to remove the question about whether or not we're going to use the 
>> receiver with the G6? Yes, they don't seem to be enforcing this, but 
>> the average person doesn't know this. There's a job half completed. 
>> My experience with the NFB over many years is that they start 
>> something and when they get some sense of maybe a little bit 
>> happened, they stop. One of these days I'm just going to stage a 
>> sit-in at the Google campus until I get directed somewhere. Time is 
>> not our friend here. So we have to get past complaining on a list, 
>> whether it's this one or the used to be task force one. If I knew 
>> where to plant my noise, I'd have done it long ago. I actually all 
>> but closed my business so that I could devote my efforts to the 
>> medical device task force, because I had so much hope. I care very 
>> much about other blind people and myself. That's why I've made such 
>> an effort to make the Omnipod work for now. I will happily spend any 
>> amount of time helping others as I did in the early Dexcom days because it matters to me. All of you matter to me. I matter to me.
>> And I have said all of this on the task force list, many times. Sorry 
>> if I've flagged a bit. I'm broken-hearted and I've had other family 
>> emergencies that demanded my attention. And I could really use 
>> someone who has good connections somewhere. Till that time comes, 
>> I'll keep looking. I will also keep on with my daily struggle to keep 
>> using technology that really isn't designed with me in mind. Thanks for listening.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner Laurel Creek Music Designs 
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There 
>> was others as well Bernadette was on the board. The DAN was the 
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network Board member, National 
>> Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working 
>> with DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that 
>>> a diabetic with understanding of pump use & glucose monitors and who 
>>> is blind from this group should be on that committee. I?m disgusted 
>>> with the lack of motivation, interest, what ever the driving force 
>>> is to try and get something done for diabetics who are blind and 
>>> need to use these devices be they pumps, glucose monitors. I believe 
>>> they should not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, 
>>> for a while, but I am very worried about the future and am 
>>> frightened for those blind diabetics whose pumps breakdown and won?t 
>>> be able to get replacement pumps. Luckily for the person I spoke 
>>> with yesterday, after speaking with me they called Medtronics who 
>>> said they would work with them to get a pump they could use. At some 
>>> point the supply of Medtronic pumps that a blind person can operate 
>>> will dry up and go away. When I?ve spoken with Medtronic reps & my 
>>> pump trainer they swear to me they are working on getting another 
>>> pump that will be operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just 
>>> how we lost both our experts in close proximity. We made a 
>>> considerable amount of noise with them and without them, we haven't 
>>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force 
>>> started off working very hard and really was setting up goals, plans 
>>> and assigning tasks to people. Unfortunately the NFB transferred 
>>> everything to the Jernigan Institute. They dropped all of the 
>>> medical equipment into one giant bill, which aims to address 
>>> everything from dish washers to DVD's. They want the Access board to 
>>> set up rule making and so on and so forth. If I follow this 
>>> language, it will be at least
>>> 10 years before anything happens. And nobody using current diabetes 
>>> management equipment is currently asked to help. So from where I 
>>> sit, looks like they dropped us. But while it lasted, it was a good 
>>> task force and I worked my butt off. Okay, it's still there. Darn! 
>>> <grin> But I do live in fear of what will happen when Insulet 
>>> decides to discontinue the model of PDM I'm using. And to think we 
>>> could be a year further along in our efforts if things had continued 
>>> as they started last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the 
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner Laurel Creek Music Designs 
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their web
>>> site. I was reading along and then came their disclaimer which while I
>>> know its how they think, I couldn?t believe they had the below written
>>> out. The article was talking about the latest & greatest pumps they
>>> make which as blind diabetics we can?t use. Maybe though they should
>>> make a statement that their current pumps do not take into account
>>> accessibility rather than saying someone without vision or impaired
>>> vision should not be using insulin pump therapy. I find it especially
>>> upsetting since I just was put in touch with a person yesterday who?s
>>> current pump is going out of its warentee soon and this person is in
>>> the rough position of finding a pump to use independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:

>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy is
>>> not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the MiniMed?
>>> 670G system has not been studied in pregnant women. For complete
>>> details of the system, including product and important safety
>>> information such as indications, contraindications, warnings and
>>> precautions associated with system and its components, please consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>>> laurelcreekmusic.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>>> ch2%40gmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>>> 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>>> %40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com




From bkpollpeter at gmail.com  Wed Jun 19 20:18:38 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 15:18:38 -0500
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
Message-ID: <068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>

I have tried Seeing AI on my Medtronic pump with little luck. Once in a blue moon, it will read a sliver of info on my pump screen, but it's not been helpful at all. Glad it works for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen




From jamielgurganus at gmail.com  Wed Jun 19 20:42:20 2019
From: jamielgurganus at gmail.com (jamielgurganus at gmail.com)
Date: Wed, 19 Jun 2019 15:42:20 -0500
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
Message-ID: <002401d526df$7e0113e0$7a033ba0$@gmail.com>

I also use Seeing AI to help me when I mess up a cartridge change or don't know why an alert is going off on my Minimed 530G.  It takes a few tries, since the screen on the 530 G is terrible according to my son.  But, I have been able to get the pump back to working order using it!  

I love the Seeing AI app and use it often throughout the day.

				Jamie
 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen




From veronica at laurelcreekmusic.com  Wed Jun 19 21:46:29 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 19 Jun 2019 14:46:29 -0700
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <002401d526df$7e0113e0$7a033ba0$@gmail.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
	<002401d526df$7e0113e0$7a033ba0$@gmail.com>
Message-ID: <00a201d526e8$73dc6730$5b953590$@laurelcreekmusic.com>

I couldn't really survive using my OmniPod without the reassurance from the Seeing AI app. I couldn't get it to read the Medtronic screens when I tested them at conferences. It was so so on the Animas, but it's quite good with the Omnipod. It got much better when I upgraded to the iPhone 7 almost three years ago. Any little hint or tidbit we can get is a good thing. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jamie Gurganus via Diabetes-Talk
Sent: Wednesday, June 19, 2019 1:42 PM
To: 'Diabetes Talk for the Blind'
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I also use Seeing AI to help me when I mess up a cartridge change or don't know why an alert is going off on my Minimed 530G.  It takes a few tries, since the screen on the 530 G is terrible according to my son.  But, I have been able to get the pump back to working order using it!  

I love the Seeing AI app and use it often throughout the day.

				Jamie
 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From veronica at laurelcreekmusic.com  Wed Jun 19 22:09:07 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 19 Jun 2019 15:09:07 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <068c01d526db$ea07a300$be16e900$@gmail.com>
References: <93e0dc96.b35a.4bb4.b019.e0b69752a49d@samobile.net>
	<068c01d526db$ea07a300$be16e900$@gmail.com>
Message-ID: <00b001d526eb$9d8b74b0$d8a25e10$@laurelcreekmusic.com>

Bridgit, we have had a little bit of dialog on the medical device task force. I've had a few phases of correspondence with Anil but they usually deteriate into him claiming that we're essentially not doing the work ourselves. I wish I could really communicate how hard we worked and how hard I tried one on one for several months after things ground to a halt after last year's convention. And as I said yesterday, we really need more than just telling our legislators we want it. We want it. We need to have the companies on board and get them to say, we want to create it! The legislators don't know the detail and frankly, the NFB proposed bill is too broad and when so much is covered, you loose the specificity that is necessary for medical devices. I really don't believe this is the right approach for getting our needs met and getting them met quickly. If we start having the access board evaluate current technology and take the next ten years for rule-making, you know, sighted people with diabetes will be three steps further along with a completely different technology by then. Or, heh heh heh heh heh, maybe that elusive cure? We need medical device companies on board now so that our needs will be considered and met as they develop the next new devices. In the medical device task force, we were actually talking about setting up a demo at the NFB center, inviting representatives from the different companies. If that had happened, we could have been positioned to set up collaborate plans that could have gone somewhere. We were considering starting by looking at places where government funding is already in play, such as the veterans administration. And here, the loss of Brad Hodges really stings. He was a very hard worker. 
We also talked about the need for inclusion of blind people in the focus groups for all of these new devices. That would happen by working with the companies. If a national organization can establish ongoing relationship with these companies, then we wouldn't be so stuck by the loss of any individual member. This was part of the value in working as the task force had done. But we had an incredible commitment from Eric and Dylan and they did an excellent job of organizing us, doing the follow-up work and showing willingness to learn about the various devices we all use. Sadly we have lost that now. That is what I've tried to see if I could bring back but alas, I have not succeeded. This is one place where national organizations working together can really make a difference in the quality of life for many blind people. Right now both NFB and ACB are claiming that they sorted out Dexcom. Yet neither one has finished the job. I can repeat myself to Dexcom till I'm blue in the face, but I'm just one individual that they can easily dismiss, no matter how often I pester. We could use legislation as a way to sort out the ridiculous Medicare receiver requirement that still lurks out there. We need something codified in order to prevent blind people from being told they can't use the Dexcom because most doctors and educators won't know that this rule isn't really being enforced. If we're that specific, there's always some bit of Medicare legislation floating around that could stand an attachment. But Congress
Doesn't really have the authority to order private companies to do something unless it's tied to a federal contract somewhere. The old, if it's not accessible we won't buy it. But that's not the current proposed bill we're being asked to promote. 
I also offer my thanks to Sandy, Mike and the others who have been through this for so many years. Any organization should be assembling their bright members and helping to turn all of these individual corners of expertice into a cohesive grand effort. Isn't that why we have them? 
Just my thoughts before getting back to work. 
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 1:17 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Dar,

I addressed pumps in my last post. No, it's difficult to see a pump screen through the screen of a phone. AIRA, Be My Eyes and FaceTime don't work, because it's difficult for the person on the other end to see the pump screen.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 2:35 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Ok would ira be able to help with pumps?
Or would it take to long to get done what you need done at the time of a beep?

Original message:
> Dar,

> This is specific to the Omnipod insulin pump; not all diabetic products.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:16 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> So all diabetics have to change from apple products to androyd?
> Or get a second phone?
> Hmmm wonder what apple did they eat?

> Original message:
>> Okay, here's an example. Many medical device companies are turning to 
>> Android as a basis for their new products. This includes, pumps, CPap 
>> machines, and other devices. I have been trying to figure out how to 
>> get Google to start with their health division, Verily, to come up 
>> with funding, then somehow to make the TalkBack system a part of the 
>> operating system installed in all of these devices. Trouble is, I 
>> haven't landed the right contacts yet. I'm sending emails, trying to 
>> ask people who they know and so on, but I haven't hit the right 
>> person yet. This is the sort of thing a national organization could 
>> really do better than an individual. I have been saying this for a 
>> year and a half now. The NFB says, oh we know people at Google. But 
>> they're not in the right department and I haven't seen any action. If 
>> the NFB is so concerned about the Dexcom, why didn't they push harder 
>> to remove the question about whether or not we're going to use the 
>> receiver with the G6? Yes, they don't seem to be enforcing this, but 
>> the average person doesn't know this. There's a job half completed. 
>> My experience with the NFB over many years is that they start 
>> something and when they get some sense of maybe a little bit 
>> happened, they stop. One of these days I'm just going to stage a 
>> sit-in at the Google campus until I get directed somewhere. Time is 
>> not our friend here. So we have to get past complaining on a list, 
>> whether it's this one or the used to be task force one. If I knew 
>> where to plant my noise, I'd have done it long ago. I actually all 
>> but closed my business so that I could devote my efforts to the 
>> medical device task force, because I had so much hope. I care very 
>> much about other blind people and myself. That's why I've made such 
>> an effort to make the Omnipod work for now. I will happily spend any 
>> amount of time helping others as I did in the early Dexcom days because it matters to me. All of you matter to me. I matter to me.
>> And I have said all of this on the task force list, many times. Sorry 
>> if I've flagged a bit. I'm broken-hearted and I've had other family 
>> emergencies that demanded my attention. And I could really use 
>> someone who has good connections somewhere. Till that time comes, 
>> I'll keep looking. I will also keep on with my daily struggle to keep 
>> using technology that really isn't designed with me in mind. Thanks for listening.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner Laurel Creek Music Designs 
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There 
>> was others as well Bernadette was on the board. The DAN was the 
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network Board member, National 
>> Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working 
>> with DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that 
>>> a diabetic with understanding of pump use & glucose monitors and who 
>>> is blind from this group should be on that committee. I?m disgusted 
>>> with the lack of motivation, interest, what ever the driving force 
>>> is to try and get something done for diabetics who are blind and 
>>> need to use these devices be they pumps, glucose monitors. I believe 
>>> they should not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, 
>>> for a while, but I am very worried about the future and am 
>>> frightened for those blind diabetics whose pumps breakdown and won?t 
>>> be able to get replacement pumps. Luckily for the person I spoke 
>>> with yesterday, after speaking with me they called Medtronics who 
>>> said they would work with them to get a pump they could use. At some 
>>> point the supply of Medtronic pumps that a blind person can operate 
>>> will dry up and go away. When I?ve spoken with Medtronic reps & my 
>>> pump trainer they swear to me they are working on getting another 
>>> pump that will be operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just 
>>> how we lost both our experts in close proximity. We made a 
>>> considerable amount of noise with them and without them, we haven't 
>>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force 
>>> started off working very hard and really was setting up goals, plans 
>>> and assigning tasks to people. Unfortunately the NFB transferred 
>>> everything to the Jernigan Institute. They dropped all of the 
>>> medical equipment into one giant bill, which aims to address 
>>> everything from dish washers to DVD's. They want the Access board to 
>>> set up rule making and so on and so forth. If I follow this 
>>> language, it will be at least
>>> 10 years before anything happens. And nobody using current diabetes 
>>> management equipment is currently asked to help. So from where I 
>>> sit, looks like they dropped us. But while it lasted, it was a good 
>>> task force and I worked my butt off. Okay, it's still there. Darn! 
>>> <grin> But I do live in fear of what will happen when Insulet 
>>> decides to discontinue the model of PDM I'm using. And to think we 
>>> could be a year further along in our efforts if things had continued 
>>> as they started last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the 
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner Laurel Creek Music Designs 
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their web
>>> site. I was reading along and then came their disclaimer which while I
>>> know its how they think, I couldn?t believe they had the below written
>>> out. The article was talking about the latest & greatest pumps they
>>> make which as blind diabetics we can?t use. Maybe though they should
>>> make a statement that their current pumps do not take into account
>>> accessibility rather than saying someone without vision or impaired
>>> vision should not be using insulin pump therapy. I find it especially
>>> upsetting since I just was put in touch with a person yesterday who?s
>>> current pump is going out of its warentee soon and this person is in
>>> the rough position of finding a pump to use independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:

>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy is
>>> not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the MiniMed?
>>> 670G system has not been studied in pregnant women. For complete
>>> details of the system, including product and important safety
>>> information such as indications, contraindications, warnings and
>>> precautions associated with system and its components, please consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>>> laurelcreekmusic.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>>> ch2%40gmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>>> 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>>> %40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


_______________________________________________
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Wed Jun 19 22:26:10 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 17:26:10 -0500
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <00a201d526e8$73dc6730$5b953590$@laurelcreekmusic.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>	<002401d526df$7e0113e0$7a033ba0$@gmail.com>
	<00a201d526e8$73dc6730$5b953590$@laurelcreekmusic.com>
Message-ID: <003a01d526ed$ff307c90$fd9175b0$@gmail.com>

Yeah, Seeing AI worked okay with my Animas. But with my Medtronic, it's not really worked. I cover up the buttons so it can only read the screen, but it's been very spotty for me. Not at all reliable.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I couldn't really survive using my OmniPod without the reassurance from the Seeing AI app. I couldn't get it to read the Medtronic screens when I tested them at conferences. It was so so on the Animas, but it's quite good with the Omnipod. It got much better when I upgraded to the iPhone 7 almost three years ago. Any little hint or tidbit we can get is a good thing. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Jamie Gurganus via Diabetes-Talk
Sent: Wednesday, June 19, 2019 1:42 PM
To: 'Diabetes Talk for the Blind'
Cc: jamielgurganus at gmail.com
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I also use Seeing AI to help me when I mess up a cartridge change or don't know why an alert is going off on my Minimed 530G.  It takes a few tries, since the screen on the 530 G is terrible according to my son.  But, I have been able to get the pump back to working order using it!  

I love the Seeing AI app and use it often throughout the day.

				Jamie
 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Wed Jun 19 22:28:56 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 17:28:56 -0500
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <00b001d526eb$9d8b74b0$d8a25e10$@laurelcreekmusic.com>
References: <93e0dc96.b35a.4bb4.b019.e0b69752a49d@samobile.net>	<068c01d526db$ea07a300$be16e900$@gmail.com>
	<00b001d526eb$9d8b74b0$d8a25e10$@laurelcreekmusic.com>
Message-ID: <003b01d526ee$623e2710$26ba7530$@gmail.com>

Why should individuals do work when there's a task force? It seems counter intuitive to create a medical task force and then just tell people it's an individual effort. Clearly we need a collective voice on this.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Wednesday, June 19, 2019 5:09 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Bridgit, we have had a little bit of dialog on the medical device task force. I've had a few phases of correspondence with Anil but they usually deteriate into him claiming that we're essentially not doing the work ourselves. I wish I could really communicate how hard we worked and how hard I tried one on one for several months after things ground to a halt after last year's convention. And as I said yesterday, we really need more than just telling our legislators we want it. We want it. We need to have the companies on board and get them to say, we want to create it! The legislators don't know the detail and frankly, the NFB proposed bill is too broad and when so much is covered, you loose the specificity that is necessary for medical devices. I really don't believe this is the right approach for getting our needs met and getting them met quickly. If we start having the access board evaluate current technology and take the next ten years for rule-making, you know, sighted people with diabetes will be three steps further along with a completely different technology by then. Or, heh heh heh heh heh, maybe that elusive cure? We need medical device companies on board now so that our needs will be considered and met as they develop the next new devices. In the medical device task force, we were actually talking about setting up a demo at the NFB center, inviting representatives from the different companies. If that had happened, we could have been positioned to set up collaborate plans that could have gone somewhere. We were considering starting by looking at places where government funding is already in play, such as the veterans administration. And here, the loss of Brad Hodges really stings. He was a very hard worker. 
We also talked about the need for inclusion of blind people in the focus groups for all of these new devices. That would happen by working with the companies. If a national organization can establish ongoing relationship with these companies, then we wouldn't be so stuck by the loss of any individual member. This was part of the value in working as the task force had done. But we had an incredible commitment from Eric and Dylan and they did an excellent job of organizing us, doing the follow-up work and showing willingness to learn about the various devices we all use. Sadly we have lost that now. That is what I've tried to see if I could bring back but alas, I have not succeeded. This is one place where national organizations working together can really make a difference in the quality of life for many blind people. Right now both NFB and ACB are claiming that they sorted out Dexcom. Yet neither one has finished the job. I can repeat myself to Dexcom till I'm blue in the face, but I'm just one individual that they can easily dismiss, no matter how often I pester. We could use legislation as a way to sort out the ridiculous Medicare receiver requirement that still lurks out there. We need something codified in order to prevent blind people from being told they can't use the Dexcom because most doctors and educators won't know that this rule isn't really being enforced. If we're that specific, there's always some bit of Medicare legislation floating around that could stand an attachment. But Congress Doesn't really have the authority to order private companies to do something unless it's tied to a federal contract somewhere. The old, if it's not accessible we won't buy it. But that's not the current proposed bill we're being asked to promote. 
I also offer my thanks to Sandy, Mike and the others who have been through this for so many years. Any organization should be assembling their bright members and helping to turn all of these individual corners of expertice into a cohesive grand effort. Isn't that why we have them? 
Just my thoughts before getting back to work. 
Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 1:17 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Dar,

I addressed pumps in my last post. No, it's difficult to see a pump screen through the screen of a phone. AIRA, Be My Eyes and FaceTime don't work, because it's difficult for the person on the other end to see the pump screen.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Wednesday, June 19, 2019 2:35 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Ok would ira be able to help with pumps?
Or would it take to long to get done what you need done at the time of a beep?

Original message:
> Dar,

> This is specific to the Omnipod insulin pump; not all diabetic products.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:16 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

> So all diabetics have to change from apple products to androyd?
> Or get a second phone?
> Hmmm wonder what apple did they eat?

> Original message:
>> Okay, here's an example. Many medical device companies are turning to 
>> Android as a basis for their new products. This includes, pumps, CPap 
>> machines, and other devices. I have been trying to figure out how to 
>> get Google to start with their health division, Verily, to come up 
>> with funding, then somehow to make the TalkBack system a part of the 
>> operating system installed in all of these devices. Trouble is, I 
>> haven't landed the right contacts yet. I'm sending emails, trying to 
>> ask people who they know and so on, but I haven't hit the right 
>> person yet. This is the sort of thing a national organization could 
>> really do better than an individual. I have been saying this for a 
>> year and a half now. The NFB says, oh we know people at Google. But 
>> they're not in the right department and I haven't seen any action. If 
>> the NFB is so concerned about the Dexcom, why didn't they push harder 
>> to remove the question about whether or not we're going to use the 
>> receiver with the G6? Yes, they don't seem to be enforcing this, but 
>> the average person doesn't know this. There's a job half completed.
>> My experience with the NFB over many years is that they start 
>> something and when they get some sense of maybe a little bit 
>> happened, they stop. One of these days I'm just going to stage a 
>> sit-in at the Google campus until I get directed somewhere. Time is 
>> not our friend here. So we have to get past complaining on a list, 
>> whether it's this one or the used to be task force one. If I knew 
>> where to plant my noise, I'd have done it long ago. I actually all 
>> but closed my business so that I could devote my efforts to the 
>> medical device task force, because I had so much hope. I care very 
>> much about other blind people and myself. That's why I've made such 
>> an effort to make the Omnipod work for now. I will happily spend any 
>> amount of time helping others as I did in the early Dexcom days because it matters to me. All of you matter to me. I matter to me.
>> And I have said all of this on the task force list, many times. Sorry 
>> if I've flagged a bit. I'm broken-hearted and I've had other family 
>> emergencies that demanded my attention. And I could really use 
>> someone who has good connections somewhere. Till that time comes, 
>> I'll keep looking. I will also keep on with my daily struggle to keep 
>> using technology that really isn't designed with me in mind. Thanks for listening.
>> Veronica


>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>> available on iTunes, along with other music from her and from the 
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                 Veronica Elsea, Owner Laurel Creek Music Designs 
>> Santa Cruz, California
>> Phone: 831-429-6407



>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Yes, I am on the National DAN Board and I was on the committee. There 
>> was others as well Bernadette was on the board. The DAN was the 
>> originator of the idea.

>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network Board member, National 
>> Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com




>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Is anyone from the DAN board on the committee? Is national working 
>> with DAN on this? If not, it should.

>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>> Anil Lewis is the person heading up this committee at this time.



>> Cordially,
>> Michael D. Barber

>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk 
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Walter,

>>> Do you know who took the places of Eric & Dylan? My thinking is that 
>>> a diabetic with understanding of pump use & glucose monitors and who 
>>> is blind from this group should be on that committee. I?m disgusted 
>>> with the lack of motivation, interest, what ever the driving force 
>>> is to try and get something done for diabetics who are blind and 
>>> need to use these devices be they pumps, glucose monitors. I believe 
>>> they should not be thrown into a large group of generic appliances.

>>> I have my pump that's working and under warrantee so I feel safe, 
>>> for a while, but I am very worried about the future and am 
>>> frightened for those blind diabetics whose pumps breakdown and won?t 
>>> be able to get replacement pumps. Luckily for the person I spoke 
>>> with yesterday, after speaking with me they called Medtronics who 
>>> said they would work with them to get a pump they could use. At some 
>>> point the supply of Medtronic pumps that a blind person can operate 
>>> will dry up and go away. When I?ve spoken with Medtronic reps & my 
>>> pump trainer they swear to me they are working on getting another 
>>> pump that will be operational, but when, when. It is frightening to think about it.

>>> Eileen

>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> I understand your comments, but my questions are based around, just 
>>> how we lost both our experts in close proximity. We made a 
>>> considerable amount of noise with them and without them, we haven't 
>>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.

>>> Walter


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force 
>>> started off working very hard and really was setting up goals, plans 
>>> and assigning tasks to people. Unfortunately the NFB transferred 
>>> everything to the Jernigan Institute. They dropped all of the 
>>> medical equipment into one giant bill, which aims to address 
>>> everything from dish washers to DVD's. They want the Access board to 
>>> set up rule making and so on and so forth. If I follow this 
>>> language, it will be at least
>>> 10 years before anything happens. And nobody using current diabetes 
>>> management equipment is currently asked to help. So from where I 
>>> sit, looks like they dropped us. But while it lasted, it was a good 
>>> task force and I worked my butt off. Okay, it's still there. Darn! 
>>> <grin> But I do live in fear of what will happen when Insulet 
>>> decides to discontinue the model of PDM I'm using. And to think we 
>>> could be a year further along in our efforts if things had continued 
>>> as they started last year. Very disappointing.
>>> Veronica


>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
>>> available on iTunes, along with other music from her and from the 
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                Veronica Elsea, Owner Laurel Creek Music Designs 
>>> Santa Cruz, California
>>> Phone: 831-429-6407


>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.

>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...

>>> Bridgit

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.

>>> Hi All,

>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their web
>>> site. I was reading along and then came their disclaimer which while I
>>> know its how they think, I couldn?t believe they had the below written
>>> out. The article was talking about the latest & greatest pumps they
>>> make which as blind diabetics we can?t use. Maybe though they should
>>> make a statement that their current pumps do not take into account
>>> accessibility rather than saying someone without vision or impaired
>>> vision should not be using insulin pump therapy. I find it especially
>>> upsetting since I just was put in touch with a person yesterday who?s
>>> current pump is going out of its warentee soon and this person is in
>>> the rough position of finding a pump to use independantly.

>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?

>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:

>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy is
>>> not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the MiniMed?
>>> 670G system has not been studied in pregnant women. For complete
>>> details of the system, including product and important safety
>>> information such as indications, contraindications, warnings and
>>> precautions associated with system and its components, please consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>>> 670g
>>>  and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?

>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:

>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>>> mo&utm_content=pumpcaretips_first_loopblog2


>>> Eileen


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>>> laurelcreekmusic.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>>> ch2%40gmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>>> 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>>> %40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com




From blindhands at aol.com  Wed Jun 19 23:56:33 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Wed, 19 Jun 2019 19:56:33 -0400
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>
	<068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>
Message-ID: <00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>

I have used  AIRA to read the screen to me.  I use AIRA for my small business.  I wonder if AIRA could offer free time and partner  with the pump company to "for reasonable accomodation 

It would be worth while looking into this.  I am going to send a note into AIRA and ask.

Joyce

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have tried Seeing AI on my Medtronic pump with little luck. Once in a blue moon, it will read a sliver of info on my pump screen, but it's not been helpful at all. Glad it works for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com




From veronica at laurelcreekmusic.com  Thu Jun 20 00:23:18 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 19 Jun 2019 17:23:18 -0700
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>	<068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>
	<00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>
Message-ID: <000301d526fe$5c04e130$140ea390$@laurelcreekmusic.com>

No way could I use Aira to help with my pump. First of all, when I'm changing my pod, ummm, I'm undressed. So that's a non-starter. I don't know if there's any liability regarding medical devices in their contract or not. The other problem, if your pumps are like mine, would be that when I'm stuck and realize I need to look at something, I wonder if the screen would time out by the time I got hold of an agent. I know mine times out rather quickly. But hey, if it can work in some circumstances, go for it!
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of blindhands--- via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:57 PM
To: 'Diabetes Talk for the Blind'
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have used  AIRA to read the screen to me.  I use AIRA for my small business.  I wonder if AIRA could offer free time and partner  with the pump company to "for reasonable accomodation 

It would be worth while looking into this.  I am going to send a note into AIRA and ask.

Joyce

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have tried Seeing AI on my Medtronic pump with little luck. Once in a blue moon, it will read a sliver of info on my pump screen, but it's not been helpful at all. Glad it works for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From bkpollpeter at gmail.com  Thu Jun 20 00:52:03 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 19:52:03 -0500
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>	<068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>
	<00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>
Message-ID: <004e01d52702$609fc940$21df5bc0$@gmail.com>

Joy,

You also have a Medtronic, correct? I've used AIRA twice and Be My Eyes 3 times to read my pump, and each time, the agents said the images were blurry and difficult to read. We made it work but it was tedious. Curious how your experience has been.

That being said, if AIRA created some sort of special agreement for people with medical devices, this would be fantastic. I know AIRA offers special services for small business owners, so why not diabetics and other blind people who might need help with medical devices. Great idea.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of blindhands--- via Diabetes-Talk
Sent: Wednesday, June 19, 2019 6:57 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have used  AIRA to read the screen to me.  I use AIRA for my small business.  I wonder if AIRA could offer free time and partner  with the pump company to "for reasonable accomodation 

It would be worth while looking into this.  I am going to send a note into AIRA and ask.

Joyce

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have tried Seeing AI on my Medtronic pump with little luck. Once in a blue moon, it will read a sliver of info on my pump screen, but it's not been helpful at all. Glad it works for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com




From bkpollpeter at gmail.com  Thu Jun 20 00:52:47 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 19 Jun 2019 19:52:47 -0500
Subject: [Diabetes-Talk] Reading The Pump Screen.
In-Reply-To: <000301d526fe$5c04e130$140ea390$@laurelcreekmusic.com>
References: <A8AE990BD20E4312A0E701215BDBBC75@eileen>	<068d01d526dc$2e6e2a50$8b4a7ef0$@gmail.com>	<00e201d526fa$9f8c4ff0$dea4efd0$@aol.com>
	<000301d526fe$5c04e130$140ea390$@laurelcreekmusic.com>
Message-ID: <004f01d52702$7ad672f0$708358d0$@gmail.com>

Veronica,

What? You don't want strangers seeing you in the buff? LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Wednesday, June 19, 2019 7:23 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

No way could I use Aira to help with my pump. First of all, when I'm changing my pod, ummm, I'm undressed. So that's a non-starter. I don't know if there's any liability regarding medical devices in their contract or not. The other problem, if your pumps are like mine, would be that when I'm stuck and realize I need to look at something, I wonder if the screen would time out by the time I got hold of an agent. I know mine times out rather quickly. But hey, if it can work in some circumstances, go for it!
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of blindhands--- via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:57 PM
To: 'Diabetes Talk for the Blind'
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have used  AIRA to read the screen to me.  I use AIRA for my small business.  I wonder if AIRA could offer free time and partner  with the pump company to "for reasonable accomodation 

It would be worth while looking into this.  I am going to send a note into AIRA and ask.

Joyce

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 4:19 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

I have tried Seeing AI on my Medtronic pump with little luck. Once in a blue moon, it will read a sliver of info on my pump screen, but it's not been helpful at all. Glad it works for you.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 19, 2019 3:08 PM
To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: [Diabetes-Talk] Reading The Pump Screen.

Hi Pump Users,

In talking about the Ira service to read the pump screen, it reminded me that within the last two or so months I have had success in using Seeing A.I. on my IPhone 10 to determine messages on my Medtronic Paradigm Revel 723. I was in a jam two or three times and tried the phone app which helped me determine a Low Revesoire alert that went off when I forgot to change out my infusion set. The other was if I remember a low battery message or else something I had done wrong during a pisten reset. Of course the phone app reads the buttons on the front face of the pump, but with a little adjusting of position I got it to read text from the screen. It gave me enough information to figure out where I was and get myself & the pump back in working order. .

Just thought you?d be interested in knowing this if you haven?t tried it in some time. And, I suppose you could test it if you press the okay button to just pull up the menu. If the phone starts reading the menu options you will know its reading the screen.

HTH.

Eileen


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
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From walterl.mitch2 at gmail.com  Thu Jun 20 01:57:20 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Wed, 19 Jun 2019 21:57:20 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <05ec01d526a3$71839070$548ab150$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
	<05ec01d526a3$71839070$548ab150$@gmail.com>
Message-ID: <006e01d5270b$7f2125e0$7d6371a0$@gmail.com>

I believe that I am because Anil and I had a conversation over the phone as well on the mailing list, but I have not received any correspondence about the committee/group since. I am afraid that nothing has transpired.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 9:32 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

But are any of you still on this committee that Anil is heading up? That's my question.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

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From fidano at comcast.net  Thu Jun 20 03:18:36 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Wed, 19 Jun 2019 20:18:36 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <013c01d526d5$8af68940$a0e39bc0$@gmail.com>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>	<001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>	<05ed01d526a3$e8d1dc90$ba7595b0$@gmail.com>
	<013c01d526d5$8af68940$a0e39bc0$@gmail.com>
Message-ID: <004e01d52716$d9c81570$8d584050$@comcast.net>

Your Endo and Dexcom rep should be going to bat for you?
	Tamera


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Wednesday, June 19, 2019 12:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: gary-melconian <gmelconian619 at gmail.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

That?s what I told them this morning.  i am basically done with the provider
as soon as I can change in a few months I will be ditching the provider and
seeing what other covered California providers  that I can find that won't
give me this crap when it comes to diabetes stuff.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 6:36 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Exactly, this is absurd. Sick of the entities controlling healthcare
thinking they know best; and it's thinking is led by money. This means
Dexcom is working. So, so should those of us on insulin stop taking it
because our BGs are in target ranges? Geesh...

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
cgmso oi am again on my own

Oh how stupid. Let me get this straight. Because the Dexcom is helping you
get good control, they won't cover it. Boy, talk about not understanding how
diabetes works. Oh this is disgusting! I'm so sorry Gary.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 18, 2019 4:58 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
oi am again on my own

Hello since my a1c numbers have been low lately my insurance provider does
not want to cover the dexcom cgm system.so I am again out on my own.i have
just decided to get dexcom g5 units off the bay and I have an expert
engineer who can hack them and replace the batteries and get more long
lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
can find them whether that be  the bay or  amazon so if anyone has old g5
transmitters that they have around. That way I can    give them new life.
Just email me off the group and I can then take them off your hands .it's
easy for my techy engineer to do as he has the tools to get this done.  

_______________________________________________
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To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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creekmusic.com


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ail.com


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net




From gmelconian619 at gmail.com  Thu Jun 20 04:07:18 2019
From: gmelconian619 at gmail.com (G Melconian)
Date: Wed, 19 Jun 2019 21:07:18 -0700
Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom
 cgmso oi am again on my own
In-Reply-To: <004e01d52716$d9c81570$8d584050$@comcast.net>
References: <003901d52631$9ffb7ed0$dff27c70$@gmail.com>
	<001e01d52640$b7fc5ef0$27f51cd0$@laurelcreekmusic.com>
	<05ed01d526a3$e8d1dc90$ba7595b0$@gmail.com>
	<013c01d526d5$8af68940$a0e39bc0$@gmail.com>
	<004e01d52716$d9c81570$8d584050$@comcast.net>
Message-ID: <16b73113cf0.2785.76f7706a0d51902714afda849d7cf02f@gmail.com>

Have done that several times but denial after denial is all that happens 
till I change providers at end of year


On June 19, 2019 8:20:09 PM Tamera via Diabetes-Talk 
<diabetes-talk at nfbnet.org> wrote:

> Your Endo and Dexcom rep should be going to bat for you?
> 	Tamera
>
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 12:31 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: gary-melconian <gmelconian619 at gmail.com>
> Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
> cgmso oi am again on my own
>
> That?s what I told them this morning.  i am basically done with the provider
> as soon as I can change in a few months I will be ditching the provider and
> seeing what other covered California providers  that I can find that won't
> give me this crap when it comes to diabetes stuff.
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
> Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 6:36 AM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
> cgmso oi am again on my own
>
> Exactly, this is absurd. Sick of the entities controlling healthcare
> thinking they know best; and it's thinking is led by money. This means
> Dexcom is working. So, so should those of us on insulin stop taking it
> because our BGs are in target ranges? Geesh...
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
> Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 8:46 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] re my insurance will no longer cover dexcom
> cgmso oi am again on my own
>
> Oh how stupid. Let me get this straight. Because the Dexcom is helping you
> get good control, they won't cover it. Boy, talk about not understanding how
> diabetes works. Oh this is disgusting! I'm so sorry Gary.
> Veronica
>
>
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
> ????????????????Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
>
>
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 4:58 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: [Diabetes-Talk] re my insurance will no longer cover dexcom cgmso
> oi am again on my own
>
> Hello since my a1c numbers have been low lately my insurance provider does
> not want to cover the dexcom cgm system.so I am again out on my own.i have
> just decided to get dexcom g5 units off the bay and I have an expert
> engineer who can hack them and replace the batteries and get more long
> lasting use out of them.  Now off to grab g5 sennsors  from where ever  I
> can find them whether that be  the bay or  amazon so if anyone has old g5
> transmitters that they have around. That way I can    give them new life.
> Just email me off the group and I can then take them off your hands .it's
> easy for my techy engineer to do as he has the tools to get this done.
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/fidano%40comcast.
> net
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
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From veronica at laurelcreekmusic.com  Thu Jun 20 16:44:07 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Thu, 20 Jun 2019 09:44:07 -0700
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <006e01d5270b$7f2125e0$7d6371a0$@gmail.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>	<059b01d5263c$57cb6b60$07624220$@gmail.com>	<011701d5263d$db3f58c0$91be0a40$@gmail.com>	<05ec01d526a3$71839070$548ab150$@gmail.com>
	<006e01d5270b$7f2125e0$7d6371a0$@gmail.com>
Message-ID: <000601d52787$61252470$236f6d50$@laurelcreekmusic.com>

Walter, I just looked in that folder and there were a couple of emails sent out by Anil in February. One about FDA rule-making and the other looking for Dexcom users. There was no recent discussion about a general accessibility plan other than the current proposed bill.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Wednesday, June 19, 2019 6:57 PM
To: 'Diabetes Talk for the Blind'
Cc: Walter Mitchell
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

I believe that I am because Anil and I had a conversation over the phone as well on the mailing list, but I have not received any correspondence about the committee/group since. I am afraid that nothing has transpired.

Walter


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 19, 2019 9:32 AM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

But are any of you still on this committee that Anil is heading up? That's my question.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
Sent: Tuesday, June 18, 2019 8:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.

Walter Mitchell
V-President, Ohio Diabetes Action Network Board member, National Diabetes Action Network
(513) 582-8606
Walterl.mitch2 at gmail.com




-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 18, 2019 9:14 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
Sent: Tuesday, June 18, 2019 6:06 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Michael Barber <m.barber817 at gmail.com>
Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.

Anil Lewis is the person heading up this committee at this time.



Cordially,
Michael D. Barber

> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter,
> 
> Do you know who took the places of Eric & Dylan? My thinking is that a 
> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
> 
> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
> 
> Eileen
> 
> From: Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:29 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 5:13 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Veronica Elsea
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Actually, this is slightly nicer than what used to be on their web site.
> As for the NFB, in 2018, the accessible medical equipment task force 
> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 2:01 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
> 
> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 3:33 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Hi All,
> 
> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
> 
> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
> 
> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
> 
> ?Pump therapy is not recommended for people whose vision or hearing 
> does not allow recognition of pump signals and alarms. Pump therapy is 
> not recommended for people who are unwilling or unable to maintain 
> contact with their healthcare professional. The safety of the MiniMed? 
> 670G system has not been studied in pregnant women. For complete 
> details of the system, including product and important safety 
> information such as indications, contraindications, warnings and 
> precautions associated with system and its components, please consult
> http://www.medtronicdiabetes.com/important-safety-information#minimed-
> 670g
>  and the appropriate user guide at
> http://www.medtronicdiabetes.com/download-library?
> 
> If you are interested in reading this for yourselves, , here is the link to what I was reading:
> 
> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
> mo&utm_content=pumpcaretips_first_loopblog2
> 
> 
> Eileen
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
> laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
> ch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
> 40verizon.net _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
> %40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From walterl.mitch2 at gmail.com  Thu Jun 20 16:59:39 2019
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Thu, 20 Jun 2019 12:59:39 -0400
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <000601d52787$61252470$236f6d50$@laurelcreekmusic.com>
References: <10986C218337444EAA43E6497AF22B35@eileen>
	<056501d52618$efb9cee0$cf2d6ca0$@gmail.com>
	<000c01d5261a$95769740$c063c5c0$@laurelcreekmusic.com>
	<010801d5261c$f2b3ff40$d81bfdc0$@gmail.com>
	<0D7C6D0BE15D4A39A744FFE961096F14@eileen>
	<DC0E45FA-F94B-4E60-B784-E2E1BE1DD606@gmail.com>
	<059b01d5263c$57cb6b60$07624220$@gmail.com>
	<011701d5263d$db3f58c0$91be0a40$@gmail.com>
	<05ec01d526a3$71839070$548ab150$@gmail.com>
	<006e01d5270b$7f2125e0$7d6371a0$@gmail.com>
	<000601d52787$61252470$236f6d50$@laurelcreekmusic.com>
Message-ID: <3347A8A1-65C1-4477-A60D-85F5680C2F7C@gmail.com>

Thank you for that information, I believe that there should be something that we can initiate. It would take all of us to make it happen 

Sent from my iPhone

> On Jun 20, 2019, at 12:44 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Walter, I just looked in that folder and there were a couple of emails sent out by Anil in February. One about FDA rule-making and the other looking for Dexcom users. There was no recent discussion about a general accessibility plan other than the current proposed bill.
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Walter Mitchell via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 6:57 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Walter Mitchell
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> I believe that I am because Anil and I had a conversation over the phone as well on the mailing list, but I have not received any correspondence about the committee/group since. I am afraid that nothing has transpired.
> 
> Walter
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 9:32 AM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> But are any of you still on this committee that Anil is heading up? That's my question.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Walter Mitchell via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 8:25 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Yes, I am on the National DAN Board and I was on the committee. There was others as well Bernadette was on the board. The DAN was the originator of the idea.
> 
> Walter Mitchell
> V-President, Ohio Diabetes Action Network Board member, National Diabetes Action Network
> (513) 582-8606
> Walterl.mitch2 at gmail.com
> 
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Is anyone from the DAN board on the committee? Is national working with DAN on this? If not, it should.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Michael Barber via Diabetes-Talk
> Sent: Tuesday, June 18, 2019 6:06 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Michael Barber <m.barber817 at gmail.com>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
> 
> Anil Lewis is the person heading up this committee at this time.
> 
> 
> 
> Cordially,
> Michael D. Barber
> 
>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Walter,
>> 
>> Do you know who took the places of Eric & Dylan? My thinking is that a 
>> diabetic with understanding of pump use & glucose monitors and who is blind from this group should be on that committee. I?m disgusted with the lack of motivation, interest, what ever the driving force is to try and get something done for diabetics who are blind and need to use these devices be they pumps, glucose monitors. I believe they should not be thrown into a large group of generic appliances.
>> 
>> I have my pump that's working and under warrantee so I feel safe, for a while, but I am very worried about the future and am frightened for those blind diabetics whose pumps breakdown and won?t be able to get replacement pumps. Luckily for the person I spoke with yesterday, after speaking with me they called Medtronics who said they would work with them to get a pump they could use. At some point the supply of Medtronic pumps that a blind person can operate will dry up and go away. When I?ve spoken with Medtronic reps & my pump trainer they swear to me they are working on getting another pump that will be operational, but when, when. It is frightening to think about it.
>> 
>> Eileen
>> 
>> From: Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:29 PM
>> To: 'Diabetes Talk for the Blind' 
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> 
>> I understand your comments, but my questions are based around, just how we lost both our experts in close proximity. We made a considerable amount of noise with them and without them, we haven't made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
>> 
>> Walter
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 5:13 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> 
>> Actually, this is slightly nicer than what used to be on their web site.
>> As for the NFB, in 2018, the accessible medical equipment task force 
>> started off working very hard and really was setting up goals, plans and assigning tasks to people. Unfortunately the NFB transferred everything to the Jernigan Institute. They dropped all of the medical equipment into one giant bill, which aims to address everything from dish washers to DVD's. They want the Access board to set up rule making and so on and so forth. If I follow this language, it will be at least 10 years before anything happens. And nobody using current diabetes management equipment is currently asked to help. So from where I sit, looks like they dropped us. But while it lasted, it was a good task force and I worked my butt off. Okay, it's still there. Darn! <grin> But I do live in fear of what will happen when Insulet decides to discontinue the model of PDM I'm using. And to think we could be a year further along in our efforts if things had continued as they started last year. Very disappointing.
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On 
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 2:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> 
>> It's wrong but pretty standard pump language. Most companies have a similar warning. I know pens used to have similar verbiage and there was a legal action to remove this language from pen info and packaging. Wondering if something similar needs to happen with pump companies. Although, now that Medtronic is no longer making the 530G, there are not currently any pumps with work-arounds on the market.
>> 
>> BTW, we tried to get a group together to work on this accessibility issue, and the only thing to come out out of it was a bitchfest about using Facebook in addition to the listserve. So...
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>> Eileen Scrivani via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 3:33 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
>> 
>> Hi All,
>> 
>> I got an email from Medtronic today and its subject was ?Pre-travel Tips To Get You Ready For Summer.? It sounded interesting to me so I decided to click on a link in the message that brought me to their web site. I was reading along and then came their disclaimer which while I know its how they think, I couldn?t believe they had the below written out. The article was talking about the latest & greatest pumps they make which as blind diabetics we can?t use. Maybe though they should make a statement that their current pumps do not take into account accessibility rather than saying someone without vision or impaired vision should not be using insulin pump therapy. I find it especially upsetting since I just was put in touch with a person yesterday who?s current pump is going out of its warentee soon and this person is in the rough position of finding a pump to use independantly. 
>> 
>> By the way, folks, where is the DAN on working on this topic for getting accessibility into pumps? Any plans for the up-coming convention?
>> 
>> At the end of what I was reading came the following which is very annoying to me. Here?s what it states:
>> 
>> ?Pump therapy is not recommended for people whose vision or hearing 
>> does not allow recognition of pump signals and alarms. Pump therapy is 
>> not recommended for people who are unwilling or unable to maintain 
>> contact with their healthcare professional. The safety of the MiniMed? 
>> 670G system has not been studied in pregnant women. For complete 
>> details of the system, including product and important safety 
>> information such as indications, contraindications, warnings and 
>> precautions associated with system and its components, please consult
>> http://www.medtronicdiabetes.com/important-safety-information#minimed-
>> 670g
>> and the appropriate user guide at
>> http://www.medtronicdiabetes.com/download-library?
>> 
>> If you are interested in reading this for yourselves, , here is the link to what I was reading:
>> 
>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-t
>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pro
>> mo&utm_content=pumpcaretips_first_loopblog2
>> 
>> 
>> Eileen
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40
>> laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%
>> 40verizon.net _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber817
>> %40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> 
> 
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40gmail.com
> 
> 
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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> 
> 
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From dmgina at mysero.net  Thu Jun 20 17:49:49 2019
From: dmgina at mysero.net (d m gina)
Date: Thu, 20 Jun 2019 13:49:49 -0400
Subject: [Diabetes-Talk] Reading The Pump Screen.
Message-ID: <ce76dc92.071a.4e10.93d5.7f16fc17ca64@samobile.net>

That would br good if they could.
I remember Mike always saying he didn't want the pump he would rather 
stick his fingers, I had to laugh.

Original message:
> I have used  AIRA to read the screen to me.  I use AIRA for my small 
> business.  I wonder if AIRA could offer free time and partner  with the 
> pump company to "for reasonable accomodation

> It would be worth while looking into this.  I am going to send a note 
> into AIRA and ask.

> Joyce

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 4:19 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] Reading The Pump Screen.

> I have tried Seeing AI on my Medtronic pump with little luck. Once in a 
> blue moon, it will read a sliver of info on my pump screen, but it's 
> not been helpful at all. Glad it works for you.

> Bridgit

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> Eileen Scrivani via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 3:08 PM
> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: [Diabetes-Talk] Reading The Pump Screen.

> Hi Pump Users,

> In talking about the Ira service to read the pump screen, it reminded 
> me that within the last two or so months I have had success in using 
> Seeing A.I. on my IPhone 10 to determine messages on my Medtronic 
> Paradigm Revel 723. I was in a jam two or three times and tried the 
> phone app which helped me determine a Low Revesoire alert that went off 
> when I forgot to change out my infusion set. The other was if I 
> remember a low battery message or else something I had done wrong 
> during a pisten reset. Of course the phone app reads the buttons on the 
> front face of the pump, but with a little adjusting of position I got 
> it to read text from the screen. It gave me enough information to 
> figure out where I was and get myself & the pump back in working order. .

> Just thought you?d be interested in knowing this if you haven?t tried 
> it in some time. And, I suppose you could test it if you press the okay 
> button to just pull up the menu. If the phone starts reading the menu 
> options you will know its reading the screen.

> HTH.

> Eileen


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From taylor9209 at gmail.com  Thu Jun 20 18:40:47 2019
From: taylor9209 at gmail.com (Taylor Scott)
Date: Thu, 20 Jun 2019 13:40:47 -0500
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
Message-ID: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>

Hi all,

Was trying to get a Dexcom system, and was originally told that I
could not get the G6, but could get the G5.

Now I'm being told that they are not a covered benefit under Medicaid...?

Can anyone shine some light on this?

My medicaid is through Amerigroup if that means anything to anyone. lol

Thanks for any help.



From veronica at laurelcreekmusic.com  Thu Jun 20 18:44:41 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Thu, 20 Jun 2019 11:44:41 -0700
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
In-Reply-To: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>
References: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>
Message-ID: <000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>

I would suggest you call Dexcom at 877-339-2664 and talk to someone in their
insurance group. They are really good at figuring out whether or not you're
covered. Hope this helps.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Thursday, June 20, 2019 11:41 AM
To: diabetes-talk at nfbnet.org
Cc: Taylor Scott
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

Hi all,

Was trying to get a Dexcom system, and was originally told that I
could not get the G6, but could get the G5.

Now I'm being told that they are not a covered benefit under Medicaid...?

Can anyone shine some light on this?

My medicaid is through Amerigroup if that means anything to anyone. lol

Thanks for any help.

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From doula.jarboe at gmail.com  Thu Jun 20 21:41:28 2019
From: doula.jarboe at gmail.com (Doula Jarboe)
Date: Thu, 20 Jun 2019 15:41:28 -0600
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
In-Reply-To: <000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
References: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>
	<000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
Message-ID: <CAOZMXTnEzTZNQLMSMMYBKkLW4DwPeKqo-s6Kxvhy-y6YpsJXRg@mail.gmail.com>

Hi,
 I got my Dexcom back in December and have both Medicare and Medicaid.
My understanding is that with Medicaid it depends on what state you're
in and if they have negotiated something with Dexcom or not. When I
was signing up with Dexcom, my Diabetes educater said that Cololado
was possibly in the process of negotiating something. I don't know if
anything further here has gone forward. But I might check into it
again since I now have a copay with my Medicare coverage for Dexcom.
Nothing like discovering about a policy change when ordering supplies.
Hope this helps.
Doula



From blindhands at aol.com  Thu Jun 20 22:04:48 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Thu, 20 Jun 2019 18:04:48 -0400
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
In-Reply-To: <000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
References: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>
	<000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
Message-ID: <006b01d527b4$2dd8b0f0$898a12d0$@aol.com>

If you  purchase your supplies from Dexcom, I learned within the last 12
months that Dexcom didn't take CT Medicaid.  I did find out  that  


Byram Healthcare  will take the Medicare & Medicaid.  So that is where I
purchase my Dexcom & pump supplies.  They are great to work with, too.

The only issue I have with 


Byram Healthcare is that you can only order 1 month supplies of the sensors,
but they send emails  to remind you when to order.

Joyce 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Thursday, June 20, 2019 2:45 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

I would suggest you call Dexcom at 877-339-2664 and talk to someone in their
insurance group. They are really good at figuring out whether or not you're
covered. Hope this helps.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Thursday, June 20, 2019 11:41 AM
To: diabetes-talk at nfbnet.org
Cc: Taylor Scott
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

Hi all,

Was trying to get a Dexcom system, and was originally told that I could not
get the G6, but could get the G5.

Now I'm being told that they are not a covered benefit under Medicaid...?

Can anyone shine some light on this?

My medicaid is through Amerigroup if that means anything to anyone. lol

Thanks for any help.

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
com




From julie.mclean at cox.net  Thu Jun 20 22:56:47 2019
From: julie.mclean at cox.net (Julie Mclean)
Date: Thu, 20 Jun 2019 18:56:47 -0400
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
In-Reply-To: <006b01d527b4$2dd8b0f0$898a12d0$@aol.com>
References: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>	<000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
	<006b01d527b4$2dd8b0f0$898a12d0$@aol.com>
Message-ID: <000e01d527bb$7247bf90$56d73eb0$@cox.net>

Thank you Joyce for this valuable information regarding  CT Medicaid. 
Best,
Julie 
-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Thursday, June 20, 2019 6:05 PM
To: 'Diabetes Talk for the Blind'
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

If you  purchase your supplies from Dexcom, I learned within the last 12
months that Dexcom didn't take CT Medicaid.  I did find out  that  


Byram Healthcare  will take the Medicare & Medicaid.  So that is where I
purchase my Dexcom & pump supplies.  They are great to work with, too.

The only issue I have with 


Byram Healthcare is that you can only order 1 month supplies of the sensors,
but they send emails  to remind you when to order.

Joyce 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Thursday, June 20, 2019 2:45 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

I would suggest you call Dexcom at 877-339-2664 and talk to someone in their
insurance group. They are really good at figuring out whether or not you're
covered. Hope this helps.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Thursday, June 20, 2019 11:41 AM
To: diabetes-talk at nfbnet.org
Cc: Taylor Scott
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

Hi all,

Was trying to get a Dexcom system, and was originally told that I could not
get the G6, but could get the G5.

Now I'm being told that they are not a covered benefit under Medicaid...?

Can anyone shine some light on this?

My medicaid is through Amerigroup if that means anything to anyone. lol

Thanks for any help.

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/julie.mclean%40co
x.net




From sheila.leigland at gmail.com  Fri Jun 21 05:39:21 2019
From: sheila.leigland at gmail.com (sheila leigland)
Date: Thu, 20 Jun 2019 23:39:21 -0600
Subject: [Diabetes-Talk] The Stupidity of Medtronic.
In-Reply-To: <062c01d526c5$13391ae0$39ab50a0$@gmail.com>
References: <8ca9a6fa.35d0.4290.9ab8.049a3fc1197a@samobile.net>
	<062c01d526c5$13391ae0$39ab50a0$@gmail.com>
Message-ID: <2d17cb48-c5f4-cb9e-5c13-baa4bfd181e3@gmail.com>

agreed these medical devices shouldn't have to be used with sighted 
assistance. for one thing for some of us ira and be my eyes are cost 
progibative and clearly we are not independint when being left without 
other good options to meet our own needs.

On 6/19/2019 11:33 AM, Bridgit Kuenning-Pollpeter via Diabetes-Talk wrote:
> Dar,
>
> If you have an inaccessible meter and cannot use it visually or do not have help reading it, and you wanted to use a service like AIRA or Be My Eyes, you would have to use it every time you test your BGS, which for many of us, could be 4 times a day, could be 8 times a day.
>
> For those of us with insulin pumps, it's very difficult for a person on a video call to see the screen. I've tried Be My Eyes and AIRA with my pump, and it was incredibly difficult for the agent to see the screen on my pump.
>
> At the end of the day, using AIRA is not practical, and my problem with AIRA is that while it has its uses, it's not creating independent solutions for blind people. You are still relying on sighted assistance with a service like AIRA. We shouldn't have to use AIRA, Be My Eyes or anything else; accessibility should be a given in medical devices. I should be able to operate all functions on my pump without assistance. Likewise, it should be a given that a blind diabetic gets approval for a talking meter.
>
> Bridgit
>
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
> Sent: Wednesday, June 19, 2019 11:19 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>
> I have a question,
> Not all of us have ira as I do, where could that company help you run the devices you are speaking about?
> Not having any, would this mean you would have to call them often?
> Remember these are just questions.
>
> Original message:
>> It's not just Medtronic. Even the Abbott Company and insurance
>> companies require blind people to get the completely inaccessible
>> meter, and if on the pre-approval for you say you don't need a meter
>> they don't even look at your approval information. And all of you have
>> made good points. Not approving something because results are better
>> is just stupid, so let's all brainstorm about how we can get people to
>> listen to us. I don't think we can do this before convention but
>> perhaps we need to start having Diabetic calls specifically addressing
>> these issues and we can develop some strategies to get companies to
>> start listening again.
>> Jeanette
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Walter Mitchell via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:25 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Walter Mitchell
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> Yes, I am on the National DAN Board and I was on the committee. There
>> was others as well Bernadette was on the board. The DAN was the
>> originator of the idea.
>> Walter Mitchell
>> V-President, Ohio Diabetes Action Network Board member, National
>> Diabetes Action Network
>> (513) 582-8606
>> Walterl.mitch2 at gmail.com
>
>
>
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> Is anyone from the DAN board on the committee? Is national working
>> with DAN on this? If not, it should.
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>> Michael Barber via Diabetes-Talk
>> Sent: Tuesday, June 18, 2019 6:06 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Michael Barber <m.barber817 at gmail.com>
>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>> Anil Lewis is the person heading up this committee at this time.
>
>
>> Cordially,
>> Michael D. Barber
>>> On Jun 18, 2019, at 5:59 PM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:
>>> Walter,
>>> Do you know who took the places of Eric & Dylan? My thinking is that
>>> a diabetic with understanding of pump use & glucose monitors and who
>>> is blind from this group should be on that committee. I?m disgusted
>>> with the lack of motivation, interest, what ever the driving force is
>>> to try and get something done for diabetics who are blind and need to
>>> use these devices be they pumps, glucose monitors. I believe they
>>> should not be thrown into a large group of generic appliances.
>>> I have my pump that's working and under warrantee so I feel safe, for
>>> a while, but I am very worried about the future and am frightened for
>>> those blind diabetics whose pumps breakdown and won?t be able to get
>>> replacement pumps. Luckily for the person I spoke with yesterday,
>>> after speaking with me they called Medtronics who said they would
>>> work with them to get a pump they could use. At some point the supply
>>> of Medtronic pumps that a blind person can operate will dry up and go
>>> away. When I?ve spoken with Medtronic reps & my pump trainer they
>>> swear to me they are working on getting another pump that will be
>>> operational, but when, when. It is frightening to think about it.
>>> Eileen
>>> From: Walter Mitchell via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:29 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Walter Mitchell
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>>> I understand your comments, but my questions are based around, just
>>> how we lost both our experts in close proximity. We made a
>>> considerable amount of noise with them and without them, we haven't
>>> made a sound. In my book, I don't think that was a coincidence. That is just my opinion.
>>> Walter
>
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Veronica Elsea via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 5:13 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Veronica Elsea
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>>> Actually, this is slightly nicer than what used to be on their web site.
>>> As for the NFB, in 2018, the accessible medical equipment task force
>>> started off working very hard and really was setting up goals, plans
>>> and assigning tasks to people. Unfortunately the NFB transferred
>>> everything to the Jernigan Institute. They dropped all of the medical
>>> equipment into one giant bill, which aims to address everything from
>>> dish washers to DVD's. They want the Access board to set up rule
>>> making and so on and so forth. If I follow this language, it will be
>>> at least
>>> 10 years before anything happens. And nobody using current diabetes
>>> management equipment is currently asked to help. So from where I sit,
>>> looks like they dropped us. But while it lasted, it was a good task
>>> force and I worked my butt off. Okay, it's still there. Darn! <grin>
>>> But I do live in fear of what will happen when Insulet decides to
>>> discontinue the model of PDM I'm using. And to think we could be a
>>> year further along in our efforts if things had continued as they
>>> started last year. Very disappointing.
>>> Veronica
>
>>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>>> available on iTunes, along with other music from her and from the
>>> Guide Dog Glee Club.
>>> To learn more, visit:
>>> http://www.laurelcreekmusic.com
>>>                 Veronica Elsea, Owner
>>> Laurel Creek Music Designs
>>> Santa Cruz, California
>>> Phone: 831-429-6407
>
>>> -----Original Message-----
>>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 2:01 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] The Stupidity of Medtronic.
>>> It's wrong but pretty standard pump language. Most companies have a
>>> similar warning. I know pens used to have similar verbiage and there
>>> was a legal action to remove this language from pen info and packaging.
>>> Wondering if something similar needs to happen with pump companies.
>>> Although, now that Medtronic is no longer making the 530G, there are
>>> not currently any pumps with work-arounds on the market.
>>> BTW, we tried to get a group together to work on this accessibility
>>> issue, and the only thing to come out out of it was a bitchfest about
>>> using Facebook in addition to the listserve. So...
>>> Bridgit
>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>> Eileen Scrivani via Diabetes-Talk
>>> Sent: Tuesday, June 18, 2019 3:33 PM
>>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>>> Subject: [Diabetes-Talk] The Stupidity of Medtronic.
>>> Hi All,
>>> I got an email from Medtronic today and its subject was ?Pre-travel
>>> Tips To Get You Ready For Summer.? It sounded interesting to me so I
>>> decided to click on a link in the message that brought me to their
>>> web site. I was reading along and then came their disclaimer which
>>> while I know its how they think, I couldn?t believe they had the
>>> below written out. The article was talking about the latest &
>>> greatest pumps they make which as blind diabetics we can?t use. Maybe
>>> though they should make a statement that their current pumps do not
>>> take into account accessibility rather than saying someone without
>>> vision or impaired vision should not be using insulin pump therapy. I
>>> find it especially upsetting since I just was put in touch with a
>>> person yesterday who?s current pump is going out of its warentee soon
>>> and this person is in the rough position of finding a pump to use independantly.
>>> By the way, folks, where is the DAN on working on this topic for
>>> getting accessibility into pumps? Any plans for the up-coming convention?
>>> At the end of what I was reading came the following which is very
>>> annoying to me. Here?s what it states:
>>> ?Pump therapy is not recommended for people whose vision or hearing
>>> does not allow recognition of pump signals and alarms. Pump therapy
>>> is not recommended for people who are unwilling or unable to maintain
>>> contact with their healthcare professional. The safety of the
>>> MiniMed? 670G system has not been studied in pregnant women. For
>>> complete details of the system, including product and important
>>> safety information such as indications, contraindications, warnings
>>> and precautions associated with system and its components, please
>>> consult
>>> http://www.medtronicdiabetes.com/important-safety-information#minimed
>>> -
>>> 670g
>>>   and the appropriate user guide at
>>> http://www.medtronicdiabetes.com/download-library?
>>> If you are interested in reading this for yourselves, , here is the
>>> link to what I was reading:
>>> https://www.medtronicdiabetes.com/loop-blog/taking-care-insulin-pump-
>>> t
>>> akes-care/?utm_medium=email&utm_source=eloqua&utm_campaign=may_non-pr
>>> o
>>> mo&utm_content=pumpcaretips_first_loopblog2
>
>>> Eileen
>
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%4
>>> 0
>>> laurelcreekmusic.com
>
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mi
>>> t
>>> ch2%40gmail.com
>
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani
>>> % 40verizon.net _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/m.barber81
>>> 7
>>> %40gmail.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter
>> %40gmail.com
>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mit
>> ch2%40gmail.com
>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%4
>> 0comcast.net
>
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> --
> --Dar
> skype: dmgina23
>    FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
>
>
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sheila.leigland%40gmail.com


From bkpollpeter at gmail.com  Fri Jun 21 13:19:30 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Fri, 21 Jun 2019 08:19:30 -0500
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?
In-Reply-To: <006b01d527b4$2dd8b0f0$898a12d0$@aol.com>
References: <CAE5LqVxWdPskHjwiRDNG8Ai8Ediy3w22ABD_e+Dy7q8EPHEOPw@mail.gmail.com>	<000301d52798$38e71c00$aab55400$@laurelcreekmusic.com>
	<006b01d527b4$2dd8b0f0$898a12d0$@aol.com>
Message-ID: <01c101d52833$f6cfe300$e46fa900$@gmail.com>

Yep, I'm also using Byram, and, knock on wood, am happy with it.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Thursday, June 20, 2019 5:05 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

If you  purchase your supplies from Dexcom, I learned within the last 12
months that Dexcom didn't take CT Medicaid.  I did find out  that  


Byram Healthcare  will take the Medicare & Medicaid.  So that is where I
purchase my Dexcom & pump supplies.  They are great to work with, too.

The only issue I have with 


Byram Healthcare is that you can only order 1 month supplies of the sensors,
but they send emails  to remind you when to order.

Joyce 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Thursday, June 20, 2019 2:45 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

I would suggest you call Dexcom at 877-339-2664 and talk to someone in their
insurance group. They are really good at figuring out whether or not you're
covered. Hope this helps.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Taylor Scott via Diabetes-Talk
Sent: Thursday, June 20, 2019 11:41 AM
To: diabetes-talk at nfbnet.org
Cc: Taylor Scott
Subject: [Diabetes-Talk] Dexcom not a covered benefit under Medicaid?

Hi all,

Was trying to get a Dexcom system, and was originally told that I could not
get the G6, but could get the G5.

Now I'm being told that they are not a covered benefit under Medicaid...?

Can anyone shine some light on this?

My medicaid is through Amerigroup if that means anything to anyone. lol

Thanks for any help.

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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ail.com




From blindhands at aol.com  Mon Jun 24 22:32:06 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Mon, 24 Jun 2019 18:32:06 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
Message-ID: <017b01d52adc$a79af620$f6d0e260$@aol.com>

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 



From hmladek at neo.rr.com  Mon Jun 24 22:55:43 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Mon, 24 Jun 2019 18:55:43 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <017b01d52adc$a79af620$f6d0e260$@aol.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>
Message-ID: <000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.
com




From veronica at laurelcreekmusic.com  Tue Jun 25 00:02:28 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 24 Jun 2019 17:02:28 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>
	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
Message-ID: <000301d52ae9$477871c0$d6695540$@laurelcreekmusic.com>

Rick, there are quite a few of us on this list who use insulin pumps. Unless
you get a pump that Medtronic no longer markets, it's really tricky. I use
the OmniPod. I am able to rescue myself using the Seeing AI app on my phone.
But it's not for the faint of heart. <grin> But I can use more features on
this pump than I could on the outdated Medtronic so here I'll stay.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 3:56 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.
com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From hmladek at neo.rr.com  Tue Jun 25 00:21:18 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Mon, 24 Jun 2019 20:21:18 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000301d52ae9$477871c0$d6695540$@laurelcreekmusic.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
	<000301d52ae9$477871c0$d6695540$@laurelcreekmusic.com>
Message-ID: <001801d52aeb$ea982ba0$bfc882e0$@neo.rr.com>

Until an accessible pump is offered, correct?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 8:02 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Rick, there are quite a few of us on this list who use insulin pumps. Unless
you get a pump that Medtronic no longer markets, it's really tricky. I use
the OmniPod. I am able to rescue myself using the Seeing AI app on my phone.
But it's not for the faint of heart. <grin> But I can use more features on
this pump than I could on the outdated Medtronic so here I'll stay.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 3:56 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.
com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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com




From hmladek at neo.rr.com  Tue Jun 25 00:36:18 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Mon, 24 Jun 2019 20:36:18 -0400
Subject: [Diabetes-Talk] pump or not to pump
Message-ID: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due
to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use
an insulin pump? If so, other than your basil delivery and a quick bolus
option, are you able to operate any of the settings or controls without
sighted assistance? What are your pros and cons with your pump, please I'm
not asking for any bashing of the great Companies out there. Now, if you had
options other than speech technology being part of, what other features
within the software and/or hardware would be wanted? Please don't ask for
built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the
best control of your A1C levels. What reasons prevents you from going to a
pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you
to Veronica and Joyce for your points.

Be well my Friends,

Rick





From diana56cook at gmail.com  Tue Jun 25 00:49:15 2019
From: diana56cook at gmail.com (Diana Cook)
Date: Mon, 24 Jun 2019 20:49:15 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
Message-ID: <092CF707-70F3-49EC-B33A-A2420DDB2CC5@gmail.com>

Love my pump! I feel it makes life so much more flexible.  Fortunately for me , my Dr does all the adjustments. Sometimes I need magnification to see pump and I have sighted help. I do need to learn more about help and equipment available!

Sent from my iPad

> On Jun 24, 2019, at 20:36, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi all,
> 
> Rick here and new to this group. I had forgotten I had joined this group due
> to it being so quiet.
> 
> So, with that in mind, I am writing to all blind diabetics here. Do you use
> an insulin pump? If so, other than your basil delivery and a quick bolus
> option, are you able to operate any of the settings or controls without
> sighted assistance? What are your pros and cons with your pump, please I'm
> not asking for any bashing of the great Companies out there. Now, if you had
> options other than speech technology being part of, what other features
> within the software and/or hardware would be wanted? Please don't ask for
> built in MP3 players or GPS locaters lol.
> Now, for those who do not use a pump, why not? I've read that it allows the
> best control of your A1C levels. What reasons prevents you from going to a
> pump over using whatever option for insulin delivery that you presently use?
> 
> I ask you all to overwhelm me with chatter regarding these points. Thank you
> to Veronica and Joyce for your points.
> 
> Be well my Friends,
> 
> Rick
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com



From dmgina at mysero.net  Tue Jun 25 01:04:36 2019
From: dmgina at mysero.net (d m gina)
Date: Mon, 24 Jun 2019 21:04:36 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
Message-ID: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, 
ira is there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in 
a chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with opinions
> regarding the use of AIRA with a pump.  I said I would make contact with
> AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that there has
> been some mention of insulin pumps.  He told me he would be at Convention in
> Vegas and he would be interested in speaking to some of the people who have
> been working for us blind Diabetic pump users to get insulin pumps
> accessible.



> If anyone is interested in making contact while at Convention, please send
> me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future



From etscrivani at verizon.net  Tue Jun 25 01:08:11 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Mon, 24 Jun 2019 21:08:11 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
Message-ID: <2884501E4F1E4AA38AB1FDF3343394B9@eileen>

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk 
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com 
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due
to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use
an insulin pump? If so, other than your basil delivery and a quick bolus
option, are you able to operate any of the settings or controls without
sighted assistance? What are your pros and cons with your pump, please I'm
not asking for any bashing of the great Companies out there. Now, if you had
options other than speech technology being part of, what other features
within the software and/or hardware would be wanted? Please don't ask for
built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the
best control of your A1C levels. What reasons prevents you from going to a
pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you
to Veronica and Joyce for your points.

Be well my Friends,

Rick



_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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From bkpollpeter at gmail.com  Tue Jun 25 01:21:56 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 20:21:56 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <017b01d52adc$a79af620$f6d0e260$@aol.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>
Message-ID: <064501d52af4$6163b990$242b2cb0$@gmail.com>

Joyce,

You're amazing! Grin.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 5:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
il.com




From bkpollpeter at gmail.com  Tue Jun 25 01:22:32 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 20:22:32 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>
	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
Message-ID: <064601d52af4$76ffcc80$64ff6580$@gmail.com>

Rick,

Several of us are pump users on the group. Smile.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via
Diabetes-Talk
Sent: Monday, June 24, 2019 5:56 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.
com


_______________________________________________
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To unsubscribe, change your list options or get your account info for
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il.com




From hmladek at neo.rr.com  Tue Jun 25 01:23:59 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Mon, 24 Jun 2019 21:23:59 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <2884501E4F1E4AA38AB1FDF3343394B9@eileen>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
Message-ID: <001e01d52af4$ac3d8f40$04b8adc0$@neo.rr.com>

Hello Eileen,

Thank you and also to Diana for your responses. What I am understanding is that from those of you who have shared your points, the pump is a device that gives you more freedom of your lives not to be concerned with the syringe delivery method and all that entails. Also, I've noticed and Eileen has kindly addressed that although there are a few controls able to be handled themselves, a blind user is not able to independently control most of the needed settings etc. without a sighted assistant.

I cannot understand to why more then do not use. Is it affordability?

Yes, I'm asking a lot but I must do my research to know how those of you use such equipment to manage your insulin therapy.

Again, I do thank you for your points regarding blindness and insulin pumps. Sad as it is, I've recently read a report from back in the early 2000s that was all about insulin pumps and diabetics blind not being able to use such devices independently.  If blind and deaf individuals are contraindicated, how does one with such a disability obtain a prescription? Being contraindicated should mean since unable to use safely/independently without assistance, how is such a device that can be so troubling be prescribed and sold to one whom has such disabilities? Maybe I'm thinking out loud but it is when you are vocal, you then are heard and somebody decides to do something.

Be heard, I am taking notes is all I can admit to...

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 9:08 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Tue Jun 25 01:30:54 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 20:30:54 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
Message-ID: <064801d52af5$a20db8a0$e62929e0$@gmail.com>

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with 

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
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ail.com




From dmgina at mysero.net  Tue Jun 25 01:53:09 2019
From: dmgina at mysero.net (d m gina)
Date: Mon, 24 Jun 2019 21:53:09 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
Message-ID: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>

Well that could be said for anything, don't ask a sighted person for 
help because if you do then you don't need any blind products.
Just sit back and do nothing wait for the world to pass you buy, and 
wonder what happened to your life while it was passing by.
If you can get the help to get done what is there and here now, strive for it.
Then products as pumps can stil be used, we would still be out there, 
and we still can say there is no reason why they can't put in a chip 
for it to talk to us.
Even with all of the kids toys out there that talk, if they can do 
that, then they can put a chip in a pump.
It shouldn't cost any more to do that.
You folks have worked well with the pumps I am proud of all of you.
Keep up the swell work, then keep on them as best you can.
At least I know if I have two colored shoes that feel the same I can 
call and ask if they are the same or different.
I am really pleased they are out there, and hope they get active in 
many other shops stores anything where we can get the help.
I feel even more independent walking with ira than to wait ten minutes 
or more for an agent in the store to come help me out.
Glad they have places to sit.
Smile.
We are hoping companies will pay for the cost of ira so those who wish 
to use it can, and those who don't, they don't have to.
It is a choice.
You get the information then you decide what you wish to do with it.

Original message:
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,

> Original message:
>> When this topic came up there seemed to be some chatter along with

> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse

> BTW, this is not a negative comment on AIRA but on society in general.

> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make
>> contact with AIRA and I did.



>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>> there has been some mention of insulin pumps.  He told me he would be
>> at Convention in Vegas and he would be interested in speaking to some
>> of the people who have been working for us blind Diabetic pump users
>> to get insulin pumps accessible.



>> If anyone is interested in making contact while at Convention, please
>> send me a note off list and I will send you my conversation with him.



>> Joyce



>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future



From veronica at laurelcreekmusic.com  Tue Jun 25 02:29:30 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 24 Jun 2019 19:29:30 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <001801d52aeb$ea982ba0$bfc882e0$@neo.rr.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>	<000301d52ae9$477871c0$d6695540$@laurelcreekmusic.com>
	<001801d52aeb$ea982ba0$bfc882e0$@neo.rr.com>
Message-ID: <000901d52afd$d16f4340$744dc9c0$@laurelcreekmusic.com>

Here are the features I use myself:
Changing batteries
Changing pod: (involves filling a pod with insulin, peeling off backing,
placing pod correctly on my arm and being on the correct screens as I do
things.
Manually entering blood sugar reading.
Entering amount of carbs I plan to eat
Adding or subtracting bolus amount based on what I may know that the pump
doesn't.
These features make use of the pump's insulin on board feature so it
accounts for insulin remaining in my system and may not deliver the full
bolus based on that data.
Set and cancel temporary basal rates.
Suspend the pump.
Technically I can change time, basal rates and other settings but I'm just a
bit timid about doing this without sighted verification because Seeing AI
doesn't announce what is selected.
With Seeing AI app:
Read expiration of pod and all status screens, including amount of insulin
on board remaining.
Verify that all of my button presses are correct when entering carbs or
insulin.
Read the screens while I'm changing the pod. 
Read when temp basals are in effect. 
Read alerts if I'm quick enough. 
App does not always tell me which button to push. This is the "not for the
faint of heart" bit. Soft keys vary from screen to screen. I have
occasionally had to hold my breath and guess.

Favorite feature: No tubing. I love just grabbing the remote, especially
when I'm out in public.

Deal breaker on any pump: I will not switch to a pump where all I could do
is give a bolus and that's it. The value of a pump for me is making use of
the insulin on board and temp basal features in particular. I wish I could
use the food data bases.
Of course, pumps must include speech if they incorporate CGM as a built-in
feature.

I'll probably think of more stuff but this is a start.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 5:21 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Until an accessible pump is offered, correct?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 8:02 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Rick, there are quite a few of us on this list who use insulin pumps. Unless
you get a pump that Medtronic no longer markets, it's really tricky. I use
the OmniPod. I am able to rescue myself using the Seeing AI app on my phone.
But it's not for the faint of heart. <grin> But I can use more features on
this pump than I could on the outdated Medtronic so here I'll stay.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 3:56 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

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From sjryan2 at gmail.com  Tue Jun 25 02:30:00 2019
From: sjryan2 at gmail.com (sandi)
Date: Mon, 24 Jun 2019 21:30:00 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <064801d52af5$a20db8a0$e62929e0$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
Message-ID: <5d118727.1c69fb81.96aa1.2732@mx.google.com>

Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.

Sandi


Sent from Mail for Windows 10

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:32 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with 

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
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ail.com


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---
This email has been checked for viruses by AVG.
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From veronica at laurelcreekmusic.com  Tue Jun 25 02:33:30 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 24 Jun 2019 19:33:30 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
Message-ID: <000b01d52afe$60688520$21398f60$@laurelcreekmusic.com>

As I said earlier, when I change my pods, ummm, I'm at least half undressed.
No calling anybody on my phone. <grin>
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d
m gina via Diabetes-Talk
Sent: Monday, June 24, 2019 6:53 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Well that could be said for anything, don't ask a sighted person for 
help because if you do then you don't need any blind products.
Just sit back and do nothing wait for the world to pass you buy, and 
wonder what happened to your life while it was passing by.
If you can get the help to get done what is there and here now, strive for
it.
Then products as pumps can stil be used, we would still be out there, 
and we still can say there is no reason why they can't put in a chip 
for it to talk to us.
Even with all of the kids toys out there that talk, if they can do 
that, then they can put a chip in a pump.
It shouldn't cost any more to do that.
You folks have worked well with the pumps I am proud of all of you.
Keep up the swell work, then keep on them as best you can.
At least I know if I have two colored shoes that feel the same I can 
call and ask if they are the same or different.
I am really pleased they are out there, and hope they get active in 
many other shops stores anything where we can get the help.
I feel even more independent walking with ira than to wait ten minutes 
or more for an agent in the store to come help me out.
Glad they have places to sit.
Smile.
We are hoping companies will pay for the cost of ira so those who wish 
to use it can, and those who don't, they don't have to.
It is a choice.
You get the information then you decide what you wish to do with it.

Original message:
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a
way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m
gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira
is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,

> Original message:
>> When this topic came up there seemed to be some chatter along with

> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse

> BTW, this is not a negative comment on AIRA but on society in general.

> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make
>> contact with AIRA and I did.



>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>> there has been some mention of insulin pumps.  He told me he would be
>> at Convention in Vegas and he would be interested in speaking to some
>> of the people who have been working for us blind Diabetic pump users
>> to get insulin pumps accessible.



>> If anyone is interested in making contact while at Convention, please
>> send me a note off list and I will send you my conversation with him.



>> Joyce



>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
>
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.n
et

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From veronica at laurelcreekmusic.com  Tue Jun 25 02:37:38 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Mon, 24 Jun 2019 19:37:38 -0700
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <2884501E4F1E4AA38AB1FDF3343394B9@eileen>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
Message-ID: <000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk 
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com 
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due
to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use
an insulin pump? If so, other than your basil delivery and a quick bolus
option, are you able to operate any of the settings or controls without
sighted assistance? What are your pros and cons with your pump, please I'm
not asking for any bashing of the great Companies out there. Now, if you had
options other than speech technology being part of, what other features
within the software and/or hardware would be wanted? Please don't ask for
built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the
best control of your A1C levels. What reasons prevents you from going to a
pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you
to Veronica and Joyce for your points.

Be well my Friends,

Rick



_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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_______________________________________________
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From bkpollpeter at gmail.com  Tue Jun 25 03:01:01 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 22:01:01 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
Message-ID: <005501d52b02$38f384f0$aada8ed0$@gmail.com>

But Dar, companies are already referring to AIRA as a viable fix for blind
people, insisting why this is why they don't have to make products
accessible. And asking a sighted friend or family is not the same as
on-the-demand sighted assistance 24/7 with AIRA. So no, you can't say the
same for other types of sighted help.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:53 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Well that could be said for anything, don't ask a sighted person for help
because if you do then you don't need any blind products.
Just sit back and do nothing wait for the world to pass you buy, and wonder
what happened to your life while it was passing by.
If you can get the help to get done what is there and here now, strive for
it.
Then products as pumps can stil be used, we would still be out there, and we
still can say there is no reason why they can't put in a chip for it to talk
to us.
Even with all of the kids toys out there that talk, if they can do that,
then they can put a chip in a pump.
It shouldn't cost any more to do that.
You folks have worked well with the pumps I am proud of all of you.
Keep up the swell work, then keep on them as best you can.
At least I know if I have two colored shoes that feel the same I can call
and ask if they are the same or different.
I am really pleased they are out there, and hope they get active in many
other shops stores anything where we can get the help.
I feel even more independent walking with ira than to wait ten minutes or
more for an agent in the store to come help me out.
Glad they have places to sit.
Smile.
We are hoping companies will pay for the cost of ira so those who wish to
use it can, and those who don't, they don't have to.
It is a choice.
You get the information then you decide what you wish to do with it.

Original message:
> AIRA isn't the best way to make us independent. It's 24/7 help, but 
> it's still sighted help for things that mostly could be made 
> accessible in a way that blind people could do it without any sighted 
> help. Forms can be formatted for online use; websites can be made 
> accessible; devices can be accessible, etc. Sure, until companies get 
> a fire lit under them, AIRA is here, but what's the incentive for 
> companies to work on accessibility when services like AIRA exist? It's 
> a catch 22. We need accessibility now, but now that we have AIRA, 
> companies no longer think they need to think about accessibility.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, 
> ira is there for us, and does help us stay mobile in anything we want to
do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put 
> in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,

> Original message:
>> When this topic came up there seemed to be some chatter along with

> So... In my opinion, it's not the best tool to give us independence. 
> True independence would be possible if companies gave a shit (excuse

> BTW, this is not a negative comment on AIRA but on society in general.

> Bridgitmy French) and worked to make products and devices accessible. 
> And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.



>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.



>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.



>> Joyce



>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>> y
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
> 40hotm
> ail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com




From bkpollpeter at gmail.com  Tue Jun 25 03:01:51 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 22:01:51 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <5d118727.1c69fb81.96aa1.2732@mx.google.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<5d118727.1c69fb81.96aa1.2732@mx.google.com>
Message-ID: <005601d52b02$56aa7bc0$03ff7340$@gmail.com>

Yep.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
Sent: Monday, June 24, 2019 9:30 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: sandi <sjryan2 at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.

Sandi


Sent from Mail for Windows 10

From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:32 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From bkpollpeter at gmail.com  Tue Jun 25 03:03:31 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Mon, 24 Jun 2019 22:03:31 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>
Message-ID: <005c01d52b02$926fd830$b74f8890$@gmail.com>

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From etscrivani at verizon.net  Tue Jun 25 03:23:45 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Mon, 24 Jun 2019 23:23:45 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001e01d52af4$ac3d8f40$04b8adc0$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com><2884501E4F1E4AA38AB1FDF3343394B9@eileen>
	<001e01d52af4$ac3d8f40$04b8adc0$@neo.rr.com>
Message-ID: <99B798F42B7C47E59F83F246BD6076F4@eileen>

Rick,

Using a pump or doing injections with a pen is a personal choice. The pump is a device and I suppose you could say that those who use them are ?tied? to them since there is always this little device that is attached to you and you must carry it everywhere. For years I did injections of insulin because I was afraid of using a pump and the injection to insert the cannula. Knowing what I know now I wish I had started on a pump many years ago. Not only does it give me better control over my BG?s, its easier to take the insulin when I need it, say at a restaurant, or to correct a high blood sugar level. I only have to inject the cannula once every 3rd or fourth day as opposed to taking 4 to 6 injections daily. Having it on my person has become like second nature to me. 

I switched over to a pump when I found controlling my blood sugar levels was becoming more and more difficult while on daily, multiple injections of both long & short acting insulin. After having open heart surgery, I was put on an insulin drip in the hospital and I was amazed by the fact that my BG numbers were excellent and level. Once home and back on short & long acting insulins and having numbers that were all over the place I decided I wanted to use a pump. And the heart surgery was more than enough to make me say I no longer want to suffer through the bad complications from diabetes! I spoke to my doctor, who has been my long-time champion and he was agreeable that I would start pump therapy. 

With my insurance, the pump is actually less expensive to me than what I was paying out-of-pocket for insulin pens. I suppose more people don?t use pumps for the same reasons I held out for so long. And I suppose people start using them for the same types of reasons I started using one! The manufacturer of my pump, Medtronic, has recently come out with pumps they call ?the artificial pancreas.? 

Unfortunately, the issue of all current models of insulin pumps on the markets not being accessible to those of us who are blind is a huge deal-breaker. Its not even a barrier, because a barrier can be worked around, but its a deal-breaker and if someone of the manufacturers does not come out with a model at least on the very basic level of my current pump, in another few years, I and many others on this list will be in a very bad place if there is not a workable, and reliable  model of insulin pump for us to change over to.

Eileen


From: Rick via Diabetes-Talk 
Sent: Monday, June 24, 2019 9:23 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com 
Subject: Re: [Diabetes-Talk] pump or not to pump

Hello Eileen,

Thank you and also to Diana for your responses. What I am understanding is that from those of you who have shared your points, the pump is a device that gives you more freedom of your lives not to be concerned with the syringe delivery method and all that entails. Also, I've noticed and Eileen has kindly addressed that although there are a few controls able to be handled themselves, a blind user is not able to independently control most of the needed settings etc. without a sighted assistant.

I cannot understand to why more then do not use. Is it affordability?

Yes, I'm asking a lot but I must do my research to know how those of you use such equipment to manage your insulin therapy.

Again, I do thank you for your points regarding blindness and insulin pumps. Sad as it is, I've recently read a report from back in the early 2000s that was all about insulin pumps and diabetics blind not being able to use such devices independently.  If blind and deaf individuals are contraindicated, how does one with such a disability obtain a prescription? Being contraindicated should mean since unable to use safely/independently without assistance, how is such a device that can be so troubling be prescribed and sold to one whom has such disabilities? Maybe I'm thinking out loud but it is when you are vocal, you then are heard and somebody decides to do something.

Be heard, I am taking notes is all I can admit to...

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 9:08 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From cindyray at gmail.com  Tue Jun 25 03:24:42 2019
From: cindyray at gmail.com (Cindy Ray)
Date: Mon, 24 Jun 2019 22:24:42 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <005501d52b02$38f384f0$aada8ed0$@gmail.com>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
	<005501d52b02$38f384f0$aada8ed0$@gmail.com>
Message-ID: <6A950AB2-4D44-4913-9D5E-77CA939C6C00@gmail.com>

Aira is great and I love them, but their technology sometimes fails. They are a tool to fit into the accessibility gap but not the accessibility



Cindy Lou Ray
Sent from my iPhone

> On Jun 24, 2019, at 10:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> But Dar, companies are already referring to AIRA as a viable fix for blind
> people, insisting why this is why they don't have to make products
> accessible. And asking a sighted friend or family is not the same as
> on-the-demand sighted assistance 24/7 with AIRA. So no, you can't say the
> same for other types of sighted help.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:53 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well that could be said for anything, don't ask a sighted person for help
> because if you do then you don't need any blind products.
> Just sit back and do nothing wait for the world to pass you buy, and wonder
> what happened to your life while it was passing by.
> If you can get the help to get done what is there and here now, strive for
> it.
> Then products as pumps can stil be used, we would still be out there, and we
> still can say there is no reason why they can't put in a chip for it to talk
> to us.
> Even with all of the kids toys out there that talk, if they can do that,
> then they can put a chip in a pump.
> It shouldn't cost any more to do that.
> You folks have worked well with the pumps I am proud of all of you.
> Keep up the swell work, then keep on them as best you can.
> At least I know if I have two colored shoes that feel the same I can call
> and ask if they are the same or different.
> I am really pleased they are out there, and hope they get active in many
> other shops stores anything where we can get the help.
> I feel even more independent walking with ira than to wait ten minutes or
> more for an agent in the store to come help me out.
> Glad they have places to sit.
> Smile.
> We are hoping companies will pay for the cost of ira so those who wish to
> use it can, and those who don't, they don't have to.
> It is a choice.
> You get the information then you decide what you wish to do with it.
> 
> Original message:
>> AIRA isn't the best way to make us independent. It's 24/7 help, but 
>> it's still sighted help for things that mostly could be made 
>> accessible in a way that blind people could do it without any sighted 
>> help. Forms can be formatted for online use; websites can be made 
>> accessible; devices can be accessible, etc. Sure, until companies get 
>> a fire lit under them, AIRA is here, but what's the incentive for 
>> companies to work on accessibility when services like AIRA exist? It's 
>> a catch 22. We need accessibility now, but now that we have AIRA, 
>> companies no longer think they need to think about accessibility.
> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
>> m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, 
>> ira is there for us, and does help us stay mobile in anything we want to
> do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put 
>> in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
> 
>> So... In my opinion, it's not the best tool to give us independence. 
>> True independence would be possible if companies gave a shit (excuse
> 
>> BTW, this is not a negative comment on AIRA but on society in general.
> 
>> Bridgitmy French) and worked to make products and devices accessible. 
>> And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
> 
> 
> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
> 
> 
> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>>> Joyce
> 
> 
> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>>> y
>>> sero.net
> 
>> --
>> --Dar
>> skype: dmgina23
>>  FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
>> 40hotm
>> ail.com
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
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> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From kutash-jm at comcast.net  Tue Jun 25 03:36:21 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Mon, 24 Jun 2019 23:36:21 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <005501d52b02$38f384f0$aada8ed0$@gmail.com>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
	<005501d52b02$38f384f0$aada8ed0$@gmail.com>
Message-ID: <000301d52b07$2922f560$7b68e020$@comcast.net>

Dar, as much as I pay for Aira and use it, there are times when not getting
a connection makes it not a viable option, and that is why we need the
accessability built into products. 

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 11:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

But Dar, companies are already referring to AIRA as a viable fix for blind
people, insisting why this is why they don't have to make products
accessible. And asking a sighted friend or family is not the same as
on-the-demand sighted assistance 24/7 with AIRA. So no, you can't say the
same for other types of sighted help.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:53 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Well that could be said for anything, don't ask a sighted person for help
because if you do then you don't need any blind products.
Just sit back and do nothing wait for the world to pass you buy, and wonder
what happened to your life while it was passing by.
If you can get the help to get done what is there and here now, strive for
it.
Then products as pumps can stil be used, we would still be out there, and we
still can say there is no reason why they can't put in a chip for it to talk
to us.
Even with all of the kids toys out there that talk, if they can do that,
then they can put a chip in a pump.
It shouldn't cost any more to do that.
You folks have worked well with the pumps I am proud of all of you.
Keep up the swell work, then keep on them as best you can.
At least I know if I have two colored shoes that feel the same I can call
and ask if they are the same or different.
I am really pleased they are out there, and hope they get active in many
other shops stores anything where we can get the help.
I feel even more independent walking with ira than to wait ten minutes or
more for an agent in the store to come help me out.
Glad they have places to sit.
Smile.
We are hoping companies will pay for the cost of ira so those who wish to
use it can, and those who don't, they don't have to.
It is a choice.
You get the information then you decide what you wish to do with it.

Original message:
> AIRA isn't the best way to make us independent. It's 24/7 help, but 
> it's still sighted help for things that mostly could be made 
> accessible in a way that blind people could do it without any sighted 
> help. Forms can be formatted for online use; websites can be made 
> accessible; devices can be accessible, etc. Sure, until companies get 
> a fire lit under them, AIRA is here, but what's the incentive for 
> companies to work on accessibility when services like AIRA exist? It's 
> a catch 22. We need accessibility now, but now that we have AIRA, 
> companies no longer think they need to think about accessibility.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, 
> ira is there for us, and does help us stay mobile in anything we want to
do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put 
> in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,

> Original message:
>> When this topic came up there seemed to be some chatter along with

> So... In my opinion, it's not the best tool to give us independence. 
> True independence would be possible if companies gave a shit (excuse

> BTW, this is not a negative comment on AIRA but on society in general.

> Bridgitmy French) and worked to make products and devices accessible. 
> And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.



>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.



>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.



>> Joyce



>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>> y
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
> 40hotm
> ail.com


> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From veronica at laurelcreekmusic.com  Tue Jun 25 20:15:43 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 25 Jun 2019 13:15:43 -0700
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <005c01d52b02$926fd830$b74f8890$@gmail.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>
	<005c01d52b02$926fd830$b74f8890$@gmail.com>
Message-ID: <007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin>
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From veronica at laurelcreekmusic.com  Tue Jun 25 20:31:08 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 25 Jun 2019 13:31:08 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000301d52b07$2922f560$7b68e020$@comcast.net>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>	<005501d52b02$38f384f0$aada8ed0$@gmail.com>
	<000301d52b07$2922f560$7b68e020$@comcast.net>
Message-ID: <007a01d52b94$ebb41720$c31c4560$@laurelcreekmusic.com>

Since I won't be at the convention, here are a few thoughts I hope some of
you might be willing to share if you're talking with the Aira
representatives.

1. Time-out: All pumps will time out within 60 seconds or so. They usually
dim the screen after maybe 30 seconds or so and there's no way for us to
know when that happens or set the screen to not do that. So your Aira agent
may not see anything if the screen has dimmed or may not be connected before
the pump times out. With some pumps, you could lose the transaction you were
in the midst of.

2. Screens: The most common thing I see Aira users struggle with is not
quite knowing what agents can and cannot see through your phone. As I think
about how much time I spend positioning the Seeing AI app, it might be worth
understanding the frustration that could occur here.

3.  Liability: When I think about the process of changing my pod, for
instance, once the new pod is on and I hit the start button, the screen
presents a question, is the cannula inserted correctly, and I must answer
yes or no. Obviously on my own I have no idea so I just say yes. One must be
taught how to visually look at the cannula and know if it went in correctly
and it's very hard to see in person. So if I were running Aira, I'd want to
be a bit careful lest an agent be reported by a blind person for saying
everything looked good when something confirmed a problem later. This is the
challenge with medical stuff. Also, many pumps use icons rather Than words
on the screen. We would not be in a position to know what the ridiculous
symbols mean nor would the agent without studying a manual. Even my hubby,
who has the manual and lives with me, had trouble remembering which
direction meant full or just about done battery, for instance.

4.  What is visible: If I were using an Aira agent to help with a pod
change, well, I either have to take my top off to place a pod on my arm, or
have my pants down to place a pod on my belly. Hmmm, if I hold up the remote
for someone to read, how much of my undressed body would show?

5.  Connection: As has already been said here, inability to get a connection
when one was used to relying on it could present real problems for the pump
user. 

Anyway, hope these thoughts may prove useful. Thanks.

Veronica

"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Jeanette Kutash via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind'
Cc: Jeanette Kutash
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Dar, as much as I pay for Aira and use it, there are times when not getting
a connection makes it not a viable option, and that is why we need the
accessability built into products. 

Jeanette 

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 11:01 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

But Dar, companies are already referring to AIRA as a viable fix for blind
people, insisting why this is why they don't have to make products
accessible. And asking a sighted friend or family is not the same as
on-the-demand sighted assistance 24/7 with AIRA. So no, you can't say the
same for other types of sighted help.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:53 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Well that could be said for anything, don't ask a sighted person for help
because if you do then you don't need any blind products.
Just sit back and do nothing wait for the world to pass you buy, and wonder
what happened to your life while it was passing by.
If you can get the help to get done what is there and here now, strive for
it.
Then products as pumps can stil be used, we would still be out there, and we
still can say there is no reason why they can't put in a chip for it to talk
to us.
Even with all of the kids toys out there that talk, if they can do that,
then they can put a chip in a pump.
It shouldn't cost any more to do that.
You folks have worked well with the pumps I am proud of all of you.
Keep up the swell work, then keep on them as best you can.
At least I know if I have two colored shoes that feel the same I can call
and ask if they are the same or different.
I am really pleased they are out there, and hope they get active in many
other shops stores anything where we can get the help.
I feel even more independent walking with ira than to wait ten minutes or
more for an agent in the store to come help me out.
Glad they have places to sit.
Smile.
We are hoping companies will pay for the cost of ira so those who wish to
use it can, and those who don't, they don't have to.
It is a choice.
You get the information then you decide what you wish to do with it.

Original message:
> AIRA isn't the best way to make us independent. It's 24/7 help, but 
> it's still sighted help for things that mostly could be made 
> accessible in a way that blind people could do it without any sighted 
> help. Forms can be formatted for online use; websites can be made 
> accessible; devices can be accessible, etc. Sure, until companies get 
> a fire lit under them, AIRA is here, but what's the incentive for 
> companies to work on accessibility when services like AIRA exist? It's 
> a catch 22. We need accessibility now, but now that we have AIRA, 
> companies no longer think they need to think about accessibility.

> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, 
> ira is there for us, and does help us stay mobile in anything we want to
do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put 
> in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,

> Original message:
>> When this topic came up there seemed to be some chatter along with

> So... In my opinion, it's not the best tool to give us independence. 
> True independence would be possible if companies gave a shit (excuse

> BTW, this is not a negative comment on AIRA but on society in general.

> Bridgitmy French) and worked to make products and devices accessible. 
> And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.



>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.



>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.



>> Joyce



>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>> y
>> sero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
> 40hotm
> ail.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
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From cookcafe at sc.rr.com  Tue Jun 25 23:02:37 2019
From: cookcafe at sc.rr.com (Steve & Shannon Cook)
Date: Tue, 25 Jun 2019 19:02:37 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000901d52afd$d16f4340$744dc9c0$@laurelcreekmusic.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>	<000301d52ae9$477871c0$d6695540$@laurelcreekmusic.com>	<001801d52aeb$ea982ba0$bfc882e0$@neo.rr.com>
	<000901d52afd$d16f4340$744dc9c0$@laurelcreekmusic.com>
Message-ID: <019c01d52baa$16b59010$4420b030$@sc.rr.com>

Have you ever tried the app Be My Eyes?

Steve
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 10:30 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Here are the features I use myself:
Changing batteries
Changing pod: (involves filling a pod with insulin, peeling off backing,
placing pod correctly on my arm and being on the correct screens as I do
things.
Manually entering blood sugar reading.
Entering amount of carbs I plan to eat
Adding or subtracting bolus amount based on what I may know that the pump
doesn't.
These features make use of the pump's insulin on board feature so it
accounts for insulin remaining in my system and may not deliver the full
bolus based on that data.
Set and cancel temporary basal rates.
Suspend the pump.
Technically I can change time, basal rates and other settings but I'm just a
bit timid about doing this without sighted verification because Seeing AI
doesn't announce what is selected.
With Seeing AI app:
Read expiration of pod and all status screens, including amount of insulin
on board remaining.
Verify that all of my button presses are correct when entering carbs or
insulin.
Read the screens while I'm changing the pod. 
Read when temp basals are in effect. 
Read alerts if I'm quick enough. 
App does not always tell me which button to push. This is the "not for the
faint of heart" bit. Soft keys vary from screen to screen. I have
occasionally had to hold my breath and guess.

Favorite feature: No tubing. I love just grabbing the remote, especially
when I'm out in public.

Deal breaker on any pump: I will not switch to a pump where all I could do
is give a bolus and that's it. The value of a pump for me is making use of
the insulin on board and temp basal features in particular. I wish I could
use the food data bases.
Of course, pumps must include speech if they incorporate CGM as a built-in
feature.

I'll probably think of more stuff but this is a start.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 5:21 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Until an accessible pump is offered, correct?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 8:02 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Rick, there are quite a few of us on this list who use insulin pumps. Unless
you get a pump that Medtronic no longer markets, it's really tricky. I use
the OmniPod. I am able to rescue myself using the Seeing AI app on my phone.
But it's not for the faint of heart. <grin> But I can use more features on
this pump than I could on the outdated Medtronic so here I'll stay.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 3:56 PM
To: 'Diabetes Talk for the Blind'
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Hello Joyce,

I could not find how to get ahold of you off list?

I'm new here and would like to discuss the combination of pumps and
blindness.

Thank you,

Rick
hmladek at neo.rr.com



-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Monday, June 24, 2019 6:32 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] AIRA & pump questions

When this topic came up there seemed to be some chatter along with opinions
regarding the use of AIRA with a pump.  I said I would make contact with
AIRA and I did.

 

I contacted Glenn Takemoto, , Account Executive andhe told me that there has
been some mention of insulin pumps.  He told me he would be at Convention in
Vegas and he would be interested in speaking to some of the people who have
been working for us blind Diabetic pump users to get insulin pumps
accessible.

 

If anyone is interested in making contact while at Convention, please send
me a note off list and I will send you my conversation with him.

 

Joyce

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
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com


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To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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creekmusic.com


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To unsubscribe, change your list options or get your account info for
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To unsubscribe, change your list options or get your account info for
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creekmusic.com


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From blindhands at aol.com  Tue Jun 25 23:15:19 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Tue, 25 Jun 2019 19:15:19 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <064801d52af5$a20db8a0$e62929e0$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
Message-ID: <027201d52bab$db7e7f00$927b7d00$@aol.com>

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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Diabetes-Talk:
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ail.com


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com




From blindhands at aol.com  Wed Jun 26 00:27:24 2019
From: blindhands at aol.com (blindhands at aol.com)
Date: Tue, 25 Jun 2019 20:27:24 -0400
Subject: [Diabetes-Talk] Who has been working on?
Message-ID: <02b601d52bb5$ed5e68c0$c81b3a40$@aol.com>

 

Who has  been working on or interested in getting pumps accessible?

 

Please send me a note off list if you have some info on what needs to be
done. Please send me contact info on who has been working on it.  

 

Joyce

 

Joyce Kane

Blindhands at AOL.com



From cindyray at gmail.com  Wed Jun 26 01:11:40 2019
From: cindyray at gmail.com (Cindy Ray)
Date: Tue, 25 Jun 2019 20:11:40 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <027201d52bab$db7e7f00$927b7d00$@aol.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<027201d52bab$db7e7f00$927b7d00$@aol.com>
Message-ID: <3BBA1B04-B075-47B3-9A57-0C8320959B00@gmail.com>

Aira is available 24/7


Cindy Lou Ray
Sent from my iPhone

> On Jun 25, 2019, at 6:15 PM, blindhands--- via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> As far as I know AIRA is not available 24 hours a day.  I basically live
> alone.  So a good portion of the day I have no sighted help. My son drops in
> at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
> dependent on using AIRA, but it is great to know it is there if I need it.
> 
> I have been using a pump only the last 2 years and the Dexcom for the last
> year.  It is the Medtronics pump, but I can tell you it took getting both of
> these devices working together for me to feel at ease.  Now as what was said
> on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
> are at numbers that my Endourologist  and I are happy with.    Since I am a
> brittle Diabetic there is always room for improvement, but I had never been
> down in the 7 or as low as 7.6  in the past.
> 
> With as far as this division has gone and accessibility  isn't happening
> with the pump manufacturers where does that leave us blind pump users.  
> 
> I have heard about some day the artificial pancreas will be available from
> my doctors  in Yale New Haven for the last 50 years.  Well now that it is
> here and only to find out it isn't accessible to a blind Diabetic, I am not
> going to take this sitting down.    I really don't care how it becomes
> accessible, I will take the accessibility  any way I can get it.  Technology
> has jumped insulin pumps ahead and left us blind people behind.  The DAN
> Board has been trying to convince the pump companies to make their machines
> accessible for more than 15 years and it has fallen on deaf ears.
> 
> One way or the other we need to demand that we have accessibility as the
> sighted world.  After all don't we have the right to  reach for keeping
> ourselves as healthy as we  can be since Diabetes is the cause of  so much
> more effecting other parts of the body.  
> 
> Joyce Kane
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
> Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:31 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
> com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cindyray%40gmail.com



From bkpollpeter at gmail.com  Wed Jun 26 01:14:02 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 25 Jun 2019 20:14:02 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>
	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>
Message-ID: <029e01d52bbc$718b7ab0$54a27010$@gmail.com>

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



_______________________________________________
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From bkpollpeter at gmail.com  Wed Jun 26 01:25:52 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 25 Jun 2019 20:25:52 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <027201d52bab$db7e7f00$927b7d00$@aol.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<027201d52bab$db7e7f00$927b7d00$@aol.com>
Message-ID: <029f01d52bbe$18a8e480$49faad80$@gmail.com>

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From bkpollpeter at gmail.com  Wed Jun 26 01:26:59 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 25 Jun 2019 20:26:59 -0500
Subject: [Diabetes-Talk] Who has been working on?
In-Reply-To: <02b601d52bb5$ed5e68c0$c81b3a40$@aol.com>
References: <02b601d52bb5$ed5e68c0$c81b3a40$@aol.com>
Message-ID: <02ac01d52bbe$404aeb50$c0e0c1f0$@gmail.com>

Do you mean companies? Or independent third party watch dog groups? As far
as I know, no pump company is even considering accessibility for pumps.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:27 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] Who has been working on?

 

Who has  been working on or interested in getting pumps accessible?

 

Please send me a note off list if you have some info on what needs to be
done. Please send me contact info on who has been working on it.  

 

Joyce

 

Joyce Kane

Blindhands at AOL.com

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il.com




From veronica at laurelcreekmusic.com  Wed Jun 26 02:15:02 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 25 Jun 2019 19:15:02 -0700
Subject: [Diabetes-Talk] Who has been working on?
In-Reply-To: <02ac01d52bbe$404aeb50$c0e0c1f0$@gmail.com>
References: <02b601d52bb5$ed5e68c0$c81b3a40$@aol.com>
	<02ac01d52bbe$404aeb50$c0e0c1f0$@gmail.com>
Message-ID: <000601d52bc4$f68e8f60$e3abae20$@laurelcreekmusic.com>

Joyce, I'm not sure what you mean either. Sounds a bit insulting to those of
us who have been working very hard on this for years. I don't think you
meant it that way, for sure. 
I have come up with many plans for approaching the real access question and
offered ideas and solutions. Problem is, NFB isn't interested. I'm still
looking around. So, are you asking about individuals, thinking of starting
your own group? Not sure.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:27 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] Who has been working on?

Do you mean companies? Or independent third party watch dog groups? As far
as I know, no pump company is even considering accessibility for pumps.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:27 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: [Diabetes-Talk] Who has been working on?

 

Who has  been working on or interested in getting pumps accessible?

 

Please send me a note off list if you have some info on what needs to be
done. Please send me contact info on who has been working on it.  

 

Joyce

 

Joyce Kane

Blindhands at AOL.com

_______________________________________________
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creekmusic.com




From veronica at laurelcreekmusic.com  Wed Jun 26 02:25:11 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 25 Jun 2019 19:25:11 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <029f01d52bbe$18a8e480$49faad80$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>
	<029f01d52bbe$18a8e480$49faad80$@gmail.com>
Message-ID: <000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira. 
But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin>
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
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Diabetes-Talk:
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ail.com


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com


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il.com


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creekmusic.com




From bkpollpeter at gmail.com  Wed Jun 26 02:38:10 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Tue, 25 Jun 2019 21:38:10 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>
	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>
Message-ID: <02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
com


_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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il.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
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ail.com




From veronica at laurelcreekmusic.com  Wed Jun 26 02:53:01 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 25 Jun 2019 19:53:01 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>
	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>
Message-ID: <000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> 
However, I know what bus and train people take to get to their campus. Heh
heh heh heh heh! Don't think I won't. <grin>
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
ail.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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il.com


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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
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ail.com


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From hmladek at neo.rr.com  Wed Jun 26 03:16:57 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Tue, 25 Jun 2019 23:16:57 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <029e01d52bbc$718b7ab0$54a27010$@gmail.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>
	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
Message-ID: <00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?

Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...

Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From dmgina at mysero.net  Wed Jun 26 03:35:00 2019
From: dmgina at mysero.net (Dar)
Date: Tue, 25 Jun 2019 21:35:00 -0600
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>
	<005c01d52b02$926fd830$b74f8890$@gmail.com>
	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>
	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
Message-ID: <AF60F2A0-4B6B-437E-A6D5-26388A908175@mysero.net>

The reason I don?t have a pump is I didn?t make all the requirements   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 25, 2019, at 9:16 PM, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi all,
> 
> I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?
> 
> Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
> 
> Rick
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.
> 
> The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 3:16 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
> In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:04 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:38 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
> And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
> But my pump must do more than I could do with a pen. 
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Monday, June 24, 2019 6:08 PM
> To: Diabetes Talk for the Blind
> Cc: Eileen Scrivani
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Rick,
> 
> You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.
> 
> I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.
> 
> However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.
> 
> With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.
> 
> Eileen 
> 
> From: Rick via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:36 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: hmladek at neo.rr.com
> Subject: [Diabetes-Talk] pump or not to pump
> 
> Hi all,
> 
> Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.
> 
> So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
> Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?
> 
> I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.
> 
> Be well my Friends,
> 
> Rick
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net



From gmelconian619 at gmail.com  Wed Jun 26 03:54:59 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Tue, 25 Jun 2019 20:54:59 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>
	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
Message-ID: <000701d52bd2$ed7211a0$c85634e0$@gmail.com>

Veronica, you are in the google neck of the woods.why don?t you make some
noise about it if there are lots of  these health products that will begin
to use google products in the future.just saying.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:53 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> However, I know what bus and
train people take to get to their campus. Heh heh heh heh heh! Don't think I
won't. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From dmgina at mysero.net  Wed Jun 26 04:02:43 2019
From: dmgina at mysero.net (Dar)
Date: Tue, 25 Jun 2019 22:02:43 -0600
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <005501d52b02$38f384f0$aada8ed0$@gmail.com>
References: <43a4f4bc.fd16.43dd.888e.41757cd574b8@samobile.net>
	<005501d52b02$38f384f0$aada8ed0$@gmail.com>
Message-ID: <0B7EB243-5064-46B8-8365-0CA28C2B0892@mysero.net>

For me  this would work, we don?t have the sited help all the time, I have enjoyed reading al responces here. 
Thanks for sharing.  

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 24, 2019, at 9:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> But Dar, companies are already referring to AIRA as a viable fix for blind
> people, insisting why this is why they don't have to make products
> accessible. And asking a sighted friend or family is not the same as
> on-the-demand sighted assistance 24/7 with AIRA. So no, you can't say the
> same for other types of sighted help.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:53 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well that could be said for anything, don't ask a sighted person for help
> because if you do then you don't need any blind products.
> Just sit back and do nothing wait for the world to pass you buy, and wonder
> what happened to your life while it was passing by.
> If you can get the help to get done what is there and here now, strive for
> it.
> Then products as pumps can stil be used, we would still be out there, and we
> still can say there is no reason why they can't put in a chip for it to talk
> to us.
> Even with all of the kids toys out there that talk, if they can do that,
> then they can put a chip in a pump.
> It shouldn't cost any more to do that.
> You folks have worked well with the pumps I am proud of all of you.
> Keep up the swell work, then keep on them as best you can.
> At least I know if I have two colored shoes that feel the same I can call
> and ask if they are the same or different.
> I am really pleased they are out there, and hope they get active in many
> other shops stores anything where we can get the help.
> I feel even more independent walking with ira than to wait ten minutes or
> more for an agent in the store to come help me out.
> Glad they have places to sit.
> Smile.
> We are hoping companies will pay for the cost of ira so those who wish to
> use it can, and those who don't, they don't have to.
> It is a choice.
> You get the information then you decide what you wish to do with it.
> 
> Original message:
>> AIRA isn't the best way to make us independent. It's 24/7 help, but 
>> it's still sighted help for things that mostly could be made 
>> accessible in a way that blind people could do it without any sighted 
>> help. Forms can be formatted for online use; websites can be made 
>> accessible; devices can be accessible, etc. Sure, until companies get 
>> a fire lit under them, AIRA is here, but what's the incentive for 
>> companies to work on accessibility when services like AIRA exist? It's 
>> a catch 22. We need accessibility now, but now that we have AIRA, 
>> companies no longer think they need to think about accessibility.
> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
>> m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, 
>> ira is there for us, and does help us stay mobile in anything we want to
> do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put 
>> in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
> 
>> So... In my opinion, it's not the best tool to give us independence. 
>> True independence would be possible if companies gave a shit (excuse
> 
>> BTW, this is not a negative comment on AIRA but on society in general.
> 
>> Bridgitmy French) and worked to make products and devices accessible. 
>> And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
> 
> 
> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
> 
> 
> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>>> Joyce
> 
> 
> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>>> y
>>> sero.net
> 
>> --
>> --Dar
>> skype: dmgina23
>>  FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
>> 40hotm
>> ail.com
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net



From hmladek at neo.rr.com  Wed Jun 26 10:54:34 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Wed, 26 Jun 2019 06:54:34 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <AF60F2A0-4B6B-437E-A6D5-26388A908175@mysero.net>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
	<AF60F2A0-4B6B-437E-A6D5-26388A908175@mysero.net>
Message-ID: <001001d52c0d$8c054410$a40fcc30$@neo.rr.com>

Hi Dar, What do yo mean by you did not make all the requirements? Also, what Country do you live in? I ask because your comment of not making all the requirements is confusing and I have not received a comment as this previously.

Thank you 

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Dar via Diabetes-Talk
Sent: Tuesday, June 25, 2019 11:35 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Dar <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] pump or not to pump

The reason I don?t have a pump is I didn?t make all the requirements   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 25, 2019, at 9:16 PM, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi all,
> 
> I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?
> 
> Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
> 
> Rick
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 9:14 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.
> 
> The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 3:16 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
> In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:04 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:38 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
> And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
> But my pump must do more than I could do with a pen. 
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Monday, June 24, 2019 6:08 PM
> To: Diabetes Talk for the Blind
> Cc: Eileen Scrivani
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Rick,
> 
> You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.
> 
> I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.
> 
> However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.
> 
> With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.
> 
> Eileen 
> 
> From: Rick via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:36 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: hmladek at neo.rr.com
> Subject: [Diabetes-Talk] pump or not to pump
> 
> Hi all,
> 
> Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.
> 
> So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
> Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?
> 
> I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.
> 
> Be well my Friends,
> 
> Rick
> 
> 
> 
> _______________________________________________
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> 
> 
> _______________________________________________
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> 
> 
> _______________________________________________
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> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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> 
> 
> _______________________________________________
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> 
> 
> _______________________________________________
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> 
> 
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From bkpollpeter at gmail.com  Wed Jun 26 14:05:38 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 09:05:38 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>
	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
Message-ID: <037901d52c28$3c098af0$b41ca0d0$@gmail.com>

Interesting.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:53 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> However, I know what bus and
train people take to get to their campus. Heh heh heh heh heh! Don't think I
won't. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



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> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From fidano at comcast.net  Wed Jun 26 15:12:50 2019
From: fidano at comcast.net (fidano at comcast.net)
Date: Wed, 26 Jun 2019 08:12:50 -0700
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
Message-ID: <001401d52c31$9fc6e750$df54b5f0$@comcast.net>

My feelings are, and I used a pump back in the dexatronics day..
But I like the bodily freedom, I wear the Dexcom and that is plenty.
But for the most important part, I feel the newer insulins, like Tressiba, and the use of the insulin pens do me well enough. 
I keep a pen in my purse and one near my glucose meter, so its always handy and with me when I head out the door.. as are my  glucose tabs.
I would guess if I get to having serious adjustment issues I would consider, my doctor has offered it to me, and perhaps in time. 
But I do not have sighted assistance living w/me, and admittedly do not count that much as I want the independence in being able to do it myself. Perhaps in time that will be possible.

	Tamera


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 8:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?

Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...

Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From bkpollpeter at gmail.com  Wed Jun 26 15:36:11 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 10:36:11 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001401d52c31$9fc6e750$df54b5f0$@comcast.net>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
	<001401d52c31$9fc6e750$df54b5f0$@comcast.net>
Message-ID: <03ae01d52c34$e22b2ea0$a6818be0$@gmail.com>

Tamara,

Just to give you something to consider, I'm totally blind and use a pump and do not live with a sighted person. My husband is also blind, and while my kids are sighted, they are 2 and 7, much to young to help in any capacity. I'm able to do what I need on a daily basis with my pump. If a basal pattern needs changing, which is not often for me, I ask a sighted friend or family member, but otherwise, I function daily with my pump without a sighted person around.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Tamera via Diabetes-Talk
Sent: Wednesday, June 26, 2019 10:13 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: fidano at comcast.net
Subject: Re: [Diabetes-Talk] pump or not to pump

My feelings are, and I used a pump back in the dexatronics day..
But I like the bodily freedom, I wear the Dexcom and that is plenty.
But for the most important part, I feel the newer insulins, like Tressiba, and the use of the insulin pens do me well enough. 
I keep a pen in my purse and one near my glucose meter, so its always handy and with me when I head out the door.. as are my  glucose tabs.
I would guess if I get to having serious adjustment issues I would consider, my doctor has offered it to me, and perhaps in time. 
But I do not have sighted assistance living w/me, and admittedly do not count that much as I want the independence in being able to do it myself. Perhaps in time that will be possible.

	Tamera


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 8:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?

Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...

Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From bkpollpeter at gmail.com  Wed Jun 26 15:53:04 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 10:53:04 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
Message-ID: <03b801d52c37$3dca7700$b95f6500$@gmail.com>

I became blind when I was 22, and my endo at the time placed me on an insulin pump. He didn't hesitate over the fact that I was becoming blind. Initially, I could see my pump, but could not see the print or icons on the screen, so I've always used my pumps nonvisually.

I started on the Deltech Cosmo, which was my favorite, but sadly, it stopped making the Cosmo. I switched a few years ago to the Animas Ping, which was comparable to the Cosmo, but not quite the same. Now Animas is no more, so I've switched to the Medtronic 530G. I don't really care for this pump, but it's really the only option for blind people now as all other pumps use touch screen tech, and there's no work-around for blind people. Other pumps also now have a locking feature, and in most cases, the place you touch to unlock is different every time, so again, no work-around for blind people.

With my Medtronic 530G, I can touch bolus, suspend and unsuspend it, change my reservoir, change battery on my own. I can use the bolus wizard, but My carb/insulin ratios fluctuate frequently, so I prefer to touch bolus.

Unfortunately, Medtronic has stopped manufacturing the 530G, and once its current stock is depleted, there will be no pump on the market that blind people can find work-arounds for. Those of us on the 530G have 4 years, really 3 now, before our warranty runs out. Medtronic will not provide support for it, and if it does break down, there will be no replacement. 

I want to be able to use every feature on my pump completely independently with some text-to-speech program. There's no reason companies can't do this; each just refuses. Once my warranty is up, I'm not sure what I will do. Veronica has made the Omnipod work for her; I may consider this; we will see.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 10:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why. Of course, we can continue to use the pump as long as it functions, but Medtronic 
Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bkpollpeter at gmail.com  Wed Jun 26 16:01:48 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 11:01:48 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
Message-ID: <03b901d52c38$767c8380$63758a80$@gmail.com>

One reason some people may not use a pump is if they are type 2 diabetic. First, you need to be on some kind of injectable to use a pump, obviously. But for type 2s, even if on insulin therapy, you often don't have the same insulin needs as type 2s.

I forgot to mention this in my first post, but the reason I prefer a pump is that it gives me tighter control over insulin doses in a day. I can have different basal rates throughout the day; I can have a different rate every hour or half hour if I need. Instead of taking a single blanket dose of a long acting insulin, a pump can customize basals to suit your insulin needs at any given time of day. For example, between midnight and 3 a.m., I tend to run higher, so my basal at this time is 0.90. But after 3 a.m., I start to drop, so between 3 and 9 a.m., my basal is 0.40. And throughout the day, I have various basals depending on how my BGs trend. About every 3 months, I need to adjust some of my basals. I also can have more than one basal pattern. So, for exercise, I switch to a different pattern while I work-out. Once done, I switch back to my regular pattern. This allows for tighter, better control.

I should mention that I can also independently switch basal patterns and access the temp basal feature.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 10:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?

Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...

 


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From hmladek at neo.rr.com  Wed Jun 26 16:32:12 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Wed, 26 Jun 2019 12:32:12 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <03b801d52c37$3dca7700$b95f6500$@gmail.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
	<03b801d52c37$3dca7700$b95f6500$@gmail.com>
Message-ID: <003501d52c3c$b6b7b3d0$24271b70$@neo.rr.com>

Thank you Bridgit for your wonderful input. I truly appreciate you and all who have answered my very vague questions. I am not intending any harm by doing research, in the dark so to speak. However, I mean no discontent nor disrespect to all of those of you whom have been so kind to offer your comments regarding the difficulties with being blind and the independent use of insulin pumps.

Most sincerely,

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 26, 2019 11:53 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

I became blind when I was 22, and my endo at the time placed me on an insulin pump. He didn't hesitate over the fact that I was becoming blind. Initially, I could see my pump, but could not see the print or icons on the screen, so I've always used my pumps nonvisually.

I started on the Deltech Cosmo, which was my favorite, but sadly, it stopped making the Cosmo. I switched a few years ago to the Animas Ping, which was comparable to the Cosmo, but not quite the same. Now Animas is no more, so I've switched to the Medtronic 530G. I don't really care for this pump, but it's really the only option for blind people now as all other pumps use touch screen tech, and there's no work-around for blind people. Other pumps also now have a locking feature, and in most cases, the place you touch to unlock is different every time, so again, no work-around for blind people.

With my Medtronic 530G, I can touch bolus, suspend and unsuspend it, change my reservoir, change battery on my own. I can use the bolus wizard, but My carb/insulin ratios fluctuate frequently, so I prefer to touch bolus.

Unfortunately, Medtronic has stopped manufacturing the 530G, and once its current stock is depleted, there will be no pump on the market that blind people can find work-arounds for. Those of us on the 530G have 4 years, really 3 now, before our warranty runs out. Medtronic will not provide support for it, and if it does break down, there will be no replacement. 

I want to be able to use every feature on my pump completely independently with some text-to-speech program. There's no reason companies can't do this; each just refuses. Once my warranty is up, I'm not sure what I will do. Veronica has made the Omnipod work for her; I may consider this; we will see.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 10:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why. Of course, we can continue to use the pump as long as it functions, but Medtronic Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From bernienfb75 at gmail.com  Wed Jun 26 16:50:56 2019
From: bernienfb75 at gmail.com (Bernadette Jacobs)
Date: Wed, 26 Jun 2019 12:50:56 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <005601d52b02$56aa7bc0$03ff7340$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<5d118727.1c69fb81.96aa1.2732@mx.google.com>
	<005601d52b02$56aa7bc0$03ff7340$@gmail.com>
Message-ID: <ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>

For those of you who use AIRA, I?m leaving all this up to your discretion.  

As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  

Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  

Sent from my iPhone

> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Yep.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:30 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: sandi <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
> 
> Sandi
> 
> 
> Sent from Mail for Windows 10
> 
> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:32 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
> 
> 
> 
> ---
> This email has been checked for viruses by AVG.
> https://www.avg.com
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com



From etscrivani at verizon.net  Wed Jun 26 17:50:34 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 26 Jun 2019 13:50:34 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><5d118727.1c69fb81.96aa1.2732@mx.google.com><005601d52b02$56aa7bc0$03ff7340$@gmail.com>
	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>
Message-ID: <EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>

Bern,

You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.

Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!

Eileen

From: Bernadette Jacobs via Diabetes-Talk 
Sent: Wednesday, June 26, 2019 12:50 PM
To: Diabetes Talk for the Blind 
Cc: Bernadette Jacobs 
Subject: Re: [Diabetes-Talk] AIRA & pump questions

For those of you who use AIRA, I?m leaving all this up to your discretion.  

As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  

Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  

Sent from my iPhone

> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Yep.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:30 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: sandi <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
> 
> Sandi
> 
> 
> Sent from Mail for Windows 10
> 
> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:32 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
> 
> 
> 
> ---
> This email has been checked for viruses by AVG.
> https://www.avg.com
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net


From diana56cook at gmail.com  Wed Jun 26 18:19:40 2019
From: diana56cook at gmail.com (Diana Cook)
Date: Wed, 26 Jun 2019 14:19:40 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <2884501E4F1E4AA38AB1FDF3343394B9@eileen>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
Message-ID: <A5A1153D-8A64-4E4B-A1C2-FC01A601B30B@gmail.com>

Amen to your comments. I also use Medtronic  pump and have been a pumper many, many years. My wants... needs eco yours!

Sent from my iPhone

> On Jun 24, 2019, at 9:08 PM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Rick,
> 
> You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.
> 
> I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.
> 
> However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.
> 
> With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.
> 
> Eileen 
> 
> From: Rick via Diabetes-Talk 
> Sent: Monday, June 24, 2019 8:36 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: hmladek at neo.rr.com 
> Subject: [Diabetes-Talk] pump or not to pump
> 
> Hi all,
> 
> Rick here and new to this group. I had forgotten I had joined this group due
> to it being so quiet.
> 
> So, with that in mind, I am writing to all blind diabetics here. Do you use
> an insulin pump? If so, other than your basil delivery and a quick bolus
> option, are you able to operate any of the settings or controls without
> sighted assistance? What are your pros and cons with your pump, please I'm
> not asking for any bashing of the great Companies out there. Now, if you had
> options other than speech technology being part of, what other features
> within the software and/or hardware would be wanted? Please don't ask for
> built in MP3 players or GPS locaters lol.
> Now, for those who do not use a pump, why not? I've read that it allows the
> best control of your A1C levels. What reasons prevents you from going to a
> pump over using whatever option for insulin delivery that you presently use?
> 
> I ask you all to overwhelm me with chatter regarding these points. Thank you
> to Veronica and Joyce for your points.
> 
> Be well my Friends,
> 
> Rick
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com



From diana56cook at gmail.com  Wed Jun 26 18:39:23 2019
From: diana56cook at gmail.com (Diana Cook)
Date: Wed, 26 Jun 2019 14:39:23 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001e01d52af4$ac3d8f40$04b8adc0$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
	<001e01d52af4$ac3d8f40$04b8adc0$@neo.rr.com>
Message-ID: <EBC657D4-AD58-4867-BC57-75387B28A968@gmail.com>

Rick, my dr does the adjustments on my pump, definitely not a comfortable feeling! I have some vision in one eye. I am truly fortunate to have a cctv and feel I could make needed changes. Medtronic has been good about talking through situations!

Sent from my iPhone

> On Jun 24, 2019, at 9:23 PM, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hello Eileen,
> 
> Thank you and also to Diana for your responses. What I am understanding is that from those of you who have shared your points, the pump is a device that gives you more freedom of your lives not to be concerned with the syringe delivery method and all that entails. Also, I've noticed and Eileen has kindly addressed that although there are a few controls able to be handled themselves, a blind user is not able to independently control most of the needed settings etc. without a sighted assistant.
> 
> I cannot understand to why more then do not use. Is it affordability?
> 
> Yes, I'm asking a lot but I must do my research to know how those of you use such equipment to manage your insulin therapy.
> 
> Again, I do thank you for your points regarding blindness and insulin pumps. Sad as it is, I've recently read a report from back in the early 2000s that was all about insulin pumps and diabetics blind not being able to use such devices independently.  If blind and deaf individuals are contraindicated, how does one with such a disability obtain a prescription? Being contraindicated should mean since unable to use safely/independently without assistance, how is such a device that can be so troubling be prescribed and sold to one whom has such disabilities? Maybe I'm thinking out loud but it is when you are vocal, you then are heard and somebody decides to do something.
> 
> Be heard, I am taking notes is all I can admit to...
> 
> Rick
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:08 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Eileen Scrivani <etscrivani at verizon.net>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> Rick,
> 
> You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.
> 
> I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.
> 
> However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.
> 
> With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.
> 
> Eileen 
> 
> From: Rick via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:36 PM
> To: 'Diabetes Talk for the Blind' 
> Cc: hmladek at neo.rr.com
> Subject: [Diabetes-Talk] pump or not to pump
> 
> Hi all,
> 
> Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.
> 
> So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
> Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?
> 
> I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.
> 
> Be well my Friends,
> 
> Rick
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com



From dmgina at mysero.net  Wed Jun 26 18:45:11 2019
From: dmgina at mysero.net (Dar)
Date: Wed, 26 Jun 2019 12:45:11 -0600
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<5d118727.1c69fb81.96aa1.2732@mx.google.com>
	<005601d52b02$56aa7bc0$03ff7340$@gmail.com>
	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>
	<EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
Message-ID: <1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>

From what you are saying is no new person can get a pump if they are blind   If I am correct, this is what we should fight for, not worry what ira does or doesn?t do.  

Always remember with nfb you start with $21 for 30 minutes and can add 50 minutes more if you wish.  
I am pleased it is here and I make the choice to use it   

I would love to know the companies who know about ira and wish not wish to help diabetics   

I would like to know why Mark from nfb is not taking them to court   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bern,
> 
> You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.
> 
> Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!
> 
> Eileen
> 
> From: Bernadette Jacobs via Diabetes-Talk 
> Sent: Wednesday, June 26, 2019 12:50 PM
> To: Diabetes Talk for the Blind 
> Cc: Bernadette Jacobs 
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> For those of you who use AIRA, I?m leaving all this up to your discretion.  
> 
> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  
> 
> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  
> 
> Sent from my iPhone
> 
>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Yep.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:30 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: sandi <sjryan2 at gmail.com>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:32 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
>> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
>> 
>> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
>> 
>> BTW, this is not a negative comment on AIRA but on society in general.
>> 
>> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
>> 
>> 
>> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
>> 
>> 
>> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
>> 
>> 
>> 
>>> Joyce
>> 
>> 
>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>> sero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>> ail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
>> 
>> 
>> 
>> ---
>> This email has been checked for viruses by AVG.
>> https://www.avg.com
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>> 
>> 
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> 
> _______________________________________________
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From bkpollpeter at gmail.com  Wed Jun 26 19:03:25 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 14:03:25 -0500
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <003501d52c3c$b6b7b3d0$24271b70$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>	<03b801d52c37$3dca7700$b95f6500$@gmail.com>
	<003501d52c3c$b6b7b3d0$24271b70$@neo.rr.com>
Message-ID: <041501d52c51$d592f9d0$80b8ed70$@gmail.com>

Are you considering getting a pump? Or are you just curious?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Wednesday, June 26, 2019 11:32 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Thank you Bridgit for your wonderful input. I truly appreciate you and all who have answered my very vague questions. I am not intending any harm by doing research, in the dark so to speak. However, I mean no discontent nor disrespect to all of those of you whom have been so kind to offer your comments regarding the difficulties with being blind and the independent use of insulin pumps.

Most sincerely,

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 26, 2019 11:53 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

I became blind when I was 22, and my endo at the time placed me on an insulin pump. He didn't hesitate over the fact that I was becoming blind. Initially, I could see my pump, but could not see the print or icons on the screen, so I've always used my pumps nonvisually.

I started on the Deltech Cosmo, which was my favorite, but sadly, it stopped making the Cosmo. I switched a few years ago to the Animas Ping, which was comparable to the Cosmo, but not quite the same. Now Animas is no more, so I've switched to the Medtronic 530G. I don't really care for this pump, but it's really the only option for blind people now as all other pumps use touch screen tech, and there's no work-around for blind people. Other pumps also now have a locking feature, and in most cases, the place you touch to unlock is different every time, so again, no work-around for blind people.

With my Medtronic 530G, I can touch bolus, suspend and unsuspend it, change my reservoir, change battery on my own. I can use the bolus wizard, but My carb/insulin ratios fluctuate frequently, so I prefer to touch bolus.

Unfortunately, Medtronic has stopped manufacturing the 530G, and once its current stock is depleted, there will be no pump on the market that blind people can find work-arounds for. Those of us on the 530G have 4 years, really 3 now, before our warranty runs out. Medtronic will not provide support for it, and if it does break down, there will be no replacement. 

I want to be able to use every feature on my pump completely independently with some text-to-speech program. There's no reason companies can't do this; each just refuses. Once my warranty is up, I'm not sure what I will do. Veronica has made the Omnipod work for her; I may consider this; we will see.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 10:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why. Of course, we can continue to use the pump as long as it functions, but Medtronic Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From bkpollpeter at gmail.com  Wed Jun 26 19:07:49 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 14:07:49 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><5d118727.1c69fb81.96aa1.2732@mx.google.com><005601d52b02$56aa7bc0$03ff7340$@gmail.com>	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>
	<EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
Message-ID: <042601d52c52$7392d240$5ab876c0$@gmail.com>

Eileen,

Bern did state that pump companies do need to make pumps accessible pronto. She said AIRA becomes a scapegoat for them to not consider accessibility, meaning that just because AIRA exist, doesn't mean companies can rest easy and not provide accessibility for products. Not sure where the disagreement is.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:51 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bern,

You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.

Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!

Eileen

From: Bernadette Jacobs via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:50 PM
To: Diabetes Talk for the Blind
Cc: Bernadette Jacobs
Subject: Re: [Diabetes-Talk] AIRA & pump questions

For those of you who use AIRA, I?m leaving all this up to your discretion.  

As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  

Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  

Sent from my iPhone

> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Yep.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> sandi via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:30 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: sandi <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
> 
> Sandi
> 
> 
> Sent from Mail for Windows 10
> 
> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:32 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. 
> True independence would be possible if companies gave a shit (excuse
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>> y
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
> 40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
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> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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> mail.com
> 
> 
> 
> ---
> This email has been checked for viruses by AVG.
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> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%
> 40hotmail.com
> 
> 
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> %40gmail.com

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From bkpollpeter at gmail.com  Wed Jun 26 19:15:58 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 14:15:58 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<5d118727.1c69fb81.96aa1.2732@mx.google.com>	<005601d52b02$56aa7bc0$03ff7340$@gmail.com>	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>	<EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
	<1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
Message-ID: <043c01d52c53$96b6d590$c42480b0$@gmail.com>

Dar,

This discussion is about companies making pumps accessible and not using AIRA as a scapegoat to avoid using a text-to-speech program. It's not about AIRA in-and-of-itself.

It's not that companies are denying blind people pumps, but that the current pumps available use touch screen tech, and there's no work-around for nonvisual users. So, it's pointless to get a pump now unless you have sighted help 24/7. And few of us have this.

Twenty-one minutes is not that much time. Depending on your needs, 20 minutes will go quick. AIRA allows small business owners 30 minutes free a month, and my husband uses it for his business, and it's surprising how quick 30 minutes goes. So, this is not always a great solution either.

Also, it always surprises me how few people use Be My Eyes. Agents are volunteers with Be My Eyes, not paid like with AIRA, but Be My Eyes is completely free.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Dar via Diabetes-Talk
Sent: Wednesday, June 26, 2019 1:45 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Dar <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

>From what you are saying is no new person can get a pump if they are blind   If I am correct, this is what we should fight for, not worry what ira does or doesn?t do.  

Always remember with nfb you start with $21 for 30 minutes and can add 50 minutes more if you wish.  
I am pleased it is here and I make the choice to use it   

I would love to know the companies who know about ira and wish not wish to help diabetics    a lot of time with AIRA. It also allows . It's something, but 20 minutes a  business owners 30 minutes of free service a month, which my husband uses, and it's surprising how quick 20, 30 minutes goes by

I would like to know why Mark from nfb is not taking them to court   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bern,
> 
> You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.
> 
> Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!
> 
> Eileen
> 
> From: Bernadette Jacobs via Diabetes-Talk 
> Sent: Wednesday, June 26, 2019 12:50 PM
> To: Diabetes Talk for the Blind 
> Cc: Bernadette Jacobs 
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> For those of you who use AIRA, I?m leaving all this up to your discretion.  
> 
> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  
> 
> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  
> 
> Sent from my iPhone
> 
>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Yep.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:30 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: sandi <sjryan2 at gmail.com>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:32 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
>> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
>> 
>> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
>> 
>> BTW, this is not a negative comment on AIRA but on society in general.
>> 
>> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
>> 
>> 
>> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
>> 
>> 
>> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
>> 
>> 
>> 
>>> Joyce
>> 
>> 
>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>> sero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>> ail.com
>> 
>> 
>> _______________________________________________
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>> 
>> 
>> 
>> ---
>> This email has been checked for viruses by AVG.
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>> 
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> 
> _______________________________________________
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From hmladek at neo.rr.com  Wed Jun 26 19:23:36 2019
From: hmladek at neo.rr.com (hmladek at neo.rr.com)
Date: Wed, 26 Jun 2019 15:23:36 -0400
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <041501d52c51$d592f9d0$80b8ed70$@gmail.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>	<005c01d52b02$926fd830$b74f8890$@gmail.com>	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>	<03b801d52c37$3dca7700$b95f6500$@gmail.com>	<003501d52c3c$b6b7b3d0$24271b70$@neo.rr.com>
	<041501d52c51$d592f9d0$80b8ed70$@gmail.com>
Message-ID: <005801d52c54$a8a99a20$f9fcce60$@neo.rr.com>

uhm... maybe both lol

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 26, 2019 3:03 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Are you considering getting a pump? Or are you just curious?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Wednesday, June 26, 2019 11:32 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Thank you Bridgit for your wonderful input. I truly appreciate you and all who have answered my very vague questions. I am not intending any harm by doing research, in the dark so to speak. However, I mean no discontent nor disrespect to all of those of you whom have been so kind to offer your comments regarding the difficulties with being blind and the independent use of insulin pumps.

Most sincerely,

Rick

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 26, 2019 11:53 AM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

I became blind when I was 22, and my endo at the time placed me on an insulin pump. He didn't hesitate over the fact that I was becoming blind. Initially, I could see my pump, but could not see the print or icons on the screen, so I've always used my pumps nonvisually.

I started on the Deltech Cosmo, which was my favorite, but sadly, it stopped making the Cosmo. I switched a few years ago to the Animas Ping, which was comparable to the Cosmo, but not quite the same. Now Animas is no more, so I've switched to the Medtronic 530G. I don't really care for this pump, but it's really the only option for blind people now as all other pumps use touch screen tech, and there's no work-around for blind people. Other pumps also now have a locking feature, and in most cases, the place you touch to unlock is different every time, so again, no work-around for blind people.

With my Medtronic 530G, I can touch bolus, suspend and unsuspend it, change my reservoir, change battery on my own. I can use the bolus wizard, but My carb/insulin ratios fluctuate frequently, so I prefer to touch bolus.

Unfortunately, Medtronic has stopped manufacturing the 530G, and once its current stock is depleted, there will be no pump on the market that blind people can find work-arounds for. Those of us on the 530G have 4 years, really 3 now, before our warranty runs out. Medtronic will not provide support for it, and if it does break down, there will be no replacement. 

I want to be able to use every feature on my pump completely independently with some text-to-speech program. There's no reason companies can't do this; each just refuses. Once my warranty is up, I'm not sure what I will do. Veronica has made the Omnipod work for her; I may consider this; we will see.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via Diabetes-Talk
Sent: Tuesday, June 25, 2019 10:17 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: hmladek at neo.rr.com
Subject: Re: [Diabetes-Talk] pump or not to pump

Hi all,

I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why. Of course, we can continue to use the pump as long as it functions, but Medtronic Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
Rick


-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:14 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.

The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 3:16 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 8:04 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] pump or not to pump

Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
Sent: Monday, June 24, 2019 9:38 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] pump or not to pump

The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
But my pump must do more than I could do with a pen. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Monday, June 24, 2019 6:08 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] pump or not to pump

Rick,

You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.

I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.

However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.

With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.

Eileen 

From: Rick via Diabetes-Talk
Sent: Monday, June 24, 2019 8:36 PM
To: 'Diabetes Talk for the Blind' 
Cc: hmladek at neo.rr.com
Subject: [Diabetes-Talk] pump or not to pump

Hi all,

Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.

So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?

I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.

Be well my Friends,

Rick



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From etscrivani at verizon.net  Wed Jun 26 19:35:10 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 26 Jun 2019 15:35:10 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><5d118727.1c69fb81.96aa1.2732@mx.google.com><005601d52b02$56aa7bc0$03ff7340$@gmail.com><ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com><EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
	<1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
Message-ID: <78F2842B862E41CC9B77B3BE4F74350C@eileen>

Dar,

If your doctor writes a script for one and does the paperwork supporting the need for one, anyone can get an insulin pump. The issue is that all the pumps that at this point in time are on the market, cannot be used by those of us who are totally blind. The manufacturers are all making the interfaces on them visual so its imposible for a totally blind diabetic to even perform the most basic of operations on them. And that is TSlim & Medtronic. Other than the Omni Pod I?m not sure who else is left out there that is still in the business of making them. 

Eileen

From: Dar via Diabetes-Talk 
Sent: Wednesday, June 26, 2019 2:45 PM
To: Diabetes Talk for the Blind 
Cc: Dar 
Subject: Re: [Diabetes-Talk] AIRA & pump questions

>From what you are saying is no new person can get a pump if they are blind   If I am correct, this is what we should fight for, not worry what ira does or doesn?t do.  

Always remember with nfb you start with $21 for 30 minutes and can add 50 minutes more if you wish.  
I am pleased it is here and I make the choice to use it   

I would love to know the companies who know about ira and wish not wish to help diabetics   

I would like to know why Mark from nfb is not taking them to court   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bern,
> 
> You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.
> 
> Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!
> 
> Eileen
> 
> From: Bernadette Jacobs via Diabetes-Talk 
> Sent: Wednesday, June 26, 2019 12:50 PM
> To: Diabetes Talk for the Blind 
> Cc: Bernadette Jacobs 
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> For those of you who use AIRA, I?m leaving all this up to your discretion.  
> 
> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  
> 
> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  
> 
> Sent from my iPhone
> 
>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Yep.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:30 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: sandi <sjryan2 at gmail.com>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:32 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
>> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
>> 
>> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
>> 
>> BTW, this is not a negative comment on AIRA but on society in general.
>> 
>> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
>> 
>> 
>> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
>> 
>> 
>> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
>> 
>> 
>> 
>>> Joyce
>> 
>> 
>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>> sero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>> ail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
>> 
>> 
>> 
>> ---
>> This email has been checked for viruses by AVG.
>> https://www.avg.com
>> _______________________________________________
>> Diabetes-Talk mailing list
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
>> 
>> 
>> _______________________________________________
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>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com
> 
> _______________________________________________
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> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From dmgina at mysero.net  Wed Jun 26 19:32:43 2019
From: dmgina at mysero.net (Dar)
Date: Wed, 26 Jun 2019 13:32:43 -0600
Subject: [Diabetes-Talk] pump or not to pump
In-Reply-To: <001001d52c0d$8c054410$a40fcc30$@neo.rr.com>
References: <001b01d52aee$027c6ef0$07754cd0$@neo.rr.com>
	<2884501E4F1E4AA38AB1FDF3343394B9@eileen>
	<000d01d52afe$f4920e10$ddb62a30$@laurelcreekmusic.com>
	<005c01d52b02$926fd830$b74f8890$@gmail.com>
	<007801d52b92$c4aa91b0$4dffb510$@laurelcreekmusic.com>
	<029e01d52bbc$718b7ab0$54a27010$@gmail.com>
	<00b801d52bcd$9ea01900$dbe04b00$@neo.rr.com>
	<AF60F2A0-4B6B-437E-A6D5-26388A908175@mysero.net>
	<001001d52c0d$8c054410$a40fcc30$@neo.rr.com>
Message-ID: <1F50D29E-F882-41D1-A39A-EB0BEF36C958@mysero.net>

I am in  united states   Others can explain better than I can.  

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 4:54 AM, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hi Dar, What do yo mean by you did not make all the requirements? Also, what Country do you live in? I ask because your comment of not making all the requirements is confusing and I have not received a comment as this previously.
> 
> Thank you 
> 
> Rick
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Dar via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 11:35 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: Dar <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] pump or not to pump
> 
> The reason I don?t have a pump is I didn?t make all the requirements   
> 
> Dar
> Every saint has a past, 
> Every sinner has a future 
> 
> 
>> On Jun 25, 2019, at 9:16 PM, Rick via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Hi all,
>> 
>> I hope I did not stir up any problems. Another question since we have not heard from diabetics that do not use a pump. Please say why you do not utilize an insulin pump with the obvious assistance of one sighted?
>> 
>> Please be nice, I'm only trying to gather a little information to digest. And yes, I am a blind diabetic all...
>> 
>> Rick
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Tuesday, June 25, 2019 9:14 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
>> Subject: Re: [Diabetes-Talk] pump or not to pump
>> 
>> That's funny. Yeah, people usually ask if I can see anything. I do have light perception and can "see" shadows and a very small, select number of colors, but I can't "do" anything visually. People say I do not "look" and "act" blind. Abelist BS. But it does seem more people have some inkling that blind doesn't always mean can't see at all.
>> 
>> The TSlim is pretty cool. If they would just apply voiceover like Apple products, sigh... If I can do everything from shop to bank to social media on my phone, I should be able to use a pump with voiceover.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Tuesday, June 25, 2019 3:16 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] pump or not to pump
>> 
>> Yeah, if I were sighted, I would have seriously considered the T-slim pump. Although I have heard complaints about how much work is involved in changing its cartridge. But Tandem is the first company that I know of, that considered the pitches of the pump beeps and actually lowered the pitch so all humans could hear them. So they did a good job of considering those with visual and hearing impairments but unfortunately it didn't go to completely deaf or blind. 
>> In some ways, this may sound strange, but I'm running into a lot of people thinking that blind doesn't mean no vision at all any more. How often nowadays I run into, you mean, really ummm, blind? <grin> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:04 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] pump or not to pump
>> 
>> Yes, I miss my Cosmo, sigh... Was the best pump, in my opinion, especially for blind users. Well, the TSlim is pretty cool, but completely unuseable for blind people. At least if using nonvisually.
>> 
>> Bridgit
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica Elsea via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:38 PM
>> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
>> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
>> Subject: Re: [Diabetes-Talk] pump or not to pump
>> 
>> The best and most complete access to a pump I had was with my old Cozmo. That was the only pump which had an infrared connection to a computer. I could go into software and change anything I wanted. The date and time, my insulin to carb ratios, basals, anything. Then I'd just fire the program changes back to my pump and that was that. I was truly completely independent, save for the food data base. 
>> And yes, same for me, I think. When I switched to a pump in 1991, my total daily insulin dosage was cut in half. I felt like I got my life back, having the freedom to just stop anywhere and grab a meal or respond to a surprise. 
>> But my pump must do more than I could do with a pen. 
>> Veronica
>> 
>> 
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>               Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>> 
>> 
>> 
>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
>> Sent: Monday, June 24, 2019 6:08 PM
>> To: Diabetes Talk for the Blind
>> Cc: Eileen Scrivani
>> Subject: Re: [Diabetes-Talk] pump or not to pump
>> 
>> Rick,
>> 
>> You don?t mention if your a blind diabetic or are you working for or with a company that is looking into making an insulin pump accessible to us blind diabetics? Please tell us as you are asking many questions.
>> 
>> I am currently using a Medtronics pump and have used Medtronics for the past 5 plus years. I just got a new pump and while it is not their latest and greatest, I am happy with it. I am able to do simple bolis?s. I am also able to fill my reservoir & tubing and refill the set when it needs changing. I do this independently, without sighted assistance.
>> 
>> However, there is a lot that I as well as other blind diabetics cannot do with their insulin pumps. I would if I had my way like speech output that would allow me to read alerts like low battery, low reservoir, &/or no delivery. I would also like access to be able to read and if necessary, change the date & time, I would also like the pump to be able to read the amount of the last bolis I gave or list of bolis?s and the times I gave them. I would like to be able to read & change the insulin delivery rates (basil rate) and the times of them. To state it simply, I want the same access to the screens and information sighted diabetics are able to utilize for themselves in managing their diabetes.
>> 
>> With all that said and as limited as using the pump is, I never, never want to go back to doing multiple, daily injections. The pump gives better, more even control and its easier to deal with.
>> 
>> Eileen 
>> 
>> From: Rick via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:36 PM
>> To: 'Diabetes Talk for the Blind' 
>> Cc: hmladek at neo.rr.com
>> Subject: [Diabetes-Talk] pump or not to pump
>> 
>> Hi all,
>> 
>> Rick here and new to this group. I had forgotten I had joined this group due to it being so quiet.
>> 
>> So, with that in mind, I am writing to all blind diabetics here. Do you use an insulin pump? If so, other than your basil delivery and a quick bolus option, are you able to operate any of the settings or controls without sighted assistance? What are your pros and cons with your pump, please I'm not asking for any bashing of the great Companies out there. Now, if you had options other than speech technology being part of, what other features within the software and/or hardware would be wanted? Please don't ask for built in MP3 players or GPS locaters lol.
>> Now, for those who do not use a pump, why not? I've read that it allows the best control of your A1C levels. What reasons prevents you from going to a pump over using whatever option for insulin delivery that you presently use?
>> 
>> I ask you all to overwhelm me with chatter regarding these points. Thank you to Veronica and Joyce for your points.
>> 
>> Be well my Friends,
>> 
>> Rick
>> 
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-Talk mailing list
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
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>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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>> 
>> 
>> _______________________________________________
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>> Diabetes-Talk at nfbnet.org
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>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net
> 
> _______________________________________________
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> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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> 
> 
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From veronica at laurelcreekmusic.com  Wed Jun 26 19:46:12 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 26 Jun 2019 12:46:12 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000701d52bd2$ed7211a0$c85634e0$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
	<000701d52bd2$ed7211a0$c85634e0$@gmail.com>
Message-ID: <000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>

Gary, how many times do I have to tell all of you that I am making noise and
I am continuing to try. I had a meeting scheduled with someone last year and
he died. Okay? I'm trying to find another contact. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 25, 2019 8:55 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Veronica, you are in the google neck of the woods.why don?t you make some
noise about it if there are lots of  these health products that will begin
to use google products in the future.just saying.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:53 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> However, I know what bus and
train people take to get to their campus. Heh heh heh heh heh! Don't think I
won't. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
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> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From cindyray at gmail.com  Wed Jun 26 19:59:00 2019
From: cindyray at gmail.com (Cindy Ray)
Date: Wed, 26 Jun 2019 14:59:00 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>
	<064801d52af5$a20db8a0$e62929e0$@gmail.com>
	<027201d52bab$db7e7f00$927b7d00$@aol.com>
	<029f01d52bbe$18a8e480$49faad80$@gmail.com>
	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>
	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>
	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>
	<000701d52bd2$ed7211a0$c85634e0$@gmail.com>
	<000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
Message-ID: <2AF1EFE7-7FA4-4EF8-B493-994527E68155@gmail.com>

It isn?t just on Veronica to ?make noise.? That is on all of us.


Cindy Lou Ray
Sent from my iPhone

> On Jun 26, 2019, at 2:46 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Gary, how many times do I have to tell all of you that I am making noise and
> I am continuing to try. I had a meeting scheduled with someone last year and
> he died. Okay? I'm trying to find another contact. 
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 8:55 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Veronica, you are in the google neck of the woods.why don?t you make some
> noise about it if there are lots of  these health products that will begin
> to use google products in the future.just saying.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
> Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 7:53 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> I'm not sure what he's up to these days, but the NFB sure wasn't willing to
> name him or use him. I wondered if he was retired by now. But I as an
> individual sure don't have his ear. <grin> However, I know what bus and
> train people take to get to their campus. Heh heh heh heh heh! Don't think I
> won't. <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 7:38 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Voiceover, yes, is what Apple calls its screenreading program. But voiceover
> is also a generic term given to any text-to-speech program. But perhaps
> text-to-speech works best.
> 
> Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
> last I checked. Don't tell me contacting him is the "wrong" department. Like
> he doesn't know who to contact or what to say to get the ball rolling.
> 
> I love the mob idea. Tell me when and wear, and I'm there! LOL!
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
> Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 9:25 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Bridgit, I did make a very valid proposal last year which I have mentioned
> here.
> Many devices are now coming out based on an Android phone, taking out the
> phone part. I wanted to establish a connection with Google's health division
> so that someone could be in a good position to mandate installation of
> TalkBack into every medical system so that the pump programmers could make
> use of it. But personally, I haven't landed on the right contacts yet. 
> Anil Lewis bragged, oh we know people at Google, but it wasn't the right
> division and of course, he never followed up and won't. 
> But you need to be careful about saying installing VoiceOver on pumps.
> VoiceOver is a specific Apple product and unless someone leases it from
> Apple, someone else would have to write the entire speech and gesture
> program from scratch. Even if the basic TalkBack module were installed in
> the pumps, someone would have to program the gestures to match the specific
> functions we need from the pump, all of them. That's not a teeny itty bitty
> task. Someone would have to make sure that it stayed updated as they changed
> the pump, which is proving challenging at times, even with Apple. I'm not
> saying don't do any of these things. I just find it helpful to think about
> the possible gotchyas ahead of time, insuring that the final product would
> work as well as possible. That's why I listed my points to consider with
> Aira.  He would know exactly whom to contact and what to say to get the ball
> rolling on something.
> 
> 
> But honestly, sometimes I fantasize about organizing a flash mob at some of
> these companies or something wild. But partly for my own selfish reasons,
> I'm certainly not giving up on getting access to the information and
> features of the latest diabetes management technology, however it happens. I
> think it's imperative that we have interim solutions while we're working on
> the ultimate goal. We just have to help these companies distinguish between
> interim and final solutions. <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 6:26 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> 
> AIRA is a 24/7 service, grin.
> 
> I'm not saying AIRA doesn't have its uses and should not exist at all. And
> of course, since companies do refuse largely to make products accessible, a
> service like AIRA works for a lot of people.
> 
> My point is that we can't become complacent because of AIRA and Be My Eyes.
> We need to push for true accessibility more than ever before. Both can
> coexist, but we need to ensure us and companies arent' content to just rely
> on AIRA, which does have its limitations. Why have to call AIRA every time I
> need to do something with my pump if I could just do it myself with
> voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
> accessibility with our devices too.
> 
> Computer programmer after computer programmer has said that placing a
> voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
> as costly as companies want to complain about. The point is that companies
> will find any excuse to avoid accessibility. Artificial pancreases are
> supposed to be a game changer for diabetics, more so than pumps, but as you
> state, blind diabetics are completely excluded from this device. I think the
> NFB should consider legal action specifically for artificial pancreases,
> just as we have done with kiosks, online banking, BAR exams and a hundred
> other things. Why should our health suffer because we can't access the most
> current technology that will change diabetes?
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 6:15 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> As far as I know AIRA is not available 24 hours a day.  I basically live
> alone.  So a good portion of the day I have no sighted help. My son drops in
> at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
> dependent on using AIRA, but it is great to know it is there if I need it.
> 
> Bridgit
> 
> I have been using a pump only the last 2 years and the Dexcom for the last
> year.  It is the Medtronics pump, but I can tell you it took getting both of
> these devices working together for me to feel at ease.  Now as what was said
> on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
> are at numbers that my Endourologist  and I are happy with.    Since I am a
> brittle Diabetic there is always room for improvement, but I had never been
> down in the 7 or as low as 7.6  in the past.
> 
> With as far as this division has gone and accessibility  isn't happening
> with the pump manufacturers where does that leave us blind pump users.  
> 
> I have heard about some day the artificial pancreas will be available from
> my doctors  in Yale New Haven for the last 50 years.  Well now that it is
> here and only to find out it isn't accessible to a blind Diabetic, I am not
> going to take this sitting down.    I really don't care how it becomes
> accessible, I will take the accessibility  any way I can get it.  Technology
> has jumped insulin pumps ahead and left us blind people behind.  The DAN
> Board has been trying to convince the pump companies to make their machines
> accessible for more than 15 years and it has fallen on deaf ears.
> 
> One way or the other we need to demand that we have accessibility as the
> sighted world.  After all don't we have the right to  reach for keeping
> ourselves as healthy as we  can be since Diabetes is the cause of  so much
> more effecting other parts of the body.  
> 
> Joyce Kane
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
> Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:31 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
> com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
> 
> 
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
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> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From etscrivani at verizon.net  Wed Jun 26 20:18:54 2019
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 26 Jun 2019 16:18:54 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <2AF1EFE7-7FA4-4EF8-B493-994527E68155@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><027201d52bab$db7e7f00$927b7d00$@aol.com><029f01d52bbe$18a8e480$49faad80$@gmail.com><000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com><02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com><000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com><000701d52bd2$ed7211a0$c85634e0$@gmail.com><000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
	<2AF1EFE7-7FA4-4EF8-B493-994527E68155@gmail.com>
Message-ID: <DCBF0BB2A298413BAC0668B7B8805319@eileen>

Believe me, I?ve given all the people I have dealt with at Medtronic a piece of my mind about the importance of them keeping a working pump on the market as well as giving those of us who are blind access to all the functions! They swear to me they are working on something that we?ll be able to use. And even if its the basic functionality I have right now I will be happy with that seeing the way all other manufacturers have gotten out of the field of producing insulin pumps and the discontinuance by Medtronics of the Paradigm series & 530G!

Yes, I am in agreement that the ability to use all the other features would be beneficial to us, its not a deal breaker for me. The thought of going back to having to inject is horrifying to me.

Eileen 

From: Cindy Ray via Diabetes-Talk 
Sent: Wednesday, June 26, 2019 3:59 PM
To: Diabetes Talk for the Blind 
Cc: Cindy Ray 
Subject: Re: [Diabetes-Talk] AIRA & pump questions

It isn?t just on Veronica to ?make noise.? That is on all of us.


Cindy Lou Ray
Sent from my iPhone

> On Jun 26, 2019, at 2:46 PM, Veronica Elsea via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Gary, how many times do I have to tell all of you that I am making noise and
> I am continuing to try. I had a meeting scheduled with someone last year and
> he died. Okay? I'm trying to find another contact. 
> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> gary-melconian via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 8:55 PM
> To: 'Diabetes Talk for the Blind'
> Cc: gary-melconian
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Veronica, you are in the google neck of the woods.why don?t you make some
> noise about it if there are lots of  these health products that will begin
> to use google products in the future.just saying.  
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
> Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 7:53 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> I'm not sure what he's up to these days, but the NFB sure wasn't willing to
> name him or use him. I wondered if he was retired by now. But I as an
> individual sure don't have his ear. <grin> However, I know what bus and
> train people take to get to their campus. Heh heh heh heh heh! Don't think I
> won't. <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 7:38 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Voiceover, yes, is what Apple calls its screenreading program. But voiceover
> is also a generic term given to any text-to-speech program. But perhaps
> text-to-speech works best.
> 
> Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
> last I checked. Don't tell me contacting him is the "wrong" department. Like
> he doesn't know who to contact or what to say to get the ball rolling.
> 
> I love the mob idea. Tell me when and wear, and I'm there! LOL!
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
> Elsea via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 9:25 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Bridgit, I did make a very valid proposal last year which I have mentioned
> here.
> Many devices are now coming out based on an Android phone, taking out the
> phone part. I wanted to establish a connection with Google's health division
> so that someone could be in a good position to mandate installation of
> TalkBack into every medical system so that the pump programmers could make
> use of it. But personally, I haven't landed on the right contacts yet. 
> Anil Lewis bragged, oh we know people at Google, but it wasn't the right
> division and of course, he never followed up and won't. 
> But you need to be careful about saying installing VoiceOver on pumps.
> VoiceOver is a specific Apple product and unless someone leases it from
> Apple, someone else would have to write the entire speech and gesture
> program from scratch. Even if the basic TalkBack module were installed in
> the pumps, someone would have to program the gestures to match the specific
> functions we need from the pump, all of them. That's not a teeny itty bitty
> task. Someone would have to make sure that it stayed updated as they changed
> the pump, which is proving challenging at times, even with Apple. I'm not
> saying don't do any of these things. I just find it helpful to think about
> the possible gotchyas ahead of time, insuring that the final product would
> work as well as possible. That's why I listed my points to consider with
> Aira.  He would know exactly whom to contact and what to say to get the ball
> rolling on something.
> 
> 
> But honestly, sometimes I fantasize about organizing a flash mob at some of
> these companies or something wild. But partly for my own selfish reasons,
> I'm certainly not giving up on getting access to the information and
> features of the latest diabetes management technology, however it happens. I
> think it's imperative that we have interim solutions while we're working on
> the ultimate goal. We just have to help these companies distinguish between
> interim and final solutions. <grin> Veronica
> 
> 
> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
> iTunes, along with other music from her and from the Guide Dog Glee Club. 
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 6:26 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> 
> AIRA is a 24/7 service, grin.
> 
> I'm not saying AIRA doesn't have its uses and should not exist at all. And
> of course, since companies do refuse largely to make products accessible, a
> service like AIRA works for a lot of people.
> 
> My point is that we can't become complacent because of AIRA and Be My Eyes.
> We need to push for true accessibility more than ever before. Both can
> coexist, but we need to ensure us and companies arent' content to just rely
> on AIRA, which does have its limitations. Why have to call AIRA every time I
> need to do something with my pump if I could just do it myself with
> voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
> accessibility with our devices too.
> 
> Computer programmer after computer programmer has said that placing a
> voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
> as costly as companies want to complain about. The point is that companies
> will find any excuse to avoid accessibility. Artificial pancreases are
> supposed to be a game changer for diabetics, more so than pumps, but as you
> state, blind diabetics are completely excluded from this device. I think the
> NFB should consider legal action specifically for artificial pancreases,
> just as we have done with kiosks, online banking, BAR exams and a hundred
> other things. Why should our health suffer because we can't access the most
> current technology that will change diabetes?
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Tuesday, June 25, 2019 6:15 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> As far as I know AIRA is not available 24 hours a day.  I basically live
> alone.  So a good portion of the day I have no sighted help. My son drops in
> at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
> dependent on using AIRA, but it is great to know it is there if I need it.
> 
> Bridgit
> 
> I have been using a pump only the last 2 years and the Dexcom for the last
> year.  It is the Medtronics pump, but I can tell you it took getting both of
> these devices working together for me to feel at ease.  Now as what was said
> on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
> are at numbers that my Endourologist  and I are happy with.    Since I am a
> brittle Diabetic there is always room for improvement, but I had never been
> down in the 7 or as low as 7.6  in the past.
> 
> With as far as this division has gone and accessibility  isn't happening
> with the pump manufacturers where does that leave us blind pump users.  
> 
> I have heard about some day the artificial pancreas will be available from
> my doctors  in Yale New Haven for the last 50 years.  Well now that it is
> here and only to find out it isn't accessible to a blind Diabetic, I am not
> going to take this sitting down.    I really don't care how it becomes
> accessible, I will take the accessibility  any way I can get it.  Technology
> has jumped insulin pumps ahead and left us blind people behind.  The DAN
> Board has been trying to convince the pump companies to make their machines
> accessible for more than 15 years and it has fallen on deaf ears.
> 
> One way or the other we need to demand that we have accessibility as the
> sighted world.  After all don't we have the right to  reach for keeping
> ourselves as healthy as we  can be since Diabetes is the cause of  so much
> more effecting other parts of the body.  
> 
> Joyce Kane
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
> Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:31 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's
> still sighted help for things that mostly could be made accessible in a way
> that blind people could do it without any sighted help. Forms can be
> formatted for online use; websites can be made accessible; devices can be
> accessible, etc. Sure, until companies get a fire lit under them, AIRA is
> here, but what's the incentive for companies to work on accessibility when
> services like AIRA exist? It's a catch 22. We need accessibility now, but
> now that we have AIRA, companies no longer think they need to think about
> accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
> via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is
> there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a
> chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. True
> independence would be possible if companies gave a shit (excuse 
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And
> now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/blindhands%40aol.
> com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
> ail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
> mail.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
> creekmusic.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cindyray%40gmail.com

_______________________________________________
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From bkpollpeter at gmail.com  Wed Jun 26 20:42:49 2019
From: bkpollpeter at gmail.com (Bridgit Kuenning-Pollpeter)
Date: Wed, 26 Jun 2019 15:42:49 -0500
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <78F2842B862E41CC9B77B3BE4F74350C@eileen>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><5d118727.1c69fb81.96aa1.2732@mx.google.com><005601d52b02$56aa7bc0$03ff7340$@gmail.com><ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com><EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>	<1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
	<78F2842B862E41CC9B77B3BE4F74350C@eileen>
Message-ID: <046001d52c5f$b87ca770$2975f650$@gmail.com>

Yeah, it's odd that there used to be several companies making pumps, and now it's just 3.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 26, 2019 2:35 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Dar,

If your doctor writes a script for one and does the paperwork supporting the need for one, anyone can get an insulin pump. The issue is that all the pumps that at this point in time are on the market, cannot be used by those of us who are totally blind. The manufacturers are all making the interfaces on them visual so its imposible for a totally blind diabetic to even perform the most basic of operations on them. And that is TSlim & Medtronic. Other than the Omni Pod I?m not sure who else is left out there that is still in the business of making them. 

Eileen

From: Dar via Diabetes-Talk 
Sent: Wednesday, June 26, 2019 2:45 PM
To: Diabetes Talk for the Blind 
Cc: Dar 
Subject: Re: [Diabetes-Talk] AIRA & pump questions

>From what you are saying is no new person can get a pump if they are blind   If I am correct, this is what we should fight for, not worry what ira does or doesn?t do.  

Always remember with nfb you start with $21 for 30 minutes and can add 50 minutes more if you wish.  
I am pleased it is here and I make the choice to use it   

I would love to know the companies who know about ira and wish not wish to help diabetics   

I would like to know why Mark from nfb is not taking them to court   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bern,
> 
> You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.
> 
> Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!
> 
> Eileen
> 
> From: Bernadette Jacobs via Diabetes-Talk 
> Sent: Wednesday, June 26, 2019 12:50 PM
> To: Diabetes Talk for the Blind 
> Cc: Bernadette Jacobs 
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> For those of you who use AIRA, I?m leaving all this up to your discretion.  
> 
> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  
> 
> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  
> 
> Sent from my iPhone
> 
>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Yep.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:30 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: sandi <sjryan2 at gmail.com>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:32 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
>> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
>> 
>> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
>> 
>> BTW, this is not a negative comment on AIRA but on society in general.
>> 
>> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
>> 
>> 
>> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
>> 
>> 
>> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
>> 
>> 
>> 
>>> Joyce
>> 
>> 
>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>> sero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>> ail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
>> 
>> 
>> 
>> ---
>> This email has been checked for viruses by AVG.
>> https://www.avg.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
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From kutash-jm at comcast.net  Wed Jun 26 22:13:29 2019
From: kutash-jm at comcast.net (Jeanette Kutash)
Date: Wed, 26 Jun 2019 18:13:29 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<5d118727.1c69fb81.96aa1.2732@mx.google.com>	<005601d52b02$56aa7bc0$03ff7340$@gmail.com>	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>	<EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
	<1C2103DA-CB0F-4641-8AD0-5937629541CB@mysero.net>
Message-ID: <00a701d52c6c$636ee600$2a4cb200$@comcast.net>

Dar, it's not separate but equal. As someone once said to me, we need to use every tool in the toolbox, and I would agree that if I am not dressed and using a pump I don't want to be on camera. But nothing is exclusive. For some, for now that may be the only choice.

Jeanette

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Dar via Diabetes-Talk
Sent: Wednesday, June 26, 2019 2:45 PM
To: Diabetes Talk for the Blind
Cc: Dar
Subject: Re: [Diabetes-Talk] AIRA & pump questions

>From what you are saying is no new person can get a pump if they are blind   If I am correct, this is what we should fight for, not worry what ira does or doesn?t do.  

Always remember with nfb you start with $21 for 30 minutes and can add 50 minutes more if you wish.  
I am pleased it is here and I make the choice to use it   

I would love to know the companies who know about ira and wish not wish to help diabetics   

I would like to know why Mark from nfb is not taking them to court   

Dar
Every saint has a past, 
Every sinner has a future 


> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Bern,
> 
> You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.
> 
> Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!
> 
> Eileen
> 
> From: Bernadette Jacobs via Diabetes-Talk 
> Sent: Wednesday, June 26, 2019 12:50 PM
> To: Diabetes Talk for the Blind 
> Cc: Bernadette Jacobs 
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> For those of you who use AIRA, I?m leaving all this up to your discretion.  
> 
> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  
> 
> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  
> 
> Sent from my iPhone
> 
>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
>> 
>> Yep.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of sandi via Diabetes-Talk
>> Sent: Monday, June 24, 2019 9:30 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: sandi <sjryan2 at gmail.com>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
>> 
>> Sandi
>> 
>> 
>> Sent from Mail for Windows 10
>> 
>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:32 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
>> 
>> -----Original Message-----
>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina via Diabetes-Talk
>> Sent: Monday, June 24, 2019 8:05 PM
>> To: diabetes-talk at nfbnet.org
>> Cc: d m gina <dmgina at mysero.net>
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions
>> 
>> Joyce,
>> I won't be at convention,
>> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
>> At no time does it make us less independent, if anything it makes us more.
>> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
>> If they can do it for devices then what is one more device.
>> Do let us know how the conversation works out.
>> Thanks again,
>> 
>> Original message:
>>> When this topic came up there seemed to be some chatter along with
>> 
>> So... In my opinion, it's not the best tool to give us independence. True independence would be possible if companies gave a shit (excuse 
>> 
>> BTW, this is not a negative comment on AIRA but on society in general.
>> 
>> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>>> opinions regarding the use of AIRA with a pump.  I said I would make 
>>> contact with AIRA and I did.
>> 
>> 
>> 
>>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>>> there has been some mention of insulin pumps.  He told me he would be 
>>> at Convention in Vegas and he would be interested in speaking to some 
>>> of the people who have been working for us blind Diabetic pump users 
>>> to get insulin pumps accessible.
>> 
>> 
>> 
>>> If anyone is interested in making contact while at Convention, please 
>>> send me a note off list and I will send you my conversation with him.
>> 
>> 
>> 
>>> Joyce
>> 
>> 
>> 
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>> sero.net
>> 
>> --
>> --Dar
>> skype: dmgina23
>> FB: dmgina
>> www.twitter.com/dmgina
>> every saint has a past
>> every sinner has a future
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>> ail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com
>> 
>> 
>> 
>> ---
>> This email has been checked for viruses by AVG.
>> https://www.avg.com
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com
>> 
>> 
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

_______________________________________________
Diabetes-Talk mailing list
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http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net




From gmelconian619 at gmail.com  Thu Jun 27 02:04:51 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Wed, 26 Jun 2019 19:04:51 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <042601d52c52$7392d240$5ab876c0$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net><064801d52af5$a20db8a0$e62929e0$@gmail.com><5d118727.1c69fb81.96aa1.2732@mx.google.com><005601d52b02$56aa7bc0$03ff7340$@gmail.com>	<ADDA28CD-AF08-4ED3-8E47-EBBE8BB2F33C@gmail.com>	<EDB6D51A7C5F46F88A205A946CA3BC2B@eileen>
	<042601d52c52$7392d240$5ab876c0$@gmail.com>
Message-ID: <016601d52c8c$b5731780$20594680$@gmail.com>

Do agree we need to educate these companies that there products need to be accessible out of the box.  Also not to use ira as the scape goat t ot them not wanting ot go that extra mile and implement the necessary tool to make their product accessible ot us.  . 

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:08 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Eileen,

Bern did state that pump companies do need to make pumps accessible pronto. She said AIRA becomes a scapegoat for them to not consider accessibility, meaning that just because AIRA exist, doesn't mean companies can rest easy and not provide accessibility for products. Not sure where the disagreement is.

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:51 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Eileen Scrivani <etscrivani at verizon.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bern,

You make a good point in that AIRA is something that not all of us can afford. Even if I could see myself clear of spending that kind of money every month for the service, I would not use it for controlling my insulin pump functions. Yes, I too am in a half state of undress when working on my pump and aside from modesty issues, nor would I trust a stranger unfamiliar with the workings of insulin pumps on the phone to assist me in altering any settings of any type on my pump.

Where you and I disagree is that the day has come that pump manufacturers ?must? make adaptations of some type on the pumps they currently have on the market. We will all be in an extreme, bad place when next our warrantees are up. Something needs to be done pronto!

Eileen

From: Bernadette Jacobs via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:50 PM
To: Diabetes Talk for the Blind
Cc: Bernadette Jacobs
Subject: Re: [Diabetes-Talk] AIRA & pump questions

For those of you who use AIRA, I?m leaving all this up to your discretion.  

As Sandy and Bridget both indicate, AIRA is just another tool.  I agree tht as long as we have things like AIRA, and ?Be My Eyes,? The pump makers out there won?t be forced to do what they really ought to do in the first place.  It?s not like others haven?t made their products accessible.  Things like AIRA and Be My Eyes can simply be used as scapegoats.  Then, as Veronica has also indicated, when using and setting up the pump, most of us are at least partially undressed.  I, for one, am not into posing nude for any camera.  

Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna happen here.  I?ll let them speak to my seminar.  But, they own?t get me to purchase it.  No can do.  

Sent from my iPhone

> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Yep.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
> sandi via Diabetes-Talk
> Sent: Monday, June 24, 2019 9:30 PM
> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
> Cc: sandi <sjryan2 at gmail.com>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Well said, my friend! Aira is a tool, but it?s neither the best nor the most effective tool we could have. Most of the things it?s good at are things that could be accomplished in other ways, many of those ways better than this rather expensive, not-always-effective service.
> 
> Sandi
> 
> 
> Sent from Mail for Windows 10
> 
> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:32 PM
> To: 'Diabetes Talk for the Blind'
> Cc: Bridgit Kuenning-Pollpeter
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> AIRA isn't the best way to make us independent. It's 24/7 help, but it's still sighted help for things that mostly could be made accessible in a way that blind people could do it without any sighted help. Forms can be formatted for online use; websites can be made accessible; devices can be accessible, etc. Sure, until companies get a fire lit under them, AIRA is here, but what's the incentive for companies to work on accessibility when services like AIRA exist? It's a catch 22. We need accessibility now, but now that we have AIRA, companies no longer think they need to think about accessibility.
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d 
> m gina via Diabetes-Talk
> Sent: Monday, June 24, 2019 8:05 PM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina <dmgina at mysero.net>
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Joyce,
> I won't be at convention,
> Mike Henson wrote to me on ira list sharing that what we can't read, ira is there for us, and does help us stay mobile in anything we want to do.
> At no time does it make us less independent, if anything it makes us more.
> I do hope and know we will do our best to try to et companies to put in a chip for talking meeters.
> If they can do it for devices then what is one more device.
> Do let us know how the conversation works out.
> Thanks again,
> 
> Original message:
>> When this topic came up there seemed to be some chatter along with
> 
> So... In my opinion, it's not the best tool to give us independence. 
> True independence would be possible if companies gave a shit (excuse
> 
> BTW, this is not a negative comment on AIRA but on society in general.
> 
> Bridgitmy French) and worked to make products and devices accessible. And now with AIRA, it's not as likely they will.
>> opinions regarding the use of AIRA with a pump.  I said I would make 
>> contact with AIRA and I did.
> 
> 
> 
>> I contacted Glenn Takemoto, , Account Executive andhe told me that 
>> there has been some mention of insulin pumps.  He told me he would be 
>> at Convention in Vegas and he would be interested in speaking to some 
>> of the people who have been working for us blind Diabetic pump users 
>> to get insulin pumps accessible.
> 
> 
> 
>> If anyone is interested in making contact while at Convention, please 
>> send me a note off list and I will send you my conversation with him.
> 
> 
> 
>> Joyce
> 
> 
> 
>> _______________________________________________
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>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40m
>> y
>> sero.net
> 
> --
> --Dar
> skype: dmgina23
>  FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> 
> _______________________________________________
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> Diabetes-Talk:
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> 40hotm
> ail.com
> 
> 
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> mail.com
> 
> 
> 
> ---
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From gmelconian619 at gmail.com  Thu Jun 27 02:23:04 2019
From: gmelconian619 at gmail.com (gary-melconian)
Date: Wed, 26 Jun 2019 19:23:04 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>	<000701d52bd2$ed7211a0$c85634e0$@gmail.com>
	<000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
Message-ID: <017a01d52c8f$40c7a970$c256fc50$@gmail.com>

Ok, veronica, I will do my part . What is it you need from me .i do have
some contact but they are not part of  the google health teams at google but
on other teams   at google.    

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Gary, how many times do I have to tell all of you that I am making noise and
I am continuing to try. I had a meeting scheduled with someone last year and
he died. Okay? I'm trying to find another contact. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 25, 2019 8:55 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Veronica, you are in the google neck of the woods.why don?t you make some
noise about it if there are lots of  these health products that will begin
to use google products in the future.just saying.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:53 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> However, I know what bus and
train people take to get to their campus. Heh heh heh heh heh! Don't think I
won't. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
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> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From dmgina at mysero.net  Thu Jun 27 18:17:12 2019
From: dmgina at mysero.net (d m gina)
Date: Thu, 27 Jun 2019 14:17:12 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
Message-ID: <c8b8eccd.1036.4d73.8108.20d15eae2e7a@samobile.net>

My question again is this,
After you get done with the pumps you have, I read that new pumps won't 
have anything for the blind to use,
if this is correct, then why isn't national nfb or acb working together 
to take companies to court.
I also want to have something in email from a company that is saying,
Since you have ira you don't need us to put anything on a pump for the blind.
I will keep reading.

Original message:
> Dar, it's not separate but equal. As someone once said to me, we need 
> to use every tool in the toolbox, and I would agree that if I am not 
> dressed and using a pump I don't want to be on camera. But nothing is 
> exclusive. For some, for now that may be the only choice.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Dar via Diabetes-Talk
> Sent: Wednesday, June 26, 2019 2:45 PM
> To: Diabetes Talk for the Blind
> Cc: Dar
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> From what you are saying is no new person can get a pump if they are 
> blind   If I am correct, this is what we should fight for, not worry 
> what ira does or doesn?t do.

> Always remember with nfb you start with $21 for 30 minutes and can add 
> 50 minutes more if you wish.
> I am pleased it is here and I make the choice to use it

> I would love to know the companies who know about ira and wish not wish 
> to help diabetics

> I would like to know why Mark from nfb is not taking them to court

> Dar
> Every saint has a past,
> Every sinner has a future


>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Bern,

>> You make a good point in that AIRA is something that not all of us can 
>> afford. Even if I could see myself clear of spending that kind of money 
>> every month for the service, I would not use it for controlling my 
>> insulin pump functions. Yes, I too am in a half state of undress when 
>> working on my pump and aside from modesty issues, nor would I trust a 
>> stranger unfamiliar with the workings of insulin pumps on the phone to 
>> assist me in altering any settings of any type on my pump.

>> Where you and I disagree is that the day has come that pump 
>> manufacturers ?must? make adaptations of some type on the pumps they 
>> currently have on the market. We will all be in an extreme, bad place 
>> when next our warrantees are up. Something needs to be done pronto!

>> Eileen

>> From: Bernadette Jacobs via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 12:50 PM
>> To: Diabetes Talk for the Blind
>> Cc: Bernadette Jacobs
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>> For those of you who use AIRA, I?m leaving all this up to your discretion.

>> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree 
>> tht as long as we have things like AIRA, and ?Be My Eyes,? The pump 
>> makers out there won?t be forced to do what they really ought to do in 
>> the first place.  It?s not like others haven?t made their products 
>> accessible.  Things like AIRA and Be My Eyes can simply be used as 
>> scapegoats.  Then, as Veronica has also indicated, when using and 
>> setting up the pump, most of us are at least partially undressed.  I, 
>> for one, am not into posing nude for any camera.

>> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna 
>> happen here.  I?ll let them speak to my seminar.  But, they own?t get 
>> me to purchase it.  No can do.

>> Sent from my iPhone

>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via 
>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:

>>> Yep.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> sandi via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 9:30 PM
>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>> Cc: sandi <sjryan2 at gmail.com>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Well said, my friend! Aira is a tool, but it?s neither the best nor the 
>>> most effective tool we could have. Most of the things it?s good at are 
>>> things that could be accomplished in other ways, many of those ways 
>>> better than this rather expensive, not-always-effective service.

>>> Sandi


>>> Sent from Mail for Windows 10

>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:32 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> AIRA isn't the best way to make us independent. It's 24/7 help, but 
>>> it's still sighted help for things that mostly could be made accessible 
>>> in a way that blind people could do it without any sighted help. Forms 
>>> can be formatted for online use; websites can be made accessible; 
>>> devices can be accessible, etc. Sure, until companies get a fire lit 
>>> under them, AIRA is here, but what's the incentive for companies to 
>>> work on accessibility when services like AIRA exist? It's a catch 22. 
>>> We need accessibility now, but now that we have AIRA, companies no 
>>> longer think they need to think about accessibility.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
>>> gina via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:05 PM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: d m gina <dmgina at mysero.net>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Joyce,
>>> I won't be at convention,
>>> Mike Henson wrote to me on ira list sharing that what we can't read, 
>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>> At no time does it make us less independent, if anything it makes us more.
>>> I do hope and know we will do our best to try to et companies to put in 
>>> a chip for talking meeters.
>>> If they can do it for devices then what is one more device.
>>> Do let us know how the conversation works out.
>>> Thanks again,

>>> Original message:
>>>> When this topic came up there seemed to be some chatter along with

>>> So... In my opinion, it's not the best tool to give us independence. 
>>> True independence would be possible if companies gave a shit (excuse

>>> BTW, this is not a negative comment on AIRA but on society in general.

>>> Bridgitmy French) and worked to make products and devices accessible. 
>>> And now with AIRA, it's not as likely they will.
>>>> opinions regarding the use of AIRA with a pump.  I said I would make
>>>> contact with AIRA and I did.



>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>> there has been some mention of insulin pumps.  He told me he would be
>>>> at Convention in Vegas and he would be interested in speaking to some
>>>> of the people who have been working for us blind Diabetic pump users
>>>> to get insulin pumps accessible.



>>>> If anyone is interested in making contact while at Convention, please
>>>> send me a note off list and I will send you my conversation with him.



>>>> Joyce



>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>>> sero.net

>>> --
>>> --Dar
>>> skype: dmgina23
>>> FB: dmgina
>>> www.twitter.com/dmgina
>>> every saint has a past
>>> every sinner has a future

>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>>> ail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



>>> ---
>>> This email has been checked for viruses by AVG.
>>> https://www.avg.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From veronica at laurelcreekmusic.com  Thu Jun 27 18:54:31 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Thu, 27 Jun 2019 11:54:31 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <c8b8eccd.1036.4d73.8108.20d15eae2e7a@samobile.net>
References: <c8b8eccd.1036.4d73.8108.20d15eae2e7a@samobile.net>
Message-ID: <000301d52d19$c140cf20$43c26d60$@laurelcreekmusic.com>

Dar, very good question. Unfortunately, the reason nobody has taken these companies to court is because there is no law mandating accessible medical equipment. If there's a problem with a web site, a building, there are codes one can readily quote if there's a violation. There just isn't anything for accessible medical equipment. Of course, the question, why not? Good question. Hasn't been done.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d m gina via Diabetes-Talk
Sent: Thursday, June 27, 2019 11:17 AM
To: diabetes-talk at nfbnet.org
Cc: d m gina
Subject: Re: [Diabetes-Talk] AIRA & pump questions

My question again is this,
After you get done with the pumps you have, I read that new pumps won't 
have anything for the blind to use,
if this is correct, then why isn't national nfb or acb working together 
to take companies to court.
I also want to have something in email from a company that is saying,
Since you have ira you don't need us to put anything on a pump for the blind.
I will keep reading.

Original message:
> Dar, it's not separate but equal. As someone once said to me, we need 
> to use every tool in the toolbox, and I would agree that if I am not 
> dressed and using a pump I don't want to be on camera. But nothing is 
> exclusive. For some, for now that may be the only choice.

> Jeanette

> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of Dar via Diabetes-Talk
> Sent: Wednesday, June 26, 2019 2:45 PM
> To: Diabetes Talk for the Blind
> Cc: Dar
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> From what you are saying is no new person can get a pump if they are 
> blind   If I am correct, this is what we should fight for, not worry 
> what ira does or doesn?t do.

> Always remember with nfb you start with $21 for 30 minutes and can add 
> 50 minutes more if you wish.
> I am pleased it is here and I make the choice to use it

> I would love to know the companies who know about ira and wish not wish 
> to help diabetics

> I would like to know why Mark from nfb is not taking them to court

> Dar
> Every saint has a past,
> Every sinner has a future


>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk 
>> <diabetes-talk at nfbnet.org> wrote:

>> Bern,

>> You make a good point in that AIRA is something that not all of us can 
>> afford. Even if I could see myself clear of spending that kind of money 
>> every month for the service, I would not use it for controlling my 
>> insulin pump functions. Yes, I too am in a half state of undress when 
>> working on my pump and aside from modesty issues, nor would I trust a 
>> stranger unfamiliar with the workings of insulin pumps on the phone to 
>> assist me in altering any settings of any type on my pump.

>> Where you and I disagree is that the day has come that pump 
>> manufacturers ?must? make adaptations of some type on the pumps they 
>> currently have on the market. We will all be in an extreme, bad place 
>> when next our warrantees are up. Something needs to be done pronto!

>> Eileen

>> From: Bernadette Jacobs via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 12:50 PM
>> To: Diabetes Talk for the Blind
>> Cc: Bernadette Jacobs
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>> For those of you who use AIRA, I?m leaving all this up to your discretion.

>> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree 
>> tht as long as we have things like AIRA, and ?Be My Eyes,? The pump 
>> makers out there won?t be forced to do what they really ought to do in 
>> the first place.  It?s not like others haven?t made their products 
>> accessible.  Things like AIRA and Be My Eyes can simply be used as 
>> scapegoats.  Then, as Veronica has also indicated, when using and 
>> setting up the pump, most of us are at least partially undressed.  I, 
>> for one, am not into posing nude for any camera.

>> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna 
>> happen here.  I?ll let them speak to my seminar.  But, they own?t get 
>> me to purchase it.  No can do.

>> Sent from my iPhone

>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via 
>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:

>>> Yep.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of 
>>> sandi via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 9:30 PM
>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>> Cc: sandi <sjryan2 at gmail.com>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Well said, my friend! Aira is a tool, but it?s neither the best nor the 
>>> most effective tool we could have. Most of the things it?s good at are 
>>> things that could be accomplished in other ways, many of those ways 
>>> better than this rather expensive, not-always-effective service.

>>> Sandi


>>> Sent from Mail for Windows 10

>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:32 PM
>>> To: 'Diabetes Talk for the Blind'
>>> Cc: Bridgit Kuenning-Pollpeter
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> AIRA isn't the best way to make us independent. It's 24/7 help, but 
>>> it's still sighted help for things that mostly could be made accessible 
>>> in a way that blind people could do it without any sighted help. Forms 
>>> can be formatted for online use; websites can be made accessible; 
>>> devices can be accessible, etc. Sure, until companies get a fire lit 
>>> under them, AIRA is here, but what's the incentive for companies to 
>>> work on accessibility when services like AIRA exist? It's a catch 22. 
>>> We need accessibility now, but now that we have AIRA, companies no 
>>> longer think they need to think about accessibility.

>>> -----Original Message-----
>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m 
>>> gina via Diabetes-Talk
>>> Sent: Monday, June 24, 2019 8:05 PM
>>> To: diabetes-talk at nfbnet.org
>>> Cc: d m gina <dmgina at mysero.net>
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> Joyce,
>>> I won't be at convention,
>>> Mike Henson wrote to me on ira list sharing that what we can't read, 
>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>> At no time does it make us less independent, if anything it makes us more.
>>> I do hope and know we will do our best to try to et companies to put in 
>>> a chip for talking meeters.
>>> If they can do it for devices then what is one more device.
>>> Do let us know how the conversation works out.
>>> Thanks again,

>>> Original message:
>>>> When this topic came up there seemed to be some chatter along with

>>> So... In my opinion, it's not the best tool to give us independence. 
>>> True independence would be possible if companies gave a shit (excuse

>>> BTW, this is not a negative comment on AIRA but on society in general.

>>> Bridgitmy French) and worked to make products and devices accessible. 
>>> And now with AIRA, it's not as likely they will.
>>>> opinions regarding the use of AIRA with a pump.  I said I would make
>>>> contact with AIRA and I did.



>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>> there has been some mention of insulin pumps.  He told me he would be
>>>> at Convention in Vegas and he would be interested in speaking to some
>>>> of the people who have been working for us blind Diabetic pump users
>>>> to get insulin pumps accessible.



>>>> If anyone is interested in making contact while at Convention, please
>>>> send me a note off list and I will send you my conversation with him.



>>>> Joyce



>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>>> sero.net

>>> --
>>> --Dar
>>> skype: dmgina23
>>> FB: dmgina
>>> www.twitter.com/dmgina
>>> every saint has a past
>>> every sinner has a future

>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>>> ail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



>>> ---
>>> This email has been checked for viruses by AVG.
>>> https://www.avg.com
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for 
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for 
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From veronica at laurelcreekmusic.com  Thu Jun 27 18:55:35 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Thu, 27 Jun 2019 11:55:35 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <017a01d52c8f$40c7a970$c256fc50$@gmail.com>
References: <fdaa804f.847c.483b.a67d.7013656b6bb4@samobile.net>	<064801d52af5$a20db8a0$e62929e0$@gmail.com>	<027201d52bab$db7e7f00$927b7d00$@aol.com>	<029f01d52bbe$18a8e480$49faad80$@gmail.com>	<000801d52bc6$619ff6d0$24dfe470$@laurelcreekmusic.com>	<02cf01d52bc8$31f2ffc0$95d8ff40$@gmail.com>	<000301d52bca$45324c10$cf96e430$@laurelcreekmusic.com>	<000701d52bd2$ed7211a0$c85634e0$@gmail.com>	<000601d52c57$cf2960b0$6d7c2210$@laurelcreekmusic.com>
	<017a01d52c8f$40c7a970$c256fc50$@gmail.com>
Message-ID: <000501d52d19$e74356c0$b5ca0440$@laurelcreekmusic.com>

Gary, thanks so much for the offer. Let me finish my current round of
snooping and then we can see if your contacts can do anything for us.
Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Wednesday, June 26, 2019 7:23 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Ok, veronica, I will do my part . What is it you need from me .i do have
some contact but they are not part of  the google health teams at google but
on other teams   at google.    

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Wednesday, June 26, 2019 12:46 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Gary, how many times do I have to tell all of you that I am making noise and
I am continuing to try. I had a meeting scheduled with someone last year and
he died. Okay? I'm trying to find another contact. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Tuesday, June 25, 2019 8:55 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Veronica, you are in the google neck of the woods.why don?t you make some
noise about it if there are lots of  these health products that will begin
to use google products in the future.just saying.  

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:53 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

I'm not sure what he's up to these days, but the NFB sure wasn't willing to
name him or use him. I wondered if he was retired by now. But I as an
individual sure don't have his ear. <grin> However, I know what bus and
train people take to get to their campus. Heh heh heh heh heh! Don't think I
won't. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 7:38 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Voiceover, yes, is what Apple calls its screenreading program. But voiceover
is also a generic term given to any text-to-speech program. But perhaps
text-to-speech works best.

Uh, yeah NFB has connections at Google. Dr. Kurzweile is creative director,
last I checked. Don't tell me contacting him is the "wrong" department. Like
he doesn't know who to contact or what to say to get the ball rolling.

I love the mob idea. Tell me when and wear, and I'm there! LOL!

Bridgit

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Veronica
Elsea via Diabetes-Talk
Sent: Tuesday, June 25, 2019 9:25 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Bridgit, I did make a very valid proposal last year which I have mentioned
here.
Many devices are now coming out based on an Android phone, taking out the
phone part. I wanted to establish a connection with Google's health division
so that someone could be in a good position to mandate installation of
TalkBack into every medical system so that the pump programmers could make
use of it. But personally, I haven't landed on the right contacts yet. 
Anil Lewis bragged, oh we know people at Google, but it wasn't the right
division and of course, he never followed up and won't. 
But you need to be careful about saying installing VoiceOver on pumps.
VoiceOver is a specific Apple product and unless someone leases it from
Apple, someone else would have to write the entire speech and gesture
program from scratch. Even if the basic TalkBack module were installed in
the pumps, someone would have to program the gestures to match the specific
functions we need from the pump, all of them. That's not a teeny itty bitty
task. Someone would have to make sure that it stayed updated as they changed
the pump, which is proving challenging at times, even with Apple. I'm not
saying don't do any of these things. I just find it helpful to think about
the possible gotchyas ahead of time, insuring that the final product would
work as well as possible. That's why I listed my points to consider with
Aira.  He would know exactly whom to contact and what to say to get the ball
rolling on something.


But honestly, sometimes I fantasize about organizing a flash mob at some of
these companies or something wild. But partly for my own selfish reasons,
I'm certainly not giving up on getting access to the information and
features of the latest diabetes management technology, however it happens. I
think it's imperative that we have interim solutions while we're working on
the ultimate goal. We just have to help these companies distinguish between
interim and final solutions. <grin> Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Bridgit Kuenning-Pollpeter via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:26 PM
To: 'Diabetes Talk for the Blind'
Cc: Bridgit Kuenning-Pollpeter
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,

AIRA is a 24/7 service, grin.

I'm not saying AIRA doesn't have its uses and should not exist at all. And
of course, since companies do refuse largely to make products accessible, a
service like AIRA works for a lot of people.

My point is that we can't become complacent because of AIRA and Be My Eyes.
We need to push for true accessibility more than ever before. Both can
coexist, but we need to ensure us and companies arent' content to just rely
on AIRA, which does have its limitations. Why have to call AIRA every time I
need to do something with my pump if I could just do it myself with
voiceover? Yes, for now, AIRA is here for us, but we need to fight to have
accessibility with our devices too.

Computer programmer after computer programmer has said that placing a
voiceover on insulin pumps wouldn't be difficult at all, and it wouldn't be
as costly as companies want to complain about. The point is that companies
will find any excuse to avoid accessibility. Artificial pancreases are
supposed to be a game changer for diabetics, more so than pumps, but as you
state, blind diabetics are completely excluded from this device. I think the
NFB should consider legal action specifically for artificial pancreases,
just as we have done with kiosks, online banking, BAR exams and a hundred
other things. Why should our health suffer because we can't access the most
current technology that will change diabetes?

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
blindhands--- via Diabetes-Talk
Sent: Tuesday, June 25, 2019 6:15 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: blindhands at aol.com
Subject: Re: [Diabetes-Talk] AIRA & pump questions

As far as I know AIRA is not available 24 hours a day.  I basically live
alone.  So a good portion of the day I have no sighted help. My son drops in
at Supper time and he is available for 30 - 45 minutes a day.  I don't feel
dependent on using AIRA, but it is great to know it is there if I need it.

Bridgit

I have been using a pump only the last 2 years and the Dexcom for the last
year.  It is the Medtronics pump, but I can tell you it took getting both of
these devices working together for me to feel at ease.  Now as what was said
on this list after juggling insulin for 60 years my Hemoglobine AC1 finally
are at numbers that my Endourologist  and I are happy with.    Since I am a
brittle Diabetic there is always room for improvement, but I had never been
down in the 7 or as low as 7.6  in the past.

With as far as this division has gone and accessibility  isn't happening
with the pump manufacturers where does that leave us blind pump users.  

I have heard about some day the artificial pancreas will be available from
my doctors  in Yale New Haven for the last 50 years.  Well now that it is
here and only to find out it isn't accessible to a blind Diabetic, I am not
going to take this sitting down.    I really don't care how it becomes
accessible, I will take the accessibility  any way I can get it.  Technology
has jumped insulin pumps ahead and left us blind people behind.  The DAN
Board has been trying to convince the pump companies to make their machines
accessible for more than 15 years and it has fallen on deaf ears.

One way or the other we need to demand that we have accessibility as the
sighted world.  After all don't we have the right to  reach for keeping
ourselves as healthy as we  can be since Diabetes is the cause of  so much
more effecting other parts of the body.  

Joyce Kane
-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Bridgit
Kuenning-Pollpeter via Diabetes-Talk
Sent: Monday, June 24, 2019 9:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Bridgit Kuenning-Pollpeter <bkpollpeter at gmail.com>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

AIRA isn't the best way to make us independent. It's 24/7 help, but it's
still sighted help for things that mostly could be made accessible in a way
that blind people could do it without any sighted help. Forms can be
formatted for online use; websites can be made accessible; devices can be
accessible, etc. Sure, until companies get a fire lit under them, AIRA is
here, but what's the incentive for companies to work on accessibility when
services like AIRA exist? It's a catch 22. We need accessibility now, but
now that we have AIRA, companies no longer think they need to think about
accessibility.

-----Original Message-----
From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m gina
via Diabetes-Talk
Sent: Monday, June 24, 2019 8:05 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina <dmgina at mysero.net>
Subject: Re: [Diabetes-Talk] AIRA & pump questions

Joyce,
I won't be at convention,
Mike Henson wrote to me on ira list sharing that what we can't read, ira is
there for us, and does help us stay mobile in anything we want to do.
At no time does it make us less independent, if anything it makes us more.
I do hope and know we will do our best to try to et companies to put in a
chip for talking meeters.
If they can do it for devices then what is one more device.
Do let us know how the conversation works out.
Thanks again,

Original message:
> When this topic came up there seemed to be some chatter along with

So... In my opinion, it's not the best tool to give us independence. True
independence would be possible if companies gave a shit (excuse 

BTW, this is not a negative comment on AIRA but on society in general.

Bridgitmy French) and worked to make products and devices accessible. And
now with AIRA, it's not as likely they will.
> opinions regarding the use of AIRA with a pump.  I said I would make 
> contact with AIRA and I did.



> I contacted Glenn Takemoto, , Account Executive andhe told me that 
> there has been some mention of insulin pumps.  He told me he would be 
> at Convention in Vegas and he would be interested in speaking to some 
> of the people who have been working for us blind Diabetic pump users 
> to get insulin pumps accessible.



> If anyone is interested in making contact while at Convention, please 
> send me a note off list and I will send you my conversation with him.



> Joyce



> _______________________________________________
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> Diabetes-Talk:
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> sero.net

--
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

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From dmgina at mysero.net  Thu Jun 27 19:22:42 2019
From: dmgina at mysero.net (d m gina)
Date: Thu, 27 Jun 2019 15:22:42 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
Message-ID: <9a2f1645.d617.4c0a.aa7b.eaa90e8b784a@samobile.net>

How do we get it done?
This is where I know both organizations would work together.
There are as many diabetics in the acb as well as nfb.
I just felt if we had proof that something was written companies won't 
help becaue of ira then national presidents would start to step on ears.
We could share how a voice chip could be added to the pumps and this 
would help out allot.
Coming off the shelf.
Just my thoughts.
As we say the game is over

Original message:
> Dar, very good question. Unfortunately, the reason nobody has taken 
> these companies to court is because there is no law mandating 
> accessible medical equipment. If there's a problem with a web site, a 
> building, there are codes one can readily quote if there's a violation. 
> There just isn't anything for accessible medical equipment. Of course, 
> the question, why not? Good question. Hasn't been done.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide 
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407


> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of d m gina via Diabetes-Talk
> Sent: Thursday, June 27, 2019 11:17 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> My question again is this,
> After you get done with the pumps you have, I read that new pumps won't
> have anything for the blind to use,
> if this is correct, then why isn't national nfb or acb working together
> to take companies to court.
> I also want to have something in email from a company that is saying,
> Since you have ira you don't need us to put anything on a pump for the blind.
> I will keep reading.

> Original message:
>> Dar, it's not separate but equal. As someone once said to me, we need
>> to use every tool in the toolbox, and I would agree that if I am not
>> dressed and using a pump I don't want to be on camera. But nothing is
>> exclusive. For some, for now that may be the only choice.

>> Jeanette

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Dar via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 2:45 PM
>> To: Diabetes Talk for the Blind
>> Cc: Dar
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>> From what you are saying is no new person can get a pump if they are
>> blind   If I am correct, this is what we should fight for, not worry
>> what ira does or doesn?t do.

>> Always remember with nfb you start with $21 for 30 minutes and can add
>> 50 minutes more if you wish.
>> I am pleased it is here and I make the choice to use it

>> I would love to know the companies who know about ira and wish not wish
>> to help diabetics

>> I would like to know why Mark from nfb is not taking them to court

>> Dar
>> Every saint has a past,
>> Every sinner has a future


>>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Bern,

>>> You make a good point in that AIRA is something that not all of us can
>>> afford. Even if I could see myself clear of spending that kind of money
>>> every month for the service, I would not use it for controlling my
>>> insulin pump functions. Yes, I too am in a half state of undress when
>>> working on my pump and aside from modesty issues, nor would I trust a
>>> stranger unfamiliar with the workings of insulin pumps on the phone to
>>> assist me in altering any settings of any type on my pump.

>>> Where you and I disagree is that the day has come that pump
>>> manufacturers ?must? make adaptations of some type on the pumps they
>>> currently have on the market. We will all be in an extreme, bad place
>>> when next our warrantees are up. Something needs to be done pronto!

>>> Eileen

>>> From: Bernadette Jacobs via Diabetes-Talk
>>> Sent: Wednesday, June 26, 2019 12:50 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Bernadette Jacobs
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> For those of you who use AIRA, I?m leaving all this up to your discretion.

>>> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree
>>> tht as long as we have things like AIRA, and ?Be My Eyes,? The pump
>>> makers out there won?t be forced to do what they really ought to do in
>>> the first place.  It?s not like others haven?t made their products
>>> accessible.  Things like AIRA and Be My Eyes can simply be used as
>>> scapegoats.  Then, as Veronica has also indicated, when using and
>>> setting up the pump, most of us are at least partially undressed.  I,
>>> for one, am not into posing nude for any camera.

>>> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna
>>> happen here.  I?ll let them speak to my seminar.  But, they own?t get
>>> me to purchase it.  No can do.

>>> Sent from my iPhone

>>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via
>>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:

>>>> Yep.

>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>>> sandi via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 9:30 PM
>>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>>> Cc: sandi <sjryan2 at gmail.com>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> Well said, my friend! Aira is a tool, but it?s neither the best nor the
>>>> most effective tool we could have. Most of the things it?s good at are
>>>> things that could be accomplished in other ways, many of those ways
>>>> better than this rather expensive, not-always-effective service.

>>>> Sandi


>>>> Sent from Mail for Windows 10

>>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:32 PM
>>>> To: 'Diabetes Talk for the Blind'
>>>> Cc: Bridgit Kuenning-Pollpeter
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> AIRA isn't the best way to make us independent. It's 24/7 help, but
>>>> it's still sighted help for things that mostly could be made accessible
>>>> in a way that blind people could do it without any sighted help. Forms
>>>> can be formatted for online use; websites can be made accessible;
>>>> devices can be accessible, etc. Sure, until companies get a fire lit
>>>> under them, AIRA is here, but what's the incentive for companies to
>>>> work on accessibility when services like AIRA exist? It's a catch 22.
>>>> We need accessibility now, but now that we have AIRA, companies no
>>>> longer think they need to think about accessibility.

>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m
>>>> gina via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:05 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: d m gina <dmgina at mysero.net>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> Joyce,
>>>> I won't be at convention,
>>>> Mike Henson wrote to me on ira list sharing that what we can't read,
>>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>>> At no time does it make us less independent, if anything it makes us more.
>>>> I do hope and know we will do our best to try to et companies to put in
>>>> a chip for talking meeters.
>>>> If they can do it for devices then what is one more device.
>>>> Do let us know how the conversation works out.
>>>> Thanks again,

>>>> Original message:
>>>>> When this topic came up there seemed to be some chatter along with

>>>> So... In my opinion, it's not the best tool to give us independence.
>>>> True independence would be possible if companies gave a shit (excuse

>>>> BTW, this is not a negative comment on AIRA but on society in general.

>>>> Bridgitmy French) and worked to make products and devices accessible.
>>>> And now with AIRA, it's not as likely they will.
>>>>> opinions regarding the use of AIRA with a pump.  I said I would make
>>>>> contact with AIRA and I did.



>>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>>> there has been some mention of insulin pumps.  He told me he would be
>>>>> at Convention in Vegas and he would be interested in speaking to some
>>>>> of the people who have been working for us blind Diabetic pump users
>>>>> to get insulin pumps accessible.



>>>>> If anyone is interested in making contact while at Convention, please
>>>>> send me a note off list and I will send you my conversation with him.



>>>>> Joyce



>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>>>> sero.net

>>>> --
>>>> --Dar
>>>> skype: dmgina23
>>>> FB: dmgina
>>>> www.twitter.com/dmgina
>>>> every saint has a past
>>>> every sinner has a future

>>>> _______________________________________________
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>>>> Diabetes-Talk:
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>>>> ail.com


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>>>> ---
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>>>> https://www.avg.com
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>>> _______________________________________________
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>> _______________________________________________
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> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
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> Diabetes-Talk:
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-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future

From veronica at laurelcreekmusic.com  Thu Jun 27 22:01:00 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Thu, 27 Jun 2019 15:01:00 -0700
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <9a2f1645.d617.4c0a.aa7b.eaa90e8b784a@samobile.net>
References: <9a2f1645.d617.4c0a.aa7b.eaa90e8b784a@samobile.net>
Message-ID: <000f01d52d33$ce8b10e0$6ba132a0$@laurelcreekmusic.com>

There have been discussions in both groups, sort of. But the questions are complex. Defining accessible equipment, how to mandate it when they're private companies, and the fights over statistics which could show how much of a minority we are. It's a real problem because of the profit motive in medicine today. Last year we were starting to look at tying accessible to programs like Medicare and the VA. If you want a contract, it must be accessible, kind of thing. But they've been afraid of Congress so far. The ACB is demanding it but you have to have the complete process, not just a whine. Everybody has passed resolutions at conventions saying we want this, but that rarely causes real legislative action, in my opinion. But I wish they'd make it more important. The ACB is apparently focusing on making the Dexcom receiver accessible because ya know, blind people can't afford iPhones. So they're going after the one company that actually does have an accessible option and skipping the things that don't. It's tough to totally focus on a single product because by the time we get it sorted out, it will be no longer in use. <grin> We did have this discussion in the task force last year. 
Anyway, not much in the way of concrete answers, but just my thoughts at the moment.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d m gina via Diabetes-Talk
Sent: Thursday, June 27, 2019 12:23 PM
To: diabetes-talk at nfbnet.org
Cc: d m gina
Subject: Re: [Diabetes-Talk] AIRA & pump questions

How do we get it done?
This is where I know both organizations would work together.
There are as many diabetics in the acb as well as nfb.
I just felt if we had proof that something was written companies won't 
help becaue of ira then national presidents would start to step on ears.
We could share how a voice chip could be added to the pumps and this 
would help out allot.
Coming off the shelf.
Just my thoughts.
As we say the game is over

Original message:
> Dar, very good question. Unfortunately, the reason nobody has taken 
> these companies to court is because there is no law mandating 
> accessible medical equipment. If there's a problem with a web site, a 
> building, there are codes one can readily quote if there's a violation. 
> There just isn't anything for accessible medical equipment. Of course, 
> the question, why not? Good question. Hasn't been done.
> Veronica


> "Guide Dogs, First Hand", Veronica Elsea's classic album is now 
> available on iTunes, along with other music from her and from the Guide 
> Dog Glee Club.
> To learn more, visit:
> http://www.laurelcreekmusic.com
>                 Veronica Elsea, Owner
> Laurel Creek Music Designs
> Santa Cruz, California
> Phone: 831-429-6407


> -----Original Message-----
> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
> Of d m gina via Diabetes-Talk
> Sent: Thursday, June 27, 2019 11:17 AM
> To: diabetes-talk at nfbnet.org
> Cc: d m gina
> Subject: Re: [Diabetes-Talk] AIRA & pump questions

> My question again is this,
> After you get done with the pumps you have, I read that new pumps won't
> have anything for the blind to use,
> if this is correct, then why isn't national nfb or acb working together
> to take companies to court.
> I also want to have something in email from a company that is saying,
> Since you have ira you don't need us to put anything on a pump for the blind.
> I will keep reading.

> Original message:
>> Dar, it's not separate but equal. As someone once said to me, we need
>> to use every tool in the toolbox, and I would agree that if I am not
>> dressed and using a pump I don't want to be on camera. But nothing is
>> exclusive. For some, for now that may be the only choice.

>> Jeanette

>> -----Original Message-----
>> From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf
>> Of Dar via Diabetes-Talk
>> Sent: Wednesday, June 26, 2019 2:45 PM
>> To: Diabetes Talk for the Blind
>> Cc: Dar
>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>> From what you are saying is no new person can get a pump if they are
>> blind   If I am correct, this is what we should fight for, not worry
>> what ira does or doesn?t do.

>> Always remember with nfb you start with $21 for 30 minutes and can add
>> 50 minutes more if you wish.
>> I am pleased it is here and I make the choice to use it

>> I would love to know the companies who know about ira and wish not wish
>> to help diabetics

>> I would like to know why Mark from nfb is not taking them to court

>> Dar
>> Every saint has a past,
>> Every sinner has a future


>>> On Jun 26, 2019, at 11:50 AM, Eileen Scrivani via Diabetes-Talk
>>> <diabetes-talk at nfbnet.org> wrote:

>>> Bern,

>>> You make a good point in that AIRA is something that not all of us can
>>> afford. Even if I could see myself clear of spending that kind of money
>>> every month for the service, I would not use it for controlling my
>>> insulin pump functions. Yes, I too am in a half state of undress when
>>> working on my pump and aside from modesty issues, nor would I trust a
>>> stranger unfamiliar with the workings of insulin pumps on the phone to
>>> assist me in altering any settings of any type on my pump.

>>> Where you and I disagree is that the day has come that pump
>>> manufacturers ?must? make adaptations of some type on the pumps they
>>> currently have on the market. We will all be in an extreme, bad place
>>> when next our warrantees are up. Something needs to be done pronto!

>>> Eileen

>>> From: Bernadette Jacobs via Diabetes-Talk
>>> Sent: Wednesday, June 26, 2019 12:50 PM
>>> To: Diabetes Talk for the Blind
>>> Cc: Bernadette Jacobs
>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>> For those of you who use AIRA, I?m leaving all this up to your discretion.

>>> As Sandy and Bridget both indicate, AIRA is just another tool.  I agree
>>> tht as long as we have things like AIRA, and ?Be My Eyes,? The pump
>>> makers out there won?t be forced to do what they really ought to do in
>>> the first place.  It?s not like others haven?t made their products
>>> accessible.  Things like AIRA and Be My Eyes can simply be used as
>>> scapegoats.  Then, as Veronica has also indicated, when using and
>>> setting up the pump, most of us are at least partially undressed.  I,
>>> for one, am not into posing nude for any camera.

>>> Quite frankly, AIRA is cost-prohibitive for our family.  Not gonna
>>> happen here.  I?ll let them speak to my seminar.  But, they own?t get
>>> me to purchase it.  No can do.

>>> Sent from my iPhone

>>>> On Jun 24, 2019, at 11:01 PM, Bridgit Kuenning-Pollpeter via
>>>> Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:

>>>> Yep.

>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
>>>> sandi via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 9:30 PM
>>>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>>>> Cc: sandi <sjryan2 at gmail.com>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> Well said, my friend! Aira is a tool, but it?s neither the best nor the
>>>> most effective tool we could have. Most of the things it?s good at are
>>>> things that could be accomplished in other ways, many of those ways
>>>> better than this rather expensive, not-always-effective service.

>>>> Sandi


>>>> Sent from Mail for Windows 10

>>>> From: Bridgit Kuenning-Pollpeter via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:32 PM
>>>> To: 'Diabetes Talk for the Blind'
>>>> Cc: Bridgit Kuenning-Pollpeter
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> AIRA isn't the best way to make us independent. It's 24/7 help, but
>>>> it's still sighted help for things that mostly could be made accessible
>>>> in a way that blind people could do it without any sighted help. Forms
>>>> can be formatted for online use; websites can be made accessible;
>>>> devices can be accessible, etc. Sure, until companies get a fire lit
>>>> under them, AIRA is here, but what's the incentive for companies to
>>>> work on accessibility when services like AIRA exist? It's a catch 22.
>>>> We need accessibility now, but now that we have AIRA, companies no
>>>> longer think they need to think about accessibility.

>>>> -----Original Message-----
>>>> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of d m
>>>> gina via Diabetes-Talk
>>>> Sent: Monday, June 24, 2019 8:05 PM
>>>> To: diabetes-talk at nfbnet.org
>>>> Cc: d m gina <dmgina at mysero.net>
>>>> Subject: Re: [Diabetes-Talk] AIRA & pump questions

>>>> Joyce,
>>>> I won't be at convention,
>>>> Mike Henson wrote to me on ira list sharing that what we can't read,
>>>> ira is there for us, and does help us stay mobile in anything we want to do.
>>>> At no time does it make us less independent, if anything it makes us more.
>>>> I do hope and know we will do our best to try to et companies to put in
>>>> a chip for talking meeters.
>>>> If they can do it for devices then what is one more device.
>>>> Do let us know how the conversation works out.
>>>> Thanks again,

>>>> Original message:
>>>>> When this topic came up there seemed to be some chatter along with

>>>> So... In my opinion, it's not the best tool to give us independence.
>>>> True independence would be possible if companies gave a shit (excuse

>>>> BTW, this is not a negative comment on AIRA but on society in general.

>>>> Bridgitmy French) and worked to make products and devices accessible.
>>>> And now with AIRA, it's not as likely they will.
>>>>> opinions regarding the use of AIRA with a pump.  I said I would make
>>>>> contact with AIRA and I did.



>>>>> I contacted Glenn Takemoto, , Account Executive andhe told me that
>>>>> there has been some mention of insulin pumps.  He told me he would be
>>>>> at Convention in Vegas and he would be interested in speaking to some
>>>>> of the people who have been working for us blind Diabetic pump users
>>>>> to get insulin pumps accessible.



>>>>> If anyone is interested in making contact while at Convention, please
>>>>> send me a note off list and I will send you my conversation with him.



>>>>> Joyce



>>>>> _______________________________________________
>>>>> Diabetes-Talk mailing list
>>>>> Diabetes-Talk at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>>> To unsubscribe, change your list options or get your account info for
>>>>> Diabetes-Talk:
>>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40my
>>>>> sero.net

>>>> --
>>>> --Dar
>>>> skype: dmgina23
>>>> FB: dmgina
>>>> www.twitter.com/dmgina
>>>> every saint has a past
>>>> every sinner has a future

>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotm
>>>> ail.com


>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



>>>> ---
>>>> This email has been checked for viruses by AVG.
>>>> https://www.avg.com
>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bpollpeter%40hotmail.com


>>>> _______________________________________________
>>>> Diabetes-Talk mailing list
>>>> Diabetes-Talk at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-Talk:
>>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bernienfb75%40gmail.com

>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
>>> _______________________________________________
>>> Diabetes-Talk mailing list
>>> Diabetes-Talk at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-Talk:
>>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kutash-jm%40comcast.net


>> _______________________________________________
>> Diabetes-Talk mailing list
>> Diabetes-Talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-Talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

> --
> --Dar
> skype: dmgina23
>   FB: dmgina
> www.twitter.com/dmgina
> every saint has a past
> every sinner has a future
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for 
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40mysero.net

-- 
--Dar
skype: dmgina23
  FB: dmgina
www.twitter.com/dmgina
every saint has a past
every sinner has a future
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From magills at bigpond.com  Fri Jun 28 09:54:35 2019
From: magills at bigpond.com (Paul Magill)
Date: Fri, 28 Jun 2019 19:54:35 +1000
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <000301d52d19$c140cf20$43c26d60$@laurelcreekmusic.com>
References: <c8b8eccd.1036.4d73.8108.20d15eae2e7a@samobile.net>
	<000301d52d19$c140cf20$43c26d60$@laurelcreekmusic.com>
Message-ID: <002501d52d97$7e485980$7ad90c80$@bigpond.com>

Hi all,

I'm an outsider here, who has benefitted from so many things being accessible due  to U S  laws on that matter.

Are there any laws or regulations there, about making cell phone apps accessible, as that may be an angle as the pump makers move toward controlling the pump from a cell phone?

Paul from Australia.

-----Original Message-----

Dar, very good question. Unfortunately, the reason nobody has taken these companies to court is because there is no law mandating accessible medical equipment. If there's a problem with a web site, a building, there are codes one can readily quote if there's a violation. There just isn't anything for accessible medical equipment. Of course, the question, why not? Good question. Hasn't been done.
Veronica




From diana56cook at gmail.com  Fri Jun 28 15:30:12 2019
From: diana56cook at gmail.com (Diana Cook)
Date: Fri, 28 Jun 2019 11:30:12 -0400
Subject: [Diabetes-Talk] AIRA & pump questions
In-Reply-To: <064601d52af4$76ffcc80$64ff6580$@gmail.com>
References: <017b01d52adc$a79af620$f6d0e260$@aol.com>
	<000401d52adf$f54ac7d0$dfe05770$@neo.rr.com>
	<064601d52af4$76ffcc80$64ff6580$@gmail.com>
Message-ID: <75B3A0F3-87D6-4C16-A399-449F9049F038@gmail.com>

Joyce, I am interested in the conversation you are planning with Glenn. Thank you, Diana Cook

Sent from my iPad

> On Jun 24, 2019, at 21:22, Bridgit Kuenning-Pollpeter via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Rick,
> 
> Several of us are pump users on the group. Smile.
> 
> Bridgit
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of Rick via
> Diabetes-Talk
> Sent: Monday, June 24, 2019 5:56 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: hmladek at neo.rr.com
> Subject: Re: [Diabetes-Talk] AIRA & pump questions
> 
> Hello Joyce,
> 
> I could not find how to get ahold of you off list?
> 
> I'm new here and would like to discuss the combination of pumps and
> blindness.
> 
> Thank you,
> 
> Rick
> hmladek at neo.rr.com
> 
> 
> 
> -----Original Message-----
> From: Diabetes-Talk <diabetes-talk-bounces at nfbnet.org> On Behalf Of
> blindhands--- via Diabetes-Talk
> Sent: Monday, June 24, 2019 6:32 PM
> To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
> Cc: blindhands at aol.com
> Subject: [Diabetes-Talk] AIRA & pump questions
> 
> When this topic came up there seemed to be some chatter along with opinions
> regarding the use of AIRA with a pump.  I said I would make contact with
> AIRA and I did.
> 
> 
> 
> I contacted Glenn Takemoto, , Account Executive andhe told me that there has
> been some mention of insulin pumps.  He told me he would be at Convention in
> Vegas and he would be interested in speaking to some of the people who have
> been working for us blind Diabetic pump users to get insulin pumps
> accessible.
> 
> 
> 
> If anyone is interested in making contact while at Convention, please send
> me a note off list and I will send you my conversation with him.
> 
> 
> 
> Joyce
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/hmladek%40neo.rr.
> com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
> Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/bkpollpeter%40gma
> il.com
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/diana56cook%40gmail.com



From rshelton1 at gmail.com  Sun Jun 30 16:31:42 2019
From: rshelton1 at gmail.com (Robert Shelton)
Date: Sun, 30 Jun 2019 11:31:42 -0500
Subject: [Diabetes-Talk] Dexcom Question
Message-ID: <000001d52f61$4d09d1c0$e71d7540$@gmail.com>

I've finally got my wife to look into the Dexcom CGM system. She cannot
always sense her lows especially if she's asleep. The one issue that she's
worried about is the adhesive. She has severe latex allergies, and her skin
is really sensitive otherwise. So, have any of you who use the Dexcom had
skin issues with the adhesive?

Thanks.





From jamielgurganus at gmail.com  Sun Jun 30 17:54:38 2019
From: jamielgurganus at gmail.com (Jamie Gurganus)
Date: Sun, 30 Jun 2019 12:54:38 -0500
Subject: [Diabetes-Talk] Dexcom Question
In-Reply-To: <000001d52f61$4d09d1c0$e71d7540$@gmail.com>
References: <000001d52f61$4d09d1c0$e71d7540$@gmail.com>
Message-ID: <C2EED49F-C0F8-490B-B460-A462A9C2AECF@gmail.com>

Hi Robert! I have been using the Dexcom for about six years now just for the same reason as your wife. I actually woke up in the middle of the night feeling funny and passed out in my bathroom for quite a wild. I ended up with a concussion along with injuries to my shoulder from the fall. She should definitely look into getting one, since not feeling your low blood sugar?s only gets worse. My Dexcom will go off and tell me I am less than 55, and I don?t feel a thing.


I would call and talk to Dexcom about the skin sensitivity issue. I don?t have a sensitivity like your wife, but the tape would get extremely itchy after just a few days for me. A former member of this group, Tom (May he Rest In Peace) told me to spray the area where the patch will go with some kind of allergy nasal spray like nasal necks or Flonase.  Amazingly, that really helped me. I have to say though that ever since I started using the G6 sensors, I haven?t had any itchiness and don?t even use the spray any longer. I wonder if they perfected the adhesive since the G5.

Hope this helps. Please keep us informed.

    Jamie 

Sent from my iPhone

> On Jun 30, 2019, at 11:31 AM, Robert Shelton via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> I've finally got my wife to look into the Dexcom CGM system. She cannot
> always sense her lows especially if she's asleep. The one issue that she's
> worried about is the adhesive. She has severe latex allergies, and her skin
> is really sensitive otherwise. So, have any of you who use the Dexcom had
> skin issues with the adhesive?
> 
> Thanks.
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/jamielgurganus%40gmail.com



From veronica at laurelcreekmusic.com  Sun Jun 30 23:09:15 2019
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Sun, 30 Jun 2019 16:09:15 -0700
Subject: [Diabetes-Talk] Dexcom Question
In-Reply-To: <000001d52f61$4d09d1c0$e71d7540$@gmail.com>
References: <000001d52f61$4d09d1c0$e71d7540$@gmail.com>
Message-ID: <005001d52f98$d692b150$83b813f0$@laurelcreekmusic.com>

I have been very fortunate and have not had any sensitivity issues with the
Dexcom tape. I do think the Dexcom G6 tape is better than the G5 stuff. If
you call and chat with the support people, they will tell you what kinds of
things you can put on your skin first that will help itching without making
the tape not stick well. 
I agree with Jamie in that she should really give it a try because lows are
nothing to mess with. Good luck and keep us posted.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Robert Shelton via Diabetes-Talk
Sent: Sunday, June 30, 2019 9:32 AM
To: 'Diabetes Talk for the Blind'
Cc: Robert Shelton
Subject: [Diabetes-Talk] Dexcom Question

I've finally got my wife to look into the Dexcom CGM system. She cannot
always sense her lows especially if she's asleep. The one issue that she's
worried about is the adhesive. She has severe latex allergies, and her skin
is really sensitive otherwise. So, have any of you who use the Dexcom had
skin issues with the adhesive?

Thanks.



_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




