From 1.sally at comcast.net  Sun May  4 02:30:19 2014
From: 1.sally at comcast.net (Sally Maguire)
Date: Sat, 3 May 2014 19:30:19 -0700
Subject: [Diabetes-talk] Tour de Cure
Message-ID: <A668455D83EB40DBAD786FF61BE46607@D2ZW0GD1>

 

 

Dear Friends,

 

Your support for me in the Tour de Cure is more important than ever this year.

I noticed that I was losing my transplant March 3 this year when I checked my blood sugar and it was high. I am still taking all the immune suppressants as the doctors are hoping that I might be able to keep the few cells that remain a bit longer

Even if you cannot contribute a large amount, any amount will let me know that you support me.

It saddens me to be back to testing blood sugars and taking insulin again.  This is a very difficult disease and I'm having difficulty resuming the diabetic regime.

 Today my blood sugar popped into the 300's for no explainable reason.  I had forgotten how lousy that makes one feel!  Hopefully I will feel well enough to ride the 50 miles tomorrow! 

It felt really good to not have the symptoms of Type 1 Diabetes for almost 5 years!  What a reprieve!

 

I am participating in the American Diabetes Association's annual Tour de Cure event again this year. I am asking you to join me in the effort to Stop Diabetes by making a contribution to support my ride. On May 4, I plan to be riding on a tandem bike through Napa Valley, California.  I am riding with the team from Guide Dogs for the Blind. The Diabetic riders are given special recognition by wearing red jerseys and are called "Red Riders."

I have attached the picture from last year's ride in Palo Alto. You will see my yellow Lab , Blossom in the picture.

The dollars we raise for the American Diabetes Association fund research, provide services, and give voice to those denied their rights because of diabetes. I believe in the work they do, and I invite you to join me in this effort. More than 25 million Americans live with diabetes, and your support can and will make a difference in their lives.

You can visit my WEB page to donate

https://donations.diabetes.org/site/Donation2?idb=859804695&df_id=13584&13584.donation=form1&FR_ID=9419&PROXY_ID=7357046&PROXY_TYPE=20

  All major credit cards and Pay Pal are accepted.    If you would prefer to donate by check, make it payable to:  The American Diabetes Association.

Mail it to me at:

Sally A. Maguire

2656 Box Canyon Rd.

Pinole, CA 94564

 

Whatever you can give will help! I greatly appreciate your support and will keep you posted on my progress. Thank you for making a contribution to this cause that is so important to me!



Gratefully, 





Sally 

 

 

 


From 1.sally at comcast.net  Sun May  4 02:36:15 2014
From: 1.sally at comcast.net (Sally Maguire)
Date: Sat, 3 May 2014 19:36:15 -0700
Subject: [Diabetes-talk] A Stripless Talking Meter ...
References: <61BEFF72845F4AF5B5D4BDE1B378B26C@eileen>
Message-ID: <10B920D8C7B44A4E90DD9C1CA26DF50C@D2ZW0GD1>

Eileen,

I would love to have a CGM, a continuous glucose monitor.  They don't have a talking one yet, but isn't that the perfect thing for us?  My doctor told me to talk to my senator.  
I hear it costs about $4,000. per year, so you need a good insurance plan-not Medicare as I have.
This is what the other diabetics on the Tour de Cure use while riding.

Sally



----- Original Message ----- 
From: "eileen scrivani" <etscrivani at verizon.net>
To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
Sent: Thursday, April 17, 2014 4:49 PM
Subject: [Diabetes-talk] A Stripless Talking Meter ...


Hi, 

Does anyone on this list know anything about a talking strippless meter for testing BG?s?  I have recently heard advertizements on TV from Ariva Medical promoting a ?talking? meter that does not use strips.  I know these types of things have in the past not been accurate, but it is tempting and I?m sick of the two meters out there that claim ?accessibility.?  So, even if the stripless meter wasn?t fully accessible, at this point I?m used to that anyway. 

Thanks for any input from those who know for a fact and have used the meter.

Eileen 



--------------------------------------------------------------------------------


> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/1.sally%40comcast.net
>



From n8tnv at att.net  Sun May  4 15:50:20 2014
From: n8tnv at att.net (Colleen Roth)
Date: Sun, 04 May 2014 11:50:20 -0400
Subject: [Diabetes-talk] A Stripless Talking Meter ...
Message-ID: <20140504155020.2280.43135.levelstar.mail@icon>

Hi,
That sounds really neat but how do you get the reading? I mean how is the CGB connected to your body? 
It would be nice if the CGB was covered by Insurance and talked wouldn't it?
Colleen Roth
On Sat, 3 May 2014 19:36:15 -0700, Sally Maguire wrote:


>Eileen,
>
>I would love to have a CGM, a continuous glucose monitor.  They don't have a 
>talking one yet, but isn't that the perfect thing for us?  My doctor told me to 
>talk to my senator.  
>I hear it costs about $4,000. per year, so you need a good insurance plan-not 
>Medicare as I have.
>This is what the other diabetics on the Tour de Cure use while riding.
>
>Sally
>
>
>
>----- Original Message ----- 
>From: "eileen scrivani" <etscrivani at verizon.net>
>To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
>Sent: Thursday, April 17, 2014 4:49 PM
>Subject: [Diabetes-talk] A Stripless Talking Meter ...
>
>
>Hi, 
>
>Does anyone on this list know anything about a talking strippless meter for 
>testing BG???s?  I have recently heard advertizements on TV from Ariva Medical 
>promoting a ???talking??? meter that does not use strips.  I know these types of 
>things have in the past not been accurate, but it is tempting and I???m sick of 
>the two meters out there that claim ???accessibility.???  So, even if the stripless 
>meter wasn???t fully accessible, at this point I???m used to that anyway. 
>
>Thanks for any input from those who know for a fact and have used the meter.
>
>Eileen 
>
>
>
>--------------------------------------------------------------------------------
>
>
>>_______________________________________________
>>Diabetes-talk mailing list
>>Diabetes-talk at nfbnet.org
>>http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>To unsubscribe, change your list options or get your account info for 
>>Diabetes-talk:
>>http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/1.sally%40comcast.net
>>
>
>_______________________________________________
>Diabetes-talk mailing list
>Diabetes-talk at nfbnet.org
>http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>To unsubscribe, change your list options or get your account info for 
>Diabetes-talk:
>http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/n8tnv%40att.net


From nfbiowa at qwestoffice.net  Sun May  4 16:01:09 2014
From: nfbiowa at qwestoffice.net (Michael D. Barber)
Date: Sun, 4 May 2014 11:01:09 -0500
Subject: [Diabetes-talk] A Stripless Talking Meter ...
In-Reply-To: <20140504155020.2280.43135.levelstar.mail@icon>
References: <20140504155020.2280.43135.levelstar.mail@icon>
Message-ID: <034101cf67b2$118f7e50$34ae7af0$@qwestoffice.net>

The Iowa DAN Affiliate, whose president is Sandra Ryan,  has submitted a
resolution to the NFB Resolutions Committee dealing with the inaccessibility
of many devices we as diabetics must use.  We are very hopeful that this
resolution will be accepted and passed and that some really positive action
will arise therefrom on the part of the NFB.

Cordially,
Michael D. Barber
(515) 771-8348

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Colleen Roth
Sent: Sunday, May 04, 2014 10:50 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] A Stripless Talking Meter ...

Hi,
That sounds really neat but how do you get the reading? I mean how is the
CGB connected to your body? 
It would be nice if the CGB was covered by Insurance and talked wouldn't it?
Colleen Roth
On Sat, 3 May 2014 19:36:15 -0700, Sally Maguire wrote:


>Eileen,
>
>I would love to have a CGM, a continuous glucose monitor.  They don't 
>have a talking one yet, but isn't that the perfect thing for us?  My 
>doctor told me to talk to my senator.
>I hear it costs about $4,000. per year, so you need a good insurance 
>plan-not Medicare as I have.
>This is what the other diabetics on the Tour de Cure use while riding.
>
>Sally
>
>
>
>----- Original Message -----
>From: "eileen scrivani" <etscrivani at verizon.net>
>To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
>Sent: Thursday, April 17, 2014 4:49 PM
>Subject: [Diabetes-talk] A Stripless Talking Meter ...
>
>
>Hi,
>
>Does anyone on this list know anything about a talking strippless meter 
>for testing BGb




From k7uij at panix.com  Sun May  4 23:59:51 2014
From: k7uij at panix.com (Mike Freeman)
Date: Sun, 4 May 2014 16:59:51 -0700
Subject: [Diabetes-talk] A Stripless Talking Meter ...
In-Reply-To: <20140504155020.2280.43135.levelstar.mail@icon>
References: <20140504155020.2280.43135.levelstar.mail@icon>
Message-ID: <015301cf67f4$f07786c0$d1669440$@panix.com>

CGMS systems have a censor which is placed under the skin and every five
minutes or so (or whatever interval is selected) the unit reads the censor
and shows a graph of the readings.

Mike


-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
Colleen Roth
Sent: Sunday, May 04, 2014 8:50 AM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] A Stripless Talking Meter ...

Hi,
That sounds really neat but how do you get the reading? I mean how is the
CGB connected to your body? 
It would be nice if the CGB was covered by Insurance and talked wouldn't it?
Colleen Roth
On Sat, 3 May 2014 19:36:15 -0700, Sally Maguire wrote:


>Eileen,
>
>I would love to have a CGM, a continuous glucose monitor.  They don't 
>have a talking one yet, but isn't that the perfect thing for us?  My 
>doctor told me to talk to my senator.
>I hear it costs about $4,000. per year, so you need a good insurance 
>plan-not Medicare as I have.
>This is what the other diabetics on the Tour de Cure use while riding.
>
>Sally
>
>
>
>----- Original Message -----
>From: "eileen scrivani" <etscrivani at verizon.net>
>To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
>Sent: Thursday, April 17, 2014 4:49 PM
>Subject: [Diabetes-talk] A Stripless Talking Meter ...
>
>
>Hi,
>
>Does anyone on this list know anything about a talking strippless meter 
>for testing BGb




From k7uij at panix.com  Mon May  5 00:03:41 2014
From: k7uij at panix.com (Mike Freeman)
Date: Sun, 4 May 2014 17:03:41 -0700
Subject: [Diabetes-talk] A Stripless Talking Meter ...
In-Reply-To: <10B920D8C7B44A4E90DD9C1CA26DF50C@D2ZW0GD1>
References: <61BEFF72845F4AF5B5D4BDE1B378B26C@eileen>
	<10B920D8C7B44A4E90DD9C1CA26DF50C@D2ZW0GD1>
Message-ID: <015401cf67f5$79b383d0$6d1a8b70$@panix.com>

A CGMS is not a substitute for a regular glucose meter but can be useful in some situations.

Mike Freeman

-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Sally Maguire
Sent: Saturday, May 03, 2014 7:36 PM
To: Diabetes Talk for the Blind
Subject: Re: [Diabetes-talk] A Stripless Talking Meter ...

Eileen,

I would love to have a CGM, a continuous glucose monitor.  They don't have a talking one yet, but isn't that the perfect thing for us?  My doctor told me to talk to my senator.  
I hear it costs about $4,000. per year, so you need a good insurance plan-not Medicare as I have.
This is what the other diabetics on the Tour de Cure use while riding.

Sally



----- Original Message ----- 
From: "eileen scrivani" <etscrivani at verizon.net>
To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
Sent: Thursday, April 17, 2014 4:49 PM
Subject: [Diabetes-talk] A Stripless Talking Meter ...


Hi, 

Does anyone on this list know anything about a talking strippless meter for testing BG?s?  I have recently heard advertizements on TV from Ariva Medical promoting a ?talking? meter that does not use strips.  I know these types of things have in the past not been accurate, but it is tempting and I?m sick of the two meters out there that claim ?accessibility.?  So, even if the stripless meter wasn?t fully accessible, at this point I?m used to that anyway. 

Thanks for any input from those who know for a fact and have used the meter.

Eileen 



--------------------------------------------------------------------------------


> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/1.sally%40comcast.net
>

_______________________________________________
Diabetes-talk mailing list
Diabetes-talk at nfbnet.org
http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
To unsubscribe, change your list options or get your account info for Diabetes-talk:
http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com




From veronica at laurelcreekmusic.com  Wed May  7 00:00:15 2014
From: veronica at laurelcreekmusic.com (Veronica Elsea)
Date: Tue, 6 May 2014 17:00:15 -0700
Subject: [Diabetes-talk] A Stripless Talking Meter ...
In-Reply-To: <015401cf67f5$79b383d0$6d1a8b70$@panix.com>
References: <61BEFF72845F4AF5B5D4BDE1B378B26C@eileen>
	<10B920D8C7B44A4E90DD9C1CA26DF50C@D2ZW0GD1>
	<015401cf67f5$79b383d0$6d1a8b70$@panix.com>
Message-ID: <BB2E62BB-F3A6-419B-868C-78C98BD0230A@laurelcreekmusic.com>

Not to mention, every time you insert a new sensor, you have to calibrate with your BG meter. The data from a CGMS runs a little bit behind because it?s getting its info from a different fluid and all over the thing come warnings about how it?s good for spotting patterns and warning of lows, but not accurate enough to replace a meter. Now, strictly personal opinion here, taking a very expensive device and calibrating it against a meter that has a 20 per cent range of variation? Ummm, now that makes sense, right? Not!
If I were really having trouble detecting lows, I?d get a dog. They?re faster at detecting the lows and don?t set off alarms if they?re not in the same room with you. <grin>
Veronica

Watch and hear The Guide Dog Glee Club sing the Star-spangled Banner at 
http://www.youtube.com/watch?v=dQNLclisGqQ
Then find more music from The Guide Dog Glee Club and Veronica Elsea at 
http://www.laurelcreekmusic.com
Veronica Elsea, Owner
Laurel Creek Music Designs
Santa Cruz, California
Phone: 831-429-6407

On May 4, 2014, at 5:03 PM, Mike Freeman <k7uij at panix.com> wrote:

> A CGMS is not a substitute for a regular glucose meter but can be useful in some situations.
> 
> Mike Freeman
> 
> -----Original Message-----
> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Sally Maguire
> Sent: Saturday, May 03, 2014 7:36 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] A Stripless Talking Meter ...
> 
> Eileen,
> 
> I would love to have a CGM, a continuous glucose monitor.  They don't have a talking one yet, but isn't that the perfect thing for us?  My doctor told me to talk to my senator.  
> I hear it costs about $4,000. per year, so you need a good insurance plan-not Medicare as I have.
> This is what the other diabetics on the Tour de Cure use while riding.
> 
> Sally
> 
> 
> 
> ----- Original Message ----- 
> From: "eileen scrivani" <etscrivani at verizon.net>
> To: "NFB Diabetes Talk" <diabetes-talk at nfbnet.org>
> Sent: Thursday, April 17, 2014 4:49 PM
> Subject: [Diabetes-talk] A Stripless Talking Meter ...
> 
> 
> Hi, 
> 
> Does anyone on this list know anything about a talking strippless meter for testing BG?s?  I have recently heard advertizements on TV from Ariva Medical promoting a ?talking? meter that does not use strips.  I know these types of things have in the past not been accurate, but it is tempting and I?m sick of the two meters out there that claim ?accessibility.?  So, even if the stripless meter wasn?t fully accessible, at this point I?m used to that anyway. 
> 
> Thanks for any input from those who know for a fact and have used the meter.
> 
> Eileen 
> 
> 
> 
> --------------------------------------------------------------------------------
> 
> 
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for Diabetes-talk:
>> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/1.sally%40comcast.net
>> 
> 
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
> 
> 
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-talk:
> http://nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/veronica%40laurelcreekmusic.com




From diabetes-talk at nfbnet.org  Sat May 10 04:20:02 2014
From: diabetes-talk at nfbnet.org (David Andrews via Diabetes-talk)
Date: Fri, 09 May 2014 23:20:02 -0500
Subject: [Diabetes-talk] Problems with E-mail
Message-ID: <auto-000153302662@mailfront4.g2host.com>

Hi:

About a day ago I wrote everybody telling you about a problem that 
the entire mailing list world, including nfbnet.org is having.  I am 
currently testing a fix that our software provider has developed.  I 
have instituted it on a few of our busiest lists, including this one, 
and intend to test for a couple days to make sure it is ok.

You may notice that the From: line is a bit different.  The main 
difference however is that the reply and reply-all commands in your 
mail program may not behave as they previously did.  This is a 
byproduct of the change, and there is nothing I can do about it.

Let me know of any other problems you have.

Thanks for your patience.

Dave




From diabetes-talk at nfbnet.org  Mon May 12 15:17:18 2014
From: diabetes-talk at nfbnet.org (Mike Freeman via Diabetes-talk)
Date: Mon, 12 May 2014 08:17:18 -0700
Subject: [Diabetes-talk] FW: [State-affiliate-leadership-list] State
	Chapters of DAN
In-Reply-To: <000001cf6d50$0b7ce720$2276b560$@panix.com>
References: <000001cf6d50$0b7ce720$2276b560$@panix.com>
Message-ID: <001e01cf6df5$471ef520$d55cdf60$@panix.com>

Greetings, all.

 

In addition to being President of the Washington state affiliate, I am
President of the Diabetes Action Network (DAN) division of NFB. I am aware
of DAN chapters in the following states:

 

California

Georgia

Indiana

Iowa

New Jersey

New York

Ohio

Oregon

Tennessee

 

Are there states with DAN affiliates other than those mentioned above? If
so, please let me know; I'm trying to compile a complete list.

 

Thank you in advance.

 

Mike Freeman, President

Diabetes Action Network

 

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