From walterl.mitch2 at gmail.com  Wed Jan  3 20:29:21 2018
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Wed, 3 Jan 2018 15:29:21 -0500
Subject: [Diabetes-Talk] Happy New Year!
Message-ID: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>

Hello Listers,

 

I hope that everyone had a wonderful Holiday season. The family and friends
was good, the food was good and the Lord continues to bless.

 

I have not received a message from this particular list in about 3 weeks or
more. Did I miss anything?

 

Could someone please reply to this message, so that I can determine if I
have a problem?

 

Thank you,

Walter Mitchell

 



From joystigile at gmail.com  Wed Jan  3 20:33:31 2018
From: joystigile at gmail.com (Joy Stigile)
Date: Wed, 3 Jan 2018 12:33:31 -0800
Subject: [Diabetes-Talk] Happy New Year!
In-Reply-To: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
References: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
Message-ID: <01bc01d384d2$1f4328d0$5dc97a70$@gmail.com>

Hi Walter,
No messages have been sent through this list for several weeks.

Joy


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Walter Mitchell via Diabetes-Talk
Sent: Wednesday, January 03, 2018 12:29 PM
To: Diabetes-Talk at nfbnet.org
Cc: Walter Mitchell <walterl.mitch2 at gmail.com>
Subject: [Diabetes-Talk] Happy New Year!

Hello Listers,

 

I hope that everyone had a wonderful Holiday season. The family and friends
was good, the food was good and the Lord continues to bless.

 

I have not received a message from this particular list in about 3 weeks or
more. Did I miss anything?

 

Could someone please reply to this message, so that I can determine if I
have a problem?

 

Thank you,

Walter Mitchell

 

_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmai
l.com




From gwocher at gwocher.com  Wed Jan  3 20:33:38 2018
From: gwocher at gwocher.com (Greg Wocher)
Date: Wed, 3 Jan 2018 15:33:38 -0500
Subject: [Diabetes-Talk] Happy New Year!
In-Reply-To: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
References: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
Message-ID: <B8369C41-E51A-4DBA-908A-2F0CCEC6113F@gwocher.com>

Hello,
Nope you have not missed anything. The list has just been really quiet over the last few weeks.

Regards,
Greg Wocher

> On Jan 3, 2018, at 3:29 PM, Walter Mitchell via Diabetes-Talk <diabetes-talk at nfbnet.org> wrote:
> 
> Hello Listers,
> 
> 
> 
> I hope that everyone had a wonderful Holiday season. The family and friends
> was good, the food was good and the Lord continues to bless.
> 
> 
> 
> I have not received a message from this particular list in about 3 weeks or
> more. Did I miss anything?
> 
> 
> 
> Could someone please reply to this message, so that I can determine if I
> have a problem?
> 
> 
> 
> Thank you,
> 
> Walter Mitchell
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gwocher%40gwocher.com




From gmelconian619 at gmail.com  Wed Jan  3 21:00:56 2018
From: gmelconian619 at gmail.com (gary-melconian)
Date: Wed, 3 Jan 2018 13:00:56 -0800
Subject: [Diabetes-Talk] Happy New Year!
In-Reply-To: <B8369C41-E51A-4DBA-908A-2F0CCEC6113F@gwocher.com>
References: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
	<B8369C41-E51A-4DBA-908A-2F0CCEC6113F@gwocher.com>
Message-ID: <00c701d384d5$f3e6dc50$dbb494f0$@gmail.com>

That's what I thought.  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Greg Wocher via Diabetes-Talk
Sent: Wednesday, January 3, 2018 12:34 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Greg Wocher <gwocher at gwocher.com>
Subject: Re: [Diabetes-Talk] Happy New Year!

Hello,
Nope you have not missed anything. The list has just been really quiet over
the last few weeks.

Regards,
Greg Wocher

> On Jan 3, 2018, at 3:29 PM, Walter Mitchell via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
> 
> Hello Listers,
> 
> 
> 
> I hope that everyone had a wonderful Holiday season. The family and 
> friends was good, the food was good and the Lord continues to bless.
> 
> 
> 
> I have not received a message from this particular list in about 3 
> weeks or more. Did I miss anything?
> 
> 
> 
> Could someone please reply to this message, so that I can determine if 
> I have a problem?
> 
> 
> 
> Thank you,
> 
> Walter Mitchell
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gwocher%40g
> wocher.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
mail.com




From rshelton1 at gmail.com  Wed Jan  3 22:18:43 2018
From: rshelton1 at gmail.com (rshelton1 at gmail.com)
Date: Wed, 3 Jan 2018 16:18:43 -0600
Subject: [Diabetes-Talk] Fwd: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
References: <BN6PR1701MB18287C0D8D44E2E96A79A519CA1E0@BN6PR1701MB1828.namprd17.prod.outlook.com>
Message-ID: <B8EFD1FD-5B8D-4114-BA63-399D953DEA99@gmail.com>

Happy new year! I thought this might be of interest.

Sent from my iPhone

Begin forwarded message:

> From: "Hedtler-Gaudette, Dylan via NFBNet-Members-List" <nfbnet-members-list at nfbnet.org>
> Date: January 3, 2018 at 12:29:59 PM CST
> To: "nfbnet-members-list at nfbnet.org" <nfbnet-members-list at nfbnet.org>
> Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind
> Reply-To: "Hedtler-Gaudette, Dylan" <DHedtler-Gaudette at nfb.org>
> 
> Greetings fellow Federationists!
>  
> I hope and trust that you all had a wonderful holiday season.
>  
> President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country.
>  
> As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono.
>  
> We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical  technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space.
>  
> If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.
>  
> Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!
>  
> Sincerely,
>  
> Eric Duffy, Director of Access Technology
> Dylan Hedtler-Gaudette, Government Affairs Specialist
>  
>  
> _______________________________________________
> NFBNet-Members-List mailing list
> NFBNet-Members-List at nfbnet.org
> List archives:  <http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
> To unsubscribe from NFBNet-Members-List:
> goto http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/rshelton1%40gmail.com


From etscrivani at verizon.net  Wed Jan  3 22:24:30 2018
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 3 Jan 2018 17:24:30 -0500
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
Message-ID: <74B814616F08422EBB343D0F181BD73B@eileen>

Hello All,

I got the below very interesting message this afternoon. I already wrote to Eric Duffy and hope the rest of you who want to see accessibility and more access to medical devices that will make manageing our diabetes better and easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List 
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org 
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono. 

 

We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



--------------------------------------------------------------------------------
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:  <http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%40verizon.net

From veronica at laurelcreekmusic.com  Wed Jan  3 22:30:48 2018
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 3 Jan 2018 14:30:48 -0800
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
In-Reply-To: <74B814616F08422EBB343D0F181BD73B@eileen>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
Message-ID: <000301d384e2$81079730$8316c590$@laurelcreekmusic.com>

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about
working with the DAN affiliate rather than just collecting a bunch of
individual message. I'm just a bit leary of someone starting a project who
knows nothing about the real issues with various medical devices. I get that
some sort of task force was being created or something but it did concern me
a bit. 
I have just written so many messages to so many people in NFB with no
obvious result that I'm looking for more detail before doing it again. Like
I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to
Eric Duffy and hope the rest of you who want to see accessibility and more
access to medical devices that will make manageing our diabetes better and
easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List 
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org 
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for
the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important
initiatives in 2018. I am writing today to share with you that the National
Federation of the Blind is jump starting its work aimed at addressing the
critical issue of accessibility and medical technology and devices. Although
this will be coordinated from the NFB Jernigan Institute, it will require
the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it
comes to vital medical equipment can be inconvenient at best but dangerous
and risky in many cases. We are therefore creating the Accessible Medical
Technology Working Group (AMT-WG), which will be tasked with investigating
concerns, devising strategies and making recommendations to President
Riccobono. 

 

We will need your help as we get started. In order to focus our work and
direct our energies appropriately, we are requesting feedback from you that
will let us know what issues are being encountered as a result of
inaccessible medical technologies and devices. You do not need to share any
personal or private information; we are only looking for the names of
devices and technologies that pose accessibility challenges, that way we can
channel our attention to where it is needed most. Please be sure to be
specific about what aspects of the device make them less accessible. We
would also appreciate you letting us know about any medical technology or
devices that are accessible so we can refer to those as positive examples of
how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical
technologies and devices need to be a part of this initiative, please send
your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at
dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your
contributions will be invaluable and we look forward to making progress
together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com




From cindyray at gmail.com  Wed Jan  3 22:41:14 2018
From: cindyray at gmail.com (Cindy Ray)
Date: Wed, 3 Jan 2018 16:41:14 -0600
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
In-Reply-To: <000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
Message-ID: <024601d384e3$f6b4c100$e41e4300$@gmail.com>

Well, the last resolution passed wasn't just about diabetes. There are many
other medical devices that are inaccessible as well. That was part of the
Bill of Rights resolution, I think. There was a task force, Veronica, and it
kind of fell by the wayside. President Riccobono has made these appointments
in order to get it moving again. Maybe the man should have mentioned DAN,
but the real point is that it got sent out and they seem to be hoping to do
something with it.
Cindy Lou Ray


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 4:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about
working with the DAN affiliate rather than just collecting a bunch of
individual message. I'm just a bit leary of someone starting a project who
knows nothing about the real issues with various medical devices. I get that
some sort of task force was being created or something but it did concern me
a bit. 
I have just written so many messages to so many people in NFB with no
obvious result that I'm looking for more detail before doing it again. Like
I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to
Eric Duffy and hope the rest of you who want to see accessibility and more
access to medical devices that will make manageing our diabetes better and
easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for
the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important
initiatives in 2018. I am writing today to share with you that the National
Federation of the Blind is jump starting its work aimed at addressing the
critical issue of accessibility and medical technology and devices. Although
this will be coordinated from the NFB Jernigan Institute, it will require
the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it
comes to vital medical equipment can be inconvenient at best but dangerous
and risky in many cases. We are therefore creating the Accessible Medical
Technology Working Group (AMT-WG), which will be tasked with investigating
concerns, devising strategies and making recommendations to President
Riccobono. 

 

We will need your help as we get started. In order to focus our work and
direct our energies appropriately, we are requesting feedback from you that
will let us know what issues are being encountered as a result of
inaccessible medical technologies and devices. You do not need to share any
personal or private information; we are only looking for the names of
devices and technologies that pose accessibility challenges, that way we can
channel our attention to where it is needed most. Please be sure to be
specific about what aspects of the device make them less accessible. We
would also appreciate you letting us know about any medical technology or
devices that are accessible so we can refer to those as positive examples of
how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical
technologies and devices need to be a part of this initiative, please send
your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at
dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your
contributions will be invaluable and we look forward to making progress
together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cindyray%40gmail.
com




From etscrivani at verizon.net  Thu Jan  4 00:09:07 2018
From: etscrivani at verizon.net (Eileen Scrivani)
Date: Wed, 3 Jan 2018 19:09:07 -0500
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
In-Reply-To: <000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
Message-ID: <0903A99E7DF740239252615CEE98F8B9@eileen>

Hi Veronica,

Your point is taken. On the other hand, at least it is something and perhaps, finally, the organization of the NFB will help to do something that will move things in the right direction for us diabetics who are on the outside looking in when it comes to all of the newest, latest and greatest devices and technology to help manage diabetes -- at least for those diabetics who are sighted. Let?s not infight, but come together as a group to try and get something done for our benefit. Yes, I?m at the point of just wanting something, anything moving on this stuff. I?m tired of not having choices for managing my health and have coverage when I need a special adaptation to make something work.


Eileen

From: Veronica Elsea via Diabetes-Talk 
Sent: Wednesday, January 3, 2018 5:30 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea 
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about
working with the DAN affiliate rather than just collecting a bunch of
individual message. I'm just a bit leary of someone starting a project who
knows nothing about the real issues with various medical devices. I get that
some sort of task force was being created or something but it did concern me
a bit. 
I have just written so many messages to so many people in NFB with no
obvious result that I'm looking for more detail before doing it again. Like
I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to
Eric Duffy and hope the rest of you who want to see accessibility and more
access to medical devices that will make manageing our diabetes better and
easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List 
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org 
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for
the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important
initiatives in 2018. I am writing today to share with you that the National
Federation of the Blind is jump starting its work aimed at addressing the
critical issue of accessibility and medical technology and devices. Although
this will be coordinated from the NFB Jernigan Institute, it will require
the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it
comes to vital medical equipment can be inconvenient at best but dangerous
and risky in many cases. We are therefore creating the Accessible Medical
Technology Working Group (AMT-WG), which will be tasked with investigating
concerns, devising strategies and making recommendations to President
Riccobono. 

 

We will need your help as we get started. In order to focus our work and
direct our energies appropriately, we are requesting feedback from you that
will let us know what issues are being encountered as a result of
inaccessible medical technologies and devices. You do not need to share any
personal or private information; we are only looking for the names of
devices and technologies that pose accessibility challenges, that way we can
channel our attention to where it is needed most. Please be sure to be
specific about what aspects of the device make them less accessible. We
would also appreciate you letting us know about any medical technology or
devices that are accessible so we can refer to those as positive examples of
how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical
technologies and devices need to be a part of this initiative, please send
your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at
dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your
contributions will be invaluable and we look forward to making progress
together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net

From joystigile at gmail.com  Thu Jan  4 00:17:13 2018
From: joystigile at gmail.com (Joy Stigile)
Date: Wed, 3 Jan 2018 16:17:13 -0800
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
In-Reply-To: <000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
Message-ID: <01d101d384f1$5f38d060$1daa7120$@gmail.com>

Hi Veronica,
The Diabetes Action Network Board actually has been working on this matter
for a few months.  The reason it is not just Diabetes related items is
because this needs to encompass many more devices and more Americans!
Because then, Congress may pay more attention! 
Warmly, Joy

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:31 PM
To: 'Diabetes Talk for the Blind' <diabetes-talk at nfbnet.org>
Cc: Veronica Elsea <veronica at laurelcreekmusic.com>
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about
working with the DAN affiliate rather than just collecting a bunch of
individual message. I'm just a bit leary of someone starting a project who
knows nothing about the real issues with various medical devices. I get that
some sort of task force was being created or something but it did concern me
a bit. 
I have just written so many messages to so many people in NFB with no
obvious result that I'm looking for more detail before doing it again. Like
I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on
iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
????????????????Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to
Eric Duffy and hope the rest of you who want to see accessibility and more
access to medical devices that will make manageing our diabetes better and
easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for
the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important
initiatives in 2018. I am writing today to share with you that the National
Federation of the Blind is jump starting its work aimed at addressing the
critical issue of accessibility and medical technology and devices. Although
this will be coordinated from the NFB Jernigan Institute, it will require
the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it
comes to vital medical equipment can be inconvenient at best but dangerous
and risky in many cases. We are therefore creating the Accessible Medical
Technology Working Group (AMT-WG), which will be tasked with investigating
concerns, devising strategies and making recommendations to President
Riccobono. 

 

We will need your help as we get started. In order to focus our work and
direct our energies appropriately, we are requesting feedback from you that
will let us know what issues are being encountered as a result of
inaccessible medical technologies and devices. You do not need to share any
personal or private information; we are only looking for the names of
devices and technologies that pose accessibility challenges, that way we can
channel our attention to where it is needed most. Please be sure to be
specific about what aspects of the device make them less accessible. We
would also appreciate you letting us know about any medical technology or
devices that are accessible so we can refer to those as positive examples of
how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical
technologies and devices need to be a part of this initiative, please send
your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at
dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your
contributions will be invaluable and we look forward to making progress
together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/joystigile%40gmai
l.com




From veronica at laurelcreekmusic.com  Thu Jan  4 00:49:52 2018
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 3 Jan 2018 16:49:52 -0800
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible
 Medical Technology for the Blind
In-Reply-To: <0903A99E7DF740239252615CEE98F8B9@eileen>
References: <74B814616F08422EBB343D0F181BD73B@eileen>	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
	<0903A99E7DF740239252615CEE98F8B9@eileen>
Message-ID: <000d01d384f5$ee784630$cb68d290$@laurelcreekmusic.com>

Oh I completely agree with you Eileen and Cindy. I think I've just watched so many resolutions that did nothing, groups that didn't want suggestions and am ready for serious work with results. Maybe I'm looking for something that says more like, here's our direction, want to help or participate? I realize it's probably not what's intended but it kind of felt like a note from a name I didn't know that says, tell me a story and I'll take care of it for you, which isn't likely to happen. <grin> I'd just like enough specifics so that I don't feel like I'm wasting my time writing up yet another list of my history, that's all. <grin>
I'm really happy for an effort. I don't care who gets the credit. I want the result. Pretty much the story. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 4:09 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hi Veronica,

Your point is taken. On the other hand, at least it is something and perhaps, finally, the organization of the NFB will help to do something that will move things in the right direction for us diabetics who are on the outside looking in when it comes to all of the newest, latest and greatest devices and technology to help manage diabetes -- at least for those diabetics who are sighted. Let?s not infight, but come together as a group to try and get something done for our benefit. Yes, I?m at the point of just wanting something, anything moving on this stuff. I?m tired of not having choices for managing my health and have coverage when I need a special adaptation to make something work.


Eileen

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 5:30 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about working with the DAN affiliate rather than just collecting a bunch of individual message. I'm just a bit leary of someone starting a project who knows nothing about the real issues with various medical devices. I get that some sort of task force was being created or something but it did concern me a bit. 
I have just written so many messages to so many people in NFB with no obvious result that I'm looking for more detail before doing it again. Like I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to Eric Duffy and hope the rest of you who want to see accessibility and more access to medical devices that will make manageing our diabetes better and easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono. 

 

We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From sjryan2 at gmail.com  Thu Jan  4 01:13:31 2018
From: sjryan2 at gmail.com (sandi)
Date: Wed, 3 Jan 2018 19:13:31 -0600
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting
 AccessibleMedical Technology for the Blind
In-Reply-To: <000d01d384f5$ee784630$cb68d290$@laurelcreekmusic.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
	<0903A99E7DF740239252615CEE98F8B9@eileen>
	<000d01d384f5$ee784630$cb68d290$@laurelcreekmusic.com>
Message-ID: <5a4d7fb8.8eb06b0a.53592.8690@mx.google.com>

Amen, Veronica. Action! It?s needed now!

I have not heard about this new initiative. I?m glad the entire organization seems to ask to get involved in this issue. I certainly hope diabetes tools and technologies are key among the medical devices, since this is the disease with the most technology available, none of which is absolutely accessible. And the most work to make medical devices accessible has been done by people with diabetes. But there truly are few, if any, medical devices that are accessible to disabled, especially blind, people, and it?s high time they all got accessible so we can take care of our health, whatever its issues, just like everyone else. 

I share your worries that these two gentlemen have no experience with medical devices?or at least little. John Pare assigned Dylan Hedtler-Gaudette to work with the DAN Board on accessibility in late August or early September, I think it was. I?m no longer on the board but was included in the initial conversation with him, because of my history with this issue. Bernie was to meet with him sometime recently, and I?ve not heard about that meeting. 

I do not know Eric Duffy, though I?ve seen his name at the National Office for some time. Dylan, I believe, is very new.

I just found out over the holidays that my oldest son is now Type 2. My younger son has been Type 2 since he was in his 20s. Neither is blind, but if they become blind, I certainly don?t want them to die young because they have to give up their treatments because they?re not accessible! For all of us and all those who will come after, we must deal with accessibility now!

Sandi


Sent from Mail for Windows 10

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 6:50 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting AccessibleMedical Technology for the Blind

Oh I completely agree with you Eileen and Cindy. I think I've just watched so many resolutions that did nothing, groups that didn't want suggestions and am ready for serious work with results. Maybe I'm looking for something that says more like, here's our direction, want to help or participate? I realize it's probably not what's intended but it kind of felt like a note from a name I didn't know that says, tell me a story and I'll take care of it for you, which isn't likely to happen. <grin> I'd just like enough specifics so that I don't feel like I'm wasting my time writing up yet another list of my history, that's all. <grin>
I'm really happy for an effort. I don't care who gets the credit. I want the result. Pretty much the story. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 4:09 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hi Veronica,

Your point is taken. On the other hand, at least it is something and perhaps, finally, the organization of the NFB will help to do something that will move things in the right direction for us diabetics who are on the outside looking in when it comes to all of the newest, latest and greatest devices and technology to help manage diabetes -- at least for those diabetics who are sighted. Let?s not infight, but come together as a group to try and get something done for our benefit. Yes, I?m at the point of just wanting something, anything moving on this stuff. I?m tired of not having choices for managing my health and have coverage when I need a special adaptation to make something work.


Eileen

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 5:30 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about working with the DAN affiliate rather than just collecting a bunch of individual message. I'm just a bit leary of someone starting a project who knows nothing about the real issues with various medical devices. I get that some sort of task force was being created or something but it did concern me a bit. 
I have just written so many messages to so many people in NFB with no obvious result that I'm looking for more detail before doing it again. Like I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to Eric Duffy and hope the rest of you who want to see accessibility and more access to medical devices that will make manageing our diabetes better and easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono. 

 

We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



---
This email has been checked for viruses by AVG.
http://www.avg.com


From veronica at laurelcreekmusic.com  Thu Jan  4 03:05:24 2018
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Wed, 3 Jan 2018 19:05:24 -0800
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting
 AccessibleMedical Technology for the Blind
In-Reply-To: <5a4d7fb8.8eb06b0a.53592.8690@mx.google.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>	<0903A99E7DF740239252615CEE98F8B9@eileen>	<000d01d384f5$ee784630$cb68d290$@laurelcreekmusic.com>
	<5a4d7fb8.8eb06b0a.53592.8690@mx.google.com>
Message-ID: <000c01d38508$dde6a830$99b3f890$@laurelcreekmusic.com>

Sandy, just from what I've seen here, it sure sounds like your sons are fortunate to have you for a mom. At least that's one leg up already. <grin> 
Thanks for your thoughts.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of sandi via Diabetes-Talk
Sent: Wednesday, January 03, 2018 5:14 PM
To: Diabetes Talk for the Blind
Cc: sandi
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting AccessibleMedical Technology for the Blind

Amen, Veronica. Action! It?s needed now!

I have not heard about this new initiative. I?m glad the entire organization seems to ask to get involved in this issue. I certainly hope diabetes tools and technologies are key among the medical devices, since this is the disease with the most technology available, none of which is absolutely accessible. And the most work to make medical devices accessible has been done by people with diabetes. But there truly are few, if any, medical devices that are accessible to disabled, especially blind, people, and it?s high time they all got accessible so we can take care of our health, whatever its issues, just like everyone else. 

I share your worries that these two gentlemen have no experience with medical devices?or at least little. John Pare assigned Dylan Hedtler-Gaudette to work with the DAN Board on accessibility in late August or early September, I think it was. I?m no longer on the board but was included in the initial conversation with him, because of my history with this issue. Bernie was to meet with him sometime recently, and I?ve not heard about that meeting. 

I do not know Eric Duffy, though I?ve seen his name at the National Office for some time. Dylan, I believe, is very new.

I just found out over the holidays that my oldest son is now Type 2. My younger son has been Type 2 since he was in his 20s. Neither is blind, but if they become blind, I certainly don?t want them to die young because they have to give up their treatments because they?re not accessible! For all of us and all those who will come after, we must deal with accessibility now!

Sandi


Sent from Mail for Windows 10

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 6:50 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting AccessibleMedical Technology for the Blind

Oh I completely agree with you Eileen and Cindy. I think I've just watched so many resolutions that did nothing, groups that didn't want suggestions and am ready for serious work with results. Maybe I'm looking for something that says more like, here's our direction, want to help or participate? I realize it's probably not what's intended but it kind of felt like a note from a name I didn't know that says, tell me a story and I'll take care of it for you, which isn't likely to happen. <grin> I'd just like enough specifics so that I don't feel like I'm wasting my time writing up yet another list of my history, that's all. <grin> I'm really happy for an effort. I don't care who gets the credit. I want the result. Pretty much the story. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 4:09 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hi Veronica,

Your point is taken. On the other hand, at least it is something and perhaps, finally, the organization of the NFB will help to do something that will move things in the right direction for us diabetics who are on the outside looking in when it comes to all of the newest, latest and greatest devices and technology to help manage diabetes -- at least for those diabetics who are sighted. Let?s not infight, but come together as a group to try and get something done for our benefit. Yes, I?m at the point of just wanting something, anything moving on this stuff. I?m tired of not having choices for managing my health and have coverage when I need a special adaptation to make something work.


Eileen

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 5:30 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about working with the DAN affiliate rather than just collecting a bunch of individual message. I'm just a bit leary of someone starting a project who knows nothing about the real issues with various medical devices. I get that some sort of task force was being created or something but it did concern me a bit. 
I have just written so many messages to so many people in NFB with no obvious result that I'm looking for more detail before doing it again. Like I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to Eric Duffy and hope the rest of you who want to see accessibility and more access to medical devices that will make manageing our diabetes better and easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono. 

 

We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



---
This email has been checked for viruses by AVG.
http://www.avg.com
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From walterl.mitch2 at gmail.com  Thu Jan  4 07:31:10 2018
From: walterl.mitch2 at gmail.com (Walter Mitchell)
Date: Thu, 4 Jan 2018 02:31:10 -0500
Subject: [Diabetes-Talk] Happy New Year!
In-Reply-To: <00c701d384d5$f3e6dc50$dbb494f0$@gmail.com>
References: <014b01d384d1$8f6a3550$ae3e9ff0$@gmail.com>
	<B8369C41-E51A-4DBA-908A-2F0CCEC6113F@gwocher.com>
	<00c701d384d5$f3e6dc50$dbb494f0$@gmail.com>
Message-ID: <01bb01d3852e$033f3460$09bd9d20$@gmail.com>

Thank you for the information. I was beginning to believe that something was
wrong. I have received other messages from the list today. Maybe every one
is back from their Holiday vacations.

Thanks again,
Walter

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
gary-melconian via Diabetes-Talk
Sent: Wednesday, January 03, 2018 4:01 PM
To: 'Diabetes Talk for the Blind'
Cc: gary-melconian
Subject: Re: [Diabetes-Talk] Happy New Year!

That's what I thought.  

-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Greg Wocher via Diabetes-Talk
Sent: Wednesday, January 3, 2018 12:34 PM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Greg Wocher <gwocher at gwocher.com>
Subject: Re: [Diabetes-Talk] Happy New Year!

Hello,
Nope you have not missed anything. The list has just been really quiet over
the last few weeks.

Regards,
Greg Wocher

> On Jan 3, 2018, at 3:29 PM, Walter Mitchell via Diabetes-Talk
<diabetes-talk at nfbnet.org> wrote:
> 
> Hello Listers,
> 
> 
> 
> I hope that everyone had a wonderful Holiday season. The family and 
> friends was good, the food was good and the Lord continues to bless.
> 
> 
> 
> I have not received a message from this particular list in about 3 
> weeks or more. Did I miss anything?
> 
> 
> 
> Could someone please reply to this message, so that I can determine if 
> I have a problem?
> 
> 
> 
> Thank you,
> 
> Walter Mitchell
> 
> 
> 
> _______________________________________________
> Diabetes-Talk mailing list
> Diabetes-Talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gwocher%40g
> wocher.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/gmelconian619%40g
mail.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/walterl.mitch2%40
gmail.com




From sjryan2 at gmail.com  Thu Jan  4 16:08:33 2018
From: sjryan2 at gmail.com (sandi)
Date: Thu, 4 Jan 2018 10:08:33 -0600
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list]
 PromotingAccessibleMedical Technology for the Blind
In-Reply-To: <000c01d38508$dde6a830$99b3f890$@laurelcreekmusic.com>
References: <74B814616F08422EBB343D0F181BD73B@eileen>
	<000301d384e2$81079730$8316c590$@laurelcreekmusic.com>
	<0903A99E7DF740239252615CEE98F8B9@eileen>
	<000d01d384f5$ee784630$cb68d290$@laurelcreekmusic.com>
	<5a4d7fb8.8eb06b0a.53592.8690@mx.google.com>
	<000c01d38508$dde6a830$99b3f890$@laurelcreekmusic.com>
Message-ID: <5a4e5181.89076b0a.ac184.eed9@mx.google.com>

Thanks much! I figure that, being one of the people who passed diabetes on to them, I should take an active role in their disease as well as mine. They?re adults and long on their own, but we share the goal of living long and healthy with Type 2. 

Sandi


Sent from Mail for Windows 10

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 9:06 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] PromotingAccessibleMedical Technology for the Blind

Sandy, just from what I've seen here, it sure sounds like your sons are fortunate to have you for a mom. At least that's one leg up already. <grin> 
Thanks for your thoughts.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of sandi via Diabetes-Talk
Sent: Wednesday, January 03, 2018 5:14 PM
To: Diabetes Talk for the Blind
Cc: sandi
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting AccessibleMedical Technology for the Blind

Amen, Veronica. Action! It?s needed now!

I have not heard about this new initiative. I?m glad the entire organization seems to ask to get involved in this issue. I certainly hope diabetes tools and technologies are key among the medical devices, since this is the disease with the most technology available, none of which is absolutely accessible. And the most work to make medical devices accessible has been done by people with diabetes. But there truly are few, if any, medical devices that are accessible to disabled, especially blind, people, and it?s high time they all got accessible so we can take care of our health, whatever its issues, just like everyone else. 

I share your worries that these two gentlemen have no experience with medical devices?or at least little. John Pare assigned Dylan Hedtler-Gaudette to work with the DAN Board on accessibility in late August or early September, I think it was. I?m no longer on the board but was included in the initial conversation with him, because of my history with this issue. Bernie was to meet with him sometime recently, and I?ve not heard about that meeting. 

I do not know Eric Duffy, though I?ve seen his name at the National Office for some time. Dylan, I believe, is very new.

I just found out over the holidays that my oldest son is now Type 2. My younger son has been Type 2 since he was in his 20s. Neither is blind, but if they become blind, I certainly don?t want them to die young because they have to give up their treatments because they?re not accessible! For all of us and all those who will come after, we must deal with accessibility now!

Sandi


Sent from Mail for Windows 10

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 6:50 PM
To: 'Diabetes Talk for the Blind'
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting AccessibleMedical Technology for the Blind

Oh I completely agree with you Eileen and Cindy. I think I've just watched so many resolutions that did nothing, groups that didn't want suggestions and am ready for serious work with results. Maybe I'm looking for something that says more like, here's our direction, want to help or participate? I realize it's probably not what's intended but it kind of felt like a note from a name I didn't know that says, tell me a story and I'll take care of it for you, which isn't likely to happen. <grin> I'd just like enough specifics so that I don't feel like I'm wasting my time writing up yet another list of my history, that's all. <grin> I'm really happy for an effort. I don't care who gets the credit. I want the result. Pretty much the story. 
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407



-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 4:09 PM
To: Diabetes Talk for the Blind
Cc: Eileen Scrivani
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hi Veronica,

Your point is taken. On the other hand, at least it is something and perhaps, finally, the organization of the NFB will help to do something that will move things in the right direction for us diabetics who are on the outside looking in when it comes to all of the newest, latest and greatest devices and technology to help manage diabetes -- at least for those diabetics who are sighted. Let?s not infight, but come together as a group to try and get something done for our benefit. Yes, I?m at the point of just wanting something, anything moving on this stuff. I?m tired of not having choices for managing my health and have coverage when I need a special adaptation to make something work.


Eileen

From: Veronica Elsea via Diabetes-Talk
Sent: Wednesday, January 3, 2018 5:30 PM
To: 'Diabetes Talk for the Blind' 
Cc: Veronica Elsea
Subject: Re: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

I also received this message and it struck me a little odd.
I hope this is something real but why didn't they say something about working with the DAN affiliate rather than just collecting a bunch of individual message. I'm just a bit leary of someone starting a project who knows nothing about the real issues with various medical devices. I get that some sort of task force was being created or something but it did concern me a bit. 
I have just written so many messages to so many people in NFB with no obvious result that I'm looking for more detail before doing it again. Like I said, I want something real. Thanks.
Veronica


"Guide Dogs, First Hand", Veronica Elsea's classic album is now available on iTunes, along with other music from her and from the Guide Dog Glee Club. 
To learn more, visit:
http://www.laurelcreekmusic.com
                Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407


-----Original Message-----
From: Diabetes-Talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani via Diabetes-Talk
Sent: Wednesday, January 03, 2018 2:24 PM
To: NFB Diabetes Talk
Cc: Eileen Scrivani
Subject: [Diabetes-Talk] Fw: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Hello All,

I got the below very interesting message this afternoon. I already wrote to Eric Duffy and hope the rest of you who want to see accessibility and more access to medical devices that will make manageing our diabetes better and easier will do the same.

Eileen


From: Hedtler-Gaudette,Dylan via NFBNet-Members-List
Sent: Wednesday, January 3, 2018 1:29 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Promoting Accessible Medical Technology for the Blind

Greetings fellow Federationists!

 

I hope and trust that you all had a wonderful holiday season.

 

President Riccobono has asked us to prioritize a number of important initiatives in 2018. I am writing today to share with you that the National Federation of the Blind is jump starting its work aimed at addressing the critical issue of accessibility and medical technology and devices. Although this will be coordinated from the NFB Jernigan Institute, it will require the participation and collaboration of Federationists around the country. 

 

As far too many of you know all too well, the lack of accessibility when it comes to vital medical equipment can be inconvenient at best but dangerous and risky in many cases. We are therefore creating the Accessible Medical Technology Working Group (AMT-WG), which will be tasked with investigating concerns, devising strategies and making recommendations to President Riccobono. 

 

We will need your help as we get started. In order to focus our work and direct our energies appropriately, we are requesting feedback from you that will let us know what issues are being encountered as a result of inaccessible medical technologies and devices. You do not need to share any personal or private information; we are only looking for the names of devices and technologies that pose accessibility challenges, that way we can channel our attention to where it is needed most. Please be sure to be specific about what aspects of the device make them less accessible. We would also appreciate you letting us know about any medical technology or devices that are accessible so we can refer to those as positive examples of how accessibility can be done right in this space. 

 

If you have any feedback to share or ideas as to what types of medical technologies and devices need to be a part of this initiative, please send your responses to Eric Duffy at eduffy at nfb.org and Dylan Hedtler-Gaudette at dhedtler-gaudette at nfb.org.

 

Thank you all for your help as we get this project started. Your contributions will be invaluable and we look forward to making progress together in the area of accessible medical technology in 2018!

 

Sincerely,

 

Eric Duffy, Director of Access Technology

Dylan Hedtler-Gaudette, Government Affairs Specialist 

 

 



----------------------------------------------------------------------------
----
_______________________________________________
NFBNet-Members-List mailing list
NFBNet-Members-List at nfbnet.org
List archives:
<http://www.nfbnet.org/pipermail/nfbnet-members-list_nfbnet.org>
To unsubscribe from NFBNet-Members-List:
goto
http://nfbnet.org/mailman/options/nfbnet-members-list_nfbnet.org/etscrivani%
40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for
Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurel
creekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscrivani%40verizon.net
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



---
This email has been checked for viruses by AVG.
http://www.avg.com
_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com


_______________________________________________
Diabetes-Talk mailing list
Diabetes-Talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-Talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/sjryan2%40gmail.com



